Beating The Odds @ChrisMacleodBTO
“Beating The Odds” is Chris MacLeod’s inspirational book with 11 lessons to help you overcome a health crisis and lead a more resilient life. beatingtheodds.ca Toronto, Ontario Joined May 2021-
Tweets326
-
Followers217
-
Following450
-
Likes997
In the spirit of Cystic Fibrosis Awareness Month, we’re spotlighting our Advocis Golden Triangle chapter, featured in our most recent edition of FORUM Magazine for their $3,000 donation of proceeds from the chapter’s 2022 Charity Golf Tournament. Way to Advocis GT!
It's our Twitter Anniversary! Thank you to everyone who has helped make Beating The Odds such a tremendous success. We're inspired by all the messages we've received on how the book has helped people to lead more full and resilient lives. 🙏 #MyTwitterAnniversary #grateful
Six years of advocating for cystic fibrosis patients on Twitter! Thank you to everyone who has supported us in our fight. Together we've made a difference. #CFCantWait #MyTwitterAnniversary
A true leader in our community! An inspiration and loyal friend!!
Chris began fighting for access 12 years ago. It's been a long journey he documents in Lesson 2, Be the CEO of Your Own Health, in Beating The Odds. Thank you to the thousands who joined on the journey. Together we've made a difference.
Chris began fighting for access 12 years ago. It's been a long journey he documents in Lesson 2, Be the CEO of Your Own Health, in Beating The Odds. Thank you to the thousands who joined on the journey. Together we've made a difference.
Help us map the future. It takes less than 10 minutes to provide your input on needed information and support. Take our survey today before February 22: bit.ly/3Yj0pQg
If you haven’t bought it yet, I highly recommend @ChrisMacleodBTO Beating the odds! Here is another amazing interview by author and real life hero @macleodscanada #inspiration #inspired #goodreads
Here's a terrific interview @macleodscanada gave to Genesis TV 360 talking about Beating The Odds and the important work the @CFAdvocacynow did in helping get patients access to life saving medicines. vimeo.com/783794064
We are hearing reports that the board chair of the @PMPRB_CEPMB has resigned, one day after the draft guidelines consultation closed. This instability at a regulator is very concerning @jyduclos. It's time to halt implementation and fix the broken leadership at the #PMPRB.
I just sent a copy of @macleodscanada's @ChrisMacleodBTO to a colleague undergoing cancer treatment. If you know someone who needs inspiration right now, I encourage you to send them a copy. A gift of resilience can make all the difference in their life. beatingtheodds.ca/getthebook
"What is one previous habit I'd like to reclaim? What is one current habit I'd like to let go?" – @JamesClear
"Odds are, the latest office debate or family squabble isn't worth winning. Most arguments are only tangentially related to your end goal. What outcomes are you actually trying to create? What type of life are you actually trying to cultivate? Stay focused." –@JamesClear
Tremendous news! A huge thank you to CF Canada and the thousands of advocates who joined in this fight. Together we saved and transformed lives. #CFCantWait
Tremendous news! A huge thank you to CF Canada and the thousands of advocates who joined in this fight. Together we saved and transformed lives. #CFCantWait
"Each day is a small lifetime. Live a good life today." –@JamesClear
Not only a good writer, he’s a good, well dressed writer!
Not only a good writer, he’s a good, well dressed writer!
An honour to give Tom Mihalik of Toronto's legendary @TomsPlaceTO a copy of Beating The Odds this week. From Get Up, Dress Up and Show Up to Never Better, Tom embodies many of the lessons in the book and is a genuine inspiration to everyone who meets him. Thank you, Tom!
Tremendous news from Alberta as children aged six to 11 can now get access to the cystic fibrosis medicine Trikafta! Thank you @jkenney and @JasonCoppingAB for your leadership in making this announcement. An honour to be a part of your official statement. alberta.ca/release.cfm?xI…
Remembering Lilia Zaharieva. linkedin.com/posts/cfadvoca…
It was an honour to share Lilia's story in Lesson 3 of Beating the Odds, There is Power in Your Response.
It was an honour to share Lilia's story in Lesson 3 of Beating the Odds, There is Power in Your Response.
