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#MECFS patients in toxic families REQUIRE bio markers & doctors that validate the disease from day 1 in order to minimize abuse/neglect/denial from family. Additionally, the families need coaching & support to increase understanding to ensure patients stay safe & protected.
In the works #tuesdayvibe #coloringpages #healthaffirmations #adultcoloringbook
It cost 0$ to RT a Black disabled queer small business! It could lead to my next sale. I sell pins, compression items (gloves, hip brace, wrist brace, socks, knee sleeves, etc), ita bags, plant pots, jewelry and so much more! Store details below!
We’ve been collaborating with MidWestCoast Studio on some fun projects! Jill has great ideas and knows how to find the best light for our products. I highly recommend you consider them for your #photography needs! Follow them on Facebook and Instagram at instagram.com/midwestcoast_s…
It’s all too relatable
Not only is painting or coloring stress-relieving and soothing, but I notice better problem-solving abilities and more creative ideas while I’m doing it. Art helps your brain in ways we are just starting to understand! #DisabilityTwitter #chronicillness #arttherapy
Yes, remission is possible! But lack of resources, support, $, and mold-free housing often stands in the way. It’s BOTH. Don’t tell people who are stuck in cycles of abuse and systemic oppression to ignore what’s happening to them. #DisabilityTwitter #chroniclyme
Yes, remission is possible! But lack of resources, support, $, and mold-free housing often stands in the way. It’s BOTH. Don’t tell people who are stuck in cycles of abuse and systemic oppression to ignore what’s happening to them. #DisabilityTwitter #chroniclyme
The beauty of Big Virgo’s planner is that there is no right way to use it. Choose whatever works for your unique energy level! etsy.com/Shop/BigVirgo #Spoontheory #Spoonie #Spooniewarrior #thespoontheory #dailyplanner #dailyplanning #dailyplan #dayplanner #dayplanning #Todos
New & improved- with more space for spoons! #chronicillnesshacks #invisibleillness #invisibledisability #spoonieplanner #spoonies #autoimmunelife #spoonieplanning #spooniedailyroutine #spoonplanning #disabilityplanning #adhdplanner #executivedysfunction #spoonie #spoonietips
Hey you. If you're reading this, You're not broken. The rules of society are broken. You're doing your best to navigate through this system, and you're honestly doing a fantastic job. It might not seem like it right now, but you are. Be proud of yourself. We're rooting for you.
One of the things that's so hard about having a chronic or mental illness, is that when you make certain decisions to protect your health, even if when they go against what you truly want, people will still see them as making excuses, rather than what they are... sacrifices.
Sofie Schwimmer @SofSchwim
65 Followers 5K Following
Tenley Origer @tenl_ori
79 Followers 5K Following
Arielle Della @arielle_de53415
89 Followers 5K Following
Beatriz Lofaro @BeatrizLof82904
41 Followers 5K Following
Sandra @childers82sandr
227 Followers 3K Following
Esmeralda Thieman @EsmeraldaT18826
86 Followers 5K Following
Paola Boesiger @PBoesiger86953
51 Followers 5K Following
Cliona Vanderhoef @cliona_cli
66 Followers 5K Following
Adelaide Newnam @adelaide11199
81 Followers 5K Following
Lavette Sanjose @LavetteSan80504
58 Followers 5K Following
Tegan Kerechanko @tegan70019
52 Followers 5K Following
Melody Armson @ArmsonMelo38179
32 Followers 5K Following
Loralee Toon @too_lora
73 Followers 5K Following
Karen Duerksen @duerks_kar
60 Followers 5K Following
Victoria Serasio @victori_seras
51 Followers 5K Following
Kelsey Newitt @KelseyNewit
69 Followers 5K Following
Maliha Viengxay @mali_viengx
65 Followers 5K Following
Vivienne Pattie @vivienne78212
83 Followers 5K Following
Chieko Inghem @ChiekoIngh60889
90 Followers 5K Following
Caryn Adule @AduleCaryn67328
87 Followers 5K Following
Zariyah Pu @PuZariyah60794
81 Followers 5K Following
Kia Abston @k_abston
34 Followers 5K Following
Kaia Prestage @kaia_prest
37 Followers 5K Following
Rona Hammerman @r_hammerm
58 Followers 5K Following
Gracie Borris @grac_borr
