Marie-Claire Seeley @mcseeley
Clinical Nurse, researcher, CEO of The Australian POTS Foundation, advocate for those with POTS and LongCOVID potsfoundation.org.au Adelaide, South Australia Joined August 2011-
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A truly inspiring story of resilience. Claire Clark details with rawness, the pain of chronic illness and loss of identity. Her response was one of determination, self agency and human spirit. We love her 💕 @AustralianPots @sophiescott2 #POTS podcasts.apple.com/au/podcast/cha…
Great to see attention brought to #LongCovid but disappointing that there is no mention of the treatable symptoms of #POTS that are prevalent in the disorder. @MilandaRout Fighting an invisible illness: the curse of Long Covid theaustralian.com.au/weekend-austra…
The TGA has called for nominations of medications for repurposing. Midodrine is indicated for #Orthostatic Hypotension but not #POTS. Help us change that. instagram.com/p/C5R7W3tt33y/…
@BethanyJPoore shines a light on how treating #POTS in #LongCOVID can improve functionality. Symptoms may not be curable but they can be better controlled when appropriately identified with #autonomic testing. instagram.com/p/C44lBDLRtcN/…
We’ve had a great two days sharing understanding of #POTS and learning from @satish_r_raj and many other fabulous clinicians. Thank you @sophiescott2 for all your support for the @AustralianPots instagram.com/p/C44Zvv6SqiL/…
Only one week left until our #POTS conference. Don’t miss out auspotsconference2024.com.au
NIH opens long COVID trials to evaluate treatments for autonomic nervous system dysfunction. The silver lining to COVID is the long overdue recognition of the autoimmune nature #POTS ’. Watch with interest. 🤔 nih.gov/news-events/ne…
The countdown is on. 🙌#POTS
Relevant too for #POTS and #LongCovid?? I wonder.
Relevant too for #POTS and #LongCovid?? I wonder.
@DH_Lau @CelineGallaghe2 & @mcseeley pen this editorial addressing the exciting research from @OklahomaU which shows hope for an "Emerging Role of Autonomic Modulation by Transcutaneous Vagus Nerve St... sciencedirect.com/science/articl…
Early bird registration for our consumer conference [22nd March] and our scientific conference [23rd March] closes tomorrow! events.humanitix.com/better-togethe…
Today our #LongCOVID study drew to a close. 150 amazing people who gave up their energy and time and trusted us. 🙏🏻 to @CelineGallaghe2 and @GemmaWi40814350 @ADARC_UoA researchers who gave so much time to help. #POTS is prevalent in #PASC !
How, in 2024, can we have long Covid clinics that don’t test for #POTS ? They must surely know up to 80% of #LongCovid patients have POTS and it’s a treatable aspect of the disease? Same for ME/CFS clinics- although these seem better with POTS Anyone who works in one can explain?
Early bird registrations for our #POTS conference close on the 31st January. Get your tickets here events.humanitix.com/better-togethe…
This petition will support @AustralianPots's pre-budget submission in Jan '24. To date no funding has ever been allocated to providing support for resources or research into @POTS in Australia. Thank you to all those who have supported us chng.it/yQv9Nt97w5 via @ChangeAus
#pots can be for life! Sign to support this neglected community. "I've had #pots since I was a teenager after glandular fever. I'm now 40. I mourn for the quality of life I might have had." " chng.it/MZkpRdcw via @ChangeAus
This is a good way for consumers with #POTS and #LongCovid to have their say in the national discussions about Nursing Workforce Strategy. Including Nurse Led Care.
This is a good way for consumers with #POTS and #LongCovid to have their say in the national discussions about Nursing Workforce Strategy. Including Nurse Led Care.
