BrainSupportNetwork @BrainSupportNet
A non-profit focused on neurological disorders. We have helped over 800 families donate a loved-one's brain, enabling the search for cures. brainsupportnetwork.org Menlo Park, CA Joined August 2014-
Tweets3K
-
Followers137
-
Following42
-
Likes125
Caring for the Caregivers Christine Ritchie examines what it's like looking after a loved one with dementia. harvardmagazine.com/2025/01/harvar…
On Caregiving A scholar experiences the moral acts that come before—and go beyond—modern medicine. harvardmagazine.com/2010/07/on-car…
Study Finds Suicidal Thoughts Likelier in People with Dementia, Calls for Better Supports theaftd.org/posts/1ftd-in-…
'Harsh reality' of dementia and MND combination The partner of a woman diagnosed with both a rare form of dementia and motor neurone disease (MND) says he wanted to highlight the "harsh reality" of caring for someone with the combination. bbc.com/news/articles/…
AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the podcast All Home Care Matters in July. allhomecarematters.com/aftd-ambassado…
GeriPal - A Geriatrics and Palliative Care Podcast "Between Two Urns: Undertaker Thomas Lynch" "We’ve talked a good deal on this podcast about what happens before death, today we talk about what happens after. " geripal.libsyn.com/between-two-ur…
Naomi Feil, Who Promoted Empathy as a Response to Dementia, Dies at 91 She trained caregivers to “validate” the delusions of older people with dementia, rather than try to wrest them into the real world. nytimes.com/2024/01/24/hea…
Fighting to Avoid Her Mother’s Fate, for Her Daughters’ Sake A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it? By Virginia Hughes nytimes.com/2024/12/22/hea…
Here's a book recommendation: ‘Let’s Talk About Aging Parents: A Real-Life Guide to Solving Problems With 27 Essential Conversations’ (by Laura Tamblyn Watts) a.co/d/7QncONJ
SPARK: The Look of Lewy Body Dementia “You don’t look like you have dementia.” That statement haunts Dona Denham, a forty-eight year old woman who has been diagnosed with Lewy body dementia (LBD). What does dementia look like?, she ponders. states.aarp.org/virginia/spark…
Parkinsonian syndrome diagnosed after alpha-synuclein skin test: Case Man first deemed to have depression; symptoms eased with carbidopa, levodopa parkinsonsnewstoday.com/news/parkinson…
Researchers create ‘mini brains’ to model Lewy body dementia and pinpoint treatments Mayo Clinic scientists created mini brain models in a dish that closely match key features seen in the brains of patients with LBD. newsnetwork.mayoclinic.org/discussion/res…
Be sure to follow us wherever we share news and information about Atypical Parkinson's, Brain Donation, and Caretaking. FB: facebook.com/BrainSupportNe… YT: youtube.com/@brainsupportn… LI: linkedin.com/company/brain-… TH: threads.net/@BrainSupportN… IN: instagram.com/brainsupportne…
David Gergen, Adviser To 4 U.S. Presidents, Has Dementia In one of his final messages shared with the public, Gergen told his daughter that America is "being tested now." huffpost.com/entry/david-ge…
APDA Virtual Parkinson’s Conference February 19-20 12:00pm – 4:00pm ET each day Don’t miss two great days designed to educate, empower, and engage you! Perfect for people with PD, care partners, friends and family. Informative, inspiring, and fun! apdaparkinson.org/events/apda-vi…
What Is Lewy Body Dementia? Symptoms and Risk Factors for the Disease That Affected Robin Williams A neurologist reveals how LBD progresses and what you can do to stay healthy womansworld.com/aging/alzheime…
Here's a recommendation for the podcast "This Is Growing Old" from a recent article in the Wall Street Journal: This podcast is produced by the Alliance for Aging Research, a nonprofit devoted to “the common human experience of aging.” open.spotify.com/episode/6Q6g7Z…
Want to Lower Your Alzheimer’s Risk? Taxi Drivers Offer a Clue A new study finds that cab and ambulance drivers have low rates of death from the disease wsj.com/health/wellnes…
I’m a doctor. Here are 5 ways to hack the 15-minute clinic visit. Don’t just tell us your medical history. Weaving in a fun fact about yourself is a research-backed way to get a better outcome. washingtonpost.com/wellness/2024/…
Happy New Year's from Brain Support Network! brainsupportnetwork.org

Vanesa Smielak, BS (s... @vanesasmielak_
5 Followers 66 Following @washumedicine Postbacc Researcher 🧠 @BehavNeuroFIU Alumna
Matthew Nevins @matthewbnevins
41 Followers 773 Following
ahmed elmostaph @E64676Ahmed
61 Followers 2K Following
Shoeb Lallani @sblallani
294 Followers 392 Following Resident @Stanford_Neuro | @UABHeersink 2022 | @EmoryUniversity 2017 | 📸 🏔️ 📖 ☕ | he/his/him | opinions are my own
Daylight @DollySolaFide
992 Followers 3K Following Tools to beat anxiety. Cognitive coaching. Artisan. Lover of critical thinking and good conversation.
