PGCPathsOrg @PGCPathsOrg
For Prince George’s County residents living with Sickle Cell Disease 🩸 Prince George’s County 🩸 Access 🩸 To 🩸 High-quality 🩸 Sickle Cell Care PGCPaths.org Prince George's County Joined May 2024-
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November is National Caregivers Month! We want to express our gratitude to the incredible caregivers who support individuals living with sickle cell disease (SCD). Your compassion, strength and dedication make a profound difference every day in the lives of warriors.
Today is National Rural Health Day. Sickle cell warriors who live in rural areas face additional challenges to receiving care. Today, we recognize the unique health care needs of rural communities and commit to supporting our rural warriors, caregivers and providers.
Teach the next generation of children about #SickleCelldisease and #SickleCelltrait. Explain #geneticdisorders while they are young. ⭐️ amazon.com/author/ellecole #SickleCellWarrior #SickleCellAwareness #SickleCellAdvocate #SickleCellCommunity #SickleCellFighter #SickleCell
Community Town Hall & Education: Oxybryta You're invited to join the Sickle Cell Consortium & SCDAA for an Educational Session on the FDA & Accelerated Approval, followed the next day by a Community Town Hall with Pfizer Pharmaceuticals. us02web.zoom.us/webinar/regist…
It's #SickleCellShadesDay! Today, we raise awareness of the impact of retinopathy on individuals with sickle cell disease. Many in our community experience vision challenges, and we wear shades to show our support. Let's come together and help the Sickle Cell Community…
Today is World Sickle Cell Awareness Day. Last night, the @UMMC downtown and Midtown campuses lighted up in red for #SickleCell awareness. It falls on Juneteenth since sickle cell disproportionately affects people of African heritage, creating health #equity issues.
SCDAA’s Medical and Research Advisory Committee (MARAC) has issued a statement regarding Pfizer’s withdrawal of voxelotor (Oxbryta®️) from national and global markets on September 25, 2024. You can read the statement here: sicklecelldisease.org/2024/09/28/mar…
How health care fails sickle cell patients outliermedia.org/sickle-cell-ca… via @media_outlier #sicklecell #scdnews #scdinthenews #sicklecelldisease
Host Coco sits down with Jennifer as she shares her powerful story of discovering her sickle cell diagnosis later in life during a physical exam to become a cop. Tune in now to hear her journey on FSCDR TV Warriors Within. #SickleCellWarrior #WarriorsWithin #FSCDRTV
Did you know that #SickleCellDisease is the most common inherited blood disorder in the U.S.? #SCD #SickleCellAwarenessMonth #SickleCell #GeneTherapy #GeneTherapies @SCDAAorg @ASH_hematology @NIH_NHLBI @BloodHealthEd @ConquerSCD @SCCConsortium
The SCDAA 52nd Annual National Convention is your chance to connect with like-minded individuals dedicated to advancing sickle cell care. From Oct. 23-26, join us in Atlanta, Georgia, to exchange knowledge, network with experts and participate in engaging discussions.
Save the Date: Tranformative Curative Gene Therapy Transplant for Sickle Cell Anemia Educational Symposium Saturday, September 7, 2024 from 12-2pm Doors Open at 11:30AM Dress: Business Casual Lunch will be provided - mailchi.mp/tovacommunityh…
He believes in therapy! Tag a friend who can relate to this message. Visit SCDAA’s website ➡ sicklecelldisease.org to learn more. Feel free to reshare.
Have you ever thought about how new treatments and fertility preservation impact families? raredisease.net/caregiver/fert… #sicklecell #genetherapy #fertility #reproduction #sicklecelldisease
Oftentimes, we talk about lived experiences of patients who have undergone gene therapy but on episode 3 of #ThroughTheGenes, we sit down with Amanda Olaghere to unpack the caregiver experience. This and more now available on all podcast platforms. open.spotify.com/show/0BeH3vjNB…
Treatment has advanced, but many living with #SCD still face serious health challenges. The @NIH_NHLBI #CureSickleCell Initiative aims to transform lives by moving promising gene therapies safely to clinical trials. Learn more at curesickle.org
WATCH to see some outstanding young people from Prince George’s County who are part of our Summer Youth Employment Program! We have been truly impressed by this talented group of interns and can't wait to see what the future has in store for them! 🌟
The Hertz Nazaire exhibit is incredible. If you ever have a chance to see it in person, GO.
