Jessica Fein @JessieFein
Author...Brand Strategist...Rare Disease Advocate...Avid Reader...Mitomom Boston Joined October 2010-
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I don't like small talk under the best of cicumstances. It's even worse when you're grieving. Here's my latest for @PsychToday on the topic: How to Engage in Small Talk During Grief | Psychology Today psychologytoday.com/intl/blog/grac… #grief #graceingrief
“It is about the democratization of power. What are we going to do now that we’re invited into the room?” Listen here idontknowhowyoudoit.com/2121591/130608… #WomenEmpowerment
Pediatric home care nursing is necessary for some families. It can bring relief - and also add more to the mental load. Mom, @JessieFein describes some of this in CPN's latest blog. read: hubs.li/Q01Tj2Gt0 #raredisease #pediatrichomecare #pedpc #courageousstories #blog
If you read #tuesdayswithmorrie (and who didn't), you might be interested in hearing my interview with Morrie's son, Rob, on "I don't know how you do it" podcast. #wisdom #stayhuman #tensionofopposites
Struggling to sell my first book, after a year of publishing rejections, everywhere I turned were stories of bestselling authors whose eager readers stood for hours to attend signings. Their books were selling in the hundreds of thousands, even millions, and being adapted for…
Creativity is a balm for me. Here's why: The Surprising Tool Grievers Might Want to Try | Psychology Today psychologytoday.com/us/blog/grace-…
Last week I saw a gay contestant win the bonus round on #WheelOfFortune What happened next on the show bummed me out and made think about what's happening in this country right now and how we move forward, so I wrote about it for @HuffPost Personal huffpost.com/entry/wheel-fo…
Profound article filled with many ways to best support a #grieving #parent. The first interview is with @JessieFein. #grief #bereavement @MitoAction apple.news/AjS9uYHZoS1mk9…
What happens when you find out your husband is going to star in @Hamilton the very same week you find out your daughter has a devastating disease? Listen to "Navigating Grief and Joy Inch by Inch with @KellyCrvantes at buzzsprout.com/2121591/125187…
| What happens to grievers when they feel happy? #grief #graceingrief @PsychToday psychologytoday.com/intl/blog/grac…
Thank you @JessieFein for a wonderful new episode of #Idontknowhowyoudoit podcast. Bunny Young was a great guest, and I felt like I could relate to her on advocating for myself. It felt validating to hear it from someone new.
There’s no hallmark card or ritual for ambiguous grief. Read about it here #Grief #Grief #shiva #ambiguousgrief #graceingrief. psychologytoday.com/intl/blog/grac…
"She taught me that sometimes the goal isn't to find the light at the end of the tunnel, but to make the tunnel itself as beautiful as possible." Read my piece in @HuffPost for #RareDiseaseDay2023 huffpost.com/entry/merrf-sy… via @HuffPost #Grief #caregiving #mito
Embrace fear and follow your dreams. On this episode of "I Don't Know How You Do It," Vickie Leuenberger shares her story of giving up her job, embracing fear and moving to a life at sea. Tune in to hear out how she did it #IDontKnowHowYouDoIt #DreamsComeTrue #SailAway
Sound familiar? Check out my new podcast where I talk to people whose lives seem unimaginable and find out how they are able to do things that seem undoable. Wherever you get your podcasts. #mito #podcastlaunch #resilience #rare #selfcare
Feeling awkward around your #grieving friend? Here's how to get over it @psychologytoday psychologytoday.com/blog/grace-in-…
Had such fun w/ this superstar! ✨ #BestsellerHabits #BeautifulWritersBook
Had such fun w/ this superstar! ✨ #BestsellerHabits #BeautifulWritersBook
Have you ever thought, “I’d love to write a book someday…” 📚 Today’s episode with 2x NYT Bestseller @linda_sivertsen will show you how to beat the odds. 🎉 Search “MarieTV” or “The Marie Forleo Podcast” to watch or listen to gain insight from this incredible conversation.
