Rachel 🌺 @_Rache1
So very grateful for all of the blessings in my life 💗🙇🏼♀️Thank you God. Body needs an upgrade, but heart & mind are doing ok!👌🏻 #Christian #SpinalCSFleak UK Joined October 2011-
Tweets4K
-
Followers200
-
Following685
-
Likes5K
Rachel 🌺 retweeted
It is a pleasure and a lot of fun hosting #PeterLennarson and @AndrewCallenMD here at @CedarsSinai. Learning a lot from each other. @spinalCSFleak
2
7
57
3K
0
Download Image
Wow! Definitely channeling Travolta tonight! 😀🕺 But too fast for a photo! #BobbyBrazier #strictly #strictlyComeDancing #strictlyComeDancing2023
Rachel 🌺 retweeted
📦 Each one of these boxes represents the 172 families who are served a Section 21 no-fault eviction every day in England. The government is failing renters by not prioritising the #RentersReformBill before MPs break for summer. Who are they representing?
Go back on Twitter for the first time in ages. Wow. Such a cruel place.
A dandelion clock for Wild flower hour on Dandelion day 😊 #wildflowerhour #InternationalDayofTheDandelion #Dandelion
Rachel 🌺 retweeted
Nothing says I love you more than using your voice to advocate for loved ones impacted by #headachedisorders. This Valentine's Day, we are pleased to be once again joining with patients and providers from across the country participating in Headache on the Hill! #HOH2023 @AHDAorg
Rachel 🌺 retweeted
We’re very excited to reveal our February Brain School speaker! Dr Lalani Carlton Jones will be delivering a talk on spontaneous spinal CSF leaks🚰 ⏰: Wednesday 22nd February, 7:00pm 🗺️ 🖥️: RCS London AND hybrid via Zoom 🔗 brainschool.co.uk
Rachel 🌺 retweeted
Charging the sick for being sick. Mark my words: this will be end of the NHS if the Tories have their way. [Thread]
Loving "Captain Claud" superhero outfit tonight! 😀😆👏🦸♀️ #ClaudiaWinkleman #StrictlyFinal #strictly2022 #StrictlyComeDancing #StrictlyComeDancing2022
Rachel 🌺 retweeted
Whisper it: the pandemic is not over. As coronavirus cases rise again, Britain lives in a surreal state of denial. It’s time to confront the collective trauma of the last few years - and finally have a rational covid conversation. My col. theguardian.com/commentisfree/…
Rachel 🌺 retweeted
Today, 1 in 6 people have significant #disability. Yet many are disadvantaged in health care access. Every person with disability has the right to health 👉bit.ly/3EWGYoY #HealthForAll
Mike!?!?!? #ImACelebrity #Celebrity #ImACelebrityGetMeOutOfHere #ImACeleb
Yes! 😁 Pain free cinema 👏 #CSFleak #Spinalfluidleak #SpontaneousIntracranialHypotension
Yes! 😁 Pain free cinema 👏 #CSFleak #Spinalfluidleak #SpontaneousIntracranialHypotension
Miss DIAGNOSED @_MISS_DIAGNOSED
350 Followers 1K Following Misdiagnosed more times than is funny..write a diary they said - here goes... #CSFleak #tinnitus #dogs - parking articles for later
Rhys Holmes @RhysHolmes
468 Followers 1K Following Brain Tumour survivor, hydrocephalus, previous CSF Leak and now battling the rare neurological disease, superficial siderosis.
ribbonrx @ribbonrx
540 Followers 740 Following (she/her) Medically retired (at 30) peds PharmD. Prolific maker of CSF-venous fistulas, flattened for 3+ years by #spinalcsfleak. Fierce advocate for leak care!
Keren Leah @KerenLeah
2K Followers 3K Following 💧Awareness of #spinalCSFleak #SIH • Volunteer & supporter @csfleakuk • Owner @nostellco • F1, motorsport, missing hiking & nature 🌿
Deborah Alexander @deborahalexe5
2K Followers 7K Following 🪴🪴Live your life the way you want💯 I don't give a damn what people say or think about me 🙄
Ryan Reynolds @vancity_ray
2K Followers 2K Following Owner:@aviationgin-@Mintmobile-@maximumeffort-@Wrexham_AFC
CSFLeakMatters @CSFLeakMatters
544 Followers 945 Following There is dignity in a diagnosis. Once a research & clinical OD and nationwide speaker, now a decade completely flattened by spontaneous Spinal Fluid Leaks.
