Seeking Sarahtonin @seeking_5ht
Thoughts on living with brain cancer since 08.2021 #braintumor #anaplasticoligodendroglioma Joined January 2022-
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Following32
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Managing doctors appointments should not feel like a full time job.
“Your cancer journey is so inspiring” thanks it’s literally killing me
I just heard a patient refer to having cancer as "being evicted from their own life" and I'm going to need a minute because that's profound and heartbreaking.
Having cancer makes you follow your medical chart and insurance claims the way you used to follow social media.
I wish I had a support system to help me through this.
The new CDC COVID prevention guidelines contain several recommendations that stigmatize immunocompromised people and place the burden on those most impacted and least resourced. That’s the opposite of public health. Our attitude should be “No one is safe until everyone is safe.”
Brain cancer is fun because you look & act normal until someone asks you a simple question & you can’t remember the words.
Cancer isn’t cured by positive thinking or “beating it.” It’s about whether or not damaged, rouge cells can be controlled. While attitude may help us endure treatment, it doesn’t determine outcomes. I’ve lost friends who were warriors and did everything “right.” They didn’t lose.
We don't talk enough about how many chronically ill and disabled people are trapped in jobs they hate simply because they need "good health insurance." It's another reason why healthcare shouldn't be tied to employment.
Everywhere. I got to the top of an escalator at the airport recently and the only thing there was a giant billboard for brain cancer. It made me uneasy, but I never would have noticed it before my diagnosis.
Everywhere. I got to the top of an escalator at the airport recently and the only thing there was a giant billboard for brain cancer. It made me uneasy, but I never would have noticed it before my diagnosis.
@katem02134 @ThanksCancer I saw an obituary recently of someone who died of cancer, and it said cancer really ruined her life and took her from her family too soon, it was so raw and true and they should all say that. There’s nothing courageous about it.
As a software engineer, I’ve blamed myself like this a lot
Still going through chemo, but going through the same inside
Still going through chemo, but going through the same inside
I've noticed that many healthy people only stick around when you're "staying positive". You're seen as an inspiration and a fighter...until you say something negative about the realities of having cancer. Then, those people disappear. #thankscancer
Dr Saleem Ahmed Rajpu.. @DrSaleemAhmed2
377 Followers 5K Following I'm humble , caring and helpful to others peoples. I'm simple man. Im Doctor & working as Cardiologist in cardiac centre Karachi . I did my Dipcard from NICVD.
Tiffany Crowe @tiffnotes
164 Followers 245 Following 34. brain cancer. i tweet about football & random things. still figuring this Twitter thing out.
Suzanne Samples @suzanne_samples
177 Followers 185 Following This is my fifth time trying Twitter. Writer @RunWildBooks. Co-founder & Fiction Editor of @DeadSkunkMag. 🦨
Human @CGconfessions1
1K Followers 3K Following former caregiver to wife with #mbc #brainmets. Trying to figure out how to move forward.
Hold Your Head Up �.. @HYHUTriangle
7K Followers 7K Following 2x BrainTumorSurvivor 🧠Meningioma☀Glomus Jugulare/Cochlear/Epilepsy☀Founder👩🏾💻 Hold Your Head Up NonProfit☀ StrongFaithinGod☀Making A Difference in the World☀
I Live Now Rachel �.. @KickBrainTumors
4K Followers 4K Following God's love will never fail us☀ His mercy follows us through Life's journey⛅ All the days of our Lives☀Uplifting words👩🏾💻 Love🧠 Hope🧠Faith☀Surviving☀Thriving⛵
The Brain Tumour Char.. @BrainTumourOrg
31K Followers 32K Following The world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally.
Steffen L. Nielsen @realBloodyQQ
179 Followers 558 Following Construction architect - Left occipital/parietal craniotomy ~ Anaplastic astrocytoma since Oct. 18
Marissa M @MM_MarissaMetz
934 Followers 2K Following 🧠🖤10 years brain tumor free! | 2 amzg sons 💙💙| #btsm🫶🏼| #raisehealth 🙌🏼 | #justdontjudge🏳️🌈☮️ | #loveallanimals🌱| #HoyaSaxa 👏🏼 | #justvote💙
Steve Blank 🌻 @blank_steve
416 Followers 375 Following Raising support for my wife who was diagnosed with #glioblastoma #braincancer. Read her #blog at: https://t.co/iHcifQLw1J
Low Grade Glioma Regi.. @gliomaregistry
2K Followers 876 Following Study run by Dr. Elizabeth Claus (@YaleSPH/@BWHNeurosurgery) to learn about the effects of low grade glioma tumors and their associated treatments on daily life
ｍｉｃｈｅｌｅ.. @michele_502
669 Followers 982 Following A gal who works in forensics. Loves dogs, skincare, and travel. Vino Snob. Diagnosed with brain cancer 10/14/19. #braincancerawareness #astrocytoma
Tiffany Crowe @tiffnotes
164 Followers 245 Following 34. brain cancer. i tweet about football & random things. still figuring this Twitter thing out.