Ageing and Neurodegen... @OAE_AgeNeuDis
442 Followers 2K Following Online quarterly journal with 9 academicians, golden open access, international peer review, and high-quality publishing. Editor-in-Chief, Prof. Weidong Le.
C7ypto_🔺 @c7ypto_
237 Followers 2K Following
Ryan Rockenbaugh @rockenbaugh
0 Followers 95 Following
Günay EKER @gunayeker
189 Followers 2K Following
Helen @helenyyhuang
198 Followers 2K Following Researcher and designer | Learning CS in public | Hopkins alumni
Hans Larsen @HansLarsenIF
259 Followers 555 Following
Ellen Battle @EllenBattle17
966 Followers 499 Following
Viviane Poupon @VivianePoupon
687 Followers 2K Following President and CEO of Brain Canada. @[email protected]
Leila M. Allen, Ph.D. @Leila_M_Allen
586 Followers 435 Following Associate Teaching Professor, Director of @BehavNeuroFIU, Faculty Advisor @nurhopsiFIU, Neuroscientist with @AllenNeuroLab, Alum @utaustin and @ucirvine.
Behavioral Neuroscien... @BehavNeuroFIU
126 Followers 108 Following Behavioral Neuroscience undergraduate program @ FIU, established 2020 #MiamiBrains
Yang Wu @15tatt
442 Followers 4K Following Math/Music Composition Undergrad at Soochow Univ. in Taiwan. Theoretical Neuro RA at @AcadSinica Memory, Mental Simulation, DeepRL & Philosophy of Neuroscience
Istaq Ahmad @istaqahmad
297 Followers 5K Following Research Coordinator Department of Neurology, AIIMS New Delhi India
Dash @DashAhuiliztli
0 Followers 95 Following
Ryan “Ryzn” Conle... @superhumanryze
1K Followers 3K Following Futurist l Utopian Capitalist l Bitcoin #web3
Magnes NUSHU @magnesCH
195 Followers 626 Following Magnes, a spinoff from ETH Zurich, has developed a disruptive real-life-monitoring solution to analyze walk patterns of patients with neurological disorders.
Brian Buster @BrianBuster12
6 Followers 76 Following Two-time suspended/silenced/violated (@brikelbus & @bad_digital_soldier) Member of #TheMighty200 + #2 Suspended with the group, but now I'm back.Notewords @Notewords
400 Followers 2K Following guitarist, writer, reader, shuttle tatter Just because I follow someone doesn't mean I agree with them.
Paige Gilbert @Paigehgilbert
6 Followers 351 Following
Charles Shaw @linezolid11
12 Followers 4K Following
N-Back Challenge @NBackChallenge
65 Followers 13 Following Raise your IQ, in a scientifically proven way, by taking our 20-day N-Back Challenge | #nbackchallenge #dualnback #braindevelopment
Hawkpie @Hawkpie1
6 Followers 75 Following
Austin Crawford @FightingMSA
304 Followers 680 Following MSA Patient Driven to Help. Fighting MSA Austin Crawford's Story https://t.co/r3qmTAK5tk
Henrich Miele | ZUL D... @eremod
307 Followers 1K Following This DAO Administers Assets to be Allocated for Global Social Programs... It's time for Real change, in Honor of ALL those who came before US...-Azul
Brain Donor Project @braindonorproj
301 Followers 316 Following Our mission is to raise awareness of the need and simplify the process for brain donation to advance science. Nat'l Brain Donation Awareness Day - May 7th
pearce jen @pearcejen
346 Followers 5K Following
Kathleen L Poston @pddoc
440 Followers 73 Following
Wendy Thompson @WendyTh18005664
2 Followers 21 Following
Subcortical Surgery G... @subcorticalsurg
756 Followers 1K Following A neurosurgery user group that leads the revolutionary change in safe and effective minimally invasive treatments for patients with subcortical brain pathology
McFlyLove77 @Love77Mc
5 Followers 163 Following
Rich Diemand @Svahaha
8 Followers 36 Following
Pamela D. Wilson @CaregivingSpeak
937 Followers 3K Following #caregiver #caregiving #caregiversupport #eldercare #agingparents #expertwitness #dementia #speaker #eldercare #homecare #guardianship #consultant
Deborah D. Perry @DeborahDPerry
208 Followers 432 Following Author of "Somebody's Sister," a story of my sister's battle with a rare brain disease. #endFTD #AFTD #Writers
Bluefield Project @BluefieldProj
899 Followers 525 Following A non-profit medical research foundation dedicated to finding a treatment or cure for frontotemporal dementia (FTD).
