PROFILE H2020 @ITN_PROFILE
The ‘PROFILE’ Innovative Trainning Network aims at stratifying acquired thrombotic thrombocytopenic purpura #TTP. #H2020 #HORIZON2020 #EU itn-profile.eu Joined March 2016-
Tweets269
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Followers103
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Following130
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Likes200
PROFILE H2020 retweeted
Congratulations Johana Hridinova with an excellent #PhD defence! Very nice discussions on etiology and treatment of iTTP @ITN_PROFILE @UvA_Amsterdam @MaastrichtUMC @sanquin @KU_Leuven
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PROFILE H2020 retweeted
Thanks Marie Scully for highlighting our paper on #ADAMTS13 #TTP @ITNProfile @KULeuvenKulak @icosagen Transforming the major autoantibody site on ADAMTS13: spacer domain variants retaining von Willebrand factor cleavage activity | Haematologica haematologica.org/article/view/1…
PROFILE H2020 retweeted
6 non-overlapping fragments of ADAMTS13 were used to develop and validate a fine epitope mapping ELISA of autoantbodies in iTTP. This high-throughput assay may be used in future clinical studies. Read more at #RPTH: onlinelibrary.wiley.com/doi/full/10.10… @kvhoorel @KU_Leuven @VoorbergJ
PROFILE H2020 retweeted
Currently-published epitope mapping data of anti-ADAMTS13 autoantibodies in iTTP is broad due to the use of large protein fragments. Learn how @kvhoorel and colleagues fine-mapped these epitopes in 18 patients with iTTP. Results ➡️ onlinelibrary.wiley.com/doi/full/10.10… @KU_Leuven @VoorbergJ
PROFILE H2020 retweeted
Very well moderated Q&A session by Ilaria Mancini on the session of Thrombotic Microangiopathies at @isth. @BogacErcig @kvhoorel @ITN_PROFILE
PROFILE H2020 retweeted
Great collaborative work by the Vanhoorelbeke-team @KULeuvenKulak and Andres Mannik's cloning factory @icosagen. Nicely executed by star PhD student Kadri Kangro of @ITN_PROFILE onlinelibrary.wiley.com/doi/full/10.10…
PROFILE H2020 retweeted
COVID19 and TTP - TTP Network ttpnetwork.org.uk/covid19-and-tt…
A lovely #RareDiseaseDay for the #WalkForTTP. @Thrombosis_Lab @KULeuvenKulak @stadkortrijk @azgroeninge @RodeKruisVL @SanofiGenzyme @UZLeuven @KU_Leuven
The major from @stadkortrijk Vincent Van Quickenborne, supporting the #WalkForTTP initiative from the #ttpcommunity. @Thrombosis_Lab #rarediseaseday2020
Vicerector Piet Desmet from @KULeuvenKulak telling the #ttpcommunity “You never walk alone”. @Thrombosis_Lab #rarediseaseday2020
The voice of the patients #ttpcommunity #RareDiseaseDay
Prof. Karen Vanhoorelbeke from @Thrombosis_Lab giving an overview about research on TTP. @KULeuvenKulak #rarediseaseday2020
A closer look of the blood. #ttpcommunity #RareDiseaseDay @KULeuvenKulak
Listening to testimonies from patients from the #ttpcommunity, researchers, and physicians. #RareDiseaseDay @azgroeninge
Here is where TTP patients receive their therapy. #ttpcommunity #RareDiseaseDay @azgroeninge
We do not know how strong we are until being strong is your only choice. #ttpcommunity #rarediseaseday @azgroeninge
We are starting our #walkforttp celebrating #rarediseaseday. @KULeuvenKulak @azgroeninge @RodeKruisVL @SanofiGenzyme @stadkortrijk
TODAY!!! #RareDiseaseDay show your rare, show you care. Join the #WalkForTTP. From @KULeuvenKulak to @azgroeninge.