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
beth Vanstone @bethdenniss
467 Followers 246 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
CF Get Loud @CFgetloud
512 Followers 332 Following A resource for patients and their networks to GET LOUD for access to medications in Canada for cystic fibrosis patients. Speak up to help save Canadians with CF
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Jerry Cahill @jcahillYCF
4K Followers 5K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Hunter Guindon @HunterGuindon
581 Followers 388 Following
Living Hope 💜 @NkhosiLa
67K Followers 19K Following End Stage Cystic Fibrosis warrior ❤😷💪 Pulmonary Hypertension https://t.co/mHsSHeezvm Blogger Health advocate
The Bonnell Foundatio.. @RoadmapToCF
844 Followers 1K Following The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls
Laura Teicher Bonnell.. @LauraTbonnell
2K Followers 2K Following Covered breaking news in Detroit. Founder of the Bonnell Foundation: helps families w/ cystic fibrosis. [email protected]
Kaity Brady @kaitybrady
722 Followers 3K Following radio producer + LJI journo-in-residence @CJLO1690AM @CanadaLJI 👩🏻💻 previously @TheCurrentCBC @JournalismCU [email protected]
Sasha Haughian @Sweet_Sasha30
235 Followers 629 Following Old fashion housewife at heart. Candy Maker. Blogger. Mother of 3. Cystic Fibrosis advocate. Baking sweets is my hobby, a healthy lifestyle is my passion.
kgrover @kgroverto
386 Followers 617 Following Pres/CEO @cfcanada Lover of pop culture and great clothes and wanting to live in a world that embraces diversity and is kind to people. Opinions are my own.
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Ella Balasa @ellabalasa1
658 Followers 1K Following #patientadvocate | speaker | published writer | living with #cysticfibrosis. Antibiotic resistance and patient co-creation in healthcare are my passions
Patrick McDonald @Brainsurger
1K Followers 858 Following Pediatric Neurosurgery, University of Manitoba,Neuroethics Canada,UBC-Dad,husband,frustrated musician. Past President- @SocCdnNSx - opinions my own
Smetey @smetey64077
15 Followers 2K Following
Thatea @Thatea265738
23 Followers 2K Following
Jasmine @Jasmine9389354
25 Followers 2K Following
Goat @TheGoatGirl
2K Followers 4K Following I don’t think “radical left socialist” is an insult. I stand with Trudeau. 🇨🇦 Get vaccinated! Play La Bamba baby. I love Tom Brady.
13_Mia @13Mia110494
37 Followers 2K Following
Marco @marcorocco7777
75 Followers 169 Following
C Mills @C_Mills_whatthe
439 Followers 5K Following I'm here to learn more about, and interface with our legal community. I don't look at numbers of followers, view counts etc. I filter through health and safety.
Carlton Kerr @cgolfnt
248 Followers 3K Following
Tony G. Money @TonyM06007865
153 Followers 365 Following
Lillian Mortensen @LilMortensen
17 Followers 23 Following Mother of 3 with a career in healthcare. Passionate about people, technology, skiing and travel.
March.us @march_community
40 Followers 113 Following Connect with patients, researchers, and healthcare experts in our community, dedicated to advancing the battle against rare diseases.
Nicki Zeller Perkins @NickiMPerkins
923 Followers 1K Following Nicki Perkins-50 y.o. I am allergic to stupidity, I break out in sarcasm. lungsofanarchy 🫁 CF warrior
John Adams @johnadams51677
826 Followers 1K Following Patient advocate, mgt. consultant; Canadian PKU & Allied Disorders CEO; Best Medicines Coalition board chair; Global Association for PKU chair; views my own
ChadCMC @3139788871da4e7
115 Followers 527 Following
Cystic Fibrosis KW @CF_KW
572 Followers 184 Following Kitchener-Waterloo and District Chapter (Ontario) covers Cambridge in the south, north to Tobermory, west to Kindcardine, east to Fergus
Katina Flohrs @katinaflohrs
50 Followers 159 Following actually ✨ happy ✨ •you get taller, bolder, stronger & the rearview only blinds you• my heart belongs to @twentyonepilots
Foundders @foundders
3K Followers 4K Following We're building FOUNDDERS, an investment workplace where every female founder feels seen, heard, and valued, and raises unlimited capital.