34 Followers 5K Following
Nuala Elsmore @ElsmoNua
15 Followers 3K Following
Bridgette Couts @couts65324
75 Followers 5K Following
Dorla Cambareri @DorCambare
97 Followers 5K Following
Bobbi Longbotham @BobLongboth
39 Followers 5K Following
Hertha Lueckenbach @HerthaLuec32968
80 Followers 5K Following
Maja Varnes @ma_varn
94 Followers 5K Following
Peggie Hatori @PeggHatori
64 Followers 5K Following
Coleen Lout @ColeenLout27605
39 Followers 5K Following
Dane Avery @DaneAvery182704
188 Followers 3K Following
Nicola Funkhouser @NicolaF59292
17 Followers 3K Following
Sumayyah Leming @SumayLemi
32 Followers 5K Following
Debbie Brindle @BrindleDeb97074
42 Followers 3K Following
Rheba Demorizi @DemorizRhe
34 Followers 5K Following
Jeanmarie Puma @jeanmar_pum
30 Followers 5K Following
Ayah Feurtado @AyahFeurta88952
52 Followers 5K Following
Meghann Piearcy @piea_meghan
49 Followers 5K Following
Sana Pedro @SPedro1257
29 Followers 5K Following
Patricia @patricia_flinde
190 Followers 3K Following
Rochelle @babineaurochell
778 Followers 3K Following
Sasha Olazabal @SaOlazab
38 Followers 5K Following
Kena Braner @KenaB87747
50 Followers 5K Following
Illustrator Interrupt.. @FranceyME
3K Followers 2K Following Illustration career interrupted by #ChronicIllness advocating for #MyalgicEncephalomyelitis #LongCovid #GWI #POTS #EDS @franceyme.bsky.social
Dee @po_move
2K Followers 2K Following Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
Green Team Doctors @GreenTeamDocs
14K Followers 11K Following Top-Rated Medical Marijuana Doctors Group Helping Residents of Utah, Ohio, Oklahoma, Missouri, Louisiana & Texas Gain Access to #MedicalCannabis. #NoMorePills
Anthony Rainford @AntRainford
2K Followers 1K Following .Diagnosed with MS in 2015 but determined to keep positive. Trying to break down the stigma of mental health one brick at a time . Mental Health First Aider
Andy Reynard ✍️�.. @andy_reynard
2K Followers 963 Following Writer of memoir ‘Balls to MS’. Blogger on life with MS. Spoiler alert: I have MS.
Gary Wien @Lighty99
4K Followers 4K Following Writer for https://t.co/l5KeJUfW2N -- NY Rangers / Raiders / Bayern Munich / Rutgers / Wrexham AFC / wine / MS fighter (spms) Lemtrada
🕯MS Scents Candle .. @mstrue2toya
1K Followers 2K Following 🐐♑️MS Warrior🧡 Lemtrada DX-2018🕯Small Biz Owner/Chandler/💋Product Junkie🤩 Plant momma 🌿coffee snob ☕️#curems🎗IG: @mstrue2toya @msscentscandleco
Deborah @FakingWellness
1K Followers 691 Following Lover of Dogs, 40s/50s era, books, upcycler, football, snooker. Living with Coeliac. RRMS dx Nov ‘22
Abi B @AbiBuddComms
4K Followers 3K Following I #write a blog about #MultipleSclerosis .Part time #writer DX with #RRMS in 2008. now #SPMS 🙄 https://t.co/9rplaxege9
Laura Mann - Multiple.. @lauramann212
3K Followers 256 Following 36, 12 years of RRMS, #multiplesclerosis - Pain, dizziness & fatigue. She/her.
Lauren @newtodooming
2K Followers 1K Following Covid in May 2022 #LongCovid #TreatLongCovid #BringBackMasks
Ali @Alimae05150
838 Followers 524 Following #LongCovid since April 2021, #POTS, and more. I have a loving husband, Fur Momma to my BC mix and 2 cats. Praying for a cure/treatment.
Edina Forgacs @edina_forgacs
431 Followers 564 Following Currently collecting stamps on the #LongCovid loyalty card - #POTS, #MCAS and #hEDS
Antonio @Antonio03508674
258 Followers 183 Following COVID persistente desde enero de 2022:Cuando tu vida se convierte en una pesadilla de la que nunca despiertas…
Luisech @luisech09
149 Followers 336 Following Covid persistente, a raíz de eso artritis y fibromialgia !vivo con dolor todos días, todos los días una pelea !!!hasta el moño de gilipolleces y gilipollas!
Long COVID at UWS @UWSLongCOVID
574 Followers 74 Following Tracking Persistent Symptoms (of Long COVID) in Scotland, or TraPSS, is a research project based at University of the West of Scotland
Beat @FL_Beat
455 Followers 406 Following Ingeniera con corazón de letras. Persistente en todo lo que hago, hasta con la Covid19. #covidpersistente
Alvaro Rial @RialAlvaro
701 Followers 2K Following (Long Covid March’20) El sufrimiento humano es muchas veces inescrutable, y para ser creído no tiene porqué adaptarse a la simplicidad de la ciencia médica.
