Know CF @KnowCF
A place to connect with those who are impacted by cystic fibrosis. United States Joined January 2010-
Tweets16K
-
Followers5K
-
Following2K
-
Likes414
We encourage you to continue engaging with us here, where we can still share resources, stories, and updates. Thank you for being a part of the cysticfibrosis . com community! Wishing you all the best in health and happiness, From all of us at cysticfibrosis . com
0
0
0
75
0
In good news, as of now, this isn’t the end of our community! Our social media pages will remain open as a space for connection, support, and sharing among individuals impacted by cystic fibrosis.
While it’s bittersweet to say goodbye to the forums that brought us together, we are thankful for the connections, support, and shared experiences along the way.
Important Update: Website and Forum Closure To our valued community, We wanted to let you know that cysticfibrosis.com is no longer active & has been closed.
Dr. Bonnie W. Ramsey, Professor and Senior Advisor to the CFF Therapeutics Development Network, receives the prestigious 2025 American Pediatric Society John Howland Award! To read more, click here: bit.ly/3NTThpJ
Watch the recording here: youtube.com/@CysticFibrosi… #CureCF #CF #cysticfibrosis #65Roses #Health #Educate #Spoonie #NACFC
From the archives of the 1990's - Oh how far we've come! Do you have interesting articles to share?! Let us know! . . . #CureCF #cysticfibrosis #65Roses #CF #Support #Educate #Hope #Fromthearchives
Happy Father's Day to all the amazing Dads out there! #HappyFathersDay!
In addition to oral food and supplements, sometimes extra help is needed by tube feedings . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
People with CF can get a unique type of #diabetes, cystic fibrosis related diabetes or #CFRD . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Vitamins, minerals, and supplements are important . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Caring for bone health . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #boneHealth
Food is fuel! . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Supplemental oxygen may be necessary as CF progresses. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Sometimes it is necessary for someone with CF to get a lung transplant. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #Transplant #LungTransplant #DonateLife #OrganDonation
Chronic illness takes its toll. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
Hospitals are associated with getting healthy, but sometimes an infection can actually come from the others at the hospital! . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
CF does not impact only one system. There are several comorbidities associated with it. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
We remember and honor those who gave the ultimate sacrifice today and every day. #MemorialDay
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Cystic Fibrosis Trust @cftrust
27K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Gunnar Esiason @G17Esiason
21K Followers 559 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
CF News Today @CFNewsToday
5K Followers 2K Following We are dedicated to sharing the latest news, research, and patient perspectives from the CF community.
Ben Oxlade @BenOxlade1
20K Followers 5K Following Husband to a wonderful wife. Father to two boys; a #CFWarrior son (R) and an empathetic son, who's also an amazing big brother (H)! #SWFC
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Vertex Save Us @VertexSaveUs
911 Followers 683 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Emily's Entourage @EmilysEntourage
2K Followers 2K Following Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
Tanya Koorts @TanyaKoorts
315 Followers 415 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Vertex Pharmaceutical... @VertexPharma
71K Followers 83 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
Dr Meghan McGarry @DrMeghanMcGarry
995 Followers 1K Following @uw @seattlechildren Pediatric Pulmonary Doctor, Cystic Fibrosis & Health Equity Researcher, Mom of 2, Opinions are my own (she/her)
Beam for Cystic Fibro... @Beam_CF
1K Followers 627 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
Fed. Esp. Fibrosis Qu... @FEFQ_CFspain
3K Followers 421 Following La Federación Española de Fibrosis Quística lleva más de 35 años trabajando por mejorar la calidad de vida de las personas con Fibrosis Quística en España.
Catherine Meredith @873Meredith
2K Followers 4K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Melissa Shiffman @smelis73
1K Followers 3K Following Healthcare advocate for @CF_Foundation. #cysticfibrosis. @GrandStreetDems. Eternal optimist w/a splash of generalized anxiety disorder. Love this guy @ssatlon.
Xiced @Xiced98140
23 Followers 464 Following
Gracyn @GracedDashd
100 Followers 2K Following Babysitter blonde. Sprite, parties, good girl begging for dick. Check my LINK, it's FREE!!! ⬇️
Ola abu moamer @olaabumaomer7
59 Followers 814 Following Journalist 🇵🇸 Palestinians journalist 📍Gaza📰📺🎙️📝 Reporting for aljazeeraenglish Content Producer
Difuif @Difuif020
11 Followers 695 Following
Vlokaul @Vlokaul7800133
32 Followers 1K Following
Soutyez @Soutyezjfiq9
14 Followers 2K Following Please, don't let me meet someone with whom I have no results
Deeteatiosl @DeeteatioslfGq
50 Followers 1K Following
Smoosha @SmooshapdT
21 Followers 474 Following
Sofie @Sofie485418
32 Followers 3K Following
Tooshysey @tooshysey44810
43 Followers 703 Following
Mohamed Shazli @MohamedShazli19
123 Followers 105 Following
Mechanical Geek @MechanicalGeeks
1K Followers 119 Following A website for Mechanical Engineering students. You will find ebooks, notes, ppt and all kind of materials.
