PROS Foundation @PROS_Foundation
Joined March 2017-
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Following206
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If you’re #undiagnosed and struggling to find a diagnosis, you’re not alone. Millions of us have been lost in the gaps in the medical system. Our #documentary, #undiagnosedFilm, tells four families’ stories, but many more remain untold. #rarediseases undiagnosedfilm.com
So happy to finally meet this GCDMP guru in person. Thank you, Meredith and love the hint to complete the questionnaire. #SCDM2022
Our second cycle of the #RareAsOne Network RFA for #RareDisease patient organizations is now open. Please help us get the word out! czi.co/RareAsOneRFA
#raredisease @PPALSorg @teaminspire @SanfordCoRDS @EparentConnect @RobertTomaino Be sure to sign up for @SanfordResearch Virtual Rare Disease Summit! Focus of discussions is on #lysosomalstoragediseases @FabryOrg
It's not too late to register for Sanford CoRDS Virtual Rare Disease Day Summit Fri, Oct 16. Check out the event and register here 👉bit.ly/2Fj4T64 #raredisease #sanfordresearch
It's not too late to register for Sanford CoRDS Virtual Rare Disease Day Summit Fri, Oct 16. Check out the event and register here 👉bit.ly/2Fj4T64 #raredisease #sanfordresearch
All our Arizona Friends - Spreading @portilloshotdog goodness for even MORE goodness for @team4travis and give your kitchen a break while helping progress for #aspleniaresearch
If you're in PHX Mon 8/17, visit @portilloshotdog Avondale betw 3-9PM, mention TEAM 4 Travis when ordering. Portillo's donates 20% of proceeds to help T4T mission (fundraiser available in drive-thru only to allow safe social distancing). Honor Travis's 6th birthday & do good.
Join our next virtual RPM® #GrandRounds session: Genomic Sequencing & Autonomy: Diving into the Ethics of Informed Consent Challenges, featuring a case study & Q&A with Ryan Spellecy, PhD (@rbspell). 8/26, 5pm PDT. bit.ly/2XGlQMV #RapidPrecisionMedicine #GenomicMedicine
#PCORI2020 registration is open! Have you signed up to join us yet? Plenary topics are on implementing evidence within and across health systems and Congressional perspectives on health disparities. Explore the agenda to see what else we have planned. pcori.me/PAM2020
Great being part of this group of passionate @rareadvocates, knowing that Sylvia Lee of @kyrstensinema office helps carry our voices to the Senator, who continues advocating for her Arizona Rare constituents.
This is great! Please keep sharing your experience using #RareAcrossAmerica
Register today for the next RARE Leader Meetup, "Balancing School and Work at Home" on August 19. Not a RARE Foundation Alliance member? It's free to join. #CareAboutRare #rarediseaseawareness globalgenes.org/rare-leader-me…
We want every boy and girl to feel they can smile with confidence. Ask Your Legislators in Washington D.C. to Co-Sponsor The Ensuring Lasting Smiles Act (ELSA) because #teetharenotcosmetic. nfed.org/get-involved/a…
Dear Friends, @PCORI 's new on-demand training allows users to learn about the health research process and become involved in patient-centered outcomes research. Check it out here. pcori.me/2Cy51gq via @PCORI
@PPALSorg @teaminspire @SanfordCoRDS #cystinosis @EparentConnect @_OurOdyssey_ #RareDiseases @CystinosisCRN Making a recommendation to view this documentary 'Walk in My Shoes' It's an important and inspiring message delivered honestly & from the heart. youtube.com/watch?v=YHnoBb…
Advice from #raredisease advocate Colleen Brunetti: "...never back down. Keep putting yourself in situations where you might end up in front of people who need to hear what you have to say." #LivingRareForum
#raredisease @PPALSorg @UpliftingAth @EparentConnect @teaminspire @GlobalGenes Los Angeles Dodgers Foundation Invites Applications From Local Nonprofit Organizations | RFPs | PND fw.to/iLzKqUJ
The #RAREis Scholarship Fund is now available! We’ve partnered w/ @EveryLifeOrg to provide this much needed resource for people living w/ #rarediseases & navigating obstacles in accessing education. Learn more & apply before Aug. 28: bit.ly/2OlZX1d.
