Photon Turtle @PhotonTurtle
∞/acc — Contributing to the singularity. Severe (LC19/MECFS). Recording fragments of my consciousness while I still can. Joined April 2009-
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🧬 New finding: Low serum ROCK1 levels have been identified in our Long COVID and ME/CFS @amaticahealth cohort. ROCK1 is a regulatory protein involved in stress response, immune activity, and autophagy (cell recycling). Possibly having relevance in disease mechanisms.
Happening Now: Invisible Illness: Leading the Way on Long COVID
I joined @SecKennedy for a Long COVID roundtable focused on understanding and addressing this chronic condition impacting millions of Americans. I am grateful to @HHSGov and Secretary Kennedy for making this conversation a priority and to our researchers and innovators for…
Hi #pwLC and #pwME, if you are able please consider sending a blood sample to @amaticahealth. Please only do so if you can afford it and the draw doesn’t cause a crash (especially in severe patients). Providing this sample is all I can do in my current state. Objective data in…
The complement system detects & eliminates pathogens; however, when overactivated, it can become harmful to the host. Rafael Bayarri-Olmos et al. summarize the latest understanding of the role of complement in #LongCOVID pathogenesis (open access)👇🏼 (1/) insight.jci.org/articles/view/…
Dr Alain Moreau and his team are by far one of the best research groups tackling this disease. I recommend following their work closely.
Dr Alain Moreau and his team are by far one of the best research groups tackling this disease. I recommend following their work closely.
Montreal researchers studied 249 ME patients and found that elevated SMPDL3B in blood tracks with symptom severity. Two diabetes drugs, vildagliptin and saxagliptin, reversed this effect in immune cells, hinting at a new treatment path. …nslational-medicine.biomedcentral.com/articles/10.11…
Jakarta study of 47 COVID-19 patients found that obese individuals who developed higher insulin resistance a year later had fewer functional virus-fighting CD4 T cells, linking weakened immunity to lasting metabolic problems. nature.com/articles/s4159…
We've announced our new study, called COVID-4.019-Long, which further expands our clinical research efforts to assess ANKTIVA’s potential beyond cancer or cancer-related diseases. Learn more about the study and its potential impact: ir.immunitybio.com/news-releases/…
For those who unfortunately have Long Covid either from the infection or vaccine we now have opened a trial with Anktiva Bioshield to explore if the NK cells we activate can clear the cells that may persist with virus . @ cssifm.org
For those who unfortunately have Long Covid either from the infection or vaccine we now have opened a trial with Anktiva Bioshield to explore if the NK cells we activate can clear the cells that may persist with virus . @ cssifm.org
1/ Millions are living with long-term illness after infection, often without answers. Today, we’re launching the USA's first clinical manual for treating Infection-Associated Chronic Illnesses (IACIs). #LongCOVID #MECFS #Lyme 🔗 Read the announcement: mountsinai.org/about/newsroom…
🔬Interesting new study: Researchers exposed lab-grown human muscle tissues to blood serum from people with ME/CFS and Long COVID. After 48 muscles: - Produced less force - Fatigued faster - Lost their ability to hold peak strength Let’s breakdown the full paper 🧵
Most rare diseases aren’t “uncurable.” They’re just unfunded. Pharma ignores them because there’s no billion-dollar market to chase. Governments move at the speed of paperwork. The cure will come from patients, scientists, and AI agents pooling resources onchain, funding…
Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s