Suzanne Samples @suzanne_samples
177 Followers 185 Following This is my fifth time trying Twitter. Writer @RunWildBooks. Co-founder & Fiction Editor of @DeadSkunkMag. 🦨
CURE GLIOBLASTOMA @OuthouseThought
2K Followers 2K Following Vigilant living, healthy body, healthy mind heals. Never surrender to GBM.
Brain Tumor Network @BTNcares
675 Followers 390 Following Providing personalized navigation to patients and caregivers in the US at every stage of the primary brain tumor experience at zero cost.
I Live Now Rachel �.. @KickBrainTumors
4K Followers 4K Following God's love will never fail us☀ His mercy follows us through Life's journey⛅ All the days of our Lives☀Uplifting words👩🏾💻 Love🧠 Hope🧠Faith☀Surviving☀Thriving⛵
Steffen L. Nielsen @realBloodyQQ
179 Followers 558 Following Construction architect - Left occipital/parietal craniotomy ~ Anaplastic astrocytoma since Oct. 18
Mariah Jae @MariahJaeee
133 Followers 191 Following Too wide for your narrow mind 🌸🌼🌸she/her 🌸🌼🌸 forced brain tumor ~enthusiast~
Hold Your Head Up �.. @HYHUTriangle
7K Followers 7K Following 2x BrainTumorSurvivor 🧠Meningioma☀Glomus Jugulare/Cochlear/Epilepsy☀Founder👩🏾💻 Hold Your Head Up NonProfit☀ StrongFaithinGod☀Making A Difference in the World☀
St_Molly_AgentofChaos @Lifeiskitsch
4K Followers 1K Following “quirky, defiant, messy, odd, & absolutely charming”- me, according to my 6th grade teacher #BTSM #HeadfortheCure #EndWell #ABTA #Beans4Brains #HBTCStrong
Ivy Brain Tumor Cente.. @IvyBrainTumCtr
5K Followers 3K Following Largest #Phase0 clinical trials program in the world providing personalized treatment options for patients with #glioblastoma & other aggressive brain tumors.
shitscaredmum @shitscaredmum
62K Followers 434 Following Mum of girls, lost Laura to brain cancer May '23 Raising funds & campaigning for change #bemorelaura @OurBrainBank https://t.co/sI85Fw4zV6 9/5
#BTSM chat @BTSMchat
3K Followers 510 Following All things Brain Tumor Social Media. Live chat 1st Sunday of the month every other month; 4p PT/7p ET. Connect with us all month long by adding #BTSM
Low Grade Glioma Regi.. @gliomaregistry
2K Followers 876 Following Study run by Dr. Elizabeth Claus (@YaleSPH/@BWHNeurosurgery) to learn about the effects of low grade glioma tumors and their associated treatments on daily life
Steve Blank 🌻 @blank_steve
416 Followers 375 Following Raising support for my wife who was diagnosed with #glioblastoma #braincancer. Read her #blog at: https://t.co/iHcifQLw1J
Lisa O'Leary @lisaoleary524
1K Followers 1K Following Lawyer. Writer. Widowed. Brain tumor advocate #BTSM. Axial spondyloarthritis/hemicrania continua/Sjögren’s syndrome. Peloton addict 💚 #LisaOL.
Marissa M @MM_MarissaMetz
934 Followers 2K Following 🧠🖤10 years brain tumor free! | 2 amzg sons 💙💙| #btsm🫶🏼| #raisehealth 🙌🏼 | #justdontjudge🏳️🌈☮️ | #loveallanimals🌱| #HoyaSaxa 👏🏼 | #justvote💙
The Brain Tumour Char.. @BrainTumourOrg
31K Followers 32K Following The world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally.