Did you know that RDMD's service is offered at no cost to patients, caregivers and parents? If you want to learn more about how RDMD is making it easy for #raredisease patients and families to contribute to drug research from home, contact us at [email protected]!
It is all too easy to take speaking, chewing, and swallowing for granted. These functions are an everyday challenge for those affected by #ectodermaldysplasia. Learn how you can make a difference in their lives by supporting the #EnsuringLastingSmiles Act. nfed.org/get-involved/a…
Learn about high resolution molecular modeling, a flexible approach that can be leveraged by biopharma teams to generate insights for drug repurposing, target pathway selection & other challenges. Thursday, July 16 at 9am PT, 12pm ET, 6pm CET. Register: event.on24.com/wcc/r/2428336/…
1/4 If you or someone in your family has a rare disease, we want YOU to take the National Burden of Rare Disease Survey. The EveryLife Foundation for Rare Diseases in collaboration with the rare disease community has worked with health economists to develop the #burdenstudy
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
CamRARE (Cambridge Ra... @camraredisease
8K Followers 6K Following We want everyone affected by a rare condition to feel connected, empowered, and supported. Also at: https://t.co/1E1CsLJB1g
Effie Parks @OnceUponAGene
7K Followers 4K Following Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Stephanie Fischer @RarePOV
7K Followers 5K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
Rare Patient Voice @rarepatientvoic
2K Followers 3K Following We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.
Share4Rare @Share4Rare
3K Followers 2K Following 💻🌍 Plataforma que promueve la #investigacióncolaborativa en #EnfermedadesRaras | Platform that promotes #collabrativeresearch in #RareDisease 🚀 | @IRSJD_info
Share4Rare_eng @Share4Rare_eng
2K Followers 944 Following ❌ This account will be permanently closed in the coming months. 👉 Follow us at @Share4Rare to be up-to-date of #collaborativeresearch in #RareDiseases.
ashrafsharaf11@yahoo.... @ashrafsharaf112
26 Followers 883 Following
MamaBearforRare @MamaBearforRare
628 Followers 1K Following @Mamabearforrare Just your average Mama making the world more inclusive by sharing stories about my child with Jordan’s Syndrome.
AFM Film @AFMfilmdoc
279 Followers 2K Following A documentary that explores when life can change in an instant. Bringing awareness to #RareDisease and Acute Flaccid Myeletis
Affirm Patients @affirmpatients
133 Followers 1K Following
Randall Cohen @AlchemstHumanst
64 Followers 988 Following ♍Rope junkie, Polyamorous, BDSM, Atheistic Satanist, Constitutionalist True 🇺🇸Blooded Warrior of Justice Liberty The Persuading of Joyous Happiess
Praxis @GoPraxis
365 Followers 396 Following We work hard to make connections that matter in our approach to patient recruitment and retention for important clinical trials. #AlwaysConnecting
HEVAS @hevas_nl
421 Followers 661 Following Support and advice for patients with hemangiomas, vascular anomalies and over/undergrowth syndromes #ISSVA #Vascern #Hecovan
Roxanne Houle MoyaMoy... @HouleMoyamoya
157 Followers 307 Following Wife, Mom x 3, Moyamoya Advocate, MoyaMoya Foundation Co
ISurvivor Lisa Deck @lbdeck
1K Followers 1K Following ❤ Mom & Wife * Experienced Speaker & Patient Advocate * #StrokeSurvivor * Founder Sisters@Heart * #Moyamoya warrior; #RareDisease Fighter; #Heart Spokeswomen
Catherine Stratton, M... @cathsmstratton
2K Followers 2K Following Epidemiology PhD(c) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafdn #KnowledgeTranslation #RareDisease #Pain #Disability
Cerebral Amyloid Angi... @CAAcure
312 Followers 335 Following 👩⚕️PA-C 🧠CAA can cause ICH & cognitive decline 🏈Quarterbacking researchers/physicians/patients for a science touchdown🧬🦓Rare CAA genetic mutation champ
おおしろえみる @Amaurornis_phoe
210 Followers 5K Following 感染対策で離島に避難中🌴🌺 ミクチャ公認ライバー歴半年！配信ほぼしてないから2月からガチ配信🥺 趣味は読書と川柳と家族旅行と旅レポや美容！無料ライブ配信アプリミクチャ @mixchan https://t.co/XoLqmgozgK 年の差婚💒 変な垢は即ブロ解だしフォロワー増やしたくないタイプ🥳
Inspire @InspireIsHealth
17K Followers 12K Following To patients, Inspire is the world’s largest health community. To life sciences companies, we are the leading patient engagement & real-world evidence platform.
