Debra A. Richardson @liviforward
Living forward w/#SPS & #T1D...30+ yrs. #raredisease outreach. Writer-speaker-seeker-anomaly. Faith-nature-fitness-food-fun. ♥ Find the good & praise it. livingwithsps.com United States Joined March 2017-
Tweets9K
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Followers420
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Following462
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Likes16K
New Celine Dion doc will detail experience with stiff-person syndrome: 'I wanted to document this part of my life' goodmorningamerica.com/culture/story/… via @GMA
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Debra A. Richardson retweeted
One of those #spoonie problems. In fairness you are doing the right thing. You need to weight up cost and energy. Listen to the body and don't over do it for it or the mind and also you.
Debra A. Richardson retweeted
BEST #ChronicIllnes HACK! Everytime you see a new Dr, go to the ER -you have to fill out 20 forms w the same Q's (on 1 line!). This tip COULD SAVE SO MUCH PRECIOUS ENERGY!
Debra A. Richardson retweeted
If you need a smile.. 😊
Debra A. Richardson retweeted
“Medical #patients continue being denied treatment for severe #chronicpain, with predictable results. Many—through no fault of their own—face medical collapse. At least hundreds, if not thousands, overcome by their pain, have committed suicide.” buff.ly/3QKJncA #opioids
Debra A. Richardson retweeted
“Seek the Lord and His strength; Seek His face evermore!” (Psalm 105:4)
Debra A. Richardson retweeted
Have you had trouble getting a #prescription filled for #opioids or other controlled substances? A new #DEA rule allows pharmacies to transfer initial prescriptions to another #pharmacy, so a #doctor doesn't have to write a second prescription. #cpp bit.ly/3sCVwpW
Debra A. Richardson retweeted
What’s broken can be mended What hurts can be healed And no matter how dark it gets The sun is going to rise again. 🎬 William Patino
WATCH | Céline Dion stars as herself in new rom-com amid stiff person syndrome diagnosis news24.com/life/arts-and-… via @News24
Debra A. Richardson retweeted
“It is not the strength of the body that counts, but the strength of the spirit.” ~ J.R.R. Tolkien #ChronicPain #ChronicIllness #NervePain #RareDiseases #DisabilityTwitter #CPP #Autoimmune #MentalHealthMatters #Spoonie #Quotes
Debra A. Richardson retweeted
101 years ago today, Leonard Thompson became the first human to receive an injection of insulin, transforming type 1 diabetes from a death sentence into a treatable disease. Grateful for science and hopeful for future scientific breakthroughs to come!
Bike-mad husband struck down by the same one-in-million disease as Celine Dion walesonline.co.uk/news/uk-news/w…
Isolation in Chronic Illness | Psychology Today psychologytoday.com/us/blog/chroni…
5 Actually Helpful New Year's Resolutions for People With Chronic Illness and Disability health.com/new-years-reso… via @health_com_
My 12-Step Attitudes chronichaos.wordpress.com/my-12-step-att…
Terrible rare illness taking toll on ex-sports star, now too ill to even watch his old event thestar.co.uk/health/stiff-p…
Celine Dion was diagnosed with a rare disease. This South Jersey woman has been living with it for a few years. inquirer.com/health/celine-… via @PhillyInquirer
Syndrome de la personne raide | « Je connais ce sentiment » lapresse.ca/societe/sante/… via @LP_LaPresse
Celine Dion reveals she has stiff-person syndrome in emotional video today.com/health/celine-… via @TODAYshow
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Stiff Person Syndrome.. @TheSPSRF
386 Followers 159 Following Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education. #sps #TheSPSRF
David Honda @DavidHonda11
251 Followers 2K Following
Brian P Shaffer @BrianPShaffer1
57 Followers 341 Following
NERVEmber® @NERVEmberProj
1K Followers 1K Following The @iPainOfficial hosts #NERVEmber project each Nov since 2009 - NERVEmber® brings awareness to 150+Conditions that have nerve pain involvement including #CRPS
EP @ericmphill
209 Followers 393 Following Californian. LA Rams + Lakers + Dodgers. Dad. Artist. Husky + Shiba Inu. Stiff Person Syndrome/SPS
