Alicia Carisse @aliciajuneg
Cat mom • Mental health warrior • Chronically Ill • Accessibility & Equitable Education/Services Advocate • Safe space • My tweets & thoughts are my own • Ontario, Canada Joined November 2013-
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You know what would be "tough on crime"? 🔹️living wage 🔹️ fully funded schools 🔹️guaranteed access to healthy food 🔹️affordable housing 🔹️universal healthcare 🔹️child care 🔹️treatment for people with substance use disorder and mental illness
Some things you should know if you don’t suffer from a chronic illness We hate canceling plans or calling into work sick and we feel guilty when we do. No matter how much you tell us you understand, in reality, you don’t, and you never will until you experience it. We want…
Watch this. Everyone. All of it. Watch this.
Thinking a lot about what it says about society when disabled people can access medical assistance to death, but not the medical assistance they need to live. Why is the suffering of #pwME acknowledged enough to qualify for euthanasia, but not enough for research and treatment?
ME patients dying of suicide year after year and the response @NIH decade after decade is “Crisis? What crisis?” You own this.
Missing Person Michael Smith. hamiltonpolice.on.ca/news/missing-p…
Disabled grief is extremely complex. It’s not just the pandemic grief, it’s the grief of losing abilities over time. It’s the grief of the life we’ll never have. It’s the grief of the things we missed out on because of our pain. The grief many of us feel is compounded.
Cutest thing I've seen today!!
The scary thing I’ve found is that a lot of people ACTUALLY BELIEVE this shit, like they’ll think it somehow became safe now after one day for some presumably magical reason instead of thinking that the government is lying to them to get people back to work faster and kill them.
The scary thing I’ve found is that a lot of people ACTUALLY BELIEVE this shit, like they’ll think it somehow became safe now after one day for some presumably magical reason instead of thinking that the government is lying to them to get people back to work faster and kill them.
More Celeste
Dream job. Dream life.
Dream job. Dream life.
People with chronic illnesses will have stomach cramps, headaches, joint pain, muscle pain, fatigue, nausea, dizziness and more every single day but will still act completely normal in public. Remember you never know the pain someone may be in just by looking at them.
Retweet if you’re still wearing masks every time you’re in public, I want this to be a lil COVID-conscious resource 🫶🏻😷
LISTEN. Abuse is not the victim’s fault. Listen to the reasons a woman does not and/or cannot leave. Domestic abuse & coercive control are behaviours that belong to the controlling person, it is the perpetrator who has the power to stop the violence. #16Days #ListenLearnAct
Access for disabled people is not a “special need.” It is a human need.
A wild thing about chronic illness is when you’re managing it well, you’re like, “Am I really sick?” And then one small thing goes awry, or you stop being vigilant for one second, and your body shuts down completely and you’re like, “Ah right, even sicker than I remembered.”
Inaccessibility is not a problem caused by disabled people. Inaccessibility is a problem caused by the discriminatory practices of those who exclude disabled people by perpetuating barriers, isolation and segregation.
As a chronically ill person, I always worry about people using my “good” days against me. I cleaned the apartment for the first time in a while because I wanted to contribute. My mind is telling me that everyone will think I’m better even though my body is already paying for it.
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660 Followers 497 Following 23. #pwme #MECFS, #POTS, #LongCovid #Fibro, #endometriosis, #hEDS #MCAS, #SmallFiberNeuropathy, #TetheredCord #CCI #Sjogren's & more. #writingI need some encouragement: I can pull it together, right? I can live a sober life? I can grade promptly & write steadily & eat healthily & exercise regularly & meditate & read instead of scroll through social media & be a good person? bc it feels so hard & don’t know what to do.
Please don’t assume that EDS / HSD patients aren’t trying hard enough with their exercises. You won’t see the same pace of change as a non EDS patient. There are many reasons people may struggle with exercise. Listen to their whole story before making assumptions.
Dr. Rebekah Neckoway is the first Indigenous person to be appointed as a Chief Medical Officer in Ontario. Tuesday on Face to Face, she discusses how northern First Nations face additional health challenges due to their basic necessities not being met.
The amount of accommodation letters I get from the disability center when I teach our 300 students intro class, I’m like maybe we should just restructure academia to not be ableist?
is everyone else also experiencing the inescapable sense of dread that comes with knowing society is collapsing and the climate is deteriorating and we are on the verge of another major public health crisis in the midst of the ongoing public health crisis or are you “normal”
You know what would be "tough on crime"? 🔹️living wage 🔹️ fully funded schools 🔹️guaranteed access to healthy food 🔹️affordable housing 🔹️universal healthcare 🔹️child care 🔹️treatment for people with substance use disorder and mental illness
Some things you should know if you don’t suffer from a chronic illness We hate canceling plans or calling into work sick and we feel guilty when we do. No matter how much you tell us you understand, in reality, you don’t, and you never will until you experience it. We want…
I wish others understood just because I look able bodied and have a full time job doesn’t mean I’m not struggling every single day. I haven’t gone a day without symptoms in over a year. Dizziness, tachycardia, massive amounts of pain. I struggle anytime that I’m upright.
Doctors are AMAZED at these 10 ways to BOOST your immune system: The Tetanus vaccine The Measles vaccine The Polio vaccine The Mumps vaccine The HPV vaccine The Pneumonia vaccine The Hepatitis B vaccine The Rubella vaccine The Diphtheria vaccine The Covid-19 vaccine - @HislopMD
Free Palestine. Free the Congo. Free Sudan. Free Haiti. Free the Americas. Free the Indigenous. Free the Enslaved. Free the Exploited. Free the Oppressed. Free the People.
This Uber driver, a Black woman Lamiyah Jabbar, age 30, picked up a White woman named Diane, who opened up to her about her financial struggles on the way to work at fast food chain Tim Hortons in Buffalo, New York. Lamiyah dropped Diane at her job, and instead of picking up a…
This post is hard, but I want to get it out there. I know my son’s not alone, and I’m not alone. Last week our 15 year old son was told he should kill himself…. He was told this by a classmate during school. He was told this just days after he determined he was strong enough…
My 9yo made friends with a new student in class who doesn’t speak English. She’s FaceTiming her new friend and they are currently pointing to things around our houses teaching each other how to speak in English and Spanish 🥹 It’s the cutest little conversation y’all.
Are there others with chronic illnesses who relate to feeling like they’re still the motivated, driven person they were before their illness? But you are now confined within a body that constantly fights against you, leaving you fatigued and in need of extensive rest?
I wish people understood brain fog is more than just feeling a little groggy. How would you explain your brain fog to others to get them to understand how hard it is to deal with?
My 6 year old son has apraxia and didn't say any words until he was almost 4. Today he read a Pete the Cat book to his kindergarten class. Just wanted to let you all know that he's awesome.
Do you ever have one of those days when you think: I'm not feeling that bad! And then you try to talk to somebody.. and you are a shaky exhausted mess a few minutes later? Yeah, it's one of those days. #mecfs #LongCovid #bedlife
I've had half a dozen unhoused people come into the library this week saying, timidly, that they heard they didn't need an ID to get a card. Then light up when I tell them it's true and make them a card. Word's on the street.
Had a dental appointment this morning. Usually I get home, have a mini crash for a few hours and then PEM hits 2 days later. This time I just feel wired. Exhausted but like I’ve had too much caffeine. I can’t nap as I usually do. Does anyone else have this after overexertion?