Roja D. Sooben. @SoobenRoja
Retired Nurse. Audacious campaigner for the rights of persons with Learning Disabilities. Freelance writer. Author - 'The Difference Makers' East Midlands, England Joined June 2015-
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Following60
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I’ve been writing about health and social inequality concerning untimely deaths for a while. But had shared little until now. Here’s my first for this year.: …edifferencemakersinclusivemindset.com/speakng-up-aga…
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Ruling of a landmark case …edifferencemakersinclusivemindset.com/ruling-of-a-la… sharing my disappointment of the Court's ruling. The government should use this landmark case as an opportunity for redress across the land.
Kent nurses help to boost learning disability health check uptake nursingtimes.net/news/research-… so encouraging - impact of the input of the LD nurses - check it out.
Creating a Covid-19 vaccination clinic for people with learning disabilities nursingtimes.net/clinical-archi… Finally - some encouraging new research underway.
BBC News - Down's syndrome: Hampshire mums dispelling myths bbc.co.uk/news/av/uk-eng… Hello mums from Hampshire - thank you for the inspirational quote - 'teaching the world about Down syndrome.'@dontscreenusout,@Wouldntchangea1,
Roja D. Sooben. retweeted
@AnnaMurray90 What did they do wrong?
This's typical perpetual discrimination without cause or true understanding.
This's typical perpetual discrimination without cause or true understanding.
Roja D. Sooben. retweeted
"We must no longer accept the status quo: having a learning disability should not mean that you are at risk of an early avoidable death because of poor healthcare provision." #BMJOpinion ow.ly/vDxo50v1E5C @mencap_charity #LeDeR @leder_team
I wouldn't change anything about my career in LD. After six years into my retirement my passion hasn't diminished! LDNurses must celebrate the experiences gained working with and for persons with learning disabilities. #celebrateme,#WouldntChangeAThing
Celebrating 100 years LDN milestone .My gut feelings that until there's true valuing of persons with learning disability, our profession will remain in the balance. But I'm certain LDNurses will not sit back though, here's to the next 100 !
I love the results of your pondering moments ! What learning disability nursing is about - foundational and profound ! Great stuff - will certainly borrow this !
I love the results of your pondering moments ! What learning disability nursing is about - foundational and profound ! Great stuff - will certainly borrow this !
Congratulations Helen!!! wishing all the best @helen_laverty @helen_laverty
Funding alone won’t fix the social care system theguardian.com/social-care-ne… outlook.live.com
Agree - it's reproductive autonomy not the disability in the unborn as ground for abortion
Agree - it's reproductive autonomy not the disability in the unborn as ground for abortion
I welcome this move insofar as health equality is concerned.
I welcome this move insofar as health equality is concerned.
including new parents with babies with Down's syndrome
including new parents with babies with Down's syndrome
Breastfeeding could prevent 800,000 child deaths, Lancet says gu.com/p/4g87p/stw
@SoobenD , it seems to be a taboo subject and the least discussed public health issue .
'The public were never asked': Sally Phillips speaks out against genetic screening tests to detect Down’s syndrome thesun.co.uk/sol/homepage/s…
IreneMonroe @F9Vsq3Cndt5W29
1 Followers 640 Following
Kenneth Maguire @kennethmag69
365 Followers 2K Following Campaigning to stop the premature deaths of people with Down Syndrome and learning disability like my sister Jackie in care who died tragically in 2017 aged 52.
Portsmouth Down Syndr... @PortsmouthDSA
3K Followers 1K Following Rachael Ross MBE – Chair & Fundraising Dir. Providing friendship, support and educational services to children with Down syndrome and their families
Born Fabulous Podcast @PodcastBorn
1K Followers 3K Following In depth conversations about accomplished individuals w/ disabilities. Writer. Public speaker. Inclusionista. Fierce mama. Loyal Mn Vikings fan!-Greta Harrison
Cath Horbury @CatherineHorbu3
681 Followers 337 Following I am a Peer Support worker for learning disabilities I am employed by the South West Yorkshire Trust and I love my new job it’s great 👍😘😊🎉
OneConversation @OneConvoUK
133 Followers 220 Following OneConversation... changing the world for people with intellectual and developmental disabilities, one conversation at a time.