poliogaster, BSN, RN @poliogaster
204 Followers 2K Following OP RN, mom to sweet kiddo, fan of dogs, birds, dark humor, PNW #medtwitter #nursetwitter
Laura Louizos @PSPAwareness
570 Followers 2K Following Advocate for Atypical Parkinsonism | Founder of Coleen Cunningham Foundation 🌿 | Author 📚 | Caregiver ❤️ | Sharing support and inspiration 💪
UF Movement Fellowshi... @UFMDFellowship
1K Followers 729 Following Official account of the University of Florida Movement Disorders Fellowship. 🌴• PD: @CWHESSMD • Guru : @MichaelOkun • Go 🐊!!!
NCRAD @NCRAD_ADRD
327 Followers 303 Following The National Centralized Repository for Alzheimer's Disease and Related Dementias
Stanford Neurology & ... @Stanford_Neuro
5K Followers 945 Following Official X account of Stanford Neurology & Neurological Sciences Department, Stanford University, California #Neurology 🧠
OurFTDJourney @ourftdjourney
1K Followers 2K Following This blog is about the journey I am on with my mother. OurFTDJourney 10 NW BLVD #723 Newfield, NJ 08344
ALLFTD @allftd
264 Followers 85 Following The ALLFTD Study: ARTFL-LEFFTDS Longitudinal Frontotemporal Lobar Degeneration: a multisite research consortium
Autism BrainNet @AutismBrainNet
881 Followers 363 Following Advancing #autism #research through the gift of #braindonation. Learn more at https://t.co/5aVb3exVFR. Call us at 877-333-0999. We are available 24/7.
Stability AI @StabilityAI
244K Followers 21 Following We’ll help you make it like nobody’s business. Multimodal media generation and editing tools to get your idea to production. Self-deploy? 👍 Need a partner? 🤝
Henrich Miele | ZUL D... @eremod
307 Followers 1K Following This DAO Administers Assets to be Allocated for Global Social Programs... It's time for Real change, in Honor of ALL those who came before US...-Azul
Cambridge FTD @CambridgeFTD
2K Followers 302 Following The Cambridge Centre for Frontotemporal Dementia and Related Disorders led by Professor James Rowe #JamesRowe #dementia #ageing #FTD #PSP #CBD #Aphasia #PET
Andrew Lees @ajlees
9K Followers 994 Following Professor of Neurology at UC London Author of Ray Kennedy biography, The Hurricane Port, Mentored by a Madman, Brazil that Never Was and Brainspotting.
UF MovementDisorders @UFMDC
4K Followers 358 Following Caring for & researching Parkinson Disease, Dystonia, Tremor, Ataxia, Tics & more. Interdisciplinary Program at the Norman @FixelInstitute at @UFHealth
Brain Canada @BrainCanada
9K Followers 3K Following Brain Canada is a national non-profit organization that enables and supports excellent, innovative, paradigm-changing brain research in Canada. #BrainCanada
An Evolution of Love @sykesftdbook
383 Followers 670 Following Life and Love with Frontotemporal Dementia
Cindy's FTD Journey @monkeyami
2K Followers 2K Following My mom was diagnosed with Frontotemporal Dementia when she was 56. I'm a more recent stroke survivor. #FTD #Dementia #Strokesurvivor #Stroke
Stanford Medicine @StanfordMed
367K Followers 266 Following The official account of Stanford Medicine
UW Memory Brain @MemoryBrain_UW
1K Followers 2K Following @Alzheimers_NIH research, diagnosis and treatment @UWMedicine, and dementia-friendly community outreach. Sign up for news: https://t.co/s1GnRNmNsV
U of MN Udall @UMNUdall
241 Followers 159 Following Center of Excellence for Parkinson's Research Follow us for more updates: https://t.co/tOs1E9P7xG https://t.co/8P4WhuWqZV
Peter Schmidt @pnschmidt
918 Followers 824 Following Scientist and leader @rhoworld working on neuroscience and NIH studies. Opinions are my own. NIAID U01 PI.