Derick Michael @DerickM42713499
18 Followers 252 Following
withSDSativa @twiztidpretzel
23 Followers 80 Following I am raising fund for me and my service dog, we are in immediate need of help please share https://t.co/5PXfhLZpds #servicedog #stiffpersonsyndrome
Jacob Savoie @MyMissingMindTF
846 Followers 2K Following My Missing Mind, The Film :: Second Chance at Life. No Looking Back :: Produced by Stellarblade, LLC
David Jeremiah @Davidjeremniah
136 Followers 289 Following Senior Pastor of @Shadowmtn | Founder of Turning Point | Delivering the unchanging Word of God to an ever-changing world
Erin Moriarty Wade @EMoriartyWade
9K Followers 10K Following Comms Dir at @carrainc - @AtlBizChron alum - mom of child w/#raredisease - #pinksocks @savvy_coop #clinicaltrial design board & #scleroderma workgroup
Juliwind @Juliwinde
118 Followers 263 Following
John Ortiz @johnortiz787
494 Followers 2K Following 🌴 Crypto Enthusiast | Small Business Owner | U.S. Army Veteran 🌴
Sharon Hughes @SharonH28105854
1 Followers 3 Following I am avid cook,crafter,and love to help people in need,animal lover,and I deal with a very unique rare muscle disease for 34 years,I'm strongminded person
Sonia Rosado @Superitadisney
13 Followers 168 Following
Rosavecchia @Rosavecchia
4K Followers 4K Following 12 Hip Surgs; #12 Failed Irreparably; Crippled@40 in '97| Failed Spine Surg Syndrome@19 x4 |Pudendal Neuralgia| Fibro| Impinged Shldr ++ #LegacyPainPt #IPP
Burt Steingraeber @BSteingraeber
91K Followers 80K Following Restoring brands through strategic expertise | Helping entrepreneus monetize. | Business Book Author | Twitter user since '09.
Anna Luiza @sma_anna2019
442 Followers 3K Following Official intl profile of @ame_anna2019 👧🏻 SMA1 fighter 🎂2 years old 💉 My life DEPENDS on Zolgensma! 🧬 To help Anna ⬇️ https://t.co/Txwu5yVSfj
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64 Followers 1K Following Entertainment Food, Fashion & Lifestyle Fashion
BMS @Bmsddk
261 Followers 136 Following
Scott @Havenlust
299K Followers 185K Following LumenTopia Arte • Enmarcación • Fotografía para decorar tus ambientes Un espacio para fotógrafos, artistas digitales /Friend of @FundacionRevida @LorenaMHurtado
We Work for Health - .. @PAWWFH
2K Followers 3K Following We Work for Health Pennsylvania promotes the significant social and economic impacts of the #biopharmaceutical and #lifescience sectors in our state.
Anna Laurent @lilannalaurent
547 Followers 421 Following she/her | Social Worker | Alagille Syndrome (ALGS) | Trauma-informed sarcasm | Advocate | Opinions are my own
Seth Rotberg @Srotberg15
2K Followers 1K Following I help infuse the patient voice throughout drug development | #HuntingtonsDisease advocate | @Tedx Speaker | All views are my own
Bruush @bruush
10K Followers 10K Following Graphic, web and brand designer + digital artist, NFT $BRSH #Bruushdesign #Bruush
Yogurt in Nutrition @YogurtNutrition
40K Followers 26K Following The Yogurt in Nutrition Initiative for Sustainable and Balanced Diets is funded by the Danone Institute International
Pam Mace, RN @pdmace2
1K Followers 2K Following Executive Director, FMDSA. Awareness of Fibromuscular Dysplasia-survivor of bilateral carotid and vertebral dissections. Views are my own.
Dizzy @dizzythedonkey
7K Followers 7K Following Actor, Teacher, #Spoonie and MS Society Support Volunteer. Loves dinosaurs 🦕 dragons, and donkeys. Blogging about life with #MS and #Anxiety 🦄🌻❤
medicalsurplusmarket @medicalsurplus3
2 Followers 87 Following We buy all your unused Diabetic Test Strips, we guaranteed payments from our network of qualified buyers, we handle the transaction to protect your privacy.
Babylifedaily @babylifedaily
259 Followers 623 Following 👶 Daily baby pictures 👶 New 👶👼🍼 everyday ❤️ DM for Shoutouts | Credits | Removal 📣
sean @sdrutzh
2K Followers 3K Following Love The Walking Dead, comics, sports, music, reading, and gaming. Total history nerd. Some pics are mine.@watchinggrass❤ #FlyEaglesFly #BrotherlyLove
Perkins @Perkins20870284
67 Followers 313 Following I'm very easy going person! I take life simple!! Is good to be cool with everyone!! Life is sweet short, let's give God the glory!!
