Jacqueline Taylor ✨ @_tayyylorrm
Washington Joined June 2016-
Tweets8K
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Followers541
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Following1K
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Likes62K
#chronicpain #pain #spoonies #rarepainfuldiseases We are investigating Toradol either injectable or oral, a strong anti-inflammatory agent generic ketorolac. Did it work any side effects? answer answer twice retweet please
washing ur face and water going down ur elbow is so sickening
Me, before Long Covid ruined my life 3 years ago. I was working in a gym. No, exercise is not a treatment or a cure for my condition. In fact it's impossible to do without getting much worse and bedbound.
@PikeWielder yeah most docs are useless with dysautonomia.
@earth_hostage Pots has a defined hr increase of 30bpm or more sustained after 10 mins standing. ME is another name for dysautonomia in my opinion with profound debilitating fatigue and PEM after minimal exertion. Pots can be with or without PEM.
That poison feeling is a hallmark sign of either Pots or ME. It is related to the abnormal blood flow all over the body mixed with fatigue from dysfunctional aerobic metabolism and now lactic acid builds up after minimal exertion.
isn't it weird how you can actually feel the pain in your chest and stomach when something really hurt your feelings
sex is so personal & intimate.. idk how y’all just be fuckin anybody
i don't do phone calls unless you're my best friend or the loml
Physical touch, words of reassurance, and quality time >>>
i wish i could mute my head from overthinking
A narcissist wants the authority of a king/queen while having the accountability of a toddler.
that feeling when you're not necessarily sad, but you just feel really empty
i’m so motherly when i love someone
Describing Post Exertional Malaise to a healthy person is impossible. The aches, pains & headaches can be somewhat understood. But how do you explain that you feel flu-like & concussed if you move?
tay-ma @taywalsh9343
3K Followers 628 Followingelle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤Oleta @ducheneoleta4
152 Followers 3K FollowingCharissa Kucel @CKucel88188
85 Followers 5K FollowingDeandra Mocha @moc_deand
88 Followers 5K FollowingVikki Sukut @SukutVikki36456
86 Followers 5K FollowingChristina Tolan @ChristinaT13552
90 Followers 5K FollowingJane Mashall @jane_masha50043
96 Followers 5K Followingweskchukes @weskchukes
406 Followers 3K Following My aspiration are to incite in each individual the motivation and desire to share your storyNaya @Naya72469836766
2 Followers 97 FollowingNaya @Naya25635379580
15 Followers 95 Following Simple but significant. I am a warrior in a world of worriers. I was raised to love fiercely, and I stopped along the way to take business. 🫅🫅🫅Mehdi @Mehdi30958430
66 Followers 1K Followingmed help @medhelp9
2K Followers 5K Following Medhelp World is a non-partisan, community-based pharmacy that works to support pain patients and their physicians with access to lifesaving pain relief.Tevin Andrew @TevinAndre50642
1K Followers 4K Following Father and fibro warrior. I stand for a safe supply of over the counter medications. End pain not livesAskNurseMo @AskNurseMo
477 Followers 645 Following God/1A/2A/🇺🇲 Functional/Holistic health RN 2019+ Consultations available RN='93+ Med/Vax Freedom activist 2016 patient advocate/educator2017 #God #asknursemoout cast @hellwithpots
276 Followers 103 Following life over when it was just getting good. me/cfs dysautonomia mcasDeusVult🇺🇸🇮�.. @Deus_Vult_1
