Search results for #Spinalfluidleak
🧵: I started #Diamox tonight. I’m scared. Yes, I know. If I have a #spinalfluidleak this is totally counterintuitive. That’s the point. We want to see if it helps or makes me worse. Another test to see if it gives us a clue.
HouseStark #MagicBed weekend officially begins 5/13/23. #LongHaulerStruggles #SpinalFluidLeak #GastroparesisLife #MykahLee keeps Mimi company watching Alice in Wonderland with Donuts 🍩... as we let Opa sleep. Auncle James assisted getting the donuts making my 🍄 coffee ☕ect.
Yes! 😁 Pain free cinema 👏 #CSFleak #Spinalfluidleak #SpontaneousIntracranialHypotension
Yes! 😁 Pain free cinema 👏 #CSFleak #Spinalfluidleak #SpontaneousIntracranialHypotension
My head pain is like nothing before and is relentless but settles eventually for me to sleep. Am I dealing with #CCI #AAI cranial or #SpinalFluidLeak? A leak was suspected before but must have been small in comparison as now I can no longer function at all. Grateful of help💙
A spinal fluid leak derailed my life of travel and food, but taught me to find beauty in the small things Must read, excellent article by Jodi Ettenberg, Legal Nomads #MCAS #spinalfluidleak #EhlersDanlosSyndrome cnn.com/travel/article… via @CNNTravel
This is my day today. I was diagnosed with possible viral meningitis this week, but after my neurologist appt, I actually have my 5th or 6th spontaneous spinal fluid leak. Laying flat and caffeine helps until I can get the leak sealed in a couple weeks. #spinalfluidleak
@spinalCSFleak Right where my son lives this week after ICP monitor revealing sustained -25 pressure but a negative CT Myelogram. How can that be? Perplexing. #CSFleak #spinalfluidleak #CSF #SIH
This is fantastic news for anyone with a hard to find/diagnose medical condition. For example, spinal fluid leaks that are hard to see on traditional CT and MRI scans can be seen clear as day using this scanner! Woohoo! 😀👏🏻 #Csfleaks #Spinalfluidleak
This is fantastic news for anyone with a hard to find/diagnose medical condition. For example, spinal fluid leaks that are hard to see on traditional CT and MRI scans can be seen clear as day using this scanner! Woohoo! 😀👏🏻 #Csfleaks #Spinalfluidleak
@NHSuk I would love to have both but the debilitating neurological condition I suffer with doesn't qualify, apparently. How ill do I have to be!? #Intracranialhypotension #Spinalfluidleak
My procedure went well this morning. I have to lay flat for 24 hours so the blood injected into my spinal epidural space will have more success to seal my spinal leak. Emry and Auggie are taking great care of me. 🥰 How are you? #puppyhealing #dogsarethebest #spinalfluidleak
I have 3 dr appts this week. How about you? #chronicillness #LymeDisease #spinalfluidleak #skincancer #dermatologist #neurologist
Will I ever get relief from the unrelenting pain? 😣 #csfleak #Spinalfluidleak #cerebrospinalfluidleak
@elevation_wrshp Physical healing from chronic pain 🙇🏼♀️ Thank you. #Spinalfluidleak
Spontaneous intracranial hypotension caused by a cerebrospinal fluid leak is a serious neurological condition. Apparently I am not eligible for a Covid vaccine yet. This rare condition shouldn't be discounted just because it's rare! #CSFleak #Spinalfluidleak #RareDiseaseDay2021