Ataxia and Me CIO 118.. @Ataxia_and_Me
4K Followers 3K Following #Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
Dehliaa2 @Dehliaa22
56 Followers 147 Following Keeping what you had...hard, searching for the truth definitely NOT something easily found anymore. Allergic to Trump/Republicans/MAGA's! Thx 4 stopping by!
Albert @Albert08947721
279 Followers 2K Following I am a single Dad of 3 beautiful kids and i love my kids, I always promise them to do my possible best to make them always happy...
Delano Wilson @DelanoWilson3
57K Followers 22K Following Ministry: Providing prophetic insight and Revelation knowledge to God's people. No PORN!⛔No PORN!⛔ No GROUPS!
Carly Flumer (she/her.. @carlyflumer
806 Followers 1K Following #AYA RAI-Refractory Thyroid Cancer Survivor. Dog lady. Patient advocate. #aspec🎗🏳️🌈 @BU_HealthComm. @MasonCHHS. Tweets = own.
PQE Group @PQEGroup
10K Followers 949 Following Dedicated to Excellence since 1998. We offer full and comprehensive support to all steps of your product's life cycle to ensure quality in Life Sciences.
SA Spotters @SaSpotters
11K Followers 6K Following Health tips, motivational quotes, exercise and fitness news and inspiration for a healthy lifestyle from https://t.co/U1X4xLUIR8 💪
Shazia Ahmad @ShaziaKAhmad
1K Followers 2K Following Head of S&PE @argenx, AdBoard @HPVAlliance, Passion for #RareDiseaseResearch, #PatientAdvocacy, Champion for #ClinicalTrialDiversity Tweets=Own
Accreditation Council.. @The_ACMA
1K Followers 693 Following The Mission of the ACMA is to establish, certify, and maintain the competencies of qualified medical and scientific professionals who focus on Medical Affairs.
Alison @Thrivingwdisabl
1K Followers 3K Following She/her, #bisexual, #FNDaware, #blogger and #coach helping #disabled folx navigate the #broken #healthcare, #welfare and #SocialSecurity systems, step by step!
Lee Minho @LeeMinhooffic0
31 Followers 226 Following
Walther Ego @EgoWalther
8 Followers 59 Following
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
RDI @rarediseasesint
5K Followers 699 Following Rare Diseases International - the global alliance of rare disease patients & families
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
Medics4RareDiseases @M4RareDiseases
5K Followers 2K Following Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRare
dazzle4rare @dazzle4rare
1K Followers 1K Following Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Stiff Person Syndrome.. @TheSPSRF
386 Followers 159 Following Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education. #sps #TheSPSRF
NERVEmber® @NERVEmberProj
1K Followers 1K Following The @iPainOfficial hosts #NERVEmber project each Nov since 2009 - NERVEmber® brings awareness to 150+Conditions that have nerve pain involvement including #CRPS
NEJM @NEJM
942K Followers 436 Following The New England Journal of Medicine is the world’s leading medical journal and website.
Good News Network @goodnewsnetwork
40K Followers 550 Following Delivering news stories of hope to inspire millions worldwide. We're in our 23rd year, with over 600k Facebook fans. https://t.co/qL9hqOp7L7…
KFF Health News @KFFHealthNews
194K Followers 1K Following A national newsroom that produces in-depth journalism about health issues; a core program of @KFF. Also publishes @CalHealthline.
HealthLeaders @HealthLeaders
66K Followers 4K Following The healthcare industry’s leading source for news, intelligence, and strategy for senior executives. https://t.co/1yAGCzqVBF
Reuters Health @Reuters_Health
260K Followers 78 Following Sharing health and medical news from around the world.
Healthline @Healthline
69K Followers 704 Following We’re committed to being your trusted ally in your pursuit of health and well-being. Count on us for information, guidance, inspiration, and genuine caring. 🌱
Writer's Digest @WritersDigest
723K Followers 23K Following Writers helping writers since 1920. Writer's Digest, WD University, WD Annual Conference & more. Published by Active Interest Media. #WDC20 #WritingCommunity
Erin Moriarty Wade @EMoriartyWade
9K Followers 10K Following Comms Dir at @carrainc - @AtlBizChron alum - mom of child w/#raredisease - #pinksocks @savvy_coop #clinicaltrial design board & #scleroderma workgroup
The Hill @thehill
4.4M Followers 345 Following The Hill is the premier source for policy and political news. Follow for tweets on what's happening in Washington, breaking news and retweets of our reporters.