Jnetics @JneticsUK
1K Followers 3K Following Jnetics helps prevent & diagnose Jewish genetic disorders in the UK. Know your risk of passing a disorder to your future child. 🧬 https://t.co/exu5lHRGnV
Sachin Sarcoma Societ... @SachinSarcoma
2K Followers 5K Following An effective, dedicated and active patient support group in India to help Sarcoma, Desmoid tumor and GIST patients and caregivers all across the globe.
Rashi Kapoor @RashiKapoor17
2K Followers 5K Following Social worker ,sarcoma survivor, President of Sachin Sarcoma Society Life is an echo, u receive what u give, do good deeds,be kind,help others,live each moment
RareMD | Undiagnosed? @RareDiseaseDDx
2K Followers 4K Following Undiagnosed? Enter symptoms in free RareLook, see which of 4,174 rare diseases match, share with your doctor, who gets free RareMDx. Not a diagnosis.
ASOCIACIÓN DE DISPLA... @ADFdisplasia
225 Followers 779 Following La ADF es una entidad sin ánimo de lucro que congrega a afectados por Displasia Fibrosa y Síndrome de McCune-Albright.
Anna Luiza @sma_anna2019
407 Followers 2K Following Official intl profile of @ame_anna2019 👧🏻 SMA1 fighter 🎂2 years old 💉 My life DEPENDS on Zolgensma! 🧬 To help Anna ⬇️ https://t.co/Txwu5yVSfj
Timothy Syndrome Alli... @tsa_charity
344 Followers 1K Following Dedicated to improving the diagnosis, treatment & care of those living with #CACNA1C-related disorders inc. #TimothySyndrome and #LongQT8. @cacna1c.bsky.social
Endosalpingiosis Foun... @endosalfound
144 Followers 321 Following A nonprofit organization dedicated to raising awareness for #Endosalpingiosis
Tabitha Frank @TabFrank85
51 Followers 272 Following I'm the president founder of Endosalpingiosis Foundation Inc🎗🎗 ✨#Endosalpingiosis Advocate, mother to an amazing son, 🍀☘🍀💚Rare Disease🦓 warrior!♓
นาย ร้อ�... @O8pi8r34HfkcBNk
89 Followers 1K Following นาย ร้อยตําตรวจโท บัญชาเวช🍐🍏🍊ขยัน.อดทน.ตรงต่อเวลา.รูหน้าที่ของตนเอง.ใฝ่หาความรู้.สู้คุณธรรมกับความเป็นจริง.เป็นคนร่าเริงแจ่มใส.สนุกร่าเริง.รักเพื่อนรักฝูง
James Doyle @JamesJDoyle
173 Followers 423 Following PhD-turned-Entrepreneur | Life Sciences Innovator | Startup Builder
Lisa Pascoe 〓〓 @lisap141
170 Followers 1K Following
CDH Stars and Angels @CdhAnd
452 Followers 2K Following CDH Stars and Angels provides financial and emotional support tailored to the unique needs of families facing a diagnosis of Congenital Diaphragmatic Hernia
RareiTi, Inc. @RareiTi
167 Followers 503 Following Managed Access | Better Outcomes RareiTi offers a new system of managed access for people and communities across the globe in the rare disease space.
