Muscular Dystrophy News Today @mdnewstoday_
We exist to bring you science, research and clinical news about Muscular Dystrophy. We are a free digital publication dedicated to the patient community. musculardystrophynews.com Pensacola, FL Joined May 2019-
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An new type of muscular dystrophy that's caused by inherited mutations in the SNUPN gene results in symptoms of muscle weakness before age 2. buff.ly/3xVFgmS
Oral treatment with EDG-5506 continued to stabilize muscle function after two years in men with Becker MD taking part in a Phase 1 trial. buff.ly/3WkyDES #MuscularDystrophyNews #MuscularDystrophy
Here is this week's most-read article featured on our website. Exondys 51 treatment for up to eight years extended survival in DMD patients over a wide range of ages, a long-term study found. buff.ly/3WoFCN5 #MuscularDystrophyNews #MuscularDystrophy
Did you know that gene therapies for DMD use viruses engineered to deliver therapeutic genes to muscle cells? Learn more here: buff.ly/3EwFn8n #MuscularDystrophy #MDCommunity #LivingWithMD
Columnist Betty Vertin has often grouped her three boys with DMD together, but she's recognizing their need for individual support. buff.ly/3JDyBjy
Because heart problems with DM1 are sometimes masked, researchers here argue for adding Holter monitoring and echocardiography to screening. buff.ly/3QhVFZ0
It's a season of change for columnist Shalom Lim, who takes stock of accomplishments achieved while living with Duchenne muscular dystrophy. buff.ly/49RTmD6 #MuscularDystrophyNews #MuscularDystrophy
All the info you need for managing life with DMD is at your fingertips, with our complete caregiver’s guide: buff.ly/450Z4k0 #MuscularDystrophy #MDCommunity #LivingWithMD
Columnist Robin Stemple looks at the pros and cons of occupational therapy to determine whether potential benefits are worth the pain. buff.ly/3JAcGK4
Glucocorticoid use was seen to help maintain breathing ability and arm function in adults in the late stages of Duchenne muscular dystrophy. buff.ly/3WbKXqJ
Diagnostic testing of 34 people suspected of having limb-girdle muscular dystrophy uncovered two novel gene mutations causing LGMD type R1. buff.ly/3xKDg0F #MuscularDystrophyNews #MuscularDystrophy
Here is this week's most-read article featured on our website. Solid's SGT-003 delivers a gene that encodes a functional yet shorter version of the dystrophin protein, microdystrophin, to muscle cells. buff.ly/3xDY4qA #MuscularDystrophyNews #MuscularDystrophy
Faced with the threat of the season's first tornado emergency in their Nebraska home, columnist Betty Vertin and her family plan for safety. buff.ly/447rNUX
Oral treatment with EDG-5506 continued to stabilize muscle function after two years in men with Becker MD taking part in a Phase 1 trial. buff.ly/4aDntzj
The medical and financial burdens of living with DMD can feel all-consuming. We break down the resources that may be able to help: buff.ly/45ERRXh #MuscularDystrophy #MDCommunity #LivingWithMD
As columnist Betty Vertin's oldest son with DMD prepares to finish high school, she reflects on the significance of reaching this milestone. buff.ly/4cPexbo #MuscularDystrophyNews #MuscularDystrophy
It's a season of change for columnist Shalom Lim, who takes stock of accomplishments achieved while living with Duchenne muscular dystrophy. buff.ly/44a2YYA
Living with DMD adds an extra layer of complexity to everything, especially starting school. If you’re feeling nervous about your child’s transition, this action plan may help: buff.ly/49Dc7Km #MuscularDystrophy #MD #MDCommunity #LivingWithMD #DuchenneMuscularDystrophy
Treatment with an antioxidant supplement led to improvements in muscle strength and life quality for FSHD patients in a small clinical trial. buff.ly/3TZk6vo
Exondys 51 treatment for up to eight years extended survival in DMD patients over a wide range of ages, a long-term study found. buff.ly/4bd6hk7 #MuscularDystrophyNews #MuscularDystrophy
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Defeat Duchenne Canad.. @defeatduchenne
1K Followers 795 Following Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy.