ME, or Myalgic encephalomyelitis, is linked to your genetics, an early study by Decode ME has suggested. They’ve found eight areas of genetic code in people with ME are ‘significantly different’ to the DNA of people without the disease. The results still need to be reviewed,…
UK-based DecodeME recruited over 21,000 people with ME/CFS and found 8 genetic regions tied to the illness. These include genes linked to immune response and pain, helping confirm ME/CFS has both neurological and immunological roots. research.ed.ac.uk/en/publication…
With just 4-6% of the Long COVID RECOVER funding we’d have managed to run a whopping 100,000 patients through the @amaticahealth RNA sequencing test. And be well into subgrouping these patients & identifying treatment response predictors They’ve achieved nothing with 100% of it
A new #PostCOVID / #LongCOVID single-arm study by ImmunityBio of Anktiva, an interleukin-15 receptor agonist which is used to treat bladder cancer. 20 patients will be enrolled at UCSF in San Francisco, with the study planned to start this month. clinicaltrials.gov/study/NCT07108…
Eva @evaschmid36
269 Followers 3K Following
Angel @angel24walker
303 Followers 3K Following
Eva @booneeva79
279 Followers 3K Following
Fireman @Fireman51292365
213 Followers 4K Following
Lara @clevelandlara28
1K Followers 3K Following
Ashlyne wallen @mw44988
29 Followers 713 Following
KimberleyAmelia @x0E7B8b3LlU82
18 Followers 577 Following
Barbara @k_barbara67
182 Followers 3K Following
Jonah Mack @DrTyrminus
340 Followers 3K Following
Karyn Bishof @K_Bishof
4K Followers 5K Following Founder & Pres. @C19LH_Advocacy | #LongCOVID patient-advocate | Former Firefighter/Paramedic & Educator | B.S. Exercise Sci & Health Promotion | Views my own
Vyonne Hana @sulli1504
308 Followers 2K Following
Ylan Roy @YlanRoy
918 Followers 2K Following Small but mighty 💪🏽 #earlyeducator, visual artist, health enthusiast advocating for #LongCovid awareness. No longer #essentialworkers, speak truth to power!🦋
Christiana Private �... @PatrycjaMajews7
91 Followers 2K Following christiana musk private account ✪ Chairwomen @Unreasonable Group // Founder Flourish Trust // Writer // Poet // Multimedia Art // Read my TIME article
Lorkwie @Lorkwie458
7 Followers 869 Following
EarthaPeg @76BkK24I0t09k6
19 Followers 571 Following
Doro Böhm 💙💛 @doroboehm
1K Followers 3K Following Born at CO2 at 318 ppm 🏆Gerechtigkeit für Eltern 🏆Macht Familien stark. Beendet die Kinderarmut mit dem #KinderGrundeinkommen 👍🏼🏆
Martin W. Angler @martinangler
2K Followers 3K Following Science journalist. Bylines @aeon @nzz @nzzas @sz @derspiegel @geomagazin @bdwredaktion & others. 2024 @ABSW awards finalist. Here to provide #LongCovid context
i @aravindurstruly
68 Followers 350 Following
aVaxinjuredVoice @boykin10171017
30 Followers 161 Following One day at a time. Vax injury 💉 is real and it does happen.
Steph LongCovidGal�... @Sreneaurn73
1K Followers 774 Following I'm a Daughter, Sister, Aunt, Mom of 2, Nini of 2. #healthy2disabled by SARS-CoV-2. RN,BSN,retired #LongCovid #MeCFS. Started a TikTok Journal.🩵
Carnivore Christy @melovinjesus
660 Followers 559 Following Christ follower•Wife of 27 yrs•Momma•Nana•MH Advocate•Carnivore•depression and anxiety survivor•
Lea Volkmann🇳🇱 @VolkmannLea
514 Followers 3K Following
Pauline @popopaulinette
672 Followers 537 Following #Covidlong Mars 2020 #EM #MCAS #POTS 🗣️Volunteer / Bénévole Apresj20 Covid Long France 🇫🇷
RoxiiLee @RoxiiLee_
486 Followers 233 Following Me/Cfs , MCAS, LongCovid , POTS The boo🥰 @snoopyySZn
Anna Marie Cornelius @AnnaMcornelius
282 Followers 7K Following God First | Dog Mom | Christian I Dreams to Reality I Patriot | Entrepreneur |I believe America will always be great Psalms 23:1 #American
Petar @tinkeringpete
14 Followers 564 Following
Clio G @cliogayton1981
254 Followers 1K Following
Bradypus torquatus @izaugsmei
1K Followers 2K Following Teacher, activist, nature lover. Purpose, community, education, global & local... inner & outer. On a #longcovid quest. All views my own.