DISORDER: The Rare Di... @DisorderRare
894 Followers 205 Following Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. https://t.co/Qjsl21HRH4
Terry Jo Bichell @TJBichell
784 Followers 1K Following Politics and Science, in equal measure. Rare disease biomarkers and outcomes specialist. DCDP Exec Comm at large.
Jeeva Clinical Trials... @Jeevatrials
408 Followers 2K Following Design Smarter. Run Faster. Clinical Trials Without Chaos. Streamline protocol design through database lock With our unified software with Clintelligence AI.
Harsha K Rajasimha @Harsharajasimha
1K Followers 2K Following #Entrepreneur #RareDiseases #orphandrugs #decentralizedtrials #PrecisionMedicine #AI #clinicalTrials #Digitalhealth #RWE #clinicalresearch opinions my own
Recordati Rare Diseas... @RecordatiD
674 Followers 107 Following At Recordati Rare Diseases, we focus on the few - those affected by rare diseases. Social media guidelines: https://t.co/PEjh3QzOIW
Christy Greeley @ChristyGreeley
504 Followers 2K Following Rare Disease Advocate. University of Michigan Public Health. Mom to two of the best. Views are my own.
Bala Murugan @BalaMur11219560
15 Followers 486 Following Tata Motors Kaveri - For more details ,calll/Whatsapp9150011631
team4travis @team4travis
330 Followers 571 Following No child should die from Isolated Congenital Asplenia 501(c)3 nonprofit corporation #team4travis #aspleniaresearch ⠀⠀⠀⠀⠀⠀⠀⠀⠀
PSP Society of Canada @PSPSocietyCDA
582 Followers 2K Following Serving Canadian patients & families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD)
PA Rare Disease Advis... @PARareDisease
780 Followers 624 Following To improve the quality of life for all those affected by rare diseases in Pennsylvania.
AllStripes @_allstripes
3K Followers 1K Following Our mission is to unlock new treatments for people affected by rare disease.🚀
Erin Ward @mtmwarriormom
60 Followers 108 Following
MTM-CNM Connection @MTMCNMFamily
231 Followers 145 Following MTM-CNM Family Connection is a 501c3 that exists to connect those with Myotubular Myopathy & Centronuclear Myopathy to resources, research, and relationships!
CenterforChronicIllne... @CciSeattle
624 Followers 2K Following This account is no longer active. For the latest updates and to stay connected, follow the Center for Chronic Illness on Instagram or LinkedIn!
Paul O'Connell @PaulOConnell19
112 Followers 2K Following
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
EURORDIS-Rare Disease... @eurordis
31K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Beacon for Rare Disea... @RareBeacon
12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
CamRARE (Cambridge Ra... @camraredisease
8K Followers 6K Following We want everyone affected by a rare condition to feel connected, empowered, and supported. Also at: https://t.co/1E1CsLJB1g
Effie Parks @OnceUponAGene
7K Followers 4K Following Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Stephanie Fischer @RarePOV
7K Followers 5K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Rare Disease Day @rarediseaseday
42K Followers 3K Following 28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay
Immunodeficiency UK @ImmunoUK
2K Followers 164 Following Helping and giving advice to people living with primary or secondary immunodeficiency. Arming them with the knowledge to manage their condition effectively.