Visible @visible_health
5K Followers 134 Following The activity tracking platform for illness, not fitness. #MECFS #LongCovid #invisibleillness
Isabelle Delez🍀 @isabelledelez
666 Followers 585 Following Pres. @covideuskal (29/02/20*11/3/20) 🆘#LC #CleanIndoorAir #SarsCov2persistente #SienteEnVerde https://t.co/Jrx1q06wi8 #FreePalestine
Long Covid Chile Ofic.. @LongCovidChile
983 Followers 799 Following Centro Referencia Covid Persistente Chile / Afección que se presenta a post infección viral de COVID-19. 👨🏻💻 #longcovid #covidpersistentechile
A Poet @PoetAndWriting
430 Followers 601 Following Writing ✍️,Music 🎶 ,Art 🖼, Comedy 🎭 , Passion 💃🏻 , 🏡SFL living & MS Warrior🎗️’03.BLM #FAUOwl 🇺🇸🇨🇺 ~ I have MS, but MS doesn’t have me!
Shana Mitchell @pumpkingyrll77
654 Followers 1K Following I have 4 kids 2 teens and 2 youngsters. I myself have multiple sclerosis diagnosis 2003. I love animals I have a dog and cat. My son is autistic and daughter.
LONG COVID Puerto Ric.. @PRicoLongCovid
663 Followers 2K Following Concienciar sobre #CovidPersistente/Raising awareness about Long Covid everywhere. Hard core deniers are silenced/blocked. 🇵🇸
MS Momma @thewritersarahr
267 Followers 567 Following reader, writer, breeder, MS survivor. I used to jump off cliffs and go parasailing…now I watch the world from a wheelchair.
MNgoneWild - Lance @mngonewild
838 Followers 2K Following Surrounded by a wonderful family and support network! #MSwarrior #PPMS 2017 Native 406er
Heather Dyson @HeatherJane67
880 Followers 2K Following Wife, Mamma of 3 gorgeous humans & 2 cavachon fur babies ❤️ missing my old life #longhaulers #LongCovidAwareness STAY POSITIVE
Amy Flynn @AmyflynnMS
570 Followers 482 Following 3rd Twitter account! Kept getting locked out! Mom of 3, happily married! MS warrior since 1992!
Dawn Helzer @dawn_helzer
848 Followers 859 Following Educator 👩🏫 Volunteer 🧡 MS Activist 🗣 MS Warrior 💪 Montanan 🌲 SUP obsessed 🏄♀️ *My views are my own*
LP @TwitMom7
589 Followers 2K Following Chronically ill Spoonie SAAMMOM/Single African American Muslimah Mom Of Many,2w3 ENFJ,CHHA,CNA,Fibromyalgia induced by LONG COVID 3/17/2020. I ❤️ British TV
Evan Vandegriff @evandegr
1K Followers 904 Following corgi dad and cto. Healthtech #AI enthusiast #LongCovid #LongVax #T1D #FBLC
4RealsBoo @BooReals
812 Followers 757 Following Looking to find current science and people who understand the ramifications of said science. First wave LC.
Ian Cook @iancookMSer
810 Followers 557 Following Journalist (63)secondary prog MS DX 1993 still standing but walking not easy, bladder and all usual probs
Bob Featherer @funnybobvb
541 Followers 998 Following Father, MS fighter, unretired comedian. Back on a stage again and loving it!
Sailing with MS @OOHChallenge
765 Followers 456 Following Oceans Of Hope Challenge is bringing together people with MS to achieve personal goals.
@invisiblecafe2.0 @invisiblecafe
410 Followers 1K Following We offer creative, physical and mental health classes and workshops in the Hammersmith & Fulham area to people with an Invisible illness/disability | Join us!
Angel Felix - Ⓐ🌹.. @italoromeno
1K Followers 3K Following «Know yourselves – be infertile and let the earth be silent after ye.» Atheist, Humanist, CF/AN, anarchist, antifascist #RRMS #Tysabri ⛧
𝕄𝕚𝕔𝕙𝕖�.. @shellfergy
1K Followers 1K Following Wife, mum to four boys #MS #Kesimpta You only die once but you live everyday!
Paul @Paul_Griffin1
1K Followers 759 Following Halifax Panthers & Liverpool FC fan. Retired in 2005 due to Secondary Progressive Multiple Sclerosis. I've lived with MS since 1st relapse in 1996.
6James9 @6_James_9
232 Followers 191 Following A Father, ̷H̷u̷s̷b̷a̷n̷d̷ & all round nut job afflicted with SPMS - " Oh, the Joys!"
coupletakesonms @CoupleTakesOnMS
106 Followers 91 Following This is the official Twitter account for the A Couple Takes on MS Podcast. He's walking. She's rolling. And together, we're moving forward.