James William @jaydiddy67
146 Followers 612 Following
Zoey @_ZoeyJones_
734 Followers 2K Following Mother, Lecturer in Social Work, PhD researcher @edgehill. Campaigner for CF #cysticfibrosis #CF 🌹🌹🌹🌹🌹🌹🌹
Vihaan Mom #TeamVihaa.. @VihaanMom
786 Followers 467 Following Mom to a brave fighter against Cystic Fibrosis,Please Follow @vihaan_cfindia Let's raise awareness and support together Your retweet can make a difference 💜
CF Vests 4 Life @cfvests4life
299 Followers 2K Following We are a Nonprofit Organization that provides CF equipment to add more mornings to the lives of CF Warriors the world over which was established June 2020.
Medibanx @Medibanx
116 Followers 458 Following Empowering rare disease research through patient-centric longitudinal data aggregation and active patient participation.
Jamie Stephenson 🦜.. @ssnjimb
2K Followers 5K Following I'm Jamie I suffer from #Cysticfibrosis I'm #openlyautistic They/Them 🌈 love Music/vintage computers, #CureCF #Supportthestrikes. Only Follows Back Real PPL
Paul MacLeod @paulstories
509 Followers 685 Following Storyteller, A2J and friendly neighbourhood helper. Read Indie, the novel: https://t.co/GyKvSgmWEq My website: https://t.co/ZGjWCYz0QN
Sixty Vibe Roses @sixtyviberoses
20 Followers 202 Following My lungs mostly work but my butt has probs.
ERN-LUNG @ErnLung
1K Followers 2K Following
BetaLit @annetteferracel
187 Followers 302 Following Book lover ❤ beta reader ♥️ reviewer ❤ Providing honest reviews and feedback to help authors and readers connect. 📚✍️ #BookReviews #BetaReader
Tom's Place @TomsPlaceTO
1K Followers 462 Following In an age of bland clothing stores, Tom's Place is unique. Drop by 190 Baldwin St in Kensington Market to discover this difference. Open for in-store service
SaltyNotes @saporedisale14
856 Followers 925 Following 📚🎗️ Bookworm & Cystic Fibrosis Mom 📚 Beta Reader & Reviewer 📚self-improvement, spirituality, and mind-bending science 🌌 book lover ❤
Laurie @LaurieB579
1 Followers 8 Following
Judy Schloss @JudySchloss
807 Followers 3K Following Respiratory Therapist- mom of three crazies- dog lover -hobby farmer - crafter. Opinions are my own! #RespiratoryTwitter
Md.Masum Billa @MdMasum91331786
51 Followers 634 Following Health News Sports General News Business & Finance Business & Finance World News Science
Holli Reherman @holli_reherman
115 Followers 508 Following
A. Roberts 📸 @hippylovephotos
280 Followers 454 Following 'Cuse🍊✖️est.2013 ✖️Published Photographer 📚 ✖️CF🫁
amgra8e @amgra8e
45 Followers 235 Following Trying to find my way through a life I'm just surviving & not living. Covid has taken it all from those who still have to shield!
RAREsies Rule @itbe444me
357 Followers 529 Following Born with Ollier's disease, 50 surgeries strong, supporting families with a RAREsie, like me! Raising awareness and funding for Educational Scholarships.
Darlene J @nursejagz
2 Followers 110 Following
Dr. Xan Nowakowski @XanNowakowski
2K Followers 4K Following Medical sociologist with #CysticFibrosis. Program evaluation & clinical education. Chronic illness, aging care, health equity, social justice. They/Them.
Beth Peters @BethPeters80
1K Followers 3K Following Patient Advocate. Theatre Maker. Educator. Transplant Survivor. Cystic Fibrosis Pt. Stage Source Board Member. General Badass. https://t.co/ccYj4Ktgys
K-Mart @KarenMa71478186
683 Followers 2K Following Loving mother of two CF daughters who have had double lung transplants. Grateful for medical science. Carleton Journalism grad. Star Trek fanatic. Writer.
