Euro CF Pharmacy Group @ecfpg
Pharmacy professionals who care for people with cystic fibrosis ecfs.eu/projects/europ… Joined March 2016-
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Euro CF Pharmacy Group retweeted
First sessions of the day “Psychosocial Care in the CFTR Modulator era” - Dr Edwina Landau mentioning that it’s essential to involve the CF Pharmacist in managing psychosocial side effects of Modulators. Also a hot topic at the @ecfpg meeting yesterday. @ukcfpg
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Euro CF Pharmacy Group retweeted
Happy #RxTechDay to all the wonderful pharmacy technicians working to provide better care for people with Cystic Fibrosis A small and select, but growing group! You’re brilliant and you’re invaluable to us all
Euro CF Pharmacy Group retweeted
One for everyone affected by CF personally and professionally to complete @ukcfpg We know that getting the view of the CF community has helped shape research over the last few years… now let’s take it further!
One for everyone affected by CF personally and professionally to complete @ukcfpg We know that getting the view of the CF community has helped shape research over the last few years… now let’s take it further!
And that’s a wrap 🎬! Really wonderful being back face to face @ECFSConference #ECFS2022 & great to see lots of pharmacy teams presenting their work. Thank you Rotterdam! @ukcfpg @SianABentley @NicolajshawShaw
Tablet based audiometry in pwCF to monitor ototoxic effects of aminoglycosides - well done ECFPG pharmacists @Shereenyb and Jamie C 👏🏻 @ECFSConference @SianABentley @NicolajshawShaw
Edwin, one of our Dutch members giving a brilliantly patient centred talk (and entertaining!) talk on polypharmacy in the CFTR era @NicolajshawShaw @SianABentley @ECFSConference @ukcfpg
Busy day at @ECFSConference today…. Great seeing presentations from many of our members, and big plans ahead for ECFPG - drug app on the way & planning educational syllabus for pharmacy teams working with pwCF @SianABentley @NicolajshawShaw @ukcfpg
Sorry you couldn’t be here face to face @APaedPharmacist but here virtually at least 👏🏻👏🏻
Sorry you couldn’t be here face to face @APaedPharmacist but here virtually at least 👏🏻👏🏻
Euro CF Pharmacy Group retweeted
Monica our hard working pharmacy technician @ECFSConference in Rotterdam with her poster on how she been supporting patient medication 💊 supply’s @CFLeeds @LeedsHospitals
Euro CF Pharmacy Group retweeted
#ECFS2022 @ECFSConference Day 1 presenting @Msluclocket & #cysticfibrosis MDT colleagues discussing impact/outcomes of switching from one #PrecisionMedicine to another in #paediatric population @cftrust @cf_care @BWC_NHS @BCHPhysio @BWC_dietitians Great work everyone!
Only 5 weeks to go 🎉🎉 Lots to catch up on at @ECFSConference #ecfs2022 @ukcfpg @NicolajshawShaw @SianABentley
Roll up roll up.. it’s (hopefully) back to face to face conferences again! Pharmacy meeting back to its usual slot on Wednesday (8th June) afternoon - be great to see you all again @ukcfpg @SianABentley @NicolajshawShaw
Roll up roll up.. it’s (hopefully) back to face to face conferences again! Pharmacy meeting back to its usual slot on Wednesday (8th June) afternoon - be great to see you all again @ukcfpg @SianABentley @NicolajshawShaw
Euro CF Pharmacy Group retweeted
@ukcfpg @ecfpg really important refresh of an instrumental piece of work for defining research priorities for CF care. Literally takes 5 minutes to complete. #QuestionCF @patrickiwilson @NicolajshawShaw
@ukcfpg @ecfpg really important refresh of an instrumental piece of work for defining research priorities for CF care. Literally takes 5 minutes to complete. #QuestionCF @patrickiwilson @NicolajshawShaw
Euro CF Pharmacy Group retweeted
And we’re live! surveymonkey.co.uk/r/questioncf20… please let us know if the research priorities are still relevant 5 years on or if there’s something else research should be looking at! Please RT
Euro CF Pharmacy Group retweeted
Fantastic to collaborate with a great group of CF pharmacists on this project @ukcfpg @ecfpg . Next step: to embed adherence data in the prescribing process @cfhealthhub 😁 authors.elsevier.com/c/1doG75aosm75…
Euro CF Pharmacy Group retweeted
Annual @ukcfpg study day is happening today (virtually of course). Really looking forward to seeing all of the speakers today even if we can’t catch up ‘off screen’. Thank you to @MariLeaDavies1 and Douglas for organising what a fantastic programme of speakers
Euro CF Pharmacy Group retweeted
Happy Tuesday! First publication from my @NIHRresearch / @NHS_HealthEdEng pre doctoral fellowship! @janedaviescf @ImperialNHLI Clinical PK & dose recommendations for posaconazole gastroresistant tablets in children with CF academic.oup.com/jac/advance-ar…
A huge thanks to @ECFSConference for a great conference. Although we’d all have loved to be in Milan we reached a wider audience with a huge turnout for our Pharmacy meeting - 105 attendees from 21 countries 🤩. See you in Rotterdam next year! @SianABentley @NicolajshawShaw
Cystic Fibrosis Trust @cftrust
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British Thoracic Soci... @BTSrespiratory
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Sian Bentley @SianABentley
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UHB CF Dietitians @CF_dietitians
730 Followers 254 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
CFHealthHub @cfhealthhub
737 Followers 725 Following Digital behaviour change & learning health system to support people with #cysticfibrosis to build habits for treatment-taking. Views of the authors only.