It's time to recognize our outstanding community health workers! If you know a CHW making a significant impact in the sickle cell community, nominate them for the SCDAA P.O.W.E.R CHW Award. Nominations close on August 23. Learn more: buff.ly/4eViYT8
We are so excited! The @SCCConsortium is hosting the Warriors Convention this week July 17-21 in Atlanta, GA. It’s hybrid so register now! 🌐 sicklecellconvention.org
We are so excited! The @SCCConsortium is hosting the Warriors Convention this week July 17-21 in Atlanta, GA. It’s hybrid so register now! 🌐 sicklecellconvention.org
SICKLE CELL MATTERS �... @Sickle_Matters
2K Followers 1K Following SICKLE CELL GENETIC COUNSELLING #SICKLECELL HEALTH EDUCATOR Instagram @sicklecell_matters Telegram Channel: https://t.co/9jpb7vEGT0…
SCANCA.INC @SCANCA_INC
29 Followers 28 Following A community-based organization serving DC, Maryland, and NOVA. Our focus is educating individuals about the management of #sicklecelldisease.
David Owoeye @davoshalom
2K Followers 5K Following Citizen of the Kingdom of God. Sickle Cell Warrior & Advocate. Infection Prevention & Control Specialist. AMR Advocate Author. https://t.co/9z1lvAfJYh…
Friends Sickle cell F... @OfSicklers
142 Followers 310 Following Charitable organization that helps people living with sickle cell disease and vulnerable people in Uganda. providing economic, social and psychological support
Invisible Warrior_SCD @InvisWarriorSCD
427 Followers 287 Following Award-winning societal engagement project from @imperialcollege, raising awareness of sickle cell disease, and it's effects on the body and mind.
Outlier Media is on B... @media_outlier
4K Followers 174 Following Filling information and connection gaps in Detroit through local reporting since 2016 💛 Managing partner for @DetDocumenters
Salveo Therapeutics @MySickleCare
297 Followers 399 Following MySickleCare Sickle cell disease patient advocacy and education. My Sickle Care android app - https://t.co/kFwFBWStoZ is a comprehensive resource for disease management
SickleCellProdigy @SCProdigy
330 Followers 90 Following For The #SickleCellProdigy | Who Wants A #SickleCellTribe 🌎 | Awareness. Impact. Legacy.
Sickle Cell Advocacy ... @SAMIupdate
3K Followers 517 Following NGO improving the lives of people, especially with sickle cell disorder thru education, creating awareness, & providing supports. Break the Silence. #samiupdate
Sickle Cell Fund @WEPSCF
1K Followers 838 Following To support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease
SICKLE CELL MATTERS �... @Sickle_Matters
2K Followers 1K Following SICKLE CELL GENETIC COUNSELLING #SICKLECELL HEALTH EDUCATOR Instagram @sicklecell_matters Telegram Channel: https://t.co/9jpb7vEGT0…
Australian Sickle Cel... @AuSickle
869 Followers 768 Following An initiative dedicated to support people affected by Sickle Cell Disease in Australia. Executive Director @AggieMN. #SickleCell #Awareness #TogetherWeRise
SickleCellTexas @SickleCellMTF
2K Followers 421 Following Non-profit advocating for those with sickle cell disease for over 20 years. Serving Austin, San Antonio, Houston and Central Texas sickle cell families.
S.O.S. Parent/Guardia... @sos_sicklecell
875 Followers 457 Following S.O.S. is committed to providing Sickle Cell education to parents and guardians of children with SCD while supporting research and awareness.
