Juliet Pierce @JpierceJuliet
Associate Director of Medical Services Paralyzed Veterans of America Olathe, KS Joined July 2015-
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"Disabled Veterans with significant home-care needs must have access to more services via @DeptVetAffairs." -PVA's Heather Ansley We appreciate progress on the Dole Act as PVA + 48 orgs urge Congress for final passage as #Veterans need help now. More: hiddenheroes.org/news/elizabeth….
To help make #AmyotrophicLateralSclerosis a livable disease in the next decade, @NASEM_Health hosted a workshop series exploring #ALS care, services, #ALSResearch, and #TherapeuticDevelopment. Read the proceedings here: ow.ly/2j8u50QcxYT
Breaking ground, breaking barriers! PVA Architecture, Medical Services, & Lone Star Chapter members united at the groundbreaking ceremony for the @VANorthTexas SCI/D Long-Term Care Center, which will help @DeptVetAffairs address the shortage of long-term care beds for #Veterans.
Join the @NASEM_Health #NeuroForum for a workshop on 10/31 to discuss the approaches needed to adopt implantable #BrainStimulation into the standard of care for #CNSdisorders. Register here: ow.ly/rfU750PNZOx #MovementDisorders
Excellent teamwork! Thanks, @VetAffairsDems + @HouseVetAffairs' @RepMarkTakano, @RepBost, & @RepJackBergman, for meeting w/ Robert Thomas + Heather Ansley to discuss the Elizabeth Dole Home Care Act + other PVA priorities. Join the fight! Send a letter: votervoice.net/iframes/PVA/Ca….
Call for nominations! @NASEM_Health is seeking experts to plan an upcoming workshop, "Emerging Science and Technology to Address Naval Undersea Medicine Needs." Learn more and submit by 9/1 here: ow.ly/Wq9U50PBUfx #MilitaryMedicine #Undersea
Elizabeth Dole Caregiver Act votervoice.net/Shares/BFuUrAE…
What should the public, private, and nonprofit sectors do to make #ALS a livable disease within the next decade? Join @NASEM_Health, 8/10, 8/23, and 9/1 for a workshop series exploring ALS care, services, research, and therapeutic development: ow.ly/1hqk50OXz2s
What should the public, private, and nonprofit sectors do to make #ALS a livable disease within the next decade? Join @NASEM_Health, 8/10, 8/23, and 9/1 for a workshop series exploring ALS care, services, research, and therapeutic development: ow.ly/1hqk50OXz2s
Juliette tries her first Cheese curd #wisconsin #motorcycle #harleydavid... youtube.com/shorts/q7sLi1M… via @YouTube
Helping #Veterans make their mark at our National Veterans #WheelchairGames #AdaptiveFitness event was @4imprint! Be sure to check out our #AdaptiveSports event, co-presented yearly by PVA, VA’s @Sports4Vets, and local host @vaportland: wheelchairgames.org. @DeptVetAffairs
A genetic risk score that takes into account hundreds of different genetic variations may help predict who's most likely to develop ALS. buff.ly/3XF7omP #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALSresearch
We're excited to announce the election of @USArmy #Veteran Robert L. Thomas Jr. as PVA's National President! W/ Robert at the helm, PVA will keep #PushingAccessForward + tackling the issues paralyzed and disabled #Veterans face. Congrats, Robert! Read: pva.org/news-and-media….
From revolutionizing #AdaptiveSports to fighting for #Accessibility, PVA never stops #PushingAccessForward! Listen to the latest @Bulletproof_Vet podcast with PVA National President Charles Brown to learn how PVA makes an impact: bulletproofveteran.com.
Are you excited for our National Veterans Wheelchair Games in 2 WEEKS?! Download our #WheelchairGames mobile app to see the latest schedules, get updates to #AdaptiveSports events, nominate your fellow #Veterans for the Spirit of the Games award, & more: wheelchairgames.org/mobile-app/.