Tracey Daniels @thecfphysio
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Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
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1K Followers 40 Following Follow us for information about the ECFS conferences & affiliated events. Join us on 4-7 June 2025 at the MICo in Milan! We look forward to seeing you!
Cystic Fibrosis @CFLeeds
669 Followers 106 Following Keeping you up to date with news and events on the Adult CF Unit in Leeds #J6CFUnit
ManchesterCFResearch @Manchester_cf
1K Followers 311 Following From the Cystic Fibrosis research group at Manchester University. A forum to update public, patients, and other researchers on what we do and why we do it.
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Marrah Lachowicz-Scro... @LachowiczMarrah
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NHS NE&Yorks AMR - Ph... @AntibioticLeeds
6K Followers 2K Following @nhsney Regional Antimicrobial Stewardship Lead. Visiting Prof @LeedsMedHealth @HCAILeeds @AMRatLeeds VP @BSACandJAC @ukcpapin @fip_org tweets = own view
Cystic Fibrosis Regis... @CFRegistryIE
208 Followers 144 Following Official CFRI twitter. The patient registry for people with cystic fibrosis in Ireland. Retweets not an endorsement. Seek the advice of your physician.
Katy Ellis @Katy_S_Ellis
554 Followers 380 Following 💊 Respiratory/CF pharmacist • Tutor @pharmacyfoundts • Former split pre reg (GP and hosp) • Own views • she/her 💊👩🏼🎓🎻
Pharmacy Academy @HPAPharmacyAcad
440 Followers 949 Following We have moved! Follow our main account @HealthProfAcad for free CPD learning resources for pharmacy professionals and the latest industry news
CARDS-CF @CARDSCFresearch
140 Followers 158 Following A comprehensive approach to the relief of digestive symptoms in cystic fibrosis. CARDS-CF research study.
Rebecca Calthorpe @DrRCalthorpe
162 Followers 268 Following East Midlands Paediatrics Trainee. CARDS-CF Clinical Research Fellow investigating gut symptoms in CF
Esther Brownrigg @estherb54
335 Followers 564 Following Clinical Pharmacy Development Lead, RPS member, favourite sister, doting aunt, love to roam & this is my own view of the 🌎
NEEMO @NEEMOcf
112 Followers 139 Following National Efficacy-Effectiveness CFTR Modulator Optimisation Programme. Aiming to understand inhaled therapy for people with cystic fibrosis taking modulators.
Fiona Everest @millerfee
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MECFA @mecfassoc
464 Followers 644 Following Working to help Middle East Cystic Fibrosis patients live longer healthier lives. Follow us to learn how we make a difference.
Cystic Fibrosis Trust @cftrust
27K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Alan Smyth @AlanRSmyth
635 Followers 168 Following Paediatrician, Clinical Researcher, Cyclist and Pilot. The views expressed are my own
British Thoracic Soci... @BTSrespiratory
25K Followers 440 Following The British Thoracic Society is the largest respiratory membership body in the UK. We work towards better lung health for all. Our tweets are not endorsements.