DG @D_G_000
7 Followers 183 Following
Maggie ward💙 publi... @Maggiew56700896
5K Followers 5K Following Was NAR and now RN, I like running, sort of training, reading and blogging https://t.co/RewRYQEvFf I like to train hard and lots of it. All views are my own
Elizabeth Bentley �... @lizbobchilton
2K Followers 3K Following Barnsley girl, ex NHS RGN, Mum to amazing Clara ❤️
Ruth Wyn Williams RNL... @IechydDaBangor
2K Followers 5K Following Iechyd, gofal, anabledd dysgu, cydraddoldeb a'r Gymraeg. // Health, learning disability, equality, language #bilingual #Welsh Barn bersonol a fynegir yma.
Rebecca Spillane @beckyporty
882 Followers 3K Following Mother, sea lover, coffee drinker. Passionate about #ChildrensRights & #TacklingPoverty. UNCRC Implementation Project Manager @improserv All views my own.
Lucy Dimbylow (she/he... @lucywriter
2K Followers 3K Following Editorial Manager @DementiaUK, Christian, mum of kids/cats, suicide survivor, wild swimmer, bookworm, musical theatre obsessive, veggie. She/her. Views my own.
BS_Campbell @campbell_bs
68 Followers 137 Following Writer and illustrator of Trudy and Me, a book about Patrick and his little sister Trudy who has Down’s Syndrome.
Claire E. Hunsley @PaintedPonyLady
335 Followers 512 Following Real live Cowgirl, living the dream, mother to a footie mad, nay, Lincoln City mad son! #UTI
People First Keighley... @PfkcR
783 Followers 2K Following We are a self advocacy group run by and for people with learning disabilities.
Caroline Warren @mutleymag1c
205 Followers 440 Following Family; Down syndrome; wildlife; farming; building; ponies.
katy_dss @KLironi
1K Followers 3K Following 🎤singing, signing and story telling with Down’s Syndrome Scotland ABC programme ...Makaton, communication..all views my own 💃🎤🍰💖
Liz Crowter @LizCrowterDSmum
2K Followers 1K Following working with @heidicrowter95 to get #equality24. equality in the womb for babies with down syndrome
Shubhanna Hussain @Shubhanna
2K Followers 3K Following Partnership Development Officer @CarersCoalition | Tweets about carers rights, policy and research| *I'm no longer on here - find me on BlueSky or LinkedIn*
National Down Syndrom... @NDSPolicyGroup
3K Followers 955 Following The NDSPG supports people with DS to have a say in the formation of policy in matters that impact their lives. We provide the secretariat for @APPGDS
Jessica Lister 💙 @JessicaLDNurse
1K Followers 2K Following Consultant Nurse -Learning Disabilities. NMP, CPI Instructor, Trainee Approved Clinician, Clinical Academic, UKLDCNN Chair. MBA, PgDip. #RNLD #ChooseLDNursing
Liaise @LiaiseUK
1K Followers 4K Following Our purpose is everyday, at every step of the way, we help you thrive. Our values are Positive, Progressive, Personal.
Heidi Crowter-Living ... @HeidiCrowter95
9K Followers 4K Following Law allows abortion to 24 wks- unless u have DS its BIRTH! Tweets by Heidi & her team! https://t.co/k9GxCCYLBz…
APPG for Down Syndrom... @APPGDS
977 Followers 1K Following Our aims are to raise issues affecting people with Down syndrome, promote equality, campaign for equal access & highlight the innate worth of people with DS.
Adamah Media @Adamah_Media
352 Followers 344 Following An online magazine striving to open minds and hearts through thoughtful and respectful journalism.
Down Syndrome UK | Po... @PositiveaboutDS
6K Followers 2K Following UK charity. Empowering people who have Down syndrome and their families, health & maternity professionals and educational settings.
Claire May @ClaireMM78
298 Followers 986 Following I am the rarest of the rare. An independent woman called Claire
Dr Cath Lunt @cathl555
344 Followers 858 Following Research & Evaluation Manager @DCPcampaign . Inclusivity l Disability l Complex Needs l Long- Term Conditions l 1stgengrad l All views my own.