2K Followers 4K Following Cursing🩸REPORTING Islamofascists 24/7 since 9/11 Terrorist suffering ❤️🔥💀brings me JOY💋 2A #MAGA #FJB #FBO ALL NAZI/PEDO/TERRORISTS*LISTS*REPORTED 🚫Pain Prisoner #001000.. @PainPlayhouse
4K Followers 3K Following I suffer from never ending pain in a society that does not believe it is real. A pain in your ass to remind you of the sadistic treatment of the incurable.alyssum 🌸 @a_lil_bow
3K Followers 5K Following Fangirl of scientists. Drinking coffee is my purpose in life. Collector of cool people. Immunocompromised. Full-time incubator for chaos ☕️ 🧬Ember Ethereal @CalcifersEmber
212 Followers 306 Following |writer||singer||doomer| Activism is cool, fuck the government check out my music on SoundCloud https://t.co/9brDak7wNRChristina Melaney (St.. @Gardencare2013
669 Followers 3K Following Gardener, Seed saver, Musician, Cook, Naturalist, Nature Photographer.TheLegendOfCamelot @LegendofCamelot
86 Followers 318 FollowingKleins @GoodsAdvertise1
20 Followers 122 Followingamy @amyespeseth
3K Followers 5K Following recluse; writer; academic*ish; hard rubbish enthusiast; sick #hEDS #POTS #MCAD etc lol; she/her; #exvangelical #igotout 🏳️🌈🖤❄️🗽🍁🦃🐄🐨🌿Chris Archuletta @archuletta91
1K Followers 3K FollowingStephanie Mathis @Stephan90411631
2K Followers 5K Following Medical Laboratory Scientist who works nights and loves Microbiology and Blood Bank! 🧪🧫🧬🔬°|° @xereabois
973 Followers 3K Following Jude 1:2 Even before I was World Champ I knew I was gonna be the man. njaro zangu manufaa🚀Kath Lanc @lanc5la55
2K Followers 3K Following Freedom loving Lancashire lass, vaccine injured by AZ 4120Z003 in March 21. Against discrimination, for free speech.Jeff Jackson @JeffJac09552943
1K Followers 1K Following Venmo: Bigjaxx https://t.co/iUlzQMhs2I Instagram: Bigjaxx1 Vaccine injured (Moderna 2nd shot)P. ⭐️⭐️♿️.. @LondonMurray12
383 Followers 1K Following Intractable Pain Pt. #Art. #Equality #HumanRights #PainKills literally. I obey no master. I serve no king.Debadrita Sur @s_debadrita1709
708 Followers 2K Following Multimedia Journalist at @TheBuffaloNews @buffaloguild member @columbiajourn'23 alum Previously: @faroutmag, @thebestnetflix Professional procrastinator.Dee @po_move
2K Followers 2K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLCJade Savoca @JadieIsTired
670 Followers 616 Following 39F / AZ🌵➡️MN🌲 / Rescue 🐕🦺🦮 mom / Investments 💵 / Music 🎵 / #LongCovid community #FBLC / Politics #NeverTrumpDebbie Seymour @debbie_seymour
2K Followers 780 Following This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving. #LongCovid #MECFS #POTSPeter Gray Pipemaster @PeterGr48811483
1K Followers 1K Following World famous Niche CBX exhaust maker. Husband to a Sicilian wife, 9 grandchildren, Aerodynamicist ,loves sailing, ex surfing, ex sno skiing, Christian.Michael Davies @therichsugarda
30 Followers 594 Following Am older man who gives money, 💰to struggling college ladies.. no sexual activities for serious ladies onlySeeJaneRise @SeeJaneRise
201 Followers 688 Following Out of spoons, no forks given. #POTS #Chiari #EDS #ADHD #gastroparesisxavier♿️ @lil23rdss
1K Followers 653 Following disabled cis man. (intersex) chronic intractable pain pt on long term opioid therapy to live a QOL & function. 29. Pro Pain Medicationtrudy @trudyflynn_
2K Followers 3K Following Fibromyalgia, Co-Chair MSSU PPPC & Chair Fibromyalgia Association Canada, PERA alumni CIHR-IMHA, Patient Partner #Fibromyalgia #FAC #PatientEngagement #MSSUMiLadyLilMissyWooWoo @LilMissyWooWoo1