Project CF Spouse @ProjectCFSpouse
121 Followers 267 Following Are you the spouse or partner of someone with cystic fibrosis? Have you been looking to connect with other CF spouses and partners? Well, look no further!!
Bill Dempster @billdempster
642 Followers 1K Following
Thayer Surette Robert.. @Thayer_S
189 Followers 660 Following SVP @thorn_run, Deputy Director @PIPCPatients, Board Member @MindsMatter_DC. Lover of sparkles and social events
🐬jc🏖🌻 @jc_sailaway
20 Followers 543 Following
The Partnership to Fi.. @ThePFID
1K Followers 776 Following PFID is a group of patient, provider, and community orgs, health policy experts & others working to advance awareness & action on #AMR & vaccine confidence.
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
beth Vanstone @bethdenniss
467 Followers 246 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
CF Get Loud @CFgetloud
512 Followers 332 Following A resource for patients and their networks to GET LOUD for access to medications in Canada for cystic fibrosis patients. Speak up to help save Canadians with CF
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Jerry Cahill @jcahillYCF
4K Followers 5K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Hunter Guindon @HunterGuindon
581 Followers 388 Following
Living Hope 💜 @NkhosiLa
67K Followers 19K Following End Stage Cystic Fibrosis warrior ❤😷💪 Pulmonary Hypertension https://t.co/mHsSHeezvm Blogger Health advocate
Dr Meghan McGarry @DrMeghanMcGarry
960 Followers 1K Following @UCSF Pediatric Pulmonary Doctor, Cystic Fibrosis & Health Equity Researcher, Mom of 2, Opinions are my own (she/her)
CF News Today @CFNewsToday
5K Followers 2K Following We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.
Boomer Esiason Founda.. @cysticfibrosis
10K Followers 964 Following Fighting Cystic Fibrosis - Advocacy - Education - Fundraising
The Bonnell Foundatio.. @RoadmapToCF
844 Followers 1K Following The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls
Laura Teicher Bonnell.. @LauraTbonnell
2K Followers 2K Following Covered breaking news in Detroit. Founder of the Bonnell Foundation: helps families w/ cystic fibrosis. [email protected]
CORD @raredisorders
5K Followers 730 Following CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare
Kaity Brady @kaitybrady
722 Followers 3K Following radio producer + LJI journo-in-residence @CJLO1690AM @CanadaLJI 👩🏻💻 previously @TheCurrentCBC @JournalismCU [email protected]
Andrew @Andyassert
645 Followers 195 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
March.us @march_community
40 Followers 113 Following Connect with patients, researchers, and healthcare experts in our community, dedicated to advancing the battle against rare diseases.
Nicki Zeller Perkins @NickiMPerkins
923 Followers 1K Following Nicki Perkins-50 y.o. I am allergic to stupidity, I break out in sarcasm. lungsofanarchy 🫁 CF warrior
Canadian Women's Cham.. @can_wcc
17K Followers 9K Following CanWCC advocates explicitly for diverse women-identified and non-binary entrepreneurs, founders, and business owners. Become a Member.👇
Mark Chapeskie @MarkChapeskie
13K Followers 3K Following VP @electricityhr interested in #Disruption, #RenewableEnergy & #LabourMarket economics. #Dad and #Autism advocate. Threads: markchapeskie
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Wayne Critchley @waynedcritchley
505 Followers 557 Following
CIHR IG IRSC @CIHR_IG
705 Followers 263 Following CIHR Institute of #Genetics, Institut de #Génétique des IRSC. Health #Research on #Genomics, #Recherche en #Génomique sur la santé.
Jean-Yves Duclos @jyduclos
29K Followers 1K Following Papa, grand-papa et économiste. Député de Québec. Ministre des Services publics et de l’Approvisionnement 🇨🇦 Minister of Public Services and Procurement
Meranda @MerandaCF
3K Followers 1K Following The Salty Life Foundation (Founder & President), Clinical Trials, Salty Life Magazine, #CysticFibrosis, Email: [email protected]
CF Vests 4 Life @cfvests4life
299 Followers 2K Following We are a Nonprofit Organization that provides CF equipment to add more mornings to the lives of CF Warriors the world over which was established June 2020.