Robert Barr OBE 🔶�... @DrRobertBarr
3K Followers 3K Following Retired. Former Liberal Democrat Group Leader Warrington Borough Council, Alderman, Geographer, FRSA, Visiting Prof. University of Liverpool. Pro Europe! #FBPE,
Cymru am Byth #FBPE @Penyrheolgerrig
9K Followers 9K Following Cymro sy'n croesawi ohebiaeth yn Gymraeg. One of the 48% who are aware that Brexit is the thin end of the wedge.
Engy⭐️ @Engy2a
678 Followers 2K Following If you can be the reason for someone's smile, you will always be the loved one, because he who believes in the good makes others happy.
Becky Hill @BeckyHill3
325 Followers 319 Following Wife to @m4tthill. Mum. Learning, leading, writing, inspiring, enduring. #spinalcsfleak #arachnoiditis sufferer & advocate. Exploring God & life @lifechurchlife
Michaelbutler @jeffreyasamoa20
255 Followers 962 Following
CSF Leak Awareness Ir... @csfleakaware
806 Followers 694 Following Raising awareness of cerebrospinal fluid (CSF) leaks * Spontaneous Intracranial Hypotension #SIH / CSF-venous fistula *Iatrogenic Leaks / Chronic PDPH
Ensa @Ensa19305127
25 Followers 340 Following
Peter Lyth. 🇪🇺 ... @PeterJLyth
1K Followers 1K Following retired academic, fond of railways and Bruce Springsteen, enthusiastic but ignorant birdwatcher, occasionally tiresome old man.
TyrrellFoundation @TyrrellFnd
131 Followers 257 Following Patient Advocates. Creating awareness and supporting research for spinal CSF leaks. 💜 #CSFleak @colleenmaryllacsa @kathrynweimann
Neil Carpenter @NeilCarpenter14
21K Followers 21K Following Volunteer advocate (retired) for adults with a learning disability. Author of 'Benefits on Trial' and 'Austerity's Victims'.
Wendi M. Lindenmuth M... @LindenmuthWendi
48K Followers 30K Following Writer, Author, Editor, Artist, Sexy and Nerdy, Nature Lover, Cyclist, Hiker. https://t.co/HSpOf4XoOw
Hayley Matthews @RevDrHayleyM
3K Followers 3K Following Archddiacon Wrecsam | Archdeacon Wrexham. Hon. Canon @StAsaphCath. Passionate about enabling everyone's vocation in a Church that welcomes all. Own views.
Robert sanchez @Robertf40217984
31 Followers 143 Following Being ready is not what matters. What matters is winning after you get there. 🇱🇷 marines
Rev’d Professor Mag... @maggidawn
13K Followers 8K Following 🇺🇸 🇬🇧 Professor of Theology, Durham (UK) Episcopal priest (RI, USA) Theologically orthodox, Liturgically sacramental, Temperamentally ecumenical.
Simon 🇺🇦 #PR #F... @simon_euro
8K Followers 9K Following Mixed English, Irish, Scottish blood. World traveler and European. Lived in Asia for 15 years. #FBPE #LowCarb #FBPPR #GTTO #PR Love Sci-fi and philosophy.
Momma Burrows @diburrows
708 Followers 1K Following Nottingham born & Bred. Loving life,wife of MrB and mum to four amazing bundles of talent..And as of 11.12.13 Granny Di ...
Lucky Rachel 🤚 nev... @smileyrach2
43K Followers 44K Following Sport mad, Bristolian 🏉 🐻🐻 (NEVER Bath)🐻🐻 🏉 #resist #WomensRights #LGBTQ #AbolishTheMonarchy #PROCHOICE Samaritans 116123 🚫DMs
Rhoda, armchair arbit... @rho_mitch
3K Followers 4K Following Nurse. Midwife.Empath. Introvert. Italophile. Pedant. NHS. THFC. Find me on [email protected] 🦋 (it's so much better!) This X a/c will be deactivated soon.
(Social) Liberal Leig... @Liberal_Leigh
10K Followers 7K Following Thinks liberal democracy is worth defending. (Intersectional) Feminist. Thinks Douglas Adams is worth reading. Atheist. Big fan of Harriet Taylor Mill (and JS)
Jeff Slavinsky @JeffSlavinsky
9K Followers 8K Following 15+ yrs Pro Sports/NFL/Giants/Jets/Jaguars/Nets/Knicks. Pete Rozelle award winner. 10 yrs in house pro sports writer. Lifetime sports/music enthusiast
Michael Goulder @mike_a_goulder
3 Followers 10 Following
Micheal Rogers @Micheal95443614
50 Followers 1K Following God is amazingly wonderful to me and my loved ones
PocketRocket🔥 @MsPocketRocket
29K Followers 27K Following Life is short as am I 🤣 Politically homeless, they’re all crap!