One Minute Briefs ⏱.. @OneMinuteBriefs
41K Followers 110 Following The Quick-Thinking Creative Community. One Rule. One Minute. Create an ad. Founded by @BOC_ATM
Positive News @PositiveNewsUK
70K Followers 3K Following Good news that matters. Uplift your inbox with our weekly newsletter, for the essential briefing about what’s going right. Sign-up below ⬇️
The Happy Newspaper @HappyNewspaper_
20K Followers 90 Following A Newspaper to celebrate all that's good in the world. A platform to share positive news and wonderful people. Created by @emilycoxhead
Some Good News @somegoodnews
204K Followers 90 Following Your source for good news stories from around the world. Share your good news story using the hashtag #somegoodnews
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
U.S. News Health @USNewsHealth
265K Followers 293 Following Rankings, hospitals, diets, health plans and more from @usnews. A follow doesn't imply endorsement.
Hope the Zebra @hopethezebra
531 Followers 428 Following Bringing the rare disease community together by sharing Hope, laughter and support. [email protected]
DISORDER: The Rare Di.. @DisorderRare
949 Followers 217 Following Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. https://t.co/Qjsl21HRH4
Rosavecchia @Rosavecchia
4K Followers 4K Following 12 Hip Surgs; #12 Failed Irreparably; Crippled@40 in '97| Failed Spine Surg Syndrome@19 x4 |Pudendal Neuralgia| Fibro| Impinged Shldr ++ #LegacyPainPt #IPP
TimmyTarsh @TimmyTarsh
816 Followers 4K Following Gamer - be sure to watch me on twitch get mad at every game I play!
RARE. @findyourrare
461 Followers 574 Following A lifestyle brand with a purpose- bringing awareness to rare and invisible diseases. Everyone has something that makes them RARE, what’s yours? #findyourrare
David Jeremiah @davidjeremiah
257K Followers 31 Following Senior Pastor of @Shadowmtn | Founder of Turning Point | Delivering the unchanging Word of God to an ever-changing world![[Official Account] Bible Teacher aimed at evangelizing the lost, reviving the hearts of God's people through exalting Jesus and proclaiming God's Word.](https://pbs.twimg.com/profile_images/1301529885136097281/xLeF_do1.jpg)
Anne Graham Lotz @AGLotz
74K Followers 27 Following [Official Account] Bible Teacher aimed at evangelizing the lost, reviving the hearts of God's people through exalting Jesus and proclaiming God's Word.
Scott @Havenlust
299K Followers 185K Following LumenTopia Arte • Enmarcación • Fotografía para decorar tus ambientes Un espacio para fotógrafos, artistas digitales /Friend of @FundacionRevida @LorenaMHurtado
Seth Rotberg @Srotberg15
2K Followers 1K Following I help infuse the patient voice throughout drug development | #HuntingtonsDisease advocate | @Tedx Speaker | All views are my own
Yogurt in Nutrition @YogurtNutrition
40K Followers 26K Following The Yogurt in Nutrition Initiative for Sustainable and Balanced Diets is funded by the Danone Institute International
Bruush @bruush
10K Followers 10K Following Graphic, web and brand designer + digital artist, NFT $BRSH #Bruushdesign #Bruush
Pam Mace, RN @pdmace2
1K Followers 2K Following Executive Director, FMDSA. Awareness of Fibromuscular Dysplasia-survivor of bilateral carotid and vertebral dissections. Views are my own.
Pain News Network @PainNewsNetwork
16K Followers 12K Following Pain News Network is an independent, nonprofit online news service providing in-depth coverage of chronic pain and pain management.
Babylifedaily @babylifedaily
259 Followers 623 Following 👶 Daily baby pictures 👶 New 👶👼🍼 everyday ❤️ DM for Shoutouts | Credits | Removal 📣
medicalsurplusmarket @medicalsurplus3
2 Followers 87 Following We buy all your unused Diabetic Test Strips, we guaranteed payments from our network of qualified buyers, we handle the transaction to protect your privacy.