brenda j nash @brendajnash
44 Followers 675 Following
Michael Grimm @michael_grimmPR
397 Followers 5K Following PR pro at Reputation Partners. Reach out: [email protected]
Lisa Reddington @LisaReddin97080
3 Followers 55 Following
THCF @THCF_ECFS
4 Followers 79 Following
Huw Ringer @HuwRinger
1K Followers 6K Following Data geek, entrepreneur, & dad. Personal account. You can also find me at https://t.co/l3q5A8pjrI
Kerri @kesal98
0 Followers 111 Following
Sherri Cills @SherriCDue
89 Followers 656 Following Child of God, Wife, Mom, Business Owner, Iggy Mom, Sports Avid 🇺🇲TRUMP 2024💯🇺🇲
Everythingknowledge @therealevkno
102 Followers 162 Following Naturopathic Practitioner/ Content Creator My passion is healing, but I enjoy offering interesting information on several topics. Dad/USMC Vet/Blue Collar 🇺🇸
lil Rachel one @lilshortybae0
3 Followers 40 Following
CF Život 💙 @cfzivot
5 Followers 43 Following Projekt pre podporu pacientov s Cystickou Fibrózou so snahou pomôcť im vďaka novým technológiám a skvelej rastúcej komunite ľudí. #CysticFibrosis
Edoardo Albisetti @EdoAlbis
187 Followers 281 Following Associate Professor @fisipolimi / Nanophysics in Condensed Matter @PhyndLab
Half-Dane @6Ja044qRvnhV2qo
75 Followers 7K Following
د . أسامة ال�... @Dsalmixx
17 Followers 85 Following "⚕️ طبيب متخصص في عالم الجمال والتجميل. ملتزم بتحقيق الجمال الطبيعي والصحة البشرية. 💄💆♀️ تابعوني للنصائح والمعلومات حول العناية بالبشرة والشعر والمكياج. 🌟
Jack C. Drda (He/Him) @JackCDrda
529 Followers 2K Following MD/PhD trainee: autoinflammation, immunometabolism, mass spec, biochem, lipids, & liver❤️. Spread kindness: we’re all colleagues @MSPA_NATIONAL🏳️🌈
Clare Eltaief @ClareEltaief
31 Followers 548 Following Passionate about public's health & wellbeing. Views are my own
The Football Scout @TFootballScout
1K Followers 298 Following
B.Shaz @BuyiShaz
30 Followers 314 Following
Pathways Project @PATHWAYS_PWCF
7 Followers 79 Following Pathways is a HRCI/HRB funded research project aiming to support young people with Cystic Fibrosis. We invite young adults with #CF to join us as co-researchers
Lillian @madsillylilly
414 Followers 549 Following
Mehmet Dinç @mhmtdinc06
108 Followers 998 Following
Hydrate for Health @TheHydrantUK
3K Followers 3K Following Do you struggle to lift, hold or reach a drink? The Hydrant hands-free drinking system allows independent access to fluids 24hrs a day Hydration – for everyone
Océane Goncalves @O_Goncalves___
36 Followers 137 Following 3nd year PhD student in Microbiology 🦠 antibiotic resistance 💊 high throughout screens 🎯 Pseudomonas aeruginosa 🍇 cystic fibrosis 🫁
Jim “Mouse” McNal... @CoachMcNallyOL
25K Followers 27K Following College and NFL OL COACH for over 50 years. #CoachMouse
José Martínez @JosMart06443049
13 Followers 392 Following
desiree @desilynn222
0 Followers 50 Following
Kathy C @KCPoco
5 Followers 151 Following
Amic Hotm @AmicHotm
39 Followers 560 Following I'm new to Twitter, just showing up to see what the fuss is all about. What about you?
Cody Thomas @CodyThomas79444
0 Followers 35 Following
Christine S Clark @cclarkterp
14 Followers 614 Following
Brian gwartney @GwartneyBrian
6 Followers 50 Following
Dan Beever @Dan_Beever
272 Followers 333 Following Research Fellow @MedicineUoN & PhD student @magnifysrc • @sheffielduni🎓 & @ActionPFcharity💜 alumni • Passionate about lived experience • Living with CF🫁
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Cystic Fibrosis Trust @cftrust
27K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Gunnar Esiason @G17Esiason
21K Followers 559 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
CF News Today @CFNewsToday
5K Followers 2K Following We are dedicated to sharing the latest news, research, and patient perspectives from the CF community.