🐝Barbara Knee #FBP... @barbara_knee
5K Followers 5K Following Passionate about remaining in the EU/justice for 1950s born women. Love yoga, Rambling and France! Proud nanny to 6 and take a very active role in their lives.
Dr Bex Lewis #IAmThe3... @drbexl
12K Followers 11K Following Life Explorer author speaker academic @ManMetUni #DigitalCulture #SocMedia @digitalfprint Christian #KeepCalm #Tech4Good #BreastCancer #WIASN #Pockets #Cheese
Sunflower 980 🇪�... @LangDorothee
4K Followers 4K Following #proEurope #FCKNazis #noafd #FBPE🇪🇺 #StandWithUkraine 🇺🇦#StandWithZelenskyy
Geoff Atherton #FBPE ... @Islander2001
2K Followers 4K Following British born European,retired French/German teacher, Free-lance writer & semi-retired broadcaster. Germanophile,Francophile. Immer und ewig europäisch.
Jonathan Lowe #FBSI @Gallofunky
14K Followers 13K Following Scottish freedom, hearts fan, inter fan and esperto di pizza e padre di due bimbi meravigliosi
Alice Rogers @grannymath
2K Followers 2K Following Maths prof emeritus, granny. Dialogue and diplomacy better than bombs and brutality. (I follow some pernicious accounts to keep an eye on them.)
𝓝𝓮𝓲𝓵 neil... @Neil_Newman
8K Followers 8K Following Geek, Coder, Critical Thinker, Husband, Father, Part time righter of wrongs... #FBPPR. Make Votes Matter, PR. #Xodus... https://t.co/tWhhCvzwb1
Nigel Tomkins - #FBPE... @NtNigel
8K Followers 5K Following Personal injury law guru. 'I am a European'. Views my own. Based on long years love of law and justice. Love Europe hate Brexit.
𝓣𝓱𝓲𝓷𝓴�... @Choose__Again
7K Followers 6K Following Critical Thinker, Worried about the lack of integrity in our Gov't #StopLying 🇬🇧🇪🇺 #BrexitShambles #FBPE #ProgressiveAlliance
MaK 🌍 🤿🐞🌞 @Maicc_O
3K Followers 3K Following Dislike criminality, thugs, bossy people and everyone that can't apply common sense to situations🤦♂️. 😁🍀
Jim Parkin🕯 #Black... @ParkinJim
4K Followers 5K Following Engineer, European, Brit https://t.co/PdO8B6eixe https://t.co/zZWLpf2PBj @[email protected]
YouBelong @YouBelong_2019
1K Followers 847 Following https://t.co/UCdK0q1rw3 All people with a chronic illness or disability will be able to access and fully belong to a Christian community of their choice.
RichardF @rottweiler2u
2K Followers 2K Following #FBPE #BAMELivesMatter Not on the Xmas card list of those who abuse their power
WouterSchievink @WouterSchievink
2K Followers 86 Following #CSFleak expert #neurosurgeon #spinalCSFleak @CedarsSinai Los Angeles #SIH [email protected]
CSF Leak Association @csfleakuk
980 Followers 858 Following The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
Spinal CSF Leak Found... @spinalCSFleak
3K Followers 616 Following A US 501(c)3 nonprofit org that helps raise awareness, educate, & support research on intracranial hypotension & spinal cerebrospinal fluid (CSF) leaks.
Miss DIAGNOSED @_MISS_DIAGNOSED
350 Followers 1K Following Misdiagnosed more times than is funny..write a diary they said - here goes... #CSFleak #tinnitus #dogs - parking articles for later
Peter Kranz @PeterGKranz
3K Followers 670 Following Division Chief of Neuroradiology at Duke University Medical Center. Research in #spinalCSFleak/#SIH. Tweets my own. No discussion of individual patient care.
Simy K. Parikh @SimyParikh
581 Followers 139 Following Headache Medicine Specialist, Neurologist. Tweets are my own.
Rhys Holmes @RhysHolmes
468 Followers 1K Following Brain Tumour survivor, hydrocephalus, previous CSF Leak and now battling the rare neurological disease, superficial siderosis.
Spinal CSF Leak Canad... @SpinalCSFCanada
957 Followers 381 Following 🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
ribbonrx @ribbonrx
540 Followers 740 Following (she/her) Medically retired (at 30) peds PharmD. Prolific maker of CSF-venous fistulas, flattened for 3+ years by #spinalcsfleak. Fierce advocate for leak care!