Stacey Byrne @staceybyrneT21
847 Followers 1K Following Wife & mother, 4 boys! C/O my boys acc @BrotherEmporium https://t.co/q1aiI3vXPA My views are my own.
Neil Harrower @DrNHSheff
215 Followers 2K Following Consultant Paediatrician in Neurodisability, Director Paediatric Disability Distance Learning Course.
Blue Apple Theatre @BlueApplePlays
2K Followers 4K Following Theatre, dance, singing and film by learning disabled performers to wide audiences. Blue Apple is part of Minstead Trust. Bio https://t.co/UEnj4di5cJ
Grace Eyre @GraceEyreF
2K Followers 2K Following We're a charity supporting people with a learning disability & autistic people live the lives they want. Keep up to date: https://t.co/gPpXatPrI5
Dr Alison Pearson @alisonpearsonSW
6K Followers 6K Following Postdoctoral research fellow researching education, wellbeing, resilience. Mum to a beautiful trisomy girl.
Mrs Bowman @CristinaDarling
2K Followers 3K Following #NeuroDivergent, Founder @DiffAbilityCIC #DiffAbility Inspired by my son Max who has #Downsyndrome Director @DanceSyndromeUK @CarlisleMencap @DSSGB1 #MVP Rep
monkeytoes @TANIACHARLTON
501 Followers 764 Following Lucky Mum to 3 beautiful children, including a fabulous little boy with Downs Syndrome: positively raising awareness. This is us! https://t.co/tfatlJXNCF
#wouldntchangeathing @Wouldntchangea1
8K Followers 2K Following Making negative perceptions of Down Syndrome a thing of the past.
Beverley Dean MBE @BeverleyDeanMBE
344 Followers 703 Following Mum of 2 amazing boys, one of which has an extra chromosome and is dual diagnosis Down syndrome & autism. Founder of @specialiapps
21 Together @21_together1
437 Followers 615 Following A charity working with the Down's syndrome community in Kent. Providing training, awareness and support to parents, carers and professionals.
Jo Thurai @joaiyathurai
41 Followers 303 Following
Verity E Lancaster @LancasterVerity
18 Followers 31 Following Student midwife proudly living the breast life. #UniversityofGreenwich Carpe diem work your perineum 🌈#PelvicFloorPromoter
Paul Maloret @paulmaloret
84 Followers 192 Following
Alicia @aliciariveraec
355 Followers 3K Following
Josh Hodgson @JoshHodgsonRNLD
1K Followers 2K Following Senior Lecturer: Learning Disabilities @TeesUniSHLS @TeessideUni | Co-Chair LDNSDMC @NHSEngland | #Nurse #RNLD | DProf Student | #BorderCollie Dad | 🏳️🌈🏉⛺⛵
alexdaniel @alexdan64673058
96 Followers 651 Following
angie @LookingUpBooks
815 Followers 599 Following *Book Lead for CDSSG charity *Mum of 3, 1 has DS *Speaker on family perspective thereof. Who'd have thunk it, eh?
Daniel Marsden 💙 @dmarsden49
5K Followers 4K Following RNLD, MSc, SCLD, SFHEA @CCCUNursing SL Curiosity, Creativity & Passion #keephoLDNon *Mothballed Account* find me at @dmarsden49.bsky.social
Claire E. Hunsley @PaintedPonyLady
335 Followers 512 Following Real live Cowgirl, living the dream, mother to a footie mad, nay, Lincoln City mad son! #UTI
EqualRightsInstitute @EqualRightsInst
4K Followers 704 Following Equal Rights Institute uses speaking, writing, and campus outreach to train pro-life advocates to think clearly, reason honestly, and argue persuasively.
David Harling @DavidHarling1
6K Followers 4K Following National Deputy Director for Learning Disability Nursing at NHS England. A proud RNLD & RMN. Purveyor of kindness, quirkiness, and a light sprinkling of humour.
