Alondra Nelson @sociallifeofdna
Author of The Social Life of DNA. Harold F. Linder Professor @the_IAS. Also @alondra and @AlondraNelson46. alondranelson.com/books/the-soci… Gotham, Princeton, DC Joined January 2010-
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"But informing them might not be ethical, explained @alondra Nelson, a sociologist of science at the Institute for Advanced Study, because 23andMe participants hadn’t given permission in advance to be linked to historic people." science.org/content/articl…
How neat is it to see a @BeaconPressBks title as a @NewYorker crossword clue?! @JeanneTheoharis
The manager of Harvard Medical School's morgue is accused of letting buyers come into the morgue to pick what remains they wanted to buy, then stealing parts of donated cadavers like brains, skin and bones. nbcboston.com/news/local/4-c…
FTC says genetic testing company 1Health failed to protect privacy and security of DNA data and unfairly changed its privacy policy: bit.ly/43Kbmgb /1
Thank you @CASBSStanford and @Sage_Publishing for recognizing me with this great honor! I am deeply honored to be in the distinguished company of Professor Anderson and prior Sage-CASBS Award recipients.
Thank you @CASBSStanford and @Sage_Publishing for recognizing me with this great honor! I am deeply honored to be in the distinguished company of Professor Anderson and prior Sage-CASBS Award recipients.
Thank you for reading and engaging @sociallifeofdna, @BlackmanAndrew
Thank you for reading and engaging @sociallifeofdna, @BlackmanAndrew
“Previous attempts to capture human genetic diversity…extracted sequence data from marginalized populations…Informed by those ethical missteps, #pangenome coordinators are…collaborating with Indigenous groups to develop…policies around data ownership” nytimes.com/2023/05/10/sci…
I can't recommend strongly enough that you read @matthewcobb and @nccomfort's analysis in @Nature of Rosalind Franklin's real contributions to solving the structure of DNA. It raises many issues... nature.com/articles/d4158…
Good paper about the limitations of polygenic scores: bmj.com/content/380/bm… "Incorporating PGS into existing screening programmes is not without risk... screening for colorectal cancer found that adding PGS did not improve diagnostic accuracy but did add complexity & cost."
Here is my column from @thejournal_ie in March 2020 on the state’s weird enthusiasm for a subsidiary of a Chinese firm to try to collect genetic profiles of the Irish nation, for profit. ‘our genetic code falls into private hands to be used for profit' jrnl.ie/5033373
Also, this report’s clarity about the business plan (Get super valuable Irish DNA, sell it) once again raises the question of what the @dpc thought it was doing when @DRIalerts wrote to it to raise concerns about this use of biometric DNA data by a private body.
5/ A firm selling huge volumes of Irish genomic data says it faces a “material uncertainty” over its future, and needs further funding from its US-based owner businesspost.ie/news/genuity-s…
Svante Pääbo – awarded the 2022 #NobelPrize in Physiology or Medicine – also made the sensational discovery of an extinct hominin, the Denisova, entirely from genome data retrieved from a small finger bone specimen.
Worthy recognition of the transformative impact of Paabo’s ancient DNA research
Worthy recognition of the transformative impact of Paabo’s ancient DNA research
Do you remember when you joined Twitter? I do! #MyTwitterAnniversary
The Onion is really nailing it with the CRISPR satire. theonion.com/scientists-unl… (cc @UrnovFyodor)
Was honored to be part of the working group that helped draft Maryland’s new forensic genetic genealogy law, and excited to share our observations about the law & process in @ScienceMagazine today. science.org/doi/10.1126/sc…
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14K Followers 2K Following Editor of NYT's Headway. Previously @Reveal @sparkcamp @TheAtlantic @NPR; launched @NPRCodeSwitch. he • him • hisThe drop in whole-genome sequencing costs on a logarithmic and a linear scale
How neat is it to see a @BeaconPressBks title as a @NewYorker crossword clue?! @JeanneTheoharis
Tx @uche_blackstock🥹 for clinicians like us, the goal is to ensure these mothers are listened to & believed. No mother should lose her life to bring another life into this world❗️I am grateful for @ABCardio1, @nytimes for including me & @RoniNYTimes for the exceptional writing.
Thank you the writer @RoniNYTimes for this important piece! @DrRachelMBond and others for their expertise.
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IMO these confounders need to be front and center in any EA analysis, older estimates (i.e. prior to 2022) should be treated as likely false, and speculation about using PGS for policy is premature if not outright irresponsible. /fin
RIP Ian Hacking. Feb 18 1936 - May 10 2023
Zotero is the best citation management software — it's free and does not monetize your data But many folks have a hard time starting out on it. Here's how you can get started on Zotero in 15min: Zotero for beginners: a step-by-step tutorial 🧵
So @edyong209 I apologize ahead of time that you will be living on my Twitter banner for the next several months but YOU SAID VERY NICE THINGS SO IT'S ACTUALLY YOUR FAULT.
I never thought that the day would arrive that this would happen. Twitter has just suspended the journal Scientific Reports for impersonating the journal Nature.
Then, @Linda_Pizzuti leads a discussion with three startups that will change medicine. Stay tuned to find out who they are. After that, @rickberke interviews @AlondraNelson46, of the White House Office of Science & Technology Policy. To me she's @sociallifeofdna. 3/17
1/13 If polygenic risk scores (PRS) are going to be used for patient care, they — and their limitations — need to make it onto a report. Report design matters for any impact PRS might eventually have. A 🧵
@acflewis @postmortemgirl Do you feel they have come along enough for other genetic backgrounds (I.e. non Western European) to meet the equity bar or will PRS will have the risk of being next inequity?
BREAKING NEWS: The 2022 #NobelPrize in Physiology or Medicine has been awarded to Svante Pääbo “for his discoveries concerning the genomes of extinct hominins and human evolution.”
This Senate Democratic Majority with the Inflation Reduction Act has just passed the largest package to fight the climate crisis ever passed by the United States Congress.
Biological and chemical weapons could pose a national security threat that the U.S. isn't equipped to handle, a panel of lawmakers and military leaders warn. trib.al/oAZbh0P
"It’s another way Nelson is transforming the office: a focus on clear, direct communication as a tool of scientific progress." wow! I was so inspired by Politico's profile of @sociallifeofdna. Big fan of her scholarship, and can't wait to see more! politico.com/news/magazine/…
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