Maud Sac 💢🍉 @papillyon
291 Followers 697 Following Moderate ME/CFS, mainly housebound with my three cats. One of the MillionsMissing since 2018. @papillyon.bsky.social
Justin Millman @Juzmeister78
0 Followers 42 Following
MatthewJ#SafeEdForAll... @MatthewJJenkins
2K Followers 5K Following Mask wearing still. . 'Still a man hears what he wants to hear. And disregards the rest'. @mattjjenko.bsky.social 🦋
Jacqui #climateJustic... @AFairerFuture
1K Followers 7K Following Born @ 319.65 ppm. @jas4afairerfuture.bsky.social @[email protected]
Arthur @unreal_arthur
431 Followers 2K Following ME Patient-ly Waiting for Biomedical Research | Volunteer @WeCrunchME #GreatestMEdicalScandal https://t.co/9VY3sk6fK2
Carrie Anna McGinn @Carrie_McGinn
1K Followers 2K Following Infection-associated chronic illness advocate | MSc | #PatientPartner | She/Her | #MECFS #MyalgicEncephalomyelitis #POTS #LongCovid #CovidLongue #CovidLong
Erin M @ErinAPN1
3K Followers 3K Following Audaciously committed to hope. Mum of severe Long Covid Kiddo. From Journo to law. https://t.co/hPYbhTPZay
🦉💜 Socratica Ki... @SocraticaKim
3K Followers 1K Following 🎓 Caltech/Princeton Grad 👩🔬 Molecular Biologist 🦉 Co-founder @SOCRATICA 📘 HTBAGS: https://t.co/xw3YxOWAGq 📘 HTSWP: https://t.co/hyRDKb2zoW
Teresa M French @TeresaMFrench
2K Followers 3K Following nonna, animal lover, retired english teacher ... namaste ;)
Brendan Daly @Brendan16362572
6 Followers 418 Following
Sophie Lee @ibstales
599 Followers 251 Following IBS sufferer, author of Sophie's Story: My 20-Year Battle with Irritable Bowel Syndrome, owner of IBS Tales
Missy Kiefer Tunney @mktunney
173 Followers 1K Following
Someone @HonkyBonky
130 Followers 178 Following
Interesting Engineeri... @IntEngineering
306K Followers 0 Following Interesting Engineering is a cutting edge, leading community designed for all lovers of #engineering, #technology and #science
VistaShares @VistaSharesX
15K Followers 976 Following Investment solutions designed to navigate evolving market opportunities with confidence.
Google DeepMind @GoogleDeepMind
1.2M Followers 279 Following We’re a team of scientists, engineers, ethicists and more, committed to solving intelligence, to advance science and benefit humanity.
ARPA-H @ARPA_HDirector
2K Followers 50 Following Jason Roos, Acting Director of the Advanced Research Projects Agency for Health (ARPA-H). Posts prior to 1/20/25 were from the former ARPA-H Director.
ARPA-H @ARPA_H
8K Followers 255 Following Official Twitter account of the Advanced Research Projects Agency for Health (ARPA-H). Privacy Policy: https://t.co/Z855rcfwXT Engagement ≠ endorsement
Jeffrey Lubell (EDS, ... @JeffLubell_C19
4K Followers 551 Following I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.
Meighan Stone | @meig... @meighanstone
7K Followers 4K Following Human rights at home & abroad ♿ Executive Director @LCCampaign. Past: President @MalalaFund, Senior Fellow @CFR_org, Fellow @Kennedy_School, @WFP & @ONECampaign
Senator Todd Young @SenToddYoung
94K Followers 234 Following I proudly serve Hoosier families in the U.S. Senate. Contact my office at (202) 224-5623 for assistance. You can also visit our website for additional info.
HHS.gov @HHSGov
1.6M Followers 32 Following Official account of U.S. Department of Health & Human Services | Follow @SecKennedy | Privacy policy: https://t.co/2fvEGkrCJN.
Kalshi @Kalshi
168K Followers 2K Following Trade on anything in all 50 states: politics, sports, entertainment, crypto, weather, and so much more. For sports: @KalshiSports For support: @KalshiSupport
FaZe Esports @FaZeEsports
267K Followers 135 Following The home of @FaZeClan Esports | 59-Time Major Champions 🏆
Yaki @Yaki_fomoArt
7K Followers 908 Following All day degen plays. My view scopes profit | @OpenledgerHQ 🐙 runner. DM: https://t.co/z0S2oEXp4n Degen life: https://t.co/UWS6r66HTt
Siqi Chen @blader
135K Followers 4K Following 🏗️ Love to build stuff (@runwayco, @sandboxvr, @postmates, @zynga) people love. 💸 Investor @amplitude_hq, @mercury, @owner, @elevenlabsio, @meetgamma ++
Steph LongCovidGal�... @Sreneaurn73
1K Followers 774 Following I'm a Daughter, Sister, Aunt, Mom of 2, Nini of 2. #healthy2disabled by SARS-CoV-2. RN,BSN,retired #LongCovid #MeCFS. Started a TikTok Journal.🩵
Dusty Robotics @DustyRobotics
1K Followers 59 Following Dusty Robotics is the best solution to ensure design integrity in the field through automated construction layout.