Heidi Crowter-Living ... @HeidiCrowter95
9K Followers 4K Following Law allows abortion to 24 wks- unless u have DS its BIRTH! Tweets by Heidi & her team! https://t.co/k9GxCCYLBz…
APPG for Down Syndrom... @APPGDS
977 Followers 1K Following Our aims are to raise issues affecting people with Down syndrome, promote equality, campaign for equal access & highlight the innate worth of people with DS.
National Down Syndrom... @NDSPolicyGroup
3K Followers 955 Following The NDSPG supports people with DS to have a say in the formation of policy in matters that impact their lives. We provide the secretariat for @APPGDS
LDEngland @LearningDisEng
14K Followers 4K Following Our members are people with learning disabilities, families, profs & orgs. We work for human rights equality & good lives. Usually here Mon-Fri RT not agreement
Paula McGowan OBE @PaulaMc007
42K Followers 12K Following •Hon University Fellow- Fac Health •Founder The Oliver McGowan Mandatory Training •Patient Safety Trying to survive Cancer #Melanoma
Enable Magazine @EnableMagazine
22K Followers 5K Following Enable Magazine is the UK's leading disability and lifestyle title, filled with news, exclusive interviews and real-life stories from the disability community
Lose the Label @Lose_the_label
1K Followers 232 Following Dedicated to educating and updating societal perceptions about life with Down syndrome.
NHS England @NHSEngland
515K Followers 2K Following We lead the NHS in England to deliver high quality services for all.
Rightful Lives @RightfulLives
8K Followers 2K Following A UK based community focussed on the Human Rights of Autistic people and people with Learning Disabilities.
LeDeR (University of ... @leder_team
4K Followers 726 Following The University of Bristol's contract to support LeDeR has ended and this account in now inactive. To find out more about LeDeR please follow @NHSAbility
Don't Screen Us Out @dontscreenusout
5K Followers 4K Following Creating a world where people with Down’s syndrome are equally valued and have an equal chance of being born.
Down Syndrome UK | Po... @PositiveaboutDS
6K Followers 2K Following UK charity. Empowering people who have Down syndrome and their families, health & maternity professionals and educational settings.
#wouldntchangeathing @Wouldntchangea1
8K Followers 2K Following Making negative perceptions of Down Syndrome a thing of the past.
LDNurse @LDNurse1
4K Followers 2K Following Passionate about supporting Experts by Lived Experience. Project Lead for @ShoutOutAcademy. Campaigner for review of LD Nurse field name.
Colette Lloyd @ColetteLloyd
2K Followers 3K Following Proud mum to four young adults. Speech and language therapist. ✝ Passionate about Truth. Light. Love. Wisdom. #inclusion #downsyndrome #ethics #chocolate
iHV @iHealthVisiting
17K Followers 1K Following A UK centre of excellence, supporting the development of universally high-quality health visiting practice.
World Down Syndrome D... @WorldDSDay
12K Followers 333 Following Join us on 21 March to ask the world to #EndTheStereotypes
Down's Syndrome Assoc... @DSAInfo
22K Followers 3K Following Supporting people who have Down's syndrome to live full and rewarding lives.
Commun.it @commun_it
386K Followers 391K Following https://t.co/9sSrmzs44h - We help you 🚀 Grow on Twitter - It's Magical & Free!
Shereen Fisher @shereen_fisher
1K Followers 1K Following
Down Syndrome Today @DownSynToday
6K Followers 316 Following
Mary Newburn @MaryNewburn1
5K Followers 3K Following Mary Newburn Consulting - project management; facilitator; service user involvement; maternity services; research. Interests: Aspergers, cancer, mental health.
Lynn Murray @LynnAMurray
1K Followers 1K Following live each day as your last #dontscreenusout won't count chromosomes
Agi K @agikproductions
540 Followers 929 Following Self taught filmmaker, YouTuber, creator of the 'My Little Sister (who happens to have Down's syndrome)doc series. National Youth Film Festival winner
Sally Phillips @sallyephillips
76K Followers 4K Following Official account of actor Sally Phillips. Enthusiastic about Finland, seriously over having a serious side.