Kathy Chester- podcas.. @kchester1991
1K Followers 2K Following I am The owner of MS disrupted a program to help all auto immune especially MS patients Who is their bodies with exercise in a safe way.
JuNae’s a MS fighte.. @jones_junaej
330 Followers 432 Following Disabled because of the progression of active secondary progressive multiple sclerosis. I am happily divorced from a narcissistic Ass with 3 children.#MECFS patients in toxic families REQUIRE bio markers & doctors that validate the disease from day 1 in order to minimize abuse/neglect/denial from family. Additionally, the families need coaching & support to increase understanding to ensure patients stay safe & protected.
This is not a helpful thought but it has been on my mind lately: If I ever get better from #MECFS I don't know how I am supposed to live in a society that has repeatedly decided to leave me to rot and die in a ditch without even trying to help me. Does anyone else feel this way?
Went to a new GP yesterday & she wanted to send me to a rheumatologist for ME/CFS because apparently they’re meant to be our specialist in Australia. I had to hold back my laughter. I’ve seen 4 rheumies and not one of them has been helpful. Most were confused why I was there.
I am not ok. I feel like I’m trapped in the body of an 80 yr old stage 4 cancer patient, except nobody cares. Every day I’m dying a bit more and I’m actually scared after today’s incident. This is my last public plea for someone to please do something about #LongCovid. I’m done.
I say this every time anybody relates to anything I tweet about chronic pain but it’s such a weird bittersweet thing it helps knowing I’m not alone it really does but nobody deserves this and I don’t understand it and it hurts my heart
It cost 0$ to RT a Black disabled queer small business! It could lead to my next sale. I sell pins, compression items (gloves, hip brace, wrist brace, socks, knee sleeves, etc), ita bags, plant pots, jewelry and so much more! Store details below!
Welp, I just accidentally stumbled on the hell that is parents of disabled children on Instagram. The ableism is astounding & I really hope that some parents are true allies for their children. I think they're out there, but they're not the influencers w/20k followers.
I am at rock bottom tonight. Don’t know how much longer I can keep enduring the pain. I’m exhausted and my body won’t stop shivering. My brother has made it clear that he doesn’t care that I got infected and am disabled now.
Excellent post on why chronically ill people often get abandoned by friends and loved ones. I am 100% in agreement that it is trauma-based response: maija-haavisto.medium.com/why-healthy-pe…
Start the clock for the “Oh, crap, I tested positive for COVID” tweets. JFC, people. Our medical institutions are an absolute and utter disgrace. #AMEC2023 #COVIDIsNotOver
@love_big_virgo Yes, that's what I instinctively told her by message... But as you say, we'll have to give it time it's frustrating to not helps more ... Thank you for advices 🪷
@theedifyingword It depends on how ozone is administered and how often. High-dose ozone therapy in half a dozen different forms 5 days/wk for 3 months was a mainstay of the only treatment regimen that kicked Lyme disease for me. And a HOCATT sauna (which contains ozone) is good for lots of stuff.
@Icculus27 @theedifyingword Yeah, I like The Morrison Center in Manhattan (there are a few though). There are places in Bellport, NY and upstate as well if those are better for you just let me know.
@theedifyingword I just ran a poll for pwLC, about 2 x 1 did well or extremely well with IV Ozone compared to didn’t notice much. … Personally, IV Ozone saved me. I was horrifically sick so I “ran” to IV Ozone since I’ve done it before with Lyme (not much) but know many who use it for that and…
Just found out that I was accepted into my second #LongCovid study. This one is focused on trying to figure out if neuro inflammation is playing a role. It’s just an imaging study and won’t have any direct benefit to me but hoping my unremarkable brain helps in some way.
#longcovid #mecfs friends - for a long time I’ve had burning calf muscles. (LC 15 Mos). In the last mo, it’s moved up the back of my legs & thighs. & today after a migraine my arms/biceps. Kicker - doesn’t hurt when I’m walking, sitting, stretching, laying down or to touch. It…
Fuck this. But I can’t say I haven’t had this worry over the years as a disabled person with chronic illnesses. #DisabilityTwitter #NEISvoid
Men are 6x more likely to abandon their chronically ill partner.
Molly Shannon reprising her role as Sally O’Malley was awesome! The Jonas Brothers wearing her costume was hilarious I lost it. Loved it. 😭🤣👏🏽 #jonasbrothers #thejonasbrothers #SNL @jonasbrothers
I don't know anyone with post-exertional malaise (#PEM) who doesn't push themselves to their limit & beyond on a regular basis. The idea that people w/ #MECFS #LongCovid have false illness beliefs & a fear of exertion is absurd.
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