Live RhysStrong @LiveRhysStrong
Our goal is to help the Spinal Muscular Atrophy community's efforts towards research, family support and awareness of the #1 genetic killer of infants. liverhysstrong.org San Francisco, CA Joined April 2014-
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Early Identification of SMA May Help Curb Costs of Disease ajmc.com/view/early-ide… via @AJMC_Journal
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There is still time to apply for our California Fires Relief Fund! We have air purifiers and funds available for those who need it. Check out our website for more information and to apply today! #lrsf #LiveRhysStrong #californiafiresrelief
Bay Area Families: we are providing air purifiers and relief funds due to the current Bay Area fires. If you would like to apply, visit liverhysstrong.org/2020bayareafir…. We will review applications in the… instagram.com/p/CEZjSn7ljRv/…
As we welcome, and when we have to say goodbye, we still, and will always, celebrate Rhys! #55dayswithRhys #liverhysstrong #liveinspired #celebraterhys #angelversary #curesma instagram.com/p/CEXweyslFcn/…
3-day weekend, what!?!? #liveinspired #liverhysstrong instagram.com/p/B12UVSKlLBS/…
Trump Administration Ends Protection For Migrants' Medical Care : NPR #outrageous npr.org/2019/08/27/754…
Live RhysStrong retweeted
Last Saturday we participated in the @CureSMA 17th annual NorCal Walk-N-Roll. Thank you to our wonderful team for participating & volunteering, and to Cure SMA for hosting a great event! #SMAAwarenessMonth
Live RhysStrong retweeted
William, a young man with SMA, participated in our Community Lab program this summer. His favorite part? Growing E. coli. See how William and other students explore #STEM through our program. #SMAAwarenessMonth
Are you 1 in 50 people that carry the SMA gene? There are inexpensive ways to find out that may be covered by insurance. Here are 4 companies that can test for SMA and many other genetic diseases. Get screened, no… instagram.com/p/B1uVLTbl_lA/…
You would be six years old today. And we will celebrate like we do every year, mostly in our hearts where we will always carry you. We love you with such fierce intense - a feeling that has been with us since before… instagram.com/p/BzddotHlOge/…
Our organization was happy to sponsor 3 Bay Area families to the curesmaorg 2019 Annual Conference. Thank you to Cure SMA for giving families, medical professionals and care providers a forum to meet, learn and… instagram.com/p/BzbKv4yBmwv/…
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