American Academy of P... @AmerAcadPeds
136K Followers 504 Following Dedicated to the health, safety and well-being of infants, children, adolescents and young adults.
University of Marylan... @UMMC
19K Followers 3K Following Academic medical center in partnership with @UMmedschool. Offering world class care in cancer, heart and vascular, pediatrics, trauma, transplant & more.
Nationwide Children's... @nationwidekids
37K Followers 8K Following Nationwide Children's Hospital, one of America's largest pediatric hospitals and an international leader in #research. A follow does not equal endorsement.
Children's National H... @ChildrensNatl
37K Followers 3K Following This account is no longer active. You can find information about Children’s National Hospital at https://t.co/1PcHNManww.
Sickle Cell Partners @sicklecellpartn
2K Followers 135 Following Founded in 2009 to support patients and families affected by Sickle Cell Anemia; to raise awareness and educate the community; and to advocate for a cure.
Dr. Nina @nfayanders
736 Followers 885 Following Holistic Health Practitioner. Sickle Cell Expert. Producer of TOVA Tuesday Podcast. #PrimarySpecialtyCare #Research #Outreach
Support Sickle Cell @SOFWSCD
449 Followers 88 Following Supporters of Families with Sickle Cell Disease Inc., is a organization which services individuals and families living with sickle cell and thalassemia disease.
Sikcell ~ For us by u... @sikcell
2K Followers 1K Following A community of people living w/ SCD & trait who relate to one another without biases. Fostering a network that encourages, inspires & empowers.🩸
SickleCellMN @SickleCellMN
2K Followers 2K Following Improving quality of life for individuals and communities affected by sickle cell disease. *We do not monitor this inbox.
FSCDR Foundation for ... @FundSickleCell
3K Followers 219 Following Change the Conversation. Reshape the Future. Sickle Cell Centers of Excellence around the State of Florida.
David Owoeye @davoshalom
2K Followers 5K Following Citizen of the Kingdom of God. Sickle Cell Warrior & Advocate. Infection Prevention & Control Specialist. AMR Advocate Author. https://t.co/9z1lvAfJYh…
Sickle Cell Consortiu... @SCCConsortium
4K Followers 876 Following a collective of community-based organizations, patient-advocates, community partners and research/medical advisers.
Elle Cole (She/her) @Cleverlychangin
11K Followers 9K Following International best-selling (13X) author Speaker & advocate for #sicklecelldisease Producer & #CleverlyChangingPodcast Host 💌 [email protected]
Prince George's Count... @PGCCouncilMedia
5K Followers 1K Following The 11-member Council serves the residents of Prince George's County, MD
Prince George's Count... @PGPlanningBoard
3K Followers 1K Following The Prince George's County Planning Board helps plan, shape, and maintain livable neighborhoods and healthy lifestyles for residents of Prince George's County.
PrinceGeorgesMD @PrinceGeorgesMD
14K Followers 194 Following Official Account of Prince George's County Government Call 3-1-1 or visit https://t.co/jHkTa1qN0h for County services.
SCDAA @SCDAAorg
5K Followers 2K Following The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
Sickle Cell Disease C... @ConquerSCD
4K Followers 348 Following The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
Sick Cells @SickCells
3K Followers 632 Following National Advocacy Organization, Official Nonprofit.
MSCDA @mscdaorg
437 Followers 192 Following The Maryland Sickle Cell Disease Association, Inc. (MSCDA) seeking to improve the lives of persons affected by Sickle Cell Disease in Maryland
Cayenne Wellness @CayenneWellness
769 Followers 929 Following Improving nutritional & mental health through education, research, awareness initiatives & more. For more info, please visit: https://t.co/ABtCwWDRFx
Science News @ScienceNews
5.3M Followers 519 Following Covering the latest news in all fields of science. Publisher @society4science. See also @SN_Explores.Trends for United States
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