CureDuchenne @CureDuchenne
6K Followers 510 Following We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
Terri Ellsworth @TerriEllsworth
2K Followers 2K Following Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
LGMD Awareness Founda.. @LgmdAwareness
1K Followers 1K Following A 501(c)(3) advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb-girdle muscular dystrophy (LGMD).
Dyne Therapeutics @Dyne_tx
1K Followers 323 Following Advancing life-transforming therapies for serious muscle diseases. Community guidelines: https://t.co/0XslT2HWqg
World Duchenne Organi.. @worldduchenne
3K Followers 1K Following Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
LGMD Kas Hastalıği .. @Lgmdder
597 Followers 615 Following LGMD ilerleyen bir kas hastalığıdır. Tedavi çalışmalarının ülkemizde yapılması için LGMD kas hastalığı ile mücadele topluluğu oluşturulmuştur.
Edgewise Therapeutics @EdgewiseTx
376 Followers 43 Following On a mission to improve the lives of people facing serious muscle disease.
MDA Advocacy @MDA_Advocacy
2K Followers 316 Following MDA's Advocacy empowers the voice of the @MDAorg community & protects the interests of those we serve.
Mary Fiance @MaryFiance
554 Followers 3K Following VP, PR @MDAorg | #RareDisease, #MuscularDystrophy, #NMD, #ALS, #PR | NYC | Previously @92Y, @jazzdotorg @LincolnCenter #ViewsAreMyOwn
Michael Moore ♿️V.. @VPwithBMD
2K Followers 3K Following Excellence in Leadership Award 2023, OCT, Retired/Replacement TDSB Vice-Principal living with Becker Muscular Dystrophy #Accessibility #Inclusion
Shirlyn Adkins @ShirlynAdkins
888 Followers 738 Following @AANEMorg Executive Director of the AANEM & American Neuromuscular Foundation- tweeting items related to neuromuscular and electrodiagnostic medicine.
Carmela Chillery-Wats.. @Cure4Carmela
2K Followers 3K Following Age 10 disability #influencer #advocate with a progressive muscle-wasting condition #LMNACMD, giving hope to others. #musculardystrophy
Hamid Osman @hamidosman7833
0 Followers 15 Following
Kotailri @Kotailri
366 Followers 2K Following (Ko-Tail-Rii) i draw and make games | duchenne muscular dystrophy | pfp: kukimaru666 | ⭐️☁️ | 🥖 | 🍆🐺
hassan @Hpopi1Hassan
3 Followers 80 Following
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
Giorgia @giorgiabimbi
7 Followers 166 Following
Quimby @KylieThomp77892
3 Followers 1K Following
muneera ❦ @m_n_o_8
115 Followers 779 Following
Dra. Verónica Morin @Vm0rin
16K Followers 16K Following Madre. Médica de familia. Coach. Creadora de la Clínica del Estrés. Ayudo a las personas y a las organizaciones a lograr sus objetivos.
Home sale resource @ResourceHo95365
31 Followers 24 Following Home Sale resource connects home inspectors and realtors with buyers and sellers for full and pre listing home inspections. There are also other services.
Lisa @Mystic_Micha123
35 Followers 178 Following Loving wife, mother, world traveler, love photography, wow gamer
falcon @bos46476740
4 Followers 351 Following
Partnership to Fight .. @pfcd
2K Followers 2K Following News and information on the fight against the number one cause of death, disability, and rising health care costs: chronic disease.
Institute for Gene Th.. @gene_therapies
2K Followers 413 Following Gene therapy is transforming how we treat diseases. But today’s healthcare system can’t realize its potential. We’re changing that.
The Partnership to Fi.. @ThePFID
1K Followers 775 Following PFID is a group of patient, provider, and community orgs, health policy experts & others working to advance awareness & action on #AMR & vaccine confidence.
