Search results for #ACTforALS
The ALS community led by @sandymorris333 fought hard to get drug sponsors to provide EAP ... and thousands in the community fought to pass the #ACTforALS. The neurologist who made it happen was @MeritCudkowicz. Join this webinar to learn about new EAP options in #ALS.…
The ALS community led by @sandymorris333 fought hard to get drug sponsors to provide EAP ... and thousands in the community fought to pass the #ACTforALS. The neurologist who made it happen was @MeritCudkowicz. Join this webinar to learn about new EAP options in #ALS.…
Just a reminder that this horrible person @chiproytx voted against #actforALS and the antilynching bill so 🖕🏻
Just a reminder that this horrible person @chiproytx voted against #actforALS and the antilynching bill so 🖕🏻
@Nyknux @bsw5020 @sabrevaya Are you aware of how much community activism went into getting the #ACTforALS? It was a huge undertaking that involved mobilizing the community to get their members of Congress to cosponsor the bill. For a bill to be brought to the Senate or House floor, ideally a majority of…
This fucker voted NO to #actforALS so @chiproytx can go to hell. I’ll never ever forget.
This fucker voted NO to #actforALS so @chiproytx can go to hell. I’ll never ever forget.
@RepThomasMassie You voted AGAINST #actforALS You voted AGAINST making lynching a hate crime. You voted AGAINST protecting Jewish individuals & organizations from antisemitism. You voted AGAINST the emergency coronavirus relief bill. You voted AGAINST condemning Hamas & condemning antisemitism.
When life's plans fail, remember God has bigger plans for you #ACTforALS
Thx to NIH for awarding an #EAP grant to give more people access to @PrileniaTx's promising drug #Pridopidine But special thanks to the 1000s in the #ALS patient community who made this happen by passing the #ActforALS! Interested in Pridopidine EAP? There's a great summary…
Thx to NIH for awarding an #EAP grant to give more people access to @PrileniaTx's promising drug #Pridopidine But special thanks to the 1000s in the #ALS patient community who made this happen by passing the #ActforALS! Interested in Pridopidine EAP? There's a great summary…
Exciting news in the #ALS world about EAP awards resulting from all the hard work the patient community did to pass the #ActforALS Many patients in the trial have reported that Clene's CNM-Au8 appears to have slowed their progression. The Phase 2 OLE data confirmed what the…
Exciting news in the #ALS world about EAP awards resulting from all the hard work the patient community did to pass the #ActforALS Many patients in the trial have reported that Clene's CNM-Au8 appears to have slowed their progression. The Phase 2 OLE data confirmed what the…
Proud to announce today with @MGHNeurology and the Sean M. Healey & AMG Center for ALS that we will be providing Expanded Access to pridopidine for people with #ALS enabled by a grant (U01) from NIH under the #ActforALS. Full press release here: tinyurl.com/zrxpy89a
@SenFeinstein @SenFeinstein was a trailblazer & role model to so many women. She fought for access to healthcare, was one of 1st Senators to sponsor #ACTforALS community & was early advocate for Congress to fund stem cell research. I'm so grateful for her decades of service. Prayers for her…
Delighted to thank @RepMikeQuigley at @CityClubChicago for his sponsorship of #ActForALS and for being a staunch #ALS champion.
Ask Congressional ALS heroes about #advocacy tips 🔹Aisling - @RepAnnaEshoo (CA-16) who led E&C Health hearing & votes 🔹@DoctorReyn - drafted #ActforALS 🔹@KenCalvert (CA-41) - founding member of #ALS Caucus ⬇️Register: bit.ly/2023-06-AskMe Thx @alsagoldenwest #EndALS
Ask Congressional ALS heroes about #advocacy tips 🔹Aisling - @RepAnnaEshoo (CA-16) who led E&C Health hearing & votes 🔹@DoctorReyn - drafted #ActforALS 🔹@KenCalvert (CA-41) - founding member of #ALS Caucus ⬇️Register: bit.ly/2023-06-AskMe Thx @alsagoldenwest #EndALS https://t.co/O3sjD02dKK
I wasn’t going to come onto social media today but feel it’s my duty to remind you that this 👇🏻 creep voted against the #ActforALS and against the anti-lynching bill and was the only no vote on the antisemitism resolution.
I wasn’t going to come onto social media today but feel it’s my duty to remind you that this 👇🏻 creep voted against the #ActforALS and against the anti-lynching bill and was the only no vote on the antisemitism resolution.
@RepThomasMassie You voted against the #ActforALS and against the anti-lynching bill and were the only no vote on the antisemitism resolution you creep.
@SenBlumenthal Thank you for being so supportive of people with ALS. #ACTForALS.
As a Kentuckian with #ALS, I'm Grateful for the compassionate leadership of @RepGuthrie. His vote for #ActforALS made possible the first patient dosing through EAP. Now more #PLWALS will have access to promising therapies. Veterans are 2 x as likely to receive an ALS dx. #ENDALS
And this is how we move forward in #ALS. Together. #ActforALS
And this is how we move forward in #ALS. Together. #ActforALS