Connie Deline @ConnieDelineMD
666 Followers 1K Following follow the science | ecosystem health | climate | #CleanTheAir | #spinalCSFleak
Jodi Ettenberg @legalnomads
43K Followers 7 Following Once a lawyer, then a travel and celiac food writer. Now disabled, writing about curiosity, health, and loss.
Lalani Carlton Jones @NeuroradLal
2K Followers 1K Following Neuroradiologist | Educationalist | Kings College, Guys & St Thomas’s Hospitals | Love the brain/spine/nerves/CSF(+leaks). Show up. Be of value. Make an impact.
Keren Leah @KerenLeah
2K Followers 3K Following 💧Awareness of #spinalCSFleak #SIH • Volunteer & supporter @csfleakuk • Owner @nostellco • F1, motorsport, missing hiking & nature 🌿
Dan Scoffings @brainscandan
908 Followers 423 Following Consultant neuroradiologist & Clinical lead for neuroradiology @CUH_NHS | Special interest in #SIH and #spinalCSFleak
Kevin Tsang @drtintin99
6K Followers 2K Following Neurosurgeon and Head of Service for Major Trauma at Imperial College London, specialist interest in CSF disorders and neuroendoscopy. Focused on training+++
Jonnie Peacock @JonniePeacock
85K Followers 847 Following run from one line to another... bit nuts and unorganised :) wanted fugitive from the spelling police
CSFLeakMatters @CSFLeakMatters
544 Followers 945 Following There is dignity in a diagnosis. Once a research & clinical OD and nationwide speaker, now a decade completely flattened by spontaneous Spinal Fluid Leaks.
Christopher Lloyd @DocBrownLloyd
431K Followers 78 Following Welcome to the official Twitter account for Christopher Lloyd, run by the family.
Mike Tindall @miketindall13
239K Followers 672 Following 🏉 Former rugby player, full-time amateur golfer! ✉️ [email protected] for all enquiries
Mark Hamill @MarkHamill
4.7M Followers 2K Following Believe in yourself! Work hard, never give up & anything's possible! OR: Kick back, relax & aim low: You'll never be disappointed...😜 I IGNORE ALL DMs!
Simon 🇺🇦 #PR #F... @simon_euro
8K Followers 9K Following Mixed English, Irish, Scottish blood. World traveler and European. Lived in Asia for 15 years. #FBPE #LowCarb #FBPPR #GTTO #PR Love Sci-fi and philosophy.
Wendi M. Lindenmuth M... @LindenmuthWendi
48K Followers 30K Following Writer, Author, Editor, Artist, Sexy and Nerdy, Nature Lover, Cyclist, Hiker. https://t.co/HSpOf4XoOw
Ellie Taylor @EllieJaneTaylor
101K Followers 908 Following Actor | Writer | Comedianer Author of Sunday Times Bestseller 'My Child and Other Mistakes' Agent: [email protected]
Anton Du Beke @TheAntonDuBeke
273K Followers 392 Following #Strictly Judge, dancer; presenter, singer, author. 'Code Name Foxtrot and 'Monte Carlo by Moonlight' - out now! Agent @mellychaps
Zach Williams @zachwilliams
33K Followers 63 Following :: Husband :: Father :: Singer :: :: Songwriter :: Worship Leader :: ‘Killed A Man’ out now! New album Sept 19!!! Stream it everywhere.
Gregg Wallace @GreggAWallace
203K Followers 374 Following Healthy Living | Media Enquiries: [email protected] | Representation: [email protected]
John Torode @JohnTorode1
161K Followers 562 Following The Real John Torode . Loves Food , Drink , Restaurants and MasterChef. Instagram @johntorodecooks new book “Sydney to Seoul”
MasterChef UK 🍴 @MasterChefUK
322K Followers 1K Following The official account for #MasterChefUK, #CelebrityMasterChef and #MasterChefTheProfessionals 👨🍳👩🍳 Links to @bbciplayer and auditions 👇
Parody Keir Starmer @Parody_PM
273K Followers 1K Following Parody account - not the real PM. Originally set up to take the piss out of Boris Johnson, still here to poke fun at right wing dickheads.
✨Grace✨ @Kensi2Deeks
25 Followers 173 Following Lover of all things NCIS LA, Hawaii 5-0, Friends, The Office💛 Chronic Illness warrior💪 #POTS #EDS #MCAS #intractableheadache Jesus Girl
Hairy Bikers @HairyBikers
1.1M Followers 3K Following It's all in the name, do a bit of cooking too! This account is managed & commented by our digital team. Follow us at 👉 https://t.co/9W4fwRCT8l
La tour Eiffel @LaTourEiffel
350K Followers 424 Following 🇫🇷Bienvenue sur le compte officiel de la #tourEiffel! Parisienne depuis 1889. 🌐 Welcome to the official account of the #EiffelTower! Parisian since 1889.