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
Cerebral Amyloid Angi... @CAAcure
312 Followers 335 Following 👩⚕️PA-C 🧠CAA can cause ICH & cognitive decline 🏈Quarterbacking researchers/physicians/patients for a science touchdown🧬🦓Rare CAA genetic mutation champ
ISurvivor Lisa Deck @lbdeck
1K Followers 1K Following ❤ Mom & Wife * Experienced Speaker & Patient Advocate * #StrokeSurvivor * Founder Sisters@Heart * #Moyamoya warrior; #RareDisease Fighter; #Heart Spokeswomen
Catherine Stratton, M... @cathsmstratton
2K Followers 2K Following Epidemiology PhD(c) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafdn #KnowledgeTranslation #RareDisease #Pain #Disability
Timothy Syndrome Alli... @tsa_charity
344 Followers 1K Following Dedicated to improving the diagnosis, treatment & care of those living with #CACNA1C-related disorders inc. #TimothySyndrome and #LongQT8. @cacna1c.bsky.social
Tabitha Frank @TabFrank85
51 Followers 272 Following I'm the president founder of Endosalpingiosis Foundation Inc🎗🎗 ✨#Endosalpingiosis Advocate, mother to an amazing son, 🍀☘🍀💚Rare Disease🦓 warrior!♓
Endosalpingiosis Foun... @endosalfound
144 Followers 321 Following A nonprofit organization dedicated to raising awareness for #Endosalpingiosis
James Doyle @JamesJDoyle
173 Followers 423 Following PhD-turned-Entrepreneur | Life Sciences Innovator | Startup Builder
Lisa Pascoe 〓〓 @lisap141
170 Followers 1K Following
CDH Stars and Angels @CdhAnd
452 Followers 2K Following CDH Stars and Angels provides financial and emotional support tailored to the unique needs of families facing a diagnosis of Congenital Diaphragmatic Hernia
RareiTi, Inc. @RareiTi
167 Followers 503 Following Managed Access | Better Outcomes RareiTi offers a new system of managed access for people and communities across the globe in the rare disease space.
CMSS @CMSSmed
873 Followers 275 Following CMSS is a coalition of more than 50 specialty societies representing more than 800,000 physicians across the house of medicine.
Harsha K Rajasimha @Harsharajasimha
1K Followers 2K Following #Entrepreneur #RareDiseases #orphandrugs #decentralizedtrials #PrecisionMedicine #AI #clinicalTrials #Digitalhealth #RWE #clinicalresearch opinions my own
Jeeva Clinical Trials... @Jeevatrials
408 Followers 2K Following Design Smarter. Run Faster. Clinical Trials Without Chaos. Streamline protocol design through database lock With our unified software with Clintelligence AI.
Uplifting Athletes @UpliftingAth
5K Followers 3K Following Nonprofit organization harnessing the power of sport to build a community that invests in the lives of people impacted by rare diseases.
Google Grants @googlegrants
8K Followers 52 Following The official twitter account of the Google Ad Grants team.
Google for Nonprofits @googlenonprofit
22K Followers 283 Following This account is no longer maintained. For all things @Googlenonprofit please follow @googleorg
Carmela Chillery-Wats... @Cure4Carmela
2K Followers 3K Following Age 12 #disabilityadvocate #publicspeaker with a muscle-wasting condition, heart disease, liver disease & Lipodystrophy, giving hope to others.
Insieme per la TMAU -... @insiemexlaTMAU
92 Followers 686 Following Sono #EricaAstrea e il mio impegno è quello di divulgare la conoscenza di questa rara malattia, e dare supporto a chi ne è affetto! Unitevi a me! 🧜🏼♀️
SARE Largay @sarelargay
87 Followers 387 Following Positive, practical dreamer. Mom, wife, daughter, friend, athlete, animal lover. Devoted to making a difference in the world for rare diseases.
CenterforChronicIllne... @CciSeattle
624 Followers 2K Following This account is no longer active. For the latest updates and to stay connected, follow the Center for Chronic Illness on Instagram or LinkedIn!
Cures Within Reach @CuresWReach
993 Followers 690 Following Nonprofit catalyzing clinical trials testing approved therapies in unsolved diseases. 2025 Focus: AI Validation, Pediatrics, Vets & more. #ImpactPhilanthropy
Recordati Rare Diseas... @RecordatiD
674 Followers 107 Following At Recordati Rare Diseases, we focus on the few - those affected by rare diseases. Social media guidelines: https://t.co/PEjh3QzOIW
team4travis @team4travis
330 Followers 571 Following No child should die from Isolated Congenital Asplenia 501(c)3 nonprofit corporation #team4travis #aspleniaresearch ⠀⠀⠀⠀⠀⠀⠀⠀⠀
Sanford Burnham Preby... @sbpdiscovery
7K Followers 5K Following Sanford Burnham Prebys conducts world-class, collaborative, biological research and translates its discoveries for the benefit of human health.