Sian Bentley @SianABentley
436 Followers 585 Following Consultant Pharmacist, Paediatric CSLD @RBandH. Interested in fungus in children with CF. Love music & festivals (not mud).
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
CFHealthHub @cfhealthhub
737 Followers 725 Following Digital behaviour change & learning health system to support people with #cysticfibrosis to build habits for treatment-taking. Views of the authors only.
Tracey Daniels @thecfphysio
2K Followers 2K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
Gemma Stanford (PhD) @GemStanf
643 Followers 367 Following Head of AHP Research for the HLCC clinical group of GSTT, YOGA-CF co-PI, specialist CF physiotherapist. Current chair of the ECFS PhySIIG. All views my own.
CF BDA Specialist Gro... @bda_cf
563 Followers 523 Following British Dietetic Association Cystic Fibrosis Specialist Group, Established over 20 years ago, but launched as an official BDA Specialist Group on 1 March 2019
CF Ireland @cf_ireland
5K Followers 2K Following Cystic Fibrosis Ireland is the national charity dedicated to improving treatment & facilities for people with CF in Ireland. (RCN) 20011376
Patrick Wilson 💙 @patrickiwilson
1K Followers 2K Following Chief Pharmacist @SFHTPharmacy with an interest in all things respiratory and CF. Fan of books and the music of grumpy old men
European Cystic Fibro... @ECFSConference
1K Followers 40 Following Follow us for information about the ECFS conferences & affiliated events. Join us on 4-7 June 2025 at the MICo in Milan! We look forward to seeing you!
Cystic Fibrosis @CFLeeds
669 Followers 106 Following Keeping you up to date with news and events on the Adult CF Unit in Leeds #J6CFUnit
ManchesterCFResearch @Manchester_cf
1K Followers 311 Following From the Cystic Fibrosis research group at Manchester University. A forum to update public, patients, and other researchers on what we do and why we do it.
Royal Pharmaceutical ... @rpharms
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Toby Capstick @TCapper78
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CF News Today @CFNewsToday
5K Followers 2K Following We are dedicated to sharing the latest news, research, and patient perspectives from the CF community.
Royal Brompton and Ha... @RBandH
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Louise Bracken @BrackenLouise
253 Followers 338 Following Senior Research Pharmacist and Co-Director Paediatric Medicines Research Unit, Alder Hey Children’s Hospital
Paediatric Medicines ... @PMRUalderhey
326 Followers 131 Following Working to improve paediatric health through research into safer medicines management and age appropriate formulations
Connie Takawira @Concon9313
111 Followers 461 Following Pharmacist, Partnership manager @CFAMRSyndicate @MedDiscCat. Views my own
Jamie Cheong @Jamiecheong1
26 Followers 48 Following
Lorna Allen @alloonsl
807 Followers 1K Following Cystic Fibrosis mum, raising awareness of ongoing critical resesrch need to safeguard the lives of those with the condition IT'S NOT JUST LUNGS;Views are my own
Lizzie grillo @GrilloLizzie
2K Followers 926 Following (she/her) Respiratory Physiotherapist and NIHR Trainee. Passionate about breathing pattern, airways clearance & making the world smaller by collaboration!
Child Health Internat... @ChildHealthInt1
87 Followers 64 Following Helping children and young adults with #cysticfibrosis live life. Building international medical partnerships and sharing best practice across borders.
Emma Raywood, PhD @Fizzy_Emma
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Gwyneth Davies @DaviesGwyneth
185 Followers 187 Following UKRI FLF (UCL), paediatrician (GOSH), mum. Research: Cystic Fibrosis, treatment burden, co-design, health informatics, pragmatic clinical trials. Views my own
Lesley Blaikie @BlaikieLesley
182 Followers 262 Following Cystic Fibrosis Nurse #scottishnurseoftheyear2018
Kavita Dave @KavDav86
266 Followers 234 Following Passionate about the NHS, family, CF and transplant. Proud ISHLT and BTS member. Consultant in lung transplant and respiratory medicine 😱. (views all my own)
Reena b @Shereenyb
214 Followers 483 Following ILD Pharmacist 🏨👩🔬. Interested in all things medicine 💊. DHealth LDN -Digital Pioneer fellow 2021. All views are my own.🇯🇲🇬🇩🇬🇧
Sarah Collins @MAGIC4cfd
20 Followers 6 Following PhD research fellow and CF Specialist Dietitian. Developing a self-management education programme for people with CFD.