Thank you .@JerryMoran for being an ALS champion. Please continue to be a champion. Advocate for increasing ALS research funding from $40m to $80m for the @CDMRP. Veterans with 100% service connected ALS served our country and deserve treatments and cures. #ALSChampion
Thank you .@rogermarshallm for being an ALS champion. Please continue to be a champion. Advocate for increasing ALS research funding from $40m to $80m for the @CDMRP. Veterans with 100% service connected ALS served our country and deserve treatments and cures. #ALSChampion
Thank you .@RepDavids for being an ALS champion. Please continue to be a champion. Advocate for increasing ALS research funding from $40m to $80m for the @CDMRP. Veterans with 100% service connected ALS served our country and deserve treatments and cures. #ALSChampion
JUST IN: PVA Nat'l Pres. Charles Brown applauds T&I's passage of the "Securing Growth and Robust Leadership in American Aviation Act." Thanks to @RepSamGraves, @RepRickLarsen, @RepGarretGraves, @RepCohen, & @repdinatitus for #PushingAccessForward! Read: pva.org/news-and-media….
Sunda @SundaARipU5
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Almost 7 years since my symptoms started and I still wonder what did my soul sign up for. Almost every day I am taught a new lesson and am humbled by this opportunity to grow under unfavorable circumstances. Flowers do bloom amongst the thorns. I scroll through my posts of…
This was an amazing talk and proud to be part of the @MGHNeurology team leading the platform trial and clinical trial endpoint development.
Fantastic talk by Dr Ben Saville @BerryConsultant #ALSmndsymp about joint model of function and survival - the model is used in the HEALEY #ALS platform trial @MGHNeurology @MeritCudkowicz with excellent performance!
Our colleague at Columbia’s Eleanor and Lou Gehrig Center presented today at the International ALS/ MND discussing how higher glycemic index was associated with slower disease progression in a retrospective study. Highlights the importance of nutritional care in ALS. #alsmndsymp
Despite really bad weather, 4 flights over 2 days and 3 countries, made it to Basel for the 34th International ALS/ MND! A very exciting meeting and grateful to meet these wonderful and beautiful Patient Fellows! ( missed you Lisa G!)
I may not be in Switzerland, but knowing that my friends are carrying me with them in their heart means everything to me. There are some really special people out there in ALSLand ❤️
This week I should have been heading to Switzerland to attend the ALS/MND Symposium in person, but unfortunately plans changed. Thankfully I’ll still be able to participate virtually and learn from all of the amazing people that have come together to fight this horrible disease.
Breaking ground, breaking barriers! PVA Architecture, Medical Services, & Lone Star Chapter members united at the groundbreaking ceremony for the @VANorthTexas SCI/D Long-Term Care Center, which will help @DeptVetAffairs address the shortage of long-term care beds for #Veterans.
The U.S. Department of Veterans Affairs Selects @TMobile as Primary Wireless Provider Through 2032 t-mobile.com/news/business/…
Warriors & Quiet Waters: Helping Veterans and Their Families Find a Life of Purpose For the third straight year, @TMobile has renewed its lead sponsorship of a nonprofit helping veterans and their families meet the challenges of life after the military. t-mobile.com/news/community…
Healthcare’s First 5G Hybrid Network t-mobile.com/news/business/…
Today I took a deep breath and made some difficult decisions, but through it all one voice played on repeat through my mind. #iamahoneybadger #myvoicematters
Excellent teamwork! Thanks, @VetAffairsDems + @HouseVetAffairs' @RepMarkTakano, @RepBost, & @RepJackBergman, for meeting w/ Robert Thomas + Heather Ansley to discuss the Elizabeth Dole Home Care Act + other PVA priorities. Join the fight! Send a letter: votervoice.net/iframes/PVA/Ca….
🚨Viral off-the-grid farmer, Oliver Anthony, who broke internet with protest song against DC Elites drops NEW SONG “Brink of War” CHILLS. x.com/jackposobiec/s…
So thankful for my presenting partner @MommaJillB
PVA Day 3…presentation day. Good thoughts and positive vibes are much appreciated. #pvasummit2023
First day of middle school for Caleb and high school for Taylor. I’ve only cried once this morning, so I’m calling that a win 🤪
Took Caleb to middle school orientation and somehow I came home with homework. Let the back to school fun begin 🤪