Medibanx @Medibanx
116 Followers 458 Following Empowering rare disease research through patient-centric longitudinal data aggregation and active patient participation.
Paul MacLeod @paulstories
509 Followers 685 Following Storyteller, A2J and friendly neighbourhood helper. Read Indie, the novel: https://t.co/GyKvSgmWEq My website: https://t.co/ZGjWCYz0QN
BetaLit @annetteferracel
187 Followers 302 Following Book lover ❤ beta reader ♥️ reviewer ❤ Providing honest reviews and feedback to help authors and readers connect. 📚✍️ #BookReviews #BetaReader
Tom's Place @TomsPlaceTO
1K Followers 462 Following In an age of bland clothing stores, Tom's Place is unique. Drop by 190 Baldwin St in Kensington Market to discover this difference. Open for in-store service
Ali Ehsassi @AliEhsassi
13K Followers 2K Following Member of Parliament for Willowdale; Chair, Foreign Affairs and International Development Committee 🇨🇦
Darlene J @nursejagz
2 Followers 110 Following
SaltyNotes @saporedisale14
856 Followers 925 Following 📚🎗️ Bookworm & Cystic Fibrosis Mom 📚 Beta Reader & Reviewer 📚self-improvement, spirituality, and mind-bending science 🌌 book lover ❤
Jess Meredith🐾 @jessicameredi16
3K Followers 4K Following Organ Donation | Sister of a liver transplant recipient | We won the campaign for CF meds! | Save our NHS | Animal rights | Adopt don't shop | Civil Engineer
A. Roberts 📸 @hippylovephotos
280 Followers 454 Following 'Cuse🍊✖️est.2013 ✖️Published Photographer 📚 ✖️CF🫁
amgra8e @amgra8e
45 Followers 235 Following Trying to find my way through a life I'm just surviving & not living. Covid has taken it all from those who still have to shield!
U of Saskatchewan @usask
45K Followers 1K Following #USask is a place where everything comes together to create the perfect environment for teaching, learning, research, innovation, and discovery.
K-Mart @KarenMa71478186
683 Followers 2K Following Loving mother of two CF daughters who have had double lung transplants. Grateful for medical science. Carleton Journalism grad. Star Trek fanatic. Writer.
Thayer Surette Robert.. @Thayer_S
189 Followers 660 Following SVP @thorn_run, Deputy Director @PIPCPatients, Board Member @MindsMatter_DC. Lover of sparkles and social events
The Partnership to Fi.. @ThePFID
1K Followers 776 Following PFID is a group of patient, provider, and community orgs, health policy experts & others working to advance awareness & action on #AMR & vaccine confidence.
Megan Danielle @MeganDanielless
196 Followers 637 Following Slowly healing the brokenness inside of me
Malcolm Wesson @ryallm
115 Followers 113 Following Architect. Father of Three Sons. One died of Cystic Fibrosis.
Ryan Kinsella @kins17
53 Followers 80 Following
Annette Campbell @AnnetteCampbe11
105 Followers 1K Following
Jo Snowball @SnowballJoanna
215 Followers 276 Following Cystic Fibrosis Dietitian, Oxford, NIHR Pre Doctoral Clinical Academic Fellow. Interested in nutritional and metabolic effects of kaftrio Views my own.
Tim Wotton @timwotton
880 Followers 1K Following Husband to Katie & father to Felix, comms manager in London, sport lover with CF - author, podcaster & speaker about my survival experiences to help others
Fall Risk the Musical @FallRiskMusical
318 Followers 768 Following 2x CFF Impact Grant Winner • a new musical comedy about CF and transplant • we’re moving from script to stage! • DONATE! • based on a true story by @cystic4real
Laurence Powell @laurence_powell
396 Followers 375 Following Vicar of King Charles the Martyr & priest in charge of St Marks #TunbridgeWells. visually impaired. Father of an amazing #cysticFibrosis Warrior.