Alain @ATCH2022
232 Followers 1K Following
Rachel ♿ 🌍 🇪�... @ChasingGlimmers
20K Followers 22K Following Northumbrian. Severe M.E Sufferer. SEND Mam. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers
Pauline @popopaulinette
672 Followers 537 Following #Covidlong Mars 2020 #EM #MCAS #POTS 🗣️Volunteer / Bénévole Apresj20 Covid Long France 🇫🇷
Alina MSN, RN, CCRC @Alina_MSN_RN
2K Followers 1K Following Registered Nurse. Over a decade of research experience. Moonshot founding member formerly @ Columbia, NYU, Mount Sinai & HSS
Calico @calico
8K Followers 41 Following Calico is a research and development company tackling one of life's greatest mysteries, the biology that controls human aging.
Princess, The Tower @APainPrincess
29K Followers 28K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Michael Harrison ⚖�... @mlh496
402 Followers 728 Following Co-Founder of Socratica + Socratica Foundation Caltech grad (math) Ex-Googler Former Quant Long Covid + POTS since Dec 2023
rin the restless @3eyedlambs
411 Followers 408 Following Maybe in my next life. 24yo kiwi sick since 2013 #LongCovid #MEcfs #POTS #MCAS and like everything since 2023. f*ck this.
Antoine | V.Severe ME... @JeunePOTS
425 Followers 154 Following 27 y. Former company lawyer. Life decimated by severe #MECFS, #LongCovid and #POTS since December 24 Previously big 🎮 and ⚽ fan, now stuck in bed doing nothing
Michelle milano @Michellemilano8
47 Followers 633 Following
Rebecca O'Connor @rebeccaoco
4K Followers 4K Following public affairs @PensionBee | cofounder @goodmoneygirl | columnist @theipaper | author #ESG | lately, #longcovid #longcovidkids
Amy Boylan @amyboylanwrites
4K Followers 3K Following Freelance #copywriting rock doc. Sticky #websitecopy, long #content & expert #articles. Life on ⏸ Household of pre-vax #LongCovid #PoTS #MCAS (she/her)
Robin. 23m in US have... @robinsoped101
3K Followers 6K Following 20yr disabled from #ME. #ME child. #MECFS #MEkids #POTS/OI #MCAS #hEDS #LongCovid #LongCovidKids https://t.co/LH3gVB1GbV @pandemic_equity
Andrew Green @AndrewG76201347
2K Followers 1K Following ME/CFS, POTS, MCAS, lupus, mtDNA, CDI. Female (ignore name). Scientist ‘retired’ due illness/disability. Anonymous because I share medical details of my child.
TTOR @VPAV8
144 Followers 540 Following (FR) Anti #LongCovidKids #LongCovid #PACS #MECFS #ChronicLyme #PAIS #MS
Carey @29Carey29
2K Followers 5K Following Here to learn and connect with others doing the same. #KeepMasksInHealthCare #LongCovid #POTS
Alison loves math #FB... @DrAlisonShelton
433 Followers 650 Following Loves Math and Statistics. #LongCovid #POTS #MECFS #ActuallyAutistic
Gadget @Gadget440
18K Followers 4K Following Australian YouTuber covering Andrew Tate & influencer culture | Featured in 60 Minutes, The Australian, Vice News & The Advertiser | Long Covid & POTS
Derrick P @Derrickyp
348 Followers 2K Following
Beugnies Isabelle @BeugniesIsabel1
332 Followers 422 Following Covid19 dès le 09/03/2020, pronostic vital engagé le 11/04/2020 pour atteinte cardiaque. Perte d'équilibre,essoufflement..ce virus a fait de ma vie un enfer !!!
Nwiss 🇸🇪🇪�... @Gronnet
4K Followers 2K Following Health & Medical Science (views my own) News and Research on #LongCovid #FBLC #MEspine #EDS Longhauler since March 2020, (3x Covid inf) #MECFS since 2011
meryl griffith @meryl_mg
1K Followers 5K Following Biomedical Scientist... Transfusion Science, Haematology, Biochemistry, Microbiology. CFS patient. RRV 🦟 all things ME/CFS & Whole Genome Sequencing
Sophie Armand @sophie_armand9
515 Followers 162 Following No explanations. No pleasing. No imitation. Real allure is always quiet.
Arpit @Arpit_XD
188 Followers 600 Following Barely existing in the ruins of my life, destroyed by #Disability, #EDS, #CPTSD, #LongCOVID, #MECFS #Grief
AMoore @AMoore864
234 Followers 296 Following
Retro Biosciences @RetroBio_
7K Followers 3 Following We're Adding 10 Years to Healthy Human Lifespan
Public @public
47K Followers 726 Following Investing for those who take it seriously. Multi-asset investing. AI that works for your portfolio.
Larry Weis @LarryWeis7
956 Followers 2K Following #ME/CFS,#SFN,#Dysautonomia Owner-Commercial Insurance AgencyTrends for United States
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