Are Grief and Gratitude Mutually Exclusive? #Grief #gratitude | Psychology Today psychologytoday.com/blog/grace-in-…
Being present for a grieving friend by recognizing and bearing witness to their pain is at least as important as the words you have to offer, explains @JessieFein bit.ly/3E02mrM
Virtual Facts @virtual_facts_
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Christina Williams @AKallagunt29920
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239 Followers 5K Following I'm stjepan hauser I am into Super music I love playing cello music 🔥🎻🇭🇷 I am on (YouTube)
David Garrett Violin @garrett_da83934
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Sarah Hashem @SarahHa02995552
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j.j.wolfe | ♡ | fre.. @jjwolfewrites
142 Followers 329 Following another writer healing from heartbreak through words. #relationships #love #heartbreak #breakups #marriage #hotyoga
Turkish Politics 🇹.. @TurkishPolitics
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Carrie Murphy @carriemurphy071
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Veronica albert 23 @PurityB93583
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Lena Smith @landislokita1
81 Followers 211 Following “Success is peace of mind, which is a direct result of self-satisfaction in knowing you made the effort to become the best of which you are capable.”
Lacey Cory @LaceyCory166259
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Sarah @suddenlysarah81
169 Followers 609 Following Music geek. Photography. All things art and science. Lover of print, film, The Beatles, Queen and social justice. BLM, Brian May, Space. My tweets are my own.
Karen DeBonis, author @KarenDeBonis
8K Followers 4K Following GROWTH: A Mother, Her Son, and the Brain Tumor They Survived-- out now! @nytimes @huffpost @thisisinsider @newsweek.com @today.com #peoplepleaser
Humartfo @Humartfo
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MamaBearforRare @MamaBearforRare
700 Followers 1K Following @Mamabearforrare Just your average Mama making the world more inclusive by sharing stories about my child with Jordan’s Syndrome.
Courageous Parents @CourageousCPN
772 Followers 434 Following Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious illness. #Pedpc
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DYNC1H1 Association @dync1h1
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Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Yvonne Liu is on Subm.. @YvonneLiuWriter
4K Followers 4K Following Over 3 M read my @HuffPost #adoptee story. Bread Loaf & Tin House Winter 2023 & 2024 @NYTimes @Salon @Newsweek @The_Rumpus @NBCNews Modern Love podcast. Memoir.
Sherene Michlin @sherene_michlin
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Taylor Kane @rarelikeher
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Alexandra Rosas @GDRPempress
9K Followers 4K Following Mainstage storyteller/GrandSlam Champion with The Moth, Writes for Purple Clover and HuffPo, BlogHer Voice of The Year, Babble Top100 Mom Blogger.
Judith van Praag @DutchessAbroad
2K Followers 4K Following INFJ-T Arts-dependent writer, green, at times blue, caregiver, 2G tweets @PowellHeller, Dutch @inhaarmoerstaal RT ≠ endorsement https://t.co/oYJcf0Mex1
Abby Alten Schwartz @abbys480
5K Followers 3K Following Healthcare writer. Freelance journalist. Essayist. Bylines @washingtonpost @nytimes @WIRED @HuffPost & more. #binders Memoir rep’d by @trinitygr
Marcy Bernstein @marcy_bernstein
10 Followers 85 Following Living in each moment. Understanding that life is fragile.
Tawfiq Hasan Rabby @TawfiqRabby
409 Followers 3K Following 🎙Podcaster / Podcast Host / Apple podcast / Podcasting / Specialist on Social Media Marketing
Silvana Cory-Wright @schoolsinsider
5 Followers 112 Following Passionate about empowering the next generation kids to thrive and become confident happy people https://t.co/sYuxr3FQKN
P O L I T I C O |🍀.. @Poli_tike
160 Followers 2K Following Politics is how we see the past, live the present, work and plan for the future. Be a part of politics! CONTRIBUTE, EXPRESS ...!
tunnie a.k.a Vlogista.. @trendyholder
22 Followers 133 Following A woman of purpose with big dreams. New videos every other Saturdays… ish. https://t.co/FnYoKv44Sw… Follow
foodtrumpsall @foodtrumpsall1
1K Followers 5K Following CEO & Co-Founder @eatyough Frozen 🍕and dough made from Greek yogurt. Find us @erewhonmarket @foxtrotmarket @gopuff and on our website!
