Misslabeled disabled (Teri) @labeleddisabled

Living with a chronic illness for 13+ years is like looking in a tunnel and knowing it is a train. You can sit and wait or fight. I FIGHT: PoTS / MCAS / hEDS Atlanta, Georga Joined July 2017

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Misslabeled disabled (Teri) @labeleddisabled

5 years ago

All, I am losing the battle, but still fighting. If you are interested in my CaringBridge, you can find it here. Please just be considerate of friends and family if you post there. caringbridge.org/visit/twbridge

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Matthias Schwartzkopf @MatthiasWRNL

5 years ago

You will not convince me otherwise, this moment set the stage for the 2020 season

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

Someone wants a belly rub! #sphynx #catlover

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

Ok, well my husband has put me on paper towels for bathroom use since I have an #ileostomy and sprayer in my bathroom. New benefit of #ostomy - less dependent on toilet paper!

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

M I G R A I N E ! ! ! D A Y # 4 S O S

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

#cop #crps #autoimmune #scleroderma #dysautonaumia

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

What big teeth you have! #CatsOfTwitter #sphynx

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

Found out I have #AVN in my right #shoulder and have to do #MRI for my #hips. #pain is so high I can’t sleep well, walk well, stand well. I rotate. #autoimmune #malabsorption #TPN #autoimmunePseudodementia #PoTS

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

I can’t eat hotdogs-💔 At the #CampingWorldBowl Go #ISU! I ordered water and ended up with a hotdog in my hand. I chewed each bite like a delicacy given to Royalty Then spit each bite out to avoid ER later. #yum #malabsorption #ostomy #TPN #CPP #AVN #spoonie

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

So, going on vacation - first in a long time. Orlando #CampingWorldBowl. We always do a selfie, but the flu is everywhere! Me on plane (aka Petri dish!) #autoimmune #crps #systemicsclerosis progressive #avn

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

This flu is no joke this season!

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

I should introduce my 20 YO to Pulp Fiction

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

12 years of our family - ornaments #MerryChristmas

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

Saw a new Rheumy. He dx'd #AVN humeral head should (#MRI - pic). #Shoulder hurts terribly. Have abdominal pain pump with Morphine and it helps, but doesn't touch shoulder - added #Prialt (toxin), better. Hip #MRI coming; pls no hip #AVN Pls reply with info re: Autoimmune #AVN

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

Dave the cat is doing much better since his ear infection has been treated. We have almost weaned him off of #steroids! He is aggressive on them, but still by boy!

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

Me: unmanageable neck pain becomes Doc: MRI, need to fuse another joint Me: feeling better: then quick decline. Neck pain gone - shoulder can’t touch! Doc: MRI: no tear.#AVN? Me: What’s that? Doc: Look it up. Ask your Rheumy. Dr. google: You should PANIC! Me: Call Rheumy

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

Had upper level Cervical joints ablated yesterday. Man, those hurt after the numbing wears off. Somehow, though, having my daughter home and my other daughter close makes it all ok. #MerryChristmas #cpp #CRPS #scleroderma #cervicalfusions #PoTS

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

Me: I answer ☎️ and it is a billing office for a medical company who is out of business. Them: Ma’am, I this is a recorded call in an attempt to collect a debt. (My insurance agent spoke to them last week - I owe $0!) Me: ok, I am also recording this call. Them: “click”...

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Misslabeled disabled (Teri) @labeleddisabled

6 years ago

I love the holidays. My dad had robotic bypass surgery last year in October and turned 80 on Nov 25! He had a cardiac event today, went into #AFib, but is better now. Getting excited about Christmas!!