667 Followers 2K Following An outside of the box thinker simply because I can't remember where I put the damn box😏 Proud & Loud Anti-vaxxerJustin_Struble @Justin_Struble
393 Followers 2K Followingbay 💫 @xmermaidmama
6K Followers 387 FollowingLaura Miers @LauraMiers
65K Followers 13K Following Pro-Kindness/Compassion/Love. Wealth inequality will destroy us. Ex-Texan, Global citizen. Law, Medicine, Sustainability, Languages. LongCovid since 2020.S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advicetay-ma @taywalsh9343
3K Followers 628 FollowingHannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedBea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]Harriet Carroll: Long.. @angryhacademic
8K Followers 4K Following #LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClotsIppokratis @IpLongCovid
7K Followers 1K Following Physical education and sport science BSc #LongCovidDysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissingseashels 🐚 @shelb_gutierrez
7K Followers 2K Following Mama to 4 babes. Arizona Photog. Says fuck too much. 🏳️🌈 Venmo: shelby_neilson cash app: $shelbsneilsAnimalCrossingGoneWil.. @ACgonewild
943 Followers 9 Following Animal crossing designs both awesome and NSFW, why? BECAUSE THEY GAVE US THIS POWER!!😈💦Baby Ruthless 🗡️ @babyrelentless
571 Followers 192 Following Your friendly neighborhood plague victim. Unwilling early adopter of #LongCovid. Solidarity from the void.out cast @hellwithpots
276 Followers 103 Following life over when it was just getting good. me/cfs dysautonomia mcasPOTSibilitiesParents @POTSparents
885 Followers 346 Following ~Since 2012, a community of parents sharing strength, support, information, and resources as parents who have children with POTS or other forms of dysautonomia.clair elle ❀🦌 @ClairElle__44
3K Followers 90 Following former IT analyst and occasional film photographer. chronically Ill for the social mystique (ME, hEDS & POTS)Nikkole @nhughesoly
2K Followers 2K Following MPA. Energy policy specialist. Dog mom x3. Disabled by #MECFS. Former #waleg nonpartisan staff. She/her. Views are my own. I block ableists. 🇵🇸🪬🏳️🌈DeusVult🇺🇸🇮�.. @Deus_Vult_1
2K Followers 4K Following Cursing🩸REPORTING Islamofascists 24/7 since 9/11 Terrorist suffering ❤️🔥💀brings me JOY💋 2A #MAGA #FJB #FBO ALL NAZI/PEDO/TERRORISTS*LISTS*REPORTED 🚫Pain Prisoner #001000.. @PainPlayhouse
4K Followers 3K Following I suffer from never ending pain in a society that does not believe it is real. A pain in your ass to remind you of the sadistic treatment of the incurable.CC. (Contrarus (@Nefa.. @CContrarus
3K Followers 805 Following Physical pain is worthy of RELIEF. NOT simply TREATMENT. We've seen that word abused.Pain is valid & worthy of care & relief.Joe Newman @JoeAllenNewman
8K Followers 1K Following A Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPPIllicit fentanyl is k.. @JSG_54
7K Followers 3K Following Advocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.Claudia A. Merandi @CMerandi
10K Followers 512 Following RI HCP/patient advocate. Founder Doctor-Patient Forum/Don't Punish Pain.alyssum 🌸 @a_lil_bow
3K Followers 5K Following Fangirl of scientists. Drinking coffee is my purpose in life. Collector of cool people. Immunocompromised. Full-time incubator for chaos ☕️ 🧬amy @amyespeseth
3K Followers 5K Following recluse; writer; academic*ish; hard rubbish enthusiast; sick #hEDS #POTS #MCAD etc lol; she/her; #exvangelical #igotout 🏳️🌈🖤❄️🗽🍁🦃🐄🐨🌿Dr. Stella Immanuel M.. @stella_immanuel
254K Followers 364 Following Physician, Author, Speaker, Entrepreneur, Deliverance Minister, God's battle axe and weapon of war. A woman of science and of the Spirit.Stephanie Tait ♿️ @StephTaitWrites