Dr Louise Santhanam �... @gp_aulait
1K Followers 1K Following GP #PostnatalCare #PMH #perinatal #BreastfeedingSupport #MatExp | Admin @GP_IFN | @GP_CPC | Opinions mine | Not individual medical advice | No longer using X
GPIFN (UK) @GP_IFN
2K Followers 774 Following The GP Infant Feeding Network | clinical discussion forum NOT medical advice for individuals | tweets by @gp_aulait | #MatExp | #FOAMed | #DontSayStopLookItUp
Infant Feeding APPG @APPGIFI
4K Followers 1K Following The All Party Parliamentary Group on Infant Feeding and Inequalities. Tweets by office of APPGIFI Chair @alisonthewliss
Stepping Stones DS @SteppingStoneDS
1K Followers 350 Following Local Down syndrome support group for parents and carers of children with DS
Future Of Down's @Future_Of_Down
1K Followers 472 Following Actively promoting, enabling, supporting, protecting, advocating for a successful future for people with Down's Syndrome in society, for families & individuals.
Not In Our Name @uknotinourname
141 Followers 1K Following Should the Royal College of Midwives take a position supporting abortion up-to-birth without consulting their membership? #notinourname
WeLDNurses 💙 @WeLDnurses
13K Followers 5K Following Connecting learning disability nurses. Talking and sharing with everyone with a passion for learning disability care. #WeLDNs
Sarah Gordy @sarah_gordy
7K Followers 178 Following "I have Downs Syndrome but that's not all that I am. I am a woman and an actor first" Drama Agents - Conway Van Gelder, Commercial Agents - Visable People :)
X Marks The Spot @lastdaymark
1K Followers 330 Following X Logo has 6 lines. X marks the spot. X cashless all in one app. Just saying.
TC Down Syndrome AG @tcdsag
456 Followers 98 Following We provide support to families and enhance the lives of persons with Down syndrome to reach their fullest potential and create a public awareness.
The Breastfeeding Net... @BfN_UK
12K Followers 1K Following Breastfeeding support💜 📞 0300 100 0212 or DM us on FB or IG Registered Charity No SC027007💜 To donate £3 text BFN to 70085💜 DMs not continually monitored
Renate Lindeman @Downpride
2K Followers 2K Following Eugenic abortion for Down syndrome is not a medical decision. It's a cultural decision, comparable to sex-selective abortion. Pro-life, cause anti-life is dead
Neil Harrower @DrNHSheff
215 Followers 2K Following Consultant Paediatrician in Neurodisability, Director Paediatric Disability Distance Learning Course.
Global Down Syndrome ... @GDSFoundation
21K Followers 7K Following GLOBAL is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome.
Hayley at Downs Side ... @DownsSideUp
13K Followers 9K Following Downs Side Up blogger. Author, speaker, Mum. @LoveYouNatty book @inclusiveminds @spcialndsjungle @mencap_charity ambassador #TedX #modelNatty #LipWarrior
Viv Bennett CBE @VivJBennett
24K Followers 1K Following Public Health Nurse leader. ‘protecting health..preventing avoidable illness..promoting wellbeing’
Mencap @mencap_charity
204K Followers 28K Following Our vision is for the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.💜
Down Syndrome Daily @DownDaily
7K Followers 2K Following a quick way to get current news related to Down syndrome
Pandora Summerfield @Pandora_js
506 Followers 825 Following Foster Mum together with wonderful wife. Dogs and cat owner. Charity consultant. Views my own, retweets not usually endorsements.
Helen Laverty MBE @helen_laverty
4K Followers 985 Following A Proud learning disability nurse and nurse teacher,believe passionately in Strictly No Labels and always remember #togetherwearebetter
Brian Skotko @brianskotko
4K Followers 227 Following International expert on Down syndrome. Director @MGHDownSyndrome. Medical geneticist @mghfc. Enthusiast of https://t.co/vpU3CVatVr. Views my own.
Down Syndrome Interna... @DSiupdate
12K Followers 449 Following DSi is the global network of people with Down syndrome and their families. Together, we speak up for the human rights of all people with Down syndrome worldwideTrends for United States
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