Fuzzylogic5 ♒️🔮 @Fuzzylogic5
Covid Long Hauler, 4 yrs+| Experiencer | Business Relations Advisor ITU | Nanu Project | Nanu App | Military Brat | Leaf Blowers Trigger Me projectnanu.com Boston, MA Joined June 2015-
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Please let this be it
If you are able to and interested in funding research into ME/CFS, Long COVID, Lyme, MCAS, and alike diseases - we want to talk. Please send me a DM or email ([email protected]) Funding strategically used with a high research/£ ratio is integral to solving this disease.
Sometimes pharmacy technicians at CVS insist that they don't have Novavax or confuse it with SpikeVax (Moderna). Then they check the fridge, and—lo and behold, there it is! If you're at a CVS and expect them to have stock, show them a picture and ask them to check the fridge!
Sometimes pharmacy technicians at CVS insist that they don't have Novavax or confuse it with SpikeVax (Moderna). Then they check the fridge, and—lo and behold, there it is! If you're at a CVS and expect them to have stock, show them a picture and ask them to check the fridge! https://t.co/URQWQYrYBr
I recently found out that CVS stores are starting to receive their Novavax JN.1 stock, but their website isn't updated yet. Here's a 🧵 about how to get a Novavax appointment at your local CVS store before they update their website, and what to expect. x.com/Friesein/statu…
I recently found out that CVS stores are starting to receive their Novavax JN.1 stock, but their website isn't updated yet. Here's a 🧵 about how to get a Novavax appointment at your local CVS store before they update their website, and what to expect. x.com/Friesein/statu…
Just your #UNGA lone maskers out here #saltingthevibes at #UNGA80 Summit high-level meetings, doing all we can to fly the flag for 400 million people impacted globally by #LongCOVID. Shout out to Aussie Plum Stone of @SaferAirProject who launch their Global Call to Action today!
Beautiful and succinct case made by @MichaelPelusoMD at the @HHSGov #LongCovid round table on what needs and can be done to find the answers we need. “I’m really here today to advocate for the importance of.. really scaling up our portfolio of clinical trials.”
Sen. Marshall Joins Secretary Kennedy & Other Top Medical Experts During Long Covid Panel Discussion “Long Covid has gone ignored & unaddressed for far too long. Millions of Americans are suffering..we have failed to research ways to help" -Sen. Marshall marshall.senate.gov/newsroom/press…
Hey folks! Long COVID Campaign is looking for a pro bono attorney to help us file to go from fiscal sponsorship to being an independent 501c3 nonprofit. If you or a lawyer you know is willing to chip in & give a few hours of time, please reach out! #LongCOVID #team #byUSforUS ♿
Dr. David Putrino HHS Long Covid Roundtable "We really have to look at each patient individually, the same way that we do with HIV care, the same way that we do with cancer care."
#LongCOVID forced me to withdraw from hospital chaplain training. So today: I'm praying for Long COVID breakthroughs. I pray for every expert & leader, for excellence & solutions from @SecKennedy @NIHDirector_Jay @DrMakaryFDA meeting today. It's always impossible until it's done.
Dr Robert Redfield HHS Long Covid Roundtable "4-5 yrs I would've argued pretty aggressively that there is not viral persistence with Covid. "Now, I am totally convinced that there is viral persistence in Long Covid. This is a chronic viral infection."
Tomorrow's HHS gathering of #LongCOVID experts is a critical meeting & opportunity for US patients. If I could share "Five Ideas Secretary Kennedy Could Just Decide Today" with these high-level officials—that don't require any new legislation, rules or funding now—they'd be: 1/x
Tomorrow's HHS gathering of #LongCOVID experts is a critical meeting & opportunity for US patients. If I could share "Five Ideas Secretary Kennedy Could Just Decide Today" with these high-level officials—that don't require any new legislation, rules or funding now—they'd be: 1/x
@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth @HHSGov @zalaly @SenToddYoung @FDA @US_FDA @VirusesImmunity @senyoung #HHSLongCOVID meeting now wrapped! Some BIG announcements today & real openings on collaborative work to further #LongCOVID research. Doing policy analysis now, will share some key "takeaways" & post full transcripts once have to share! Brass tacks: THE NEEDLE MOVED TODAY. 22/22
@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth @HHSGov @zalaly @SenToddYoung @FDA @US_FDA @VirusesImmunity @senyoung As wrap up, @MichaelPelusoMD critical point US govt-funded research only has best opportunity to succeed if implement dedicated, informed #LongCOVID grant review panels, faster turnarounds. @brucep13 agrees, shared delays he's faced. Another overdue change & win if happens! 21/x
@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth @HHSGov @zalaly @SenToddYoung @FDA @US_FDA @VirusesImmunity Another huge @senyoung moment, directly asks @ARPAHealth Acting Dir. Roos what specific timeline is to launch #LongCOVID work: "we've already begun this discussion", ARPA-H will get a plan for feedback out in "weeks, not months...we're very committed to doing this quickly" 20/x
@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth @HHSGov @zalaly @SenToddYoung @FDA @US_FDA @VirusesImmunity Great hand-off @MichaelPelusoMD & @VirusesImmunity on how even failed clinical trials valuable, notes Paxlovid trial, how were able to move quickly & affordably in a decentralized manner using next-generation trial platforms & meeting patients where they are: home very sick. 19/x
@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth @HHSGov @zalaly @SenToddYoung @FDA @US_FDA @VirusesImmunity The #LongCOVID community owes some gratitude to champion @SenToddYoung, who just circled back to convening a #LongCOVID pharma roundtable & offered to @SecKennedy to host it on Capitol Hill. It's a huge outcome of this meeting that patients have needed for years. Thank you! 18/x
@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth @HHSGov @zalaly @SenToddYoung @FDA Really grateful for @MichaelPelusoMD helping group circle back to @US_FDA guidance / collaboration needs & pharma roundtable questions just raised by @SenToddYoung! Follows good exchange between @VirusesImmunity & @NIHDirector_Jay on research pathways & collaboration. 17/x
@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth @HHSGov @zalaly #LongCOVID Champion @SenToddYoung asks @SecKennedy about @FDA options to accelerate #LongCOVID clinical trials & drug approval & if @HHSGov can host a roundtable with pharma—these would be huge opportunities for progress & patient community if are outcomes from this meeting. 16/x
@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth @HHSGov @zalaly speaks to lack of access to NIH dataset, spurs a quick, practical problem-solving session between @SecKennedy "seems like a no brainer" & @NIHDirector_Jay "I'm absolutely committed to making this happen". Will be interesting to track progress out of the meeting. 15/x

Graeme Rendall @graemerendall66
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Jeffrey Straubel @JeffreyStraube4
760 Followers 7K Following TOP BOARD MEMBER OF TESLA INC, Spacex, quantum Ai (Mars Exploration) Don't fall for scams. Elon Musk will never message you first!!!
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Engaging The Phenomen... @EngagingThe
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Ross Coulthart @rosscoulthart
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Jay Christopher King @JayCKing78
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𝐕𝐢𝐧𝐧𝐢�... @disclosureteamx
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Adam Goldsack @AdamGoldsack
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Ben Hansen @BenHansen00
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John Harwood @JohnJHarwood
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Nicholas Boyd-Gibbins... @NBoydGibbins
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