PROFILE H2020 retweeted
We're closing #DIATECH2020 with a visit to the @LeuvenU library. Thank you all for a nice conference and see you next time! #Leuven
PROFILE H2020 retweeted
In vitro #diagnostics very slow in entering the market. WHY? Delays go about upscaling difficulties, risk & profit, complexity of biology. ‘And probably we need more #women in the field too!’, says professor Joanne Macdonald, the only female at the panel discussion @DIATECH2020
Evident - H2020 @EvidentH2020
1K Followers 2K Following EVIDENT is #EU funded #H2020 project that promotes #energyefficiency by investigating #behaviouralbias of individuals’ decision making in energy consumption.
Da Vinci @DaVinciEUh2020
264 Followers 1K Following Crowd Journalism DApp that provides collaborative media production environment with live news video capturing, streaming, editing and trading @TrubloEu #H2020
Inclusion4Schools @Inclusion4scho1
316 Followers 1K Following I4S aims to reverse inequalities in schools and communities and to strive against the logic of exclusion in education. #H2020 #HorizonEU
SensApp FET-OPEN Proj... @SensApp_H2020
536 Followers 2K Following 🇪🇺 'Super-sensitive detection of Alzheimer’s disease biomarkers in plasma’ #FET_eu Open collaborative project funded by European Commission #H2020 #EU #EU_eic
JTH @JTHjournal
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Nihal Martis @NihalM_Nice
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UK Adult ITP Registry @UKITPR
173 Followers 151 Following Official Twitter of the UK Adult ITP (Immune Thrombocytopenia) Registry team. Latest news and developments relating to ITP. #ITPaware #ITPRegistry
DocMeetings_Hematolog... @DocmeetingsHema
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HaemophAmicus @HaemophAmicus
2K Followers 5K Following Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎
UK TTP Registry @UKTTPRegistry
106 Followers 105 Following The United Kingdom Thrombotic Thrombocytopenic Purpura (TTP) Registry based at University College London.
POTION Project @PotionProject
522 Followers 2K Following POTION, Promoting social interaction through body odours. Funded by #H2020 and involving 10 Partners of #EU. #POTIONProject
Jan Voorberg @VoorbergJ
215 Followers 71 Following Fully committed to advance our knowledge on bleeding disorders and thrombosis for the benefit of patients!
az groeninge @azgroeninge
4K Followers 1K Following Kwaliteitsvolle, veilige, toegankelijke, deskundige & integrale zorg voor elke patiënt, met respect voor eigenheid van iedereen. Zorgwerkgever van het jaar '23
Rens de Groot @RensdeGroot3
149 Followers 462 Following Scientist. #cardiovascular #ADAMTS #AutoimmuneDisease #ThromboticThrombocytopenicPurpura
AiPBAND @aipband_itn
50 Followers 137 Following An Integrated Platform for Developing Brain Cancer Diagnostic Techniques, a Marie Skłodowska-Curie Innovative Training Network @MSCActions @EU_H2020
M3DLoC Project @m3dloc
130 Followers 248 Following EC H2020 Project on Additive Manufacturing of 3D #Microfluidic #MEMS for Lab-on-a-Chip applications devices for #HIV #tuberculosis and #cancer #diagnostics
BIOSYSTEMS Department... @biosystkuleuven
1K Followers 2K Following Research group engineering life Crop biotechnics, Animal & human health and Mechatronics, biosensors & statistics #agriculture #livestock #healthcare
Ngen Yves Riyuh @Ngenyves
411 Followers 2K Following Chair of LifeAID; Coordinator-Coalition on Youth, Peace and Security in Central Africa (CJPAC); Researcher, Practitioner on Security, Peace, Governance, Rights.
CONVERGENCE of Humans... @ConvergenceHM
646 Followers 2K Following Joining SSH and ENG expertise for future Humans and Machines Convergence! Funded by JAES foundation. Note: Former MSCA A-WEAR channel.