Philip @WisdomP39316308
94 Followers 274 Following follow promise to follow back love and unity perfect in BBQ preparation
Lisa Newport @LisaNew54904867
56 Followers 185 Following Trendy, Fashionista, Fashion Model 🇺🇲Take it one step at a time. Anti Trump.
CureMITO @cure_mito
1K Followers 1K Following Our mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures. #leighsyndrome #mitochondrialdisease
Keri Kneeskern @KneeskernKeri
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Marilyn Wurth Roof @Macawur
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rai @raiiiiyo
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Karen DeBonis, author @KarenDeBonis
8K Followers 4K Following GROWTH: A Mother, Her Son, and the Brain Tumor They Survived-- out now! @nytimes @huffpost @thisisinsider @newsweek.com @today.com #peoplepleaser
MamaBearforRare @MamaBearforRare
700 Followers 1K Following @Mamabearforrare Just your average Mama making the world more inclusive by sharing stories about my child with Jordan’s Syndrome.
Courageous Parents @CourageousCPN
772 Followers 434 Following Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious illness. #Pedpc
Patti M Hall @PattiMHall
2K Followers 3K Following Master Story Alchemist. Book and writing coach to thought leaders, transformational coaches, medical geniuses and change makers. Author of Loving Large (2020).
Susan Shapiro @Susanshapironet
36K Followers 31K Following InstantGratificationTakesTooLong writingprof #Binder #ASJA bestselling author/coauthor 5MENWHOBROKEMY❤️ BARBIE AMERICANSHIELD & 2024: FORGIVENESSTOUR paperback
Caitlin Nichols, PhD @caitlinanichols
790 Followers 1K Following @Harvard Biomedical Sciences PhD | Writer, editor, speech geek, tap dancer | #cancergenomics #scicomm #raredisease | Views my own
Noah Michelson @noahmichelson
23K Followers 3K Following Head of @HuffPost Personal. Host of D Is For Desire podcast. DMs open. [email protected]
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Yvonne Liu is on Subm.. @YvonneLiuWriter
4K Followers 4K Following Over 3 M read my @HuffPost #adoptee story. Bread Loaf & Tin House Winter 2023 & 2024 @NYTimes @Salon @Newsweek @The_Rumpus @NBCNews Modern Love podcast. Memoir.
Abby Alten Schwartz @abbys480
5K Followers 3K Following Healthcare writer. Freelance journalist. Essayist. Bylines @washingtonpost @nytimes @WIRED @HuffPost & more. #binders Memoir rep’d by @trinitygr
Judith van Praag @DutchessAbroad
2K Followers 4K Following INFJ-T Arts-dependent writer, green, at times blue, caregiver, 2G tweets @PowellHeller, Dutch @inhaarmoerstaal RT ≠ endorsement https://t.co/oYJcf0Mex1
Taylor Kane @rarelikeher
3K Followers 1K Following Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
Sherene Michlin @sherene_michlin
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Linda Sivertsen @LindaSivertsen
3K Followers 477 Following Author (Beautiful Writers, GenGreen🌿...). FSC Ambassador🌲Beautiful Writers Podcast 🎧Writing Retreats: Carmel & Virtual📚🐴 🐶🧑🏻🦱mom. https://t.co/eIUBkql9Lg
Marie Forleo @marieforleo
213K Followers 102 Following #1 NY Times Bestselling author of #EverythingisFigureoutable. CEO. Dancer. Host of #MarieTV & #TheMarieForleoPodcast.