PSP Society of Canada @PSPSocietyCDA
582 Followers 2K Following Serving Canadian patients & families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) & Corticobasal Degeneration (CBD)
PA Rare Disease Advis... @PARareDisease
780 Followers 624 Following To improve the quality of life for all those affected by rare diseases in Pennsylvania.
AllStripes @_allstripes
3K Followers 1K Following Our mission is to unlock new treatments for people affected by rare disease.🚀
American Academy of P... @AmerAcadPeds
133K Followers 495 Following Dedicated to the health, safety and well-being of infants, children, adolescents and young adults.
San Diego Zoo Wildlif... @sandiegozoo
425K Followers 741 Following San Diego Zoo Wildlife Alliance is an international non-profit committed to inspiring passion for nature and creating a world where ✨ all ✨ life thrives.
Cure Rare Disease @CureRareDisease
4K Followers 237 Following 501(c)(3) nonprofit leading a nationwide collaboration of researchers and clinicians in order to develop life-saving therapeutics for rare diseases.
Erin Ward @mtmwarriormom
60 Followers 108 Following
MTM-CNM Connection @MTMCNMFamily
231 Followers 145 Following MTM-CNM Family Connection is a 501c3 that exists to connect those with Myotubular Myopathy & Centronuclear Myopathy to resources, research, and relationships!
Dante Labs @DanteLabs
2K Followers 337 Following Dante Labs is a genomic testing and data company, empowering people with a new class of DNA tests to transform your health and wellbeing. Chat to us: @DanteLabs
RAREwithCOVID @RAREwithCOVID
45 Followers 92 Following A Contact Registry for Rare Disease patients with COVID-19. -It's our philanthropic mission and passion to help rare disease patients and their caregivers.
Gene People @GenePeopleUK
5K Followers 2K Following Charity supporting families affected by genetic conditions providing the UKs only free Genetic Counsellor-Led Helpline 0800 987 8985 | [email protected]
Jeff D'Angelo @JeffDDAngelo
72 Followers 86 Following
Heidi Grabenstatter @PatientIntv
2K Followers 2K Following RDCA-DAP Scientific Director @CPathInstitute, patient advocate, neuroscientist, and proud mom. Opinions are my own.
Rey Goicochea @Rey_Alteryx
184 Followers 1K Following Enterprise Analytics @Alteryx. Helping customers deploy self-service advanced analytics and solve business challenges. Tweets are my own.
IRDiRC @irdirc
3K Followers 2K Following #IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
FMDSA @FMDartery
2K Followers 2K Following The recognized leader in the support of Fibromuscular Dysplasia (FMD) awareness, education and research. non-profit (501)(c3)#RUN4FMDSA
Dermetel @dermetel
126 Followers 434 Following #Nonprofit specializing in rare diseases. #Phase1 clinical trials for #TMAU supplement; #free #teledermatology & #youthcamps
Kareem Abdul-Jabbar @kaj33
2.0M Followers 412 Following Official X of NBA Legend, 6x Champion, 6x MVP, 8x Columnist of the Year and award winning newsletter https://t.co/E027yVfmkt.
DFPCUK @DF_PC
219 Followers 588 Following Desmoid Fibromatosis Patients & Carers is here to empower & support patients to live beyond their diagnosis.
Patient Chat @patientchat
5K Followers 3K Following Join the Empowered #patientchat discussions bi-weekly on Fridays at 10amPT | 1pmET. All welcome. Hosted by @power4patients #epatient #ptexp #patientadvocacy
Patient Empowerment N... @power4patients
4K Followers 2K Following Empowers patients & care partners at every step of their cancer journey. Empowered #patientchat host. Get personalized support! Text ‘EMPOWER’ to 833-213- 665
heidi bjornson @heidibp
707 Followers 1K Following Rare Disease Advocate, #PCD, #RareAsOne Program Manager, @CZIScience, Attorney, Mom
Twibbon @twibbon
2.6M Followers 4 Following A Twibbon campaign is your very own microsite where users can support your cause, brand or organisation in a variety of ways.You might like