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Boomer Esiason Founda... @cysticfibrosis
10K Followers 936 Following Fighting Cystic Fibrosis - Advocacy - Education - Fundraising
Vertex Save Us @VertexSaveUs
911 Followers 683 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Emily's Entourage @EmilysEntourage
2K Followers 2K Following Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
Vertex Pharmaceutical... @VertexPharma
71K Followers 83 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
Dr Meghan McGarry @DrMeghanMcGarry
995 Followers 1K Following @uw @seattlechildren Pediatric Pulmonary Doctor, Cystic Fibrosis & Health Equity Researcher, Mom of 2, Opinions are my own (she/her)
Beam for Cystic Fibro... @Beam_CF
1K Followers 627 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
Fed. Esp. Fibrosis Qu... @FEFQ_CFspain
3K Followers 421 Following La Federación Española de Fibrosis Quística lleva más de 35 años trabajando por mejorar la calidad de vida de las personas con Fibrosis Quística en España.
Cystic Fibrosis @CFLeeds
669 Followers 106 Following Keeping you up to date with news and events on the Adult CF Unit in Leeds #J6CFUnit
Melissa Shiffman @smelis73
1K Followers 3K Following Healthcare advocate for @CF_Foundation. #cysticfibrosis. @GrandStreetDems. Eternal optimist w/a splash of generalized anxiety disorder. Love this guy @ssatlon.
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
NWS Las Vegas @NWSVegas
62K Followers 559 Following Official X account for the National Weather Service covering southern Nevada, northwestern Arizona, & southeastern California. Details: https://t.co/OftT8ETh8k
Cystic Fibrosis Aware... @AwarenessCystic
4 Followers 3 Following Spread the word about Cystic Fibrosis and help the victims get the treatment they need.💜 -This is for a school project
NEEMO @NEEMOcf
112 Followers 139 Following National Efficacy-Effectiveness CFTR Modulator Optimisation Programme. Aiming to understand inhaled therapy for people with cystic fibrosis taking modulators.
Dr Jennifer Ward @thehappybean_
534 Followers 2K Following PhD Positive Psychology & Community Pharmacy | Data Analyst | Wellbeing Researcher | All views are my own.
Katie Haswell 🇺�... @KatieHaswell
156 Followers 2K Following #MentalHealthMatters |Making my way through @theacademy winners | trying to emulate Mary Tyler Moore | Musings are mine only
Child Health Internat... @ChildHealthInt1
87 Followers 64 Following Helping children and young adults with #cysticfibrosis live life. Building international medical partnerships and sharing best practice across borders.
Paint Her in Color @her_color
20 Followers 82 Following Emotional well-being for caregivers #medicalmamas #specialneedsparents #ourvibrantkids
Maëlys BORN-BONY @BornBony
40 Followers 77 Following PhD student in Immunology at @Univ_Paris : Study regulatory immune cells to fight P.aeruginosa infections ! 🦠 Feminist #WomenInScience 📍Paris 🇫🇷 & 🇬🇧
Ask Jules @AskJulesLtd
608 Followers 995 Following AskJules offers a unique way for young disabled adults to have control over their lives by choosing and employing their own care and support.
RECOVER CF Study @StudyCf
136 Followers 216 Following Real World Clinical Outcomes with Novel Modulator Therapy in People with CF (RECOVER)
UHB CF Dietitians @CF_dietitians
730 Followers 254 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Emma Boniface @coughyandcreon
307 Followers 420 Following chronic illness advocate | empath | writer | mindfulness fanatic | doggy mum
Paed Resp CNS & PNA @PaedRespNurse
760 Followers 2K Following Paediatric Respiratory Nurse Specialist #NMP #PNA @uhbtrust Introvert, Geek, Lover of Naps, Daydream Believer, Time Traveller Wannabe.
smileforcf @smileforcf
111 Followers 505 Following We are a nonprofit organization at Madeira High School working to spread awareness about cystic fibrosis in our community.
Teresa #kaftrio @CFinit4ALLuk
476 Followers 702 Following campaigning 4 ALL fighting this hideous disease #CF 2 have the best Precision meds #LifeSavingDrugs4ALL on the NHS #STOPTHECLOCK #WeHaveKaftrio #Now4thelast10%
Baba🌸 @Clocl10
275 Followers 353 Following Super proud mum 🌼🌺🌻 , my youngest girl has cf 💜 a bit controversial and a serial retweeter 😜
Center For Latino Pat... @LatinoswithCF
158 Followers 190 Following Our mission is to improve the health and quality of life for Latino patients with Cystic Fibrosis through research, education, advocacy, & patient engagement.