Derek Kleinveld @derekkleinveld
145 Followers 525 Following MD| PhD. Anesthesiology resident @ ErasmusMC. Interested in trauma-induced coagulopathy, platelets, resuscitation, inflammation and organ failure.
EMRaDi @EMRaDi_project
17 Followers 60 Following A cross-border cooperation between health insurers, patient associations, a university and university hospitals Part of EU INTERREG V-A EMR programme
IRDiRC @irdirc
3K Followers 2K Following #IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
Ghulam Haiderᅠᅠ�... @ghaider72
731 Followers 4K Following Special Correspndent, https://t.co/n8NCaJU1Zy, Investigative Journalist with particular focus on climate change, energy. Views are personal. Retweets are NOT endorsement.
Muktar A. Gadanya, MF... @gadanya
4K Followers 5K Following Professor of Public Health at https://t.co/Q4TxC001c7 & Honourary Consultant Public Health Physician at https://t.co/dZiQF5hFZ5 . Recipient of @NGRPresident award of MFR
Zhugen Yang @zhugen
869 Followers 574 Following Professor of Biosensing and Environmental Health @CranfieldUni, Leverhume Research Leader, NERC Fellow, Marie Curie Fellow
Luis c Morales @lcmgmex
82 Followers 653 Following
Özgür Öztekin @zguroztekin
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peace 4 all @PrinceRajaImran
663 Followers 5K Following Whispers of Heart are always good. Was Addicted to Chocolate & Coffee. Rebellious & Freedom lover. Beside Nature Enjoy Economics, Foreign Policy n Travelling
Jose Abrantes @ec6f5a7356ac4f7
43 Followers 184 Following
ERDERA @ERDERA_org
4K Followers 2K Following The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
DIATECH 2020 @DIATECH2020
94 Followers 306 Following European Conference on Novel Technologies for In Vitro Diagnostics, held in Leuven, Belgium on 27th - 29th January 2020. Organized by @KU_Leuven @KULBiosensors
Lammertyn lab @lammertyn_lab
641 Followers 232 Following Official account of Biosensors group of Prof. Jeroen Lammertyn @KU_Leuven @biosystkuleuven, working on bioassay development, optical sensors, and µfluidics.
DrPasEle @DrPas84Ele
2K Followers 5K Following Communication | Advocacy | Policy | #Neuroscience #PhD | Founder n President of #RareSpecialPowers | #rarediseases | #pinksocks | Own views
(EDMA) European Disse... @EUDissemination
3K Followers 6K Following EDMA specialise in the promotion of EU and Internationally-funded research projects. Publishers of the Project Repository Journal: https://t.co/uVrzHfdxLM
Inventya Ventures @InventyaV
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ROBUST @ROBUST_EU
66 Followers 105 Following European Union’s Horizon 2020 research and innovation programme under grant agreement no 690416-H2020-SC5-2015-one-stage
X. Long Zheng, MD, Ph... @DrXLongZheng
1K Followers 420 Following Professor & Chair, @KUPathology; Expert in Transfusion Medicine and Coagulation, My lab @XLongZheng2 studies biology of #ADAMTS13, TMA, TTP and aHUS, etc.
BIC Conference @BIC_hemophilia
347 Followers 210 Following BIC is a time-honoured conference that is about advances in the hemophilias, rare inherited coagulation disorders, von Willebrand factor/diseases and TMAs.
Rare Diseases South A... @rarediseasessa
5K Followers 5K Following We're bridging the gap to improved quality of life, for a better tomorrow, for the #1in15 South Africans affected by rare diseases.
Simona Lohan @SimonaLohan
908 Followers 3K Following Researcher/Scientist, professor @TampereUni, visiting scholar @enginyeriauab
vinciane pirard @VPirard
145 Followers 604 Following personal tweets and interests - retweets are what they are. 🌍 🇧🇪 🇪🇺
JTH @JTHjournal
10K Followers 7K Following JTH will no longer have an active presence on X. While this account will remain available as an archive, we will no longer monitor comments or post new content.