Erica Robinson @eleighrobs
639 Followers 508 Following National Brain Tumor Society Advocate, Team Captain and Survivor
Cancer is an Asshole @CancerisanASS
2K Followers 735 Following #cancerisanasshole ....email: [email protected]
Elephants and Tea @ElephantsTea
3K Followers 5K Following Elephants & Tea is a magazine for #AYA, written by #AYAcancer patients/survivors/caregivers telling their #stories in their own words. #JoinTheHerd #Cancer
ｍｉｃｈｅｌｅ.. @michele_502
669 Followers 982 Following A gal who works in forensics. Loves dogs, skincare, and travel. Vino Snob. Diagnosed with brain cancer 10/14/19. #braincancerawareness #astrocytoma
Chelsey Gomez | Artis.. @ohyouresotough
3K Followers 409 Following Professional Artist & Advocate in the Cancer Space | Hodgkin's Lymphoma Survivor (2x) | ⬇ SHOP my Etsy & Books (linked below) [email protected]
EndBrainCancer Initia.. @EndBrainCancer
5K Followers 132 Following Our mission is to EndBrainCancer by providing patients immediate access to specialists, advanced treatments, and comprehensive support programs. Hope Award ⬇️🧠
BrainCancer.org @NoBrainCancer
3K Followers 730 Following Providing HOPE and the latest information in brain tumor treatments, clinical trials, & support to patients, their families, friends, & caregivers.
OligoNation @OligoNation
753 Followers 771 Following #OligoNation advocates for and funds medical research towards new treatments for #oligodendroglioma brain cancer.
MGH Center for Advanc.. @braintumor
1K Followers 270 Following Highlights from the Brain Tumor Surgery Program in the Department of Neurosurgery at Mass General Hospital, Harvard's oldest and largest teaching hospital.
Liz Salmi @TheLizArmy
9K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.
American Brain Tumor .. @theABTA
9K Followers 1K Following The ABTA provides resources to support the needs of brain tumor patients & caregivers and funds critical research in the pursuit of discovering breakthroughs.
National Brain Tumor .. @NBTStweets
12K Followers 2K Following National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors.
The Cancer Patient @ogcancerpatient
8K Followers 688 Following A satirical look at life as a cancer patient 🎗Tweets are my own.
Thanks Cancer! @ThanksCancer
18K Followers 10K Following Cancer is growth that I never wanted: the podcast!“Your cancer journey is so inspiring” thanks it’s literally killing me
I just heard a patient refer to having cancer as "being evicted from their own life" and I'm going to need a minute because that's profound and heartbreaking.
Been there done that then I decided to get up off the floor and fight. #fuckcancer
Brain cancer is fun because you look & act normal until someone asks you a simple question & you can’t remember the words.
I truly wish people would stop using 'cancer' and 'metastasis' as metaphors in their political reporting/fantasy stories/etc.
Cancer isn’t cured by positive thinking or “beating it.” It’s about whether or not damaged, rouge cells can be controlled. While attitude may help us endure treatment, it doesn’t determine outcomes. I’ve lost friends who were warriors and did everything “right.” They didn’t lose.
We don't talk enough about how many chronically ill and disabled people are trapped in jobs they hate simply because they need "good health insurance." It's another reason why healthcare shouldn't be tied to employment.
@seeking_5ht Even the commercials for other things that have side effects “including cancers like lymphoma” just seem to pop out.
@AlisonBow @ThanksCancer Lonely in a crowd. I’ve been interviewing cancer patients for a week and one thing they all noticed was how much they noticed cancer on TV after their diagnosis.
@katem02134 @ThanksCancer I saw an obituary recently of someone who died of cancer, and it said cancer really ruined her life and took her from her family too soon, it was so raw and true and they should all say that. There’s nothing courageous about it.
@katem02134 @ThanksCancer What people do not realize is that being honest with them about our cancer is the real act of courage.
About once a week, I think, “This sucks and I don’t want to do it anymore.”
@ThanksCancer Every obituary I read where someone dies of cancer, it always says “and they never complained”. Really? Did they stop being a human being when they got cancer? My obit is going to say, “damn she really hated having cancer and she wasn’t afraid to let you know it”.
Dying of cancer isn’t brave or inspirational— it’s a fucking tragedy.
@ThanksCancer Favourite (entirely unsought after) advice brain tumour is result of me working too hard in analytical job
Salty Sunday in the cancer community 🧂❤️
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