Breathe4cf @breathe4cf
12 Followers 18 Following Fundraising & Awareness page for The Cystic Fibrosis Trust 💛 Samson was born with CF 31/08/2017💥 He is why we fight until CF stands for Cure Found👊🏼
UArizona Pediatric Pu... @UArizonaPPC
41 Followers 90 Following The Pediatric Pulmonary Centers (PPCs) serve as models of excellence in interdisciplinary training, systems integration, and research.
CF Dental Study UCC @cf_ucc
115 Followers 187 Following Research Study into the Oral Health of Adults with Cystic Fibrosis
DrawingOut @out_drawing
255 Followers 732 Following DrawingOut Invisible Diseases uses step-by-step metaphor-based drawing exercises to help people express & share their thoughts & feelings about their condition
CFF Arizona @CFF_AZChapter
437 Followers 275 Following The Arizona Chapter is helping to advance @CF_Foundation's mission to find a cure for every person with cystic fibrosis.
Formby Health Rooms P... @FormbyHealth
195 Followers 312 Following We provide expert advice on all health matters. We deliver prescriptions & the products in our shop free of charge. Account run by Georgia.
Helmet-Based Ventilat... @HVentilator
246 Followers 3K Following Helmet "Oxygen Hood" use for Noninvasive Ventilation | #Coronavirus #difficultairway #intubation #nasal_cannula #airwaymanagement #respiratorycare #ventilators
Kate Eveling @thevftos
1K Followers 663 Following Video Creator- chaotic, cystic fibrosis, mental health advocate 👩🏼💻 YouTube 🎥- https://t.co/6yUHVl6XEp
Michael Boyle @mpboylemd
300 Followers 51 Following President and CEO, Cystic Fibrosis Foundation. Professor of Medicine, Johns Hopkins. Member of Team CF. Tweets are my own
BioMedInnovations LLC @BMI_LLC
46 Followers 209 Following BMI manufactures precision air & fluid flow devices, with products-in-development for lung ventilators & ex vivo tissue perfusion.
Lucy Allen @LucyAllen_CFT
90 Followers 127 Following Director of Research & Healthcare Data @CFTrust. All views are my own
Johns Hopkins Pediatr... @HopkinsPedPulm
530 Followers 729 Following The Eudowood Division of Pediatric Respiratory Sciences provides expert care for children with acute and chronic respiratory problems.
The Salty Life Founda... @thesaltylifecf
151 Followers 274 Following The Salty Life: A Cystic Fibrosis magazine featuring people affected by CF in all walks of life🧂🌊65🌹 #thesaltylife #saltylife
The Coppinger Lab @RCSI_Coppinger
98 Followers 207 Following RCSI Research Group based in the NCRC. Specializing in the role of extracellular vesicles in paediatric Cystic Fibrosis.
TaterTots360 @TaterTots360TV
35 Followers 274 Following Gamer | Massage Therapist | Cystic Fibrosis https://t.co/qlKFLMxd8u
CF inpatient unit -Pe... @PearceWardMFT
745 Followers 481 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
SaltySoildersIRL @irl_salty
4 Followers 10 Following #cysticfibrosis is a genetic disease that affects us all differently, we're here to show you our daily experiences and how we go about our everyday lives. 💜
Allergic to Water @waterallergy
528 Followers 593 Following Rare disease awareness advocate. #liveinhope
GeneOnline @GeneOnlineNews
5K Followers 4K Following We are a premier biotech media providing latest biotech news on research breakthroughs, in-depth biopharma insights, top KOL interviews, and global events.
Emily Larkin 🦋 @EmmLarkin
1K Followers 2K Following 24|Founder of Invisible Disability Ireland|🌻Patient advocate in health and disability🫀
Cystic-Fibrosis.com @CysticFibro_HU
259 Followers 191 Following A community for people affected by cystic fibrosis. Learn, share, and connect with peers and healthcare professionals.
Dartmouth CF Research... @DartCF
216 Followers 78 Following
nebigrip @nebigrip
32 Followers 134 FollowingTrends for United States
1.514 posts
57,7 B posts
3.005 posts
3.871 posts
2.554 posts
65,2 B posts
10,9 B posts
2.828 posts
18,7 B posts
4.808 posts
4.626 posts
2.408 posts
49 B posts
1.159 posts
7.725 posts
125 B posts
5.548 posts
38,4 B posts
2.803 posts
You might like
CF News Today
@CFNewsToday
5K Followers
Cystic Fibrosis Trust
@cftrust
27K Followers
Cystic Fibrosis Resea...
@CFRI_CureCF
2K Followers
CF Adventurers
@CfAdventurers
2K Followers
Jerry Cahill
@jcahillYCF
4K Followers
Ronnie Sharpe | #askp...
@RunSickboyRun
2K Followers
my CF Hero 💙
@myCFHero
1K Followers
Strawfie Challenge
@strawfie
4K Followers