Roc d'Azur CIC @RocdAzur
4K Followers 181 Following 🚵🏻 VTT ☀️Soleil ⛰Montagne 🌊Mer 👋 RDV du 8 au 12 octobre 2025 ! #RocdAzur CIC
Peter Lenting @LentingPeter
532 Followers 56 Following Biochemist, trained in the Netherlands, now in France (Inserm). Researcher in Thrombosis & Haemostasis; Hobbies: golf and football.
Jan Voorberg @VoorbergJ
215 Followers 71 Following Fully committed to advance our knowledge on bleeding disorders and thrombosis for the benefit of patients!
Genetic Engineering &... @GENbio
89K Followers 3K Following Serving the biotech industry since 1981. EIC @johnsterling4; publisher @liebertpub Subscribe to GEN: https://t.co/KzqMccOt9Q
Derek Kleinveld @derekkleinveld
145 Followers 525 Following MD| PhD. Anesthesiology resident @ ErasmusMC. Interested in trauma-induced coagulopathy, platelets, resuscitation, inflammation and organ failure.
M3DLoC Project @m3dloc
130 Followers 248 Following EC H2020 Project on Additive Manufacturing of 3D #Microfluidic #MEMS for Lab-on-a-Chip applications devices for #HIV #tuberculosis and #cancer #diagnostics
Piet Desmet @PietDesmet
2K Followers 333 Following Vice Rector KU Leuven & KU Leuven KULAK Kortrijk Campus / Academic Director KU Leuven Campus Bruges / Coordinator of the imec research team ITEC
BIOSYSTEMS Department... @biosystkuleuven
1K Followers 2K Following Research group engineering life Crop biotechnics, Animal & human health and Mechatronics, biosensors & statistics #agriculture #livestock #healthcare
EpiCARE @EpiCARE_ERN
3K Followers 455 Following European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
@ERN_RND 🧠 @ERN_RND
3K Followers 716 Following European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://t.co/nowjhyNigm
Kim Martinod @kmartinod
660 Followers 889 Following 🇫🇷🇺🇸🇧🇪back in 🇺🇸 Assistant Professor @URMC_DeptMed via @KULeuven Vascular Biology SSC Chair @ISTH Yorkie mom
ND4ID @ND4ID2016
170 Followers 174 Following New Diagnostics for Infectious Diseases is a Marie Skłodowska-Curie Innovative Training Network @MSCActions Project funded under @EU_H2020.
DIATECH 2020 @DIATECH2020
94 Followers 306 Following European Conference on Novel Technologies for In Vitro Diagnostics, held in Leuven, Belgium on 27th - 29th January 2020. Organized by @KU_Leuven @KULBiosensors
Michel Goldman @MichelGoldman
1K Followers 150 Following Founder of the I3h Institute, Chief Editor of Frontiers in Medicine, Former IMI Executive Director.
EU One Health @EU_Health
88K Followers 3K Following The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
Science for health @SciForHealth
90 Followers 22 Following The event connecting researchers and clinicians to promote inspired solutions to health challenges
NORBS @retkebolesti
392 Followers 366 Following NORBS, Nacionalna organizacija za retke bolesti Srbije - savez udruženja obolelih od retkih bolesti. Osnovni cilj - poboljšanje položaja obolelih.
Maladies Rares Info S... @maladierareinfo
3K Followers 1K Following Service d'information, d'orientation et de soutien spécialisé dans les maladies rares et l'errance diagnostique associée - n° vert 0800 40 40 43
Dragica Radojkovic @dragicaradojko2
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Rare Disease UK @rarediseaseuk
21K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
PSR Orphan Experts (n... @PSRorphan
5K Followers 3K Following We’ve moved! PSR Orphan Experts is now Ergomed. To stay updated on future news, please follow us on the Ergomed Twitter page at https://t.co/mWUAHD63Iq
OrphanDrugSummit @OrphanDrugSum
222 Followers 176 Following Driving Innovation and Investment Opportunities in the Multi-Billion Dollar Rare Disease Market
Enfermedades Raras @fundacionGEISER
2K Followers 281 Following Es la primer ONG paraguas, sin fines de lucro, en Latino América, luchando por mejorar la calidad de vida de quienes padecen una enfermedad rara.
