Thegistcancergirl @Thatgistgirl
Hi I'm Rachel a GIST cancer patient I share Tiktoks and posts about the highs and lows of life living with rare incurable cancer. tiktok.com/@thatgistcance… Joined November 2021-
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Looking forward to tonight as I'm going to a welcome dinner for a clinic for PAWS-GIST patients thats on tomorrow. Its run by @PAWSGIST and is a amazing resource for #GIST #cancer patients from around the country to come & get a second opinion by specialists in this rare cancer!
You voted in your thousands and it's time to honour the winners of the first Sarcoma UK Shining Star Awards. We'll be celebrating the very deserving winners at a reception at @10DowningStreet on Monday evening. Join us on our socials from 6:30 pm for updates. ⭐
Happy Sunday! What are you up to today? I go round to dinner with my parents every Sunday its our tradition and it's my favourite. 🥰 #sundayvibes
One thing me & a lot of cancer patients struggle with is their appearance while living with cancer & under going treatment. I've definately felt this a lot, especially lately. But I found this picture today & I actually really like it. #cancertreatment #livingwithcancer
Are you a young adult dealing with cancer-related fatigue? The @Untire_App is here to support you. Your input can help researchers from @UniofBath improve the app and help cancer patients & survivors cope with extreme fatigue. Interested? More info below👇 bit.ly/3uBgSoC
Hi guys how's everyone? I have been struggling a lot lately so took a bit of a break. But I'm trying to feel better. I hope your all well. 🥰
How cancer is like a horror movie: 👉 Constant fear 👉 Someone is poisoning you 👉 Friends and family start acting weird 👉 You come back different 👇👇👇
Hi everyone, I wanted to come on and let everyone know I'm ok. Thank you for thinking of me. Tbh I have been really struggling. My mental health has not been good. And pain from my cancer has been v.bad. Having cancer for 21 yrs with pain everyday is really hard. @ThanksCancer
I'm not sure why probably a lot of things. But I have been really struggling with my mental health. I'm stressed my anxiety is through the roof. I'm angry, frustrated. Maybe it's all just grief still but I'm really not feeling like myself. 🥲
Not been having a great couple of days. My pain hasn't been very good especially over night where my tumours come out the top of my liver they sometimes rub on my ribs and it gets inflamed. Hoping it will settle down again soon though! How are you all? @ThanksCancer
Morning lovely people! Shhh I know its 1pm lol! I hope you are/will have a good day and if you don't there's always tomorrow to try again! 🥰
Vacations, staycations, dining, concerts, unique experiences... we're a little overwhelmed by the truly fabulous items in this year's Glitter Ball auction. Jump in! But be quick - bidding stops at 11:30 pm on Saturday! sarcoma.org.uk/GBAuction #UKAuction #CharityAuction
This photo was taken 21yrs ago in 2001 after surgery to find I had a rare cancer called GIST. I'm now 36 and still waiting for my cure. Rare cancers desperately need more funding so that me & others can finally get they're cure! @Liferaftgroup #RareDiseaseDay @ThanksCancer
Living with a rare disease looks like both of these pictures. Its about finding the happy moments where you can! #thrivingtogether #gistsarcoma #RareDiseaseDay @Liferaftgroup

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