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Lauren Wellbank @LaurenWellbank
3K Followers 2K Following Freelance Writer | Plant Lady | She/Her | #binders | 📧 [email protected]
Lizzie Roberts @BerlinLizzie
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Leigh Hopkins @LeighHereNow
3K Followers 3K Following Curator & Editor: Khôra | Words @BOMBMagazine @longreads @The_Rumpus @mcsweeneys etc | Teaching @corporealwrite | Rep’d by @kentdwolf | 🏳️🌈
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8K Followers 5K Following KNOCKED DOWN: A High-Risk Memoir, WE GOT GAME! 35 Female Athletes Who Changed the World. Kvetcher. Wanderer.
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1K Followers 4K Following Born curious: former refugee, lifelong learner, aspiring author, Voter Educator 🚫crypto and DM’s Please!
Bank of America @BankofAmerica
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560 Followers 482 Following Inspirationalist, Visionary Founder of G.O.T. Foundation, Inc. & House of Hope & Healing. Gifted to Edify, Empower, Inspire, Enlighten & Heal.
Philip Palermo @Philip_Palermo
2K Followers 1K Following Father of a child w/ CLN1 (Batten Disease). Video for @getfandom @tvguide @gamespot. Formerly of Engadget and Reviews dot com. (He / Him)
Danielle Datu @danielledatu
1K Followers 407 Following deputy audience editor @huffpost drinking my water, working on vertical video: https://t.co/1lpmcN0o9s https://t.co/lzX8V5EV08
Melissa Engel @ItsMelissaEngel
2K Followers 2K Following Clinical Psychology PhD Student @EmoryUniversity | Developmental Psychology MA @UMN_CEHD | RYT-200 | Research Stress + Resilience in Childhood Chronic Illness
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100 Followers 106 Following Seeking representation: DAMN, GIRL: A Miraculous Memoir. Words @newsweek @insider @zibbymag @yahoo, I mostly post on IG
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angeline rodriguez @gelrdrgz
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Amanda (Sina) Griffit.. @BumblePR
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Adam Johnson - DadVoc.. @RareDiseaseDad
1K Followers 1K Following Dad w/#RareDisease | #Mito Advocate |🎙Host: #ParentsAsRare | Educator | Support | Kindness | Dad Jokes |#MentalHealthMatters | #BoiseState | ⚾️ @Cubs 🏈@49ers
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17K Followers 526 Following Mother of Charlotte Jane, Founder of Sassy & Jane magazines, Jane Radio, Jane Pratt Show, XOJane and now the non-eponymous @deeddadotcom
Amelia Edelman @apedelman
5K Followers 3K Following she/her 🌎 traveler, editor 🖊 @bbc_travel @travelleisure @parents @scarymommy @instyle @realsimple @sheknows @refinery29 etc. 🚕 New Yorker in Nashville
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1K Followers 315 Following new yorker. journalist. news editor at @parents
Allison Lane @allisonlanelit
1K Followers 1K Following Helping Women Get Published + Launch Their Books. #Fortune 50 Exec | schedule a free consult https://t.co/cdUxidB863
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912 Followers 1K Following Author. Professor. Editor. Mama. Friend. Muse. Essay Whisperer. Athlete. Reader. Small Business Woman. https://t.co/207AxsW1OA https://t.co/Jej7F3LFkh
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
Rabbi Danya Ruttenber.. @TheRaDR
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Zoé @ztsamudzi
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Ashley C. Ford @iSmashFizzle
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Tressie McMillan Cott.. @tressiemcphd
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314K Followers 1K Following I write about abortion every day. Read my newsletter & find me other places here: https://t.co/nDdc3TtV7K Fellow, @TypeMediaCenter
Imani Gandy (Orca’s.. @AngryBlackLady
265K Followers 2K Following Three dogs. Two kitchens. Zero chill. | Lawyer. | Journalist. | co-host #BoomLawyered | “Queen of fucking Twitter or something.” | The Real Racist™ | 🏳️🌈
@ImaniBarbarin@disabl.. @Imani_Barbarin
221K Followers 1K Following she/her Black girl magic+disabled pride |MA Global Comms | my thoughts | #DisTheOscars + #AbledsAreWeird #ThingsDisabledPeopleKnow | ✉️ imani.barbarin gmail
Holly Kearl @hkearl
7K Followers 6K Following Founder of @StopStHarassmnt. Author of 3 books, 90+ articles. Work with @AspenNewVoices (but views here are my own). Momma of 2, one w/rare diseases. #feminist@jacgorelick If you know you’ll be giving blood, start hydrating at least a day ahead. Makes finding a good vein easier.