Listen to our ambassador @sophiescott2 share her own battle with autonomic symptoms while maintaining a busy career. Raising awareness of #POTS 🙏🏻👌🏻🙌🏻 linkedin.com/posts/aliflynn…
So close to our goal! Sign the @AustralianPots petition to show support for funding for #POTS research. @ausgov “The rise in POTS diagnoses since 2020 signifies an urgent need for funding for this debilitating illness.” chng.it/Nt5qkyxG via @ChangeAus
Dr Claire Taylor @drclairetaylor
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Dear @Mark_Butler_MP, for *this* to be the outcome of the #MECFS advocacy meetings at Parliament House is not only a continuation of harm — it is a fresh slap in the face. cc @Mon4Kooyong @SenatorJordon @EmergeAus @sophiescott2 @hayleygleeson @abcnews @RACGPPresident
Excited to have this review on #autoimmunity in orthostatic intolerance syndromes, including #POTS, published in @JPM_MDPI special issue that I am guest editing, authored by none other than Dr. Blair Grubb et al! Dr. Grubb is a legend in our field. 🫀🙏 mdpi.com/2075-4426/14/4…
Thank you to my supervisor @satish_r_raj, my committee members Dr. Sheldon and Dr. Exner, and the @TeamSRRaj lab for your support during my PhD work! Thanks to @SofiaAhmedMD and @MakLab_ for serving as examiners during my defense!
Congratulations to @KateBourneBSc for her wonderful PhD defence today! Proud of you, Dr. Bourne :). You’ve truly been an inspiration in the Raj Lab and we’re excited to see everything you’ll accomplish in the future!
Congratulations to @KateBourneBSc for her wonderful PhD defence today! Proud of you, Dr. Bourne :). You’ve truly been an inspiration in the Raj Lab and we’re excited to see everything you’ll accomplish in the future!
Superior mesenteric artery syndrome in severe anorexia nervosa: A case series onlinelibrary.wiley.com/doi/full/10.10… be aware of intraabdominal compression syndromes
@ThePOTSPostman Some great research from Dr Vidia Raj shows POTS patients have lower anxiety levels than the general population once somatic symptoms of POTS are excluded like rapid heart rate.
@mcseeley 🙌 💯. I returned to work, socialising and exercise only bc of appropriate #POTS meds and management. Not totally fixed but quality of life is much better. My Insta shares the ongoing journey. Thanks @mcseeley @DH_Lau for your help on this road. #runningwithpots
@sophiescott2 @AustralianPots Sending love, thanks and support to everyone there!
Only one week left until our #POTS conference. Don’t miss out auspotsconference2024.com.au
@mcseeley Long overdue to do IVIG trials at adequate dose and duration. I'm personally more excited about the Efgartigimod P3 trial.
On young carers action day, I support South Ayrshire Young Carers . . . .@sahscp @Claire_SAC
5 Weeks until our conference. There are only limited 'in person' tickets left available. Register below to avoid disappointment. events.humanitix.com/better-togethe…
@ProfRobHoward There are plenty of people in need of psychiatrists for mental illness. It’s about time psychiatrists stayed out of this.I think you will find times are changing&doctors such as @PutrinoLab @VirusesImmunity @DavidJoffe64 @Sunny_Rae1 @dysclinic @BinitaKane won’t have this any more
@ProfRobHoward 1. Why don’t you believe patients with a physical illness demonstrated on tilt tests, PET scans and muscle biopsies? 2. Why do you not concentrate on actual mental illnesses as a psychiatrist instead of trying to tell people with physical illness they are mentally Ill?
@ProfRobHoward 1. #LongCovid is not a functional disorder. 2. Not one Long Covid patient - or #MECFS patient - got cured with psychotherapy. Signed, Your friendly neurologist who specializes in Long Covid. ✍️🧠
This is OUTSTANDING. Thank you @markhumphries and @antoinette_news
Former public school students speak out on the dangers of adequate funding for public schools.
The plasma proteins that predict future dementia in healthy adults even more than 10 years before diagnosis, from >52,000 @uk_biobank participants and assessment of >1,400 proteins (especially GFAP) nature.com/articles/s4358… @NatureAging
A causal relationship between Vitamin D receptor binding genomic variants and multiple sclerosis among 4 cohorts, >13,500 cases and ~39,000 controls pnas.org/doi/10.1073/pn… @PNASNews