39K Followers 1K Following Author | Speaker | Consultant | Amateur Florist| #Disabled l Queer | #CPTSD | #AuDHD | #Bipolar2 | #Adoptee | Oversharing is my Spiritual Gift 💁🏼♀️(She/Her)Erin C. Sanders, MSN,.. @ErinSandersNP
19K Followers 9K Following Proud Mama & Wife | Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | #Disabled ♿️ | #WomxnsHealth 🧠 | Catalyst | Connector | #JusticeAccompliceJoJo Sinclair @sinclair_jojo
107 Followers 618 Following Error 404: personality not found(heds/movement disorder;etc),interested in all things neuroscience!doesn't get out much,more like oscar the grouch🧌🗑️save me!Diana Needs Your Help.. @DianaOlijarEDS
56 Followers 291 Following Mother / Artist/ Model / Cabin Crew ✈️ Advocating for awareness of #EDS #CCI #AAI #POTS #HSD #MCAS #CSFLeak https://t.co/gWCTf2h1X1Maya @lovingchronicme
203 Followers 618 Following Spoonie HEDS /POTS/ CFS Mum to 7yo daughter & dog mum! Here to share my story 🦓Long Covid Advocacy I.. @LCAIreland
2K Followers 3K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patientsSøs @SosNielsen66
1K Followers 1K Following #FE2090 🤕Vaccineinjuried by Pfizer. July 2021. Son 24 hurt by Pfizer Aug 21 💔Mum of 4 kids. Used to hike,run,dance and be outdoor.Jeff Jackson @JeffJac09552943
1K Followers 1K Following Venmo: Bigjaxx https://t.co/iUlzQMhs2I Instagram: Bigjaxx1 Vaccine injured (Moderna 2nd shot)Kath Lanc @lanc5la55
2K Followers 3K Following Freedom loving Lancashire lass, vaccine injured by AZ 4120Z003 in March 21. Against discrimination, for free speech.Mae @Mae522018
1K Followers 3K Following Mom, Speech and Language Pathologist, #covidvaxinjured #POTS, #longcovidallyJade Savoca @JadieIsTired
670 Followers 616 Following 39F / AZ🌵➡️MN🌲 / Rescue 🐕🦺🦮 mom / Investments 💵 / Music 🎵 / #LongCovid community #FBLC / Politics #NeverTrumpDebadrita Sur @s_debadrita1709
708 Followers 2K Following Multimedia Journalist at @TheBuffaloNews @buffaloguild member @columbiajourn'23 alum Previously: @faroutmag, @thebestnetflix Professional procrastinator.Publice Profugo @PubliceProfugo
140 Followers 925 FollowingRDI @rarediseasesint
5K Followers 699 Following Rare Diseases International - the global alliance of rare disease patients & familiesPoTS UK @UKPoTS
7K Followers 4K Following A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.Debbie Seymour @debbie_seymour
2K Followers 780 Following This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving. #LongCovid #MECFS #POTSSandra 👩🏻�.. @RSandra266
5K Followers 892 Following https://t.co/tv9iKDwMkf.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | life pauses due to #LongCovid #MECFS #PEM #MCAS, #SFN | Aktivismus ✊🏻HSE Covid Consultant @CovidHse
9K Followers 68 Following HSE Consultant in an Acute Irish Hospital Treating Covid Patients. Views my own - do not represent official HSE policy.SeeJaneRise @SeeJaneRise
201 Followers 688 Following Out of spoons, no forks given. #POTS #Chiari #EDS #ADHD #gastroparesisxavier♿️ @lil23rdss
1K Followers 653 Following disabled cis man. (intersex) chronic intractable pain pt on long term opioid therapy to live a QOL & function. 29. Pro Pain MedicationThomas Kline MD, PhD @ThomasKlineMD
34K Followers 20K Following 42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6KuTheHypermobileChiro @TaylorGoldberg_
13 Followers 53 Following Chiropractor & Virtual Hypermobility Coach https://t.co/RWGmu6XQbpVijay Iyer PhD @vijayiyer312
3K Followers 2K Following Patient advocating science for #mecfs & #dysautonomia (incl via #longcovid & #postvac).👷🏾♂️Support #neuroscience users & use cases of @MATLAB. Tweets my own.Dr. Lhara Mullins @LharaMullins