I arrived in TX for the @BDSRA conference and got picked up at the airport by this babe. @thegr8chalupa Isn't twitter amazing?! #RareMama #RareDisease
I’ve said it before & I’ll keep saying it until I can’t anymore: Patients & caregivers shouldn’t have to fight, scrap, & claw for a real seat at the table. We are the table! Bring us in from the beginning & don’t shove us out once we are there! #Exhausting #RareDiseaseTruth
I’m in my hometown in Wisco and it’s raining, so I’m doing my daily walk at the mall, which was the most exciting place on Earth in the 80s and now it’s just me and a few teens browsing Hot Topic and the Spencer’s that’ll never go extinct and I don’t know if I should laugh or cry
Ford. Getting back out there to do the hard work. Even with his skinny frail body. #Warrior #CTNNB1 #RareDisease
Instead of focusing on my own writing, I spent most of today working on two articles due next week for clients and I think that's called adulting. Future me is going to love present me for making next week less stressful.
Say it with me: "Patient AND Caregiver Voice" Many of the #RareDisease patients literally have no voice and have intellectual disabilities. The Caregiver Voice IS their voice. #CTNNB1
My little buddy has been in the hospital all week- he's on the mend and hopefully coming home today. To all the beautiful people I cancelled on... 😬😬😘😘 Melted rare mama 🧠 is a thing - so please make sure I get it all re-booked! Fords got his one good eye on you. #CTNNB1
When an agents query form asks: “Why are you the one to write this book?” Me: because… I wrote… the book??? That ain’t enough?? #WritingCommunity
Struggling to sell my first book, after a year of publishing rejections, everywhere I turned were stories of bestselling authors whose eager readers stood for hours to attend signings. Their books were selling in the hundreds of thousands, even millions, and being adapted for…
Just over here making the podcast studio of my dreams. Can't wait to be on a zoom call with you 😉 #RareDiseasePodcast #CTNNB1 @DisorderRare
My sister Sarah got married last weekend and I was the lucky goon who got to officiate and it was honestly 48 of the most joyful hours of my life with some of the people who mean the most to me all in one place and here’s to years and years filled with more more more joy
Happy day in May to anyone who is someone who raised or is raising a child or a dog or a cat or a tarantula or a really temperamental house plant and to anyone who is always there for someone like a mom would be and to anyone who is missing someone who was or ever felt like a mom
This is for all my #RareMamas out there. You carry a weight that is otherworldly, you love fiercely and you wake up every day to make this world better for all our kids. Thank you🩷
2. Some unidentified woman told a summer camp she would not be donating her horses this summer unless Ford could come. So he's in. 🐎🐎🐎🐎😬😬🩷🩷🩷 You never know who's 🎧 listening. We are so grateful to people who step up with absolute kindness for this little boy.
@JessieFein @MitoAction @ktrenier @OnceUponAGene @HITeaWithGrace @AftrTheShock Thanks, Jessie! Appreciate you & all you do. Wonderful to see you again!
Honored to receive the “Making A Difference for Mito” award last weekend. A meaningful recognition full of surprises, including a wonderful video tribute from many I love & respect in the #Mito & #RareDisease communities. 💚 Thank you, all…you make a huge difference for me…1/2
My biggest takeaway from this writing journey I've been on for the last three years is the power of community. The friendships I've made, the way we lift one another and support each other's success has been life-changing. #WritingCommunity
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