Dyveke P. Pratt, MD @MovementDoc
113 Followers 44 Following
Hokuto Morita @HokutoMorita
807 Followers 1K Following Cal grad. Mayo Clinic trained neurologist. Movement Disorder since age 5, now a @UF movement fellow. Neurology, sports, movies, robots, travel, music. tweets mi
Kathleen L Poston @pddoc
440 Followers 73 Following
The PSP Association @PSPAssociation
4K Followers 2K Following Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA 🧠
AFTDA @theAFTDA
302 Followers 125 Following Australian Frontotemporal Dementia Association - Care, Support, Cure. To find out more, please visit our website.
FTD Registry @EndFTDregistry
716 Followers 282 Following The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).
RareDementiaSupport @RareDementia
3K Followers 1K Following We run specialist support group services for individuals living with, or affected by a rare dementia diagnosis including: FAD, FTD, fFTD, PCA, PPA, LBD & YOAD
Alzforum @alzforum
12K Followers 317 Following A news and information resource website helping scientists advance AD research since 1996. Alzforum doesn’t endorse any specific product or scientific approach.
PSP & CBD Awareness @PSP_CBD_MSA
640 Followers 1K Following A voice for those who can no longer use theirs. An ordinary person who cares enough to tell the world about the 'Other' PSP & related CBD / MSA #PSPitsNotaGame
M Manteau-Rao @MindDeep
6K Followers 122 Following #healthcare #VR #discovery @penumbrainc | ex @Pear_Tx | #mindfulness #MBDC #innovation
The AFTD @AFTDHope
3K Followers 699 Following AFTD envisions a world with compassionate care, effective support, and a future free of FTD. #EndFTD
UCSF MAC @UCSFmac
6K Followers 1K Following The UCSF Memory and Aging Center cares for people with, researches the causes/cures for, and educates people about degenerative brain diseases. #NIAfundedADRC
STAT @statnews
160K Followers 5K Following Reporting from the frontiers of health & medicine. Sign up for any of our 10 free newsletters here: https://t.co/CBx3GZBv31Judith Graham @judith_graham
10K Followers 1K Following Health reporter interested in aging, health policy, medical news. Proud mom of two amazing people. RTs don't constitute endorsements.
Bluefield Project @BluefieldProj
899 Followers 525 Following A non-profit medical research foundation dedicated to finding a treatment or cure for frontotemporal dementia (FTD).
Sharon Denny @SSDenny
499 Followers 169 Following Program Director, The Association for Frontotemporal Degeneration
BrightFocus Foundatio... @_BrightFocus
17K Followers 3K Following BrightFocus funds groundbreaking research to discover cures for Alzheimer's, macular degeneration and glaucoma. Also posting on Bluesky.
Banner Alzheimer's @BannerAlzheimer
5K Followers 487 Following This is an inactive account. Follow @BannerHealth for the latest health news and information.
Everyday Health @Alzheimers
6K Followers 70 Following Alzheimer's news, information, and support from the editors of @EverydayHealth
Fisher Center for Alz... @FisherCenter
36K Followers 3K Following The Fisher Center for Alzheimer’s Research Foundation is an organization that provides millions of dollars for novel Alzheimer’s research.
The National Institut... @NIHAging
28K Followers 576 Following Official X account of NIH's National Institute on Aging. Dedicated to improving the health of older adults through research. Privacy: https://t.co/6XA3jNUXwc
The Alzheimers Store @alzstore
2K Followers 1K Following Our dedication is to provide unique products and educational resources for those caring with loved ones in their journey with Alzheimer's and Dementia.
Alzheimers.net @Alzheimersnet
6K Followers 2K Following Your Online Community for Alzheimer's Information and Support. Call us to speak with a local local Advisor: (877) 311-6126
Alzheimer Guy @AlzheimerGuy
17K Followers 0 Following Salut à tous ! Ça y est, je suis inscrit sur Twitter. Je suis pressé de voir ce que ça donne !
Alzheimer Scotland @alzscot
23K Followers 3K Following The leading dementia charity in Scotland. Worried about dementia or need support? Call our 24 hour Freephone Dementia Helpline: ☎ 0808 808 3000 ☎
Alzheimers Support @SandyAlz
19K Followers 7K Following Learning and sharing information to support Caregivers and loved ones with Alzheimer's and Dementia--Tweets may periodically contain affiliate links. #Endalz
Alzheimer's Society @alzheimerssoc
196K Followers 1K Following Individuals can’t end the devastation of dementia alone. It will take a society to beat dementia.