9K Followers 6K Following Lecturer in Health Promotion & busy Mom of 4. Author & professional multitasker. Autism/Neurodiversity CPD Training. Prolific user of exclamation marks!!!Natural Healing @coachsadji
48K Followers 3K Following Book a consultation via my website. DMs are welcome (here/email/IG/telegram). IG: https://t.co/JV8nrrYPKYRafa @UnfollowForUnf1
1K Followers 272 Following 🇧🇷in🇬🇧 || Family || Brazilian Jiu-jitsu || Fitness || Travelling || Guitar || Coding || Gaming || Currently on pause due to Long COVIDBrad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on SpotifySzyzygy @Szyzygy2
1K Followers 2K Following Student of uncertainty, evidence, chronic illness, curiosity, and all things imperfect and perfectable. Attempting to live the 80/20 rule. Novid.RealFoodOptometrist @ajwodecki
8K Followers 8K Following #CircadianRhythm #melatonin 🥩🍤🥚 #bluelighthazard #meatfisheggs #gooutdoors ΙΧΘΥΣ tweets NOT MEDICAL ADVICEBas Koelewijn @BasKoelewijn
2K Followers 5K Following Disability research, advocacy & inclusive education. Overly invested in sports and the dog 🐶. Chronically ill but definitely not lesser than. He/Him.Manuel Ruiz @manruipa
4K Followers 134 Following 🔬Diving deep into #MECFS & #LongCOVID research. 🦠Dual role: Researcher and EBV ME/CFS patient. 🌍 Seeking answers.Catherine w/ MCAS @MCAS_WTF
126 Followers 222 Following MCAS = Mast Cell Activation Syndrome MCAS is the equivalent of having an immune system with PTSD Also have ME/CFS & FibromyalgiaEhlers-Danlos Support.. @ehlersdanlosuk
19K Followers 11K Following EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.@Grumpy_Old_Ma this one in particular for me
As we approach the end of Autism Awareness month, I’ll leave you with these. 💪❤️
@dunyeezy He’s defending by saying you only do bad because your setup is horrible 😭
I've always been a "get up and move" girl, because I literally don't care if I hurt a stranger's feelings.
Ace has been wearing his pimp clothes all day. 😂 No words can express how much fun it was raising him. I love you to the moon and back, .@The0riginalAce .@Legobuilder9000 ❤️
@ayeejuju Baby boy sees his mother clearly for the first time wearing his new glasses, smile says it all ❤️🥰
thinking abt how im part of the 4% of the population that saw the bathtub scene before they removed it
‘13 Reasons Why’ premiered 7 years ago today.
This is what my best friend of over a decade thinks of me. This is what our govt has done to relationships. I’m just shattered.
@Riannnnaaaaa I'm sorry. I figure either I mask and my friends leave me or I don't mask and eventually get long covid and my friends leave me. Either way I'm alone. I'd rather be able-bodied and alone so I keep masking
@Riannnnaaaaa I am sorry. Probably most CoV-smart folks have ended at least several friendships. Initially, this hurts, and then you accept you are better off without them. They aren't who you thought they were.
.@tommyinnit We had so much fun. Thank you for a great show. You guys were amazing.❤️
@FearedBuck the funny thing is the same dudes that shame these girls and yeah it's bad work, be the same guys obsessed w porn and watching them
@Pulsiveee sad, but really most these sw be going thru some crazy mental issues, and su*cdes relating to sw have just been on the rise lately
Whoops this didn't post!! It was in my drafts 🙃 BUT HERE IT IS!! #AnimalCrossingNewHorizons #AnimalCrossingDesigns #ACNHDesigns #ACNH
Look at dem hips go 😍 #AnimalCrossingDesigns #AnimalCrossing #acnhDesign #acnh