Dr Kimberly Humphrey ... @drhumki
3K Followers 1K Following Public Health Medical Consultant/Climate Lead @SAHealth | EM Physician | Board @DocsEnvAus | @HarvardCChange Climate/Health Fellow 22-23 | https://t.co/zWmT3KkySW
Devin Godwin @nurse2patient
216 Followers 2K Following FT patient and (PT) nurse. Work-injury (#spineinjury #chronicpain #dysautonomia #csfleak done3rdpatch). #migraines #EDS (new #arachnoiditis) Strong as hell.
U&Dave @davechannel
118K Followers 753 Following The British TV channel formerly known as Dave Freeview 19 | Freesat 157 | Sky 111 | Virgin 127
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Candace D. @DiaryofaSickGrl
16K Followers 2K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Macular Society @MacularSociety
13K Followers 3K Following We no longer use X to share updates. Follow us on Instagram, Facebook, Linkedin or Threads @macularsociety. Contact us: 0300 3030 111 [email protected]
BASH @UK_headache
1K Followers 84 Following British Association for the Study of Headache. Educating the profession, patients, and politicians. Retweets do not imply endorsement.
Liza Smirnoff, MD @LizaSmirnoffmd
136 Followers 125 Following (she/hers) #HeadacheSpecialist and #Neurologist at #UniversityofMiami, trained at #FIUHWCOM, #LACUSC and #Stanford, Poodle Mom and Ceramics Artist
Dame Joanna Lumley @JoannaLumleyUK
57K Followers 64 Following Official Twitter page for all news and updates on Dame Joanna Lumley. Please note: Joanna is NOT on Twitter & personal replies aren’t possible.
VeryBritishProblems @SoVeryBritish
3.8M Followers 1 Following New book: A Very British Christmas, out October 2025. For everything VBP, visit: https://t.co/51E7az46a4 Written by @RobTemple101
Carrie-Ann Lightley�... @CarrieALightley
6K Followers 2K Following #CerebralPalsy haver. Spaniel devotee. Accessible travel writer and speaker. Ambassador @upmovement_cp. #DisabilityPower100 2019-2023. Own views.
BBC Radio Wales @BBCRadioWales
80K Followers 371 Following News, sport, music and entertainment for Wales 🏴 On your radio, @BBCSounds or your smart speaker 🗣️ "Play BBC Radio Wales"
Miriam Martin @mirmrtn
291 Followers 496 Following Interested in rare diseases & MH Lives with syringomyelia, spina bifida occulta, scoliosis & associated cndts. Chair of SACA (volunteer) My views are my own.
Center for Virtual Im... @DukeCVIT
270 Followers 56 Following CVIT is a NIH-sponsored national research center to develop and advance virtual trial methods to best design and condition imaging for highest clinical impact.
Duke Health @DukeHealth
42K Followers 2K Following Official Twitter: Duke Health-Academic health system dedicated to high-quality patient-centered care, research, education & improving community & global health.
Dr. Ehsan Samei @EhsanSamei
724 Followers 162 Following Persian-American imaging scientist, inspired by commonalities of human quests, family, and meaningful work w brilliant colleagues
Carolina Iten-SpinalC... @CarolinaIten
249 Followers 373 Following Peer & RA #intracranialhypotension@Christian T. Ulrich Neurosurgery, Bern CH/ Advocate #csfleak #RIH #chronicpostpunctionalheadache #SIH #leakwarrior
Dr. Shah Islam @DrShahIslam
2K Followers 2K Following UKIO President|SMR Health and Tech|Interventional Neuroradiologist|Ex @NIHR ACF|@imperialcollege PhD’er|Ex @UHN|Ex @sickkids|Views my own|Trends for United States
7.521 posts
488 B posts
60,9 B posts
2.793 posts
49,9 B posts
769 B posts
4.094 posts
14 B posts
119 B posts
5.190 posts
6.858 posts
21,1 B posts
8.486 posts
3.405 posts
16,8 B posts
15,7 B posts
25,2 B posts
122 B posts
You might like
Tanya
@TanyaL5
990 Followers
Sergej Murray 🇪�...
@serginsect
521 Followers
Euro G #FBPE 💙
@Gareth_GmanG
2K Followers
Lin O'Keefe
@merlotonsat
676 Followers
PaulN 🌻🇺🇦
@oberluz
290 Followers
Stevo
@SlomanStevo
765 Followers
Janet Innes Colletti ...
@innes_janet
548 Followers