Goran Vasovic @goranvasovic22
6 Followers 168 Following
Jon Hollowell @thatguywithcmd
2 Followers 19 Following Thirty-something guy in England living with Congenital Muscular Dystrophy. Author of the website and blog https://t.co/be1ruDpUlW
Asaf Samet Bayraktar @asafsamet
395 Followers 5K Following Gazeteci / İçerik Üretici/ @trtspor @trtsporyildiz
Christina Scott @cscott629
2 Followers 22 Following
Beatris @BetlBeatris
97 Followers 900 Following
BiopharmaBytes @BiopharmaBytes
13 Followers 156 Following Biopharma Bytes stands at the forefront of transforming how professionals digest the latest developments in biopharmaceuticals - one byte at a time.
AnthongLu @AnthongLu99
5 Followers 55 Following
Jose Antonio Oliva B @joseoliva_71
113 Followers 998 Following
Selçuk @Seluk54312908
2 Followers 25 Following
d_LearningNerd(abdul) @D_maes_tro
51 Followers 429 Following
the master @pablo_arias_s
4 Followers 64 Following
Ajay Malik @AjayMalik497034
1 Followers 17 Following
Mohamed Ali @ma8535847
0 Followers 74 Following
MH @SatoResearch
4 Followers 176 Following
Mujeeb @mujeebasacon
8 Followers 159 Following
Sarah Kasner @rahdevries
92 Followers 123 Following mom, step-mom, wife, best youngest daughter, sister, employee, yogi, runner
はるねこ @harunecco922
67 Followers 135 Following #筋ジストロフィーデュシェンヌ型 #側湾症 #猫 #動画クリエイター こんにちは!はるねこです! 中1♿️ 高1男子15歳 特別支援学校に通っています🏫 もけ♂やラテ♀(飼い猫)を投稿したり自分の事を投稿します!!
れっくす @loveutrex
48 Followers 80 Following 2022年に息子（現在8歳）がベッカー型筋ジストロフィーと診断を受けました。情報収集といろんな方と情報交換できればと思い、Twitterをはじめました。無言フォローさせていただきます
Adriel Hernando @adriel_hah
181 Followers 697 Following PhD student in @Dandergassen lab at TUM | 🇮🇩/🏳️🌈 | Looking at the not-so-inactive X chromosome in cardiovascular disease🫀
Dan Jefferson @jeffers8004
8 Followers 15 Following
Diego 🇮🇱 🇦�.. @diegovllc
123 Followers 652 Following ✨Maj. of the Argentine Space Forces (ASF)☄️✨ Liberal 🇮🇱🇦🇷🇺🇸 《MAGA》
RxDataWatch @RxDataWatch
37 Followers 194 Following
srinjay kumar jha @SrinjayJha
10 Followers 162 Following
Ramesh Dhurde @dhurde_ram83858
6 Followers 59 Following
𝕰𝖓𝖙𝖎𝖙�.. @entity0flucifer
6 Followers 30 Following
dylan hughes @Dylforfun
8 Followers 19 Following
Nguyen Tran Minh Duc,.. @DuckyM2
191 Followers 2K Following Co-First Author of "A Consensus-Based Checklist for Reporting of Survey Studies (CROSS)" in the Journal of General Internal Medicine.
rakesh kumar @rkjaiswalsiup
7 Followers 161 Following
Cure HSPB8 Myopathy @curehspb8
6 Followers 47 Following The only patient advocacy group focused on HSPB8 Myopathy. On a mission to find treatments and cures, raise awareness and build a strong community.
The Comedy Professor @ProfessorPete11
13 Followers 937 Following Former Prof of Stanford University, Fired for Murdering a Parrot with a Ukulele. So unfair. Free online lessons for learning stuff.😀
G.K. Guliani, M.D. @GulianiG
218 Followers 621 Following Neuromuscular, ALS, Myasthenia, Neuropathy, Stroke Neurologist educator researcher @_healthpartners @umnews. Opinions mine.
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Shirlyn Adkins @ShirlynAdkins
888 Followers 738 Following @AANEMorg Executive Director of the AANEM & American Neuromuscular Foundation- tweeting items related to neuromuscular and electrodiagnostic medicine.