Dizzy @dizzythedonkey
7K Followers 7K Following Actor, Teacher, #Spoonie and MS Society Support Volunteer. Loves dinosaurs 🦕 dragons, and donkeys. Blogging about life with #MS and #Anxiety 🦄🌻❤
Donald J. Trump @realDonaldTrump
87.3M Followers 51 Following 45th President of the United States of America🇺🇸
PromoCell @PromoCell_GmbH
1K Followers 1K Following We are a leading biotechnology company who supports scientists worldwide with high-end human cell culture products and services.
NeurologyLive® @neurology_live
9K Followers 670 Following Delivering healthcare professionals treating neurological diseases quality and relevant information to help achieve the best patient care possible. #MindMoments
K3 invent @k3INVENT
47 Followers 181 Following
PQE Group @PQEGroup
10K Followers 949 Following Dedicated to Excellence since 1998. We offer full and comprehensive support to all steps of your product's life cycle to ensure quality in Life Sciences.
Accreditation Council.. @The_ACMA
1K Followers 693 Following The Mission of the ACMA is to establish, certify, and maintain the competencies of qualified medical and scientific professionals who focus on Medical Affairs.
Carly Flumer (she/her.. @carlyflumer
806 Followers 1K Following #AYA RAI-Refractory Thyroid Cancer Survivor. Dog lady. Patient advocate. #aspec🎗🏳️🌈 @BU_HealthComm. @MasonCHHS. Tweets = own.
SA Spotters @SaSpotters
11K Followers 6K Following Health tips, motivational quotes, exercise and fitness news and inspiration for a healthy lifestyle from https://t.co/U1X4xLUIR8 💪
Alison @Thrivingwdisabl
1K Followers 3K Following She/her, #bisexual, #FNDaware, #blogger and #coach helping #disabled folx navigate the #broken #healthcare, #welfare and #SocialSecurity systems, step by step!
Shazia Ahmad @ShaziaKAhmad
1K Followers 2K Following Head of S&PE @argenx, AdBoard @HPVAlliance, Passion for #RareDiseaseResearch, #PatientAdvocacy, Champion for #ClinicalTrialDiversity Tweets=Own
Tom Seaman @Dystoniabook1
1K Followers 880 Following Life coach/Author- Beyond Pain & Suffering: Adapting to Adversity & Life Challenges. Diagnosis Dystonia: Navigating the Journey. Speaker Writer Patient Advocate
medCrowd @medCrowd
1K Followers 3K Following The instant messenger for #health and #care worldwide keeping everyone in touch. Join the conversation! https://t.co/sk2kHQsyD9 #bestcare #digitalhealth
Harvard Health @HarvardHealth
2.5M Followers 813 Following Knowledge is the best medicine. Providing you with trustworthy health information from the halls of @Harvardmed and world-famous affiliated hospitals.“It is not the strength of the body that counts, but the strength of the spirit.” ~ J.R.R. Tolkien #ChronicPain #ChronicIllness #NervePain #RareDiseases #DisabilityTwitter #CPP #Autoimmune #MentalHealthMatters #Spoonie #Quotes
101 years ago today, Leonard Thompson became the first human to receive an injection of insulin, transforming type 1 diabetes from a death sentence into a treatable disease. Grateful for science and hopeful for future scientific breakthroughs to come!
@BillFoxLA @FoxNews @RepTonyGonzales Why do so few report about millions of people crossing the border?
"No matter how dark and hopeless a situation might seem, never stop praying." #BillyGraham
@GeorgePapa19 Does conservative brief not have their own Twitter account? Who runs that thing anyway, an 80 year old “I don’t know how to do the twitters” man?
@JoeBiden I’m voting to elect more Republicans.
If you are feeling confused by all the “truth” in our world, call upon the Helper today for support; the real Truth will be revealed to you.
Your mind is a powerful thing. When you filter it with positive thoughts Your life will start to change. The Buddha 📸 jpierce
This is the warrior spirit that the world needs now
It appears that Liz Cheney, one of the GOP's chief warmongers, is about to lose. This is good news for every American regardless of party.
Bye bye @Liz_Cheney. On the bright side at least you won’t have to pretend to be from Wyoming anymore.
“Know this, my beloved brothers: let every person be quick to hear, slow to speak, slow to anger;” (James 1:19)
Donald Trump "has decided that he's running, the question is the timing," @SebGorka tells Newsmax.
The @WHO is a corrupt organization that must never be allowed to dictate health policy in America
The most wasted of all days, is the one without laughter.
“It cost God nothing, so far as we know, to create nice things: but to convert rebellious wills cost him crucifixion.” -C.S. Lewis
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