Arthur @unreal_arthur
ME Patient-ly Waiting for Biomedical Research | Volunteer @WeCrunchME #GreatestMEdicalScandal https://t.co/9VY3sk6fK2 crunchme.org United Kingdom Joined October 2022-
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Arthur retweeted
2 years on Karen STILL fears for her life due to NHS failings. We posted an update on our petition on 30 Sept. To read it scroll down our petition page to UPDATES. Save Karen Gordon (…) chng.it/CGMQTDVvRb Please share. Thanks Photo 3 5 25 Karen in hospital with TPN. K H & M
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Arthur retweeted
The recording of the "On the Violence of Psychologisation of Postviral Illness: A Habermasian Solution?" talk - with myself, Dr Fabian Fritz (@FFHambu), Sonja Hannibal and Mirja Nicolas is now available online (with subs!) 😍 #LongCovid #MECFS #Injustice youtube.com/watch?v=7jENpy…
Arthur retweeted
Incredible talk here at the #UNGA80 #indoorair call to action from our very own Violet Affleck! Reminding us that #longcovid affects all of us, the #covid19 pandemic is ongoing and we have failed to protect our children. Thank you, Violet, for speaking the truth to this room 🙏🏻
Arthur retweeted
ITV News reports on the rise in POTS since COVID. A consultant admitted that before the pandemic he “had no idea” about the condition, highlighting how little autonomic dysfunction is taught in medical school.
Arthur retweeted
I was interviewed by @MetroUK about my experience with #LongCovid metro.co.uk/2025/09/20/lon…
Arthur retweeted
Tucked away in the resources for the new NHS module on severe ME was this checklist. I thought it looked useful, so I've reformatted it as slides. Much of the information is a repeat of the 25% ME Group/Action for ME/BRAME/MEA hospital support document. 🧵1/9
Arthur retweeted
International ME community: ME patient Sanne (38) is denied life-saving treatment. Sanne has no time left. Only TPN could save her life, but it is being denied. Read our website to find out what you can do👇 & Please read🧵 mecentraal.wordpress.com/2025/09/16/me-…
Arthur retweeted
Columbia's Ian Lipkin on innate immunity in ME/CFS and related topics...youtube.com/watch?v=-_ihsJ…
Arthur retweeted
Arthur retweeted
We were really encouraged by the support we had from the many Senedd Members (MSs) who visited the Severe ME Difrifol Cymru stall at Y Farchnad (The Marketplace) in @SeneddWales on 15th July… 1/4
Arthur retweeted
🔥 Please share - Very important care campaign for anyone with ME #pwME #pwLC ♥️💙🫂 "Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness" justice4me.uk
Arthur retweeted
Decades of research and medical neglect means that ME, and now Long COVID, still have zero FDA-approved treatments 💊❌ Zero. By contrast, other major diseases (now with lower total disease burdens) have dozens. Hard to recover without treatment... #MECFS #LongCovid #IACI
Arthur retweeted
ME/CFS weist eine der schlechtesten gesundheitsbezogenen Lebensqualität aller bekannten Erkrankungen auf @wecrunchme 💙 #MECFS #LongCovid
Arthur retweeted
What an excellent podcast on ME/CFS from the Guardian Science team. Thank you to @iansample, @NickyProctor, @ChronicResearch and Madeleine Finlay for producing one of the best summaries I have heard on the condition. A few highlights: theguardian.com/science/audio/…
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