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RareDiseaseFdn @rarediseasefdn
8K Followers 495 Following Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL
Global Genes @GlobalGenes
29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Rare Dis Prevention @RareDiseasePrev
35 Followers 23 Following It's said an ounce of prevention is worth a pound of cure. Sharing stories, questions and trends in the sub field of #RareDisease prevention.
Euro CF Pharmacy Grou... @ecfpg
435 Followers 245 Following Pharmacy professionals who care for people with cystic fibrosis
MetabERN @Metab_ERN
2K Followers 376 Following The European Reference Network for Hereditary Metabolic Diseases. A better future for Rare Inherited Metabolic Disease patients. RT ≠ Endorsement. #Together
ERDERA @ERDERA_org
4K Followers 2K Following The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
RareConnect @RareConnect
18K Followers 5K Following 🌐Connecting #raredisease patients globally at https://t.co/v6rTTK0X6I. 💻Website help at @RareConnectSup.
Alliance maladies rar... @AllianceMR
4K Followers 2K Following Collectif de 240 associations de malades portant la voix de 3 millions de personnes concernées par 7 000 #maladiesrares en France. Besoin d'aide ? 0800 40 40 43
Fondation Maladies Ra... @fdmaladiesrares
3K Followers 341 Following Fondation de coopération scientifique | Foundation For Rare Diseases - Foundation for scientific cooperation
VSOP, Patiëntenkoepe... @VSOPzeldzaam
941 Followers 292 Following De VSOP is de gezamenlijke stem van ruim 100 patiëntenorganisaties en 1,2 miljoen patiënten met zeldzame en genetische aandoeningen.
ZeldzameZiektenFonds @ZeldzameZiekten
1K Followers 334 Following Het Zeldzame Ziekten Fonds is een goed doel dat mensen met een zeldzame ziekte helpt en geld inzamelt voor onderzoek.
Novo Nordisk @novonordisk
53K Followers 42 Following We're dedicated to championing long-term health. Stay tuned for news and the latest in innovation 💙 #UnordinaryDrivesChange Community guide 👇
Novartis @Novartis
292K Followers 518 Following An innovative medicines company working to reimagine medicine. See our community guidelines: https://t.co/wolzG1zLye
J&J Innovative Medici... @JNJInnovMedEMEA
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J&J Innovative Medici... @JNJInnovMedBE
3K Followers 778 Following We innovate with purpose to lead where medicine is going. Our community guidelines: https://t.co/QS6ibhYP9A
Eli Lilly and Company @EliLillyandCo
144K Followers 1K Following Uniting caring with discovery to create medicines that make life better worldwide. Lilly’s official account (formerly LillyPad) https://t.co/oXewUD8FZI
CSL Behring @CSLBehring
9K Followers 489 Following We are driven by our promise to help patients lead full lives. See our community guidelines: https://t.co/kApe7qvO6t
Bayer | Pharmaceutica... @BayerPharma
158K Followers 869 Following The global pharmaceutical division of @Bayer. Data Privacy / Imprint: https://t.co/gfMuyBhmi1
AbbVie @abbvie
79K Followers 468 Following Official global handle sharing the latest news about our company, science & people. Review our guidelines: https://t.co/AY8CXTtpuM
Rare Disease Day @rarediseaseday
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5K Followers 2K Following https://t.co/fyNyv0FS57 The first biotech public benefit corporation est. 2014. Direct-to-patient and decentralized. Co-owner @epalrestat
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