World Orphan Drug Con.. @OrphanConf
5K Followers 842 Following Get regular updates on the World Orphan Drug Congress! April 23-25, 2024 | Boston Convention & Exhibition Center #WorldOrphanUSA
Texus Healthcare Syst.. @texusmedproduct
11 Followers 215 Following Medical Devices Distribution Company
PondyPanda @panda_pondy
3 Followers 200 Following Kitchen Trained Cook, Reader By Passion Former Head Hunter
Rzgmünevver @rzgmunevver
376 Followers 621 Following
MEHMET VEYSİ ÖNCEL @MehmetVeysi72
7 Followers 154 Following Bildiğim tek şey hiçbir şey bilmediğimdir.
Wishes For Drew @wishes_drew
42 Followers 131 Following Twitter account for Drew, diagnosed at 7 years of age with Duchenne Muscular Dystrophy. Love...Prayer...Determination Facebook/Instagram @wishesfordrew
Osman Karadavut @OsmannKaradavut
653 Followers 1K Following Miraç Volga'nın babası. Kır oğul zinciri; hür gez, hür konuş! Yok mu altından, gümüşten bir kurtuluş? #Duchenne #DuyMaDınızmı #DuchenneninDostuOl #dmdbitsin
KevinCurran @biologycentury
357 Followers 1K Following Molecular biology PhD, working in cell/gene therapy, teach biotech seminars at BridgePoint Bio
repubindia @repubindia
2K Followers 5K Following Grandfather : Freedom Fighter. Father & Maternal grandfather : Tantrik. CXO Mentor DRDO TATA NII School of Medicine U of Utah, USA [email protected] 8334006710
Ayşe Albayrak 👩�.. @AyeAlba22040239
99 Followers 125 Following
Carbon1 @Carbon1956
158 Followers 356 Following Retired Locksmith/Safesmith Conservative - Love Canada/USA Trump2020- I never lie because I don't fear anyone. You only lie when your afraid John Gotti
Rosanna Ouellette @8086445e7365419
7 Followers 69 Following
Emma Shepard @emmaloushepard
51 Followers 114 Following
Jutt @GhulamG95753707
134 Followers 1K Following
Tiaan van Staden @staden_tiaan
63 Followers 498 Following Hi, my name is Tiaan. I am diagnosed with Duchenne Muscular Dystrophy (DMD). This is my support twitter!
Sadullah Erol @Sadoefeyigit
485 Followers 989 Following Siyaset Politikacılar Mizah Teknoloji Bilim Teknoloji Köşe Yazarları
Roman Puchkovskiy @rpuchkovskiy
12 Followers 32 Following
Kris Siemionow, MD, P.. @siemionowkris
941 Followers 835 Following “Success consists of going from failure to failure without loss of enthusiasm” Winston Churchill
Pasumarru Nadendla 28.. @pasumarru
2 Followers 5 Following
@mdnewstoday_ Carpe Diem! 🙌 And thank you for all your inspirational insights from Berlin. 🍀
A great story about our very own superheroes from across the pond!! Thank you @HawkenMiller and @mdnewstoday_ for taking the time to meet with us @MDUK_News @KerrySpink musculardystrophynews.com/2022/04/19/tak…
@mdnewstoday_ Thank you for this amazing article!
Trial of SRP-9001 #GeneTherapy opens in California to boys age 3 with #Duchenne muscular dystrophy. #clinicaltrial #patients. Read more via @mdnewstoday_ ow.ly/KAFX50GPzbu
📣 Special post shared with @mdnewstoday_ on how starting to use a mobility scooter has shown me the importance of planning ahead when living with Becker Muscular Dystrophy musculardystrophynews.com/2021/09/18/30-… #TeamLAPS4MD #musculardystrophyawarenessMonth #musculardystrophyawareness
📢Check out all we're doing for National Muscular Dystrophy Awareness Month (via @mdnewstoday_)! #MuscularDystrophyAwareness #MuscularDystrophy #MDAwarenessMonth musculardystrophynews.com/2021/09/02/mda…
ESSAY FROM @mdnewstoday_:"30 Days of MD: Seeing Disability Through a Different Lens" musculardystrophynews.com/2021/09/02/30-…
Let no man say when he is tempted, I am tempted of God; for God cannot be tempted with evil, and he himself tempteth no man: James 1:13
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