CSF Leak Awareness Ireland @csfleakaware
Raising awareness of cerebrospinal fluid (CSF) leaks * Spontaneous Intracranial Hypotension #SIH / CSF-venous fistula *Iatrogenic Leaks / Chronic PDPH Joined May 2021-
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CSF Leak Awareness Ireland retweeted
Read our latest #CSFleak paper on opening pressures and #CVF . Absence of low opening pressure should not be used to rule out #sih. Congrats @bposani , Dr. Robbins and Dr. Strauss. @WCMRadiology @WCMCNeurology Link: pubmed.ncbi.nlm.nih.gov/40992352/
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CSF Leak Awareness Ireland retweeted
Chronic post-dural puncture headache exists! However, MRI in these patients is mostly negative, contrary to the tremendous symptom burden. Read the full article here ⬇️ Big thanks to @Niklas_Luetzen and the whole #CSF Team at Universitätsklinikum Freiburg! #PDPH @issclsociety
Chronic post-dural puncture headache exists! However, MRI in these patients is mostly negative, contrary to the tremendous symptom burden. Read the full article here ⬇️ Big thanks to @Niklas_Luetzen and the whole #CSF Team at Universitätsklinikum Freiburg! #PDPH @issclsociety
CSF Leak Awareness Ireland retweeted
🧠 Migraine Awareness: CSF leaks are often misdiagnosed as migraines 💡 Upright headache? Think CSF leak! 💙 Help us raise awareness and advocate for swift accurate diagnosis. 🔗 Read Donia's story: csfleak.uk/living-with-th… #MigraineAwarenessWeek #CSFLeaks #CSFLeakAssociation
CSF Leak Awareness Ireland retweeted
“Our findings highlight the unreliability of current MRI diagnostics to detect patients with chronic PDPH, which must not lead to a mitigation of the diagnosis or a refusal of treatment.”
“Our findings highlight the unreliability of current MRI diagnostics to detect patients with chronic PDPH, which must not lead to a mitigation of the diagnosis or a refusal of treatment.”
CSF Leak Awareness Ireland retweeted
Just published in @HeadacheJournal ! Congratulations to rising ⭐️⭐️ @ZanderCharlotte 💪💪 Chronic PDPH and MR imaging of the head. @KathaDCwolf @JrgenBeck @issclsociety @Uniklinik_Fr
Just published in @HeadacheJournal ! Congratulations to rising ⭐️⭐️ @ZanderCharlotte 💪💪 Chronic PDPH and MR imaging of the head. @KathaDCwolf @JrgenBeck @issclsociety @Uniklinik_Fr
CSF Leak Awareness Ireland retweeted
Open Access: An MRI study using the Bern score finds that patients with chronic post-dural puncture #headache do not have typical imaging features of #intracranial #hypotension …adachejournal.onlinelibrary.wiley.com/share/KYMD73ZF… @ZanderCharlotte et al
CSF Leak Awareness Ireland retweeted
New study in @TheAJNR on the diagnostic burden of SIH in CVF patients: “This study highlights the need to increase awareness among healthcare providers regarding the typical symptoms and imaging features of spinal CSF leaks.” ajnr.org/content/early/…
CSF Leak Awareness Ireland retweeted
Excited to share our latest publication in AJNR✨
CSF Leak Awareness Ireland retweeted
New on The Neurology Lounge Podcast Episode 93. CSF leak with Bernadette Hard - Trustee of CSF Leak Association YouTube: youtu.be/2Scf9Giih2U Spotify video: open.spotify.com/episode/14zoHO… Spotify audio: open.spotify.com/episode/5IrtKI… Apple: podcasts.apple.com/us/podcast/the…
CSF Leak Awareness Ireland retweeted
💥 #AAC2025: Bern surprised to be asked to join the Q&A panel to share about her story and the charity 🎤 No script just heart, powerfully raising awareness of SIH and the guideline. 👏 Huge thanks to Bern #standupforleakers 🫶 & to the chair and delegates for the warm welcome 💙
CSF Leak Awareness Ireland retweeted
🆕️🔓Optimizing density of intrathecal contrast at digital subtraction myelography: Evaluation of differing needle characteristics and injection rates in a phantom ✒️ @AnahitaMalvea et al. via @INR_WFITN #spinalCSFleak #INR #CSFVF #CSFVenousFistula journals.sagepub.com/doi/10.1177/15…
CSF Leak Awareness Ireland retweeted
📍Live from #AAC2025 in Aberdeen! Huge interest in CSF leaks, blind blood patching & our consensus guidelines. 👏 Brilliant talk by Dr David Nesvadba on PDPH & SIH—highlighting prevention, disability & best practice. 🧠 Awareness is growing! #CSFleak #Anaesthesia
CSF Leak Awareness Ireland retweeted
🌍 Patient Safety Day CSF leaks are often misdiagnosed, leading to unnecessary suffering ✅ Spot orthostatic headaches early ✅ Timely, accurate care matters ✅ Clinical excellence prevents harm 🔗 See clinical guidelines: csfleak.uk/category/sih-g… 📣 Share to protect patients!
CSF Leak Awareness Ireland retweeted
Read the related editorial: neurology.org/doi/10.1212/WN…
CSF Leak Awareness Ireland retweeted
CSF Pressure and Dynamics in Patients With Chronic Postdural Puncture Headache: A Single-Center Cohort Study hubs.ly/Q03J1XzG0
CSF Leak Awareness Ireland retweeted
I also illustrate the narration with such enlightening memoirs as those of Andrea Buchanan titled 'The Beginning of Everything: The Year I Lost My Mind and Found Myself', and of Karen Paddock titled 'Karen's Journal of CSF Leak Headaches and Chronic Pain'. 2/2
CSF Leak Awareness Ireland retweeted
In this episode I explore the poorly recognised condition known as cerebrospinal fluid (CSF) leak. The podcast reviews the causes, clinical manifestations, and the fraught treatments of what is known medically as spontaneous intracranial hypotension. 1/2
In this episode I explore the poorly recognised condition known as cerebrospinal fluid (CSF) leak. The podcast reviews the causes, clinical manifestations, and the fraught treatments of what is known medically as spontaneous intracranial hypotension. 1/2
CSF Leak Awareness Ireland retweeted
🚨Our recent publication from the Queen Square CSF Leak Team of a CVF associated with a large syrinx successfully treated with surgical disconnection of the CVF 🧠 #sih #csfleak @Manjit_Matharu @SayalParag @AhmedToma13 @UCLIoN @QSNeurosurgery pn.bmj.com/content/early/…
CSF Leak Awareness Ireland retweeted
New on The Neurology Lounge Podcast Episode 92. Drained - The Prostration of CSF Leak YouTube: youtu.be/yV803AHwvTQ Spotify video: open.spotify.com/episode/09sNrI… Spotify audio: open.spotify.com/episode/0WI8sf… Apple: podcasts.apple.com/us/podcast/epi…
CSF Leak Awareness Ireland retweeted
Wonderful radiological and surgical depicitions of anatomy and pathology in this paper by @Niklas_Luetzen @JrgenBeck @KathaDCwolf @ZanderCharlotte furthering our understanding of Type 2 leaks 🤩👏🏾👏🏾👏🏾
Wonderful radiological and surgical depicitions of anatomy and pathology in this paper by @Niklas_Luetzen @JrgenBeck @KathaDCwolf @ZanderCharlotte furthering our understanding of Type 2 leaks 🤩👏🏾👏🏾👏🏾
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