European Cystic Fibro... @ecfs_ecfng
317 Followers 244 Following European Dietitians working with people with cystic fibrosis to support optimum nutrition and improve clinical outcomes
Catherine Fordyce @Cath4dice
244 Followers 332 Following Specialist CF Physiotherapist @ MACFC. CF Trust Physiotherapy Fellow 2019-2020. Views are my own
Nikesh Gudka @Nikesh1980
40 Followers 170 Following
Mira Osinibi @MiraOsinibi
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Vibha Teli @TeliVibha
138 Followers 320 Following Principal Technician Clinical Trials Royal Brompton and Harefield NHS Trust. Masters in Clinical Research, Cardiff University. All views are my own.
Jo Snowball @SnowballJoanna
201 Followers 256 Following Cystic Fibrosis Dietitian, Oxford, NIHR Pre Doctoral Clinical Academic Fellow. Interested in nutritional and metabolic effects of kaftrio Views my own.
Dr Sarah Elliott @sarahel46588425
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25 Followers 104 Following Paediatric pharmacist, like running & bake off, dislike cycling in the rain
H Phan @phantasticRxNrd
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CFArtists @CF_Artists
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Hospital Healthcare E... @HHE_Digital
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Beam @beamfeelgood
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Take A Breather Found... @TakeaBreatherCF
392 Followers 351 Following Giving those living with #cysticfibrosis the opportunity to "take a breather" from the daily struggles of their disease, in the form of a respite #Wish.
Alison Kuter 🫁🩺... @alisonkuter
1K Followers 5K Following Cardiorespiratory Physiotherapist | Lecturer | Researcher | BPhysio GradDipEd BSc #rehabbeginsdayone Views are my own
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123 Followers 147 Following
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111 Followers 483 Following Respiratory Physiotherapist. Mother of 3. All views my own.
💙Fiona Moore💙 @fionamooreRD
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Sarah Evans @SarahEvansCPPE
580 Followers 789 Following BSc(Hons) MAPharmT Senior pharmacy technician learning development/passionate about education/loves an adventure/Views my own.
Chloe Benn @chloeebenn
758 Followers 768 Following Consultant Pharmacist for children's health. Vice chair Neonatal Paediatric Pharmacy Group (NPPG) Views my own.
York Hull Adult CF Ce... @yorkhullcf
408 Followers 311 Following Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.
Dr Katie Bayfield @ktjbay
332 Followers 794 Following Respiratory Physiologist from London, Currently at Westmead Children’s Hospital in Sydney. Research in cystic fibrosis. Self proclaimed foodie!
Blackpool Adult Cysti... @AdultCystic
257 Followers 359 Following We are a friendly and welcoming team, aiming to provide excellence in adult CF care. We look after patients with CF from the Lancashire and South Cumbria areas.
NuvoAir Medical @NuvoAir
745 Followers 1K Following NuvoAir Medical is a virtual healthcare provider that’s changing the way heart and lung conditions are diagnosed, monitored, and managed.
Leeds Adult Cf Dietit... @adult_cf
185 Followers 248 Following CF dietitians @ adult CF unit Leeds. Passionate about nutrition in CF, CFRD, Bone Health. Happy, dedicated dietetic team! Own views.
Sian Rooney @RooneySian
1K Followers 2K Following Deputy Medication Safety Officer, Chief Pharmacy Technician UHNM. Patient & Medicines Safety enthusiast.Proud Mama & lover of walking the hills. Views my own
YouthActiveUnlimited @CF_ActiveYouth
516 Followers 1K Following Youth Activity Unlimited is one of the Cystic Fibrosis Trust’s Strategic Research Centres - dedicated to helping adolescents with CF to be active without limits
Lyndon Webb @LyndonWebb8
103 Followers 534 Following National Sales Manager & Pharmaceutical lead @ PARI UK. Dad of 3 boys. Coach, Demi Chef, husband. Fluent in grizzly bear.
lynnelsey @lynnelsey
673 Followers 560 Following Consultant Respiratory/ Severe asthma pharmacist at Manchester Foundation Trust and North West Severe Asthma Network.
Nick Talbot @CF_vs_Everest
2K Followers 920 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Samitha Fernando @BSMfernando1
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