Beth Finn @eabibb
611 Followers 945 Following Mother to a beautiful daughter who has cystic fibrosis. Nurse. Wife. Live for today.....you never know what tomorrow may bring 💛
Benchea @MarissaBenchea
1K Followers 773 Following National Volunteer Advocacy Co-chair for the CF Foundation | Patient Advocate, Speaker and Community Builder | Adult with CF
Lorna Allen @alloonsl
834 Followers 1K Following CF Parent raising awareness of the ongoing critical and immediate need for research to improve the lives of those living with the condition
Zoey @_ZoeyJones_
734 Followers 2K Following Mother, Lecturer in Social Work, PhD researcher @edgehill. Campaigner for CF #cysticfibrosis #CF 🌹🌹🌹🌹🌹🌹🌹
James Brown @JimboCFwarrior
1K Followers 1K Following Musician #ALLMUSIC, FULL TIME FIGHTER OF CYSTIC FIBROSIS ΔF508 #CFwarriors #COYS ☠️#HORRORFAN🤡 #Moviefan #BadJokes #AnimalsAreBetterThanHumans
Muhammad S Butt @MSubranB
128 Followers 728 Following Internationally Trained Lawyer~NCA candidate~Licensed paralegal~Lifelong learner~As u think so shall you be~Success doesn’t bring happiness, it’s otherwise!
Andre Albinati @AAlbinati
1K Followers 2K Following Animated policy surfer and Principal with @EarnscliffeCda located in Ottawa, Canada, and a member of the Fipra Network.
Debbie Russell 🌻 L.. @DebbiesStories
21K Followers 11K Following CROSSING FIFTY-ONE now available! 📖 dog mom 🐶 protector of wildlife 🌾🌺 https://t.co/63fWcSXiiI 🫶 https://t.co/Q1kSANgh1v
PamWestern @PamWestern
33 Followers 199 Following Made and Raised in Montana / Executive Director for the Cody Dieruf Foundation for #cysticfibrosis T1D Mom
As It Happens @cbcasithappens
61K Followers 2K Following As It Happens is CBC Radio's national evening current affairs program, co-hosted by Nil Köksal and Chris Howden. This account is inactive.
Emily Kramer-Golinkof.. @emilykg1
2K Followers 578 Following Co-Founder @EmilysEntourage, Patient Advocate/Speaker, Bioethicist, Digital Health Enthusiast, To-Do List Writer
Catherine Fordyce @Cath4dice
255 Followers 352 Following Specialist CF Physiotherapist @ MACFC. CF Trust Physiotherapy Fellow 2019-2020. Views are my ownIn the spirit of Cystic Fibrosis Awareness Month, we’re spotlighting our Advocis Golden Triangle chapter, featured in our most recent edition of FORUM Magazine for their $3,000 donation of proceeds from the chapter’s 2022 Charity Golf Tournament. Way to Advocis GT!
Help us make a difference - sign our petition to implement the National Strategy for Drugs for Rare Diseases and give rare disease patients the access to treatments they need! Link to petition to the Government of Canada: petitions.ourcommons.ca/en/Petition/De…
The @US_FDA has approved Kalydeco for infants with cystic fibrosis ages 1-4 months who have certain mutations. Research indicates that early intervention with modulators can help slow or even prevent the irreversible progression of this disease. on.cff.org/3HE9AnO
Thursday’s walk was AMAZING. It smelled like Spring! #springhassprung
Another aspect of the #CFlife are the breathing treatments that need to be done on a daily basis! Every. Single. Day. #CFawareness #nodaysoff #fightuntilcurefound #aworldwithoutCF #CFwarriors #revengeofthefifth #invisibleillness #butyoudontlooksick
Calling all Canadian Rare disease patients and partners. @raredisorders continues to work to implement a system in Canada that cares for @raredisease patients. Here's how you can help. Please sign the petition and r/t to ensure there is a process in place when the CURE comes!
🚨Attn Canadians w #rarediseases: CORD needs your help to ensure the National Strategy for Drugs for Rare Diseases is successful. Please sign this petition from MP @ChrisLewisEssex to make it happen: petitions.ourcommons.ca/en/Petition/De… #cdnhealth #cdnpoli
The FDA has approved Kalydeco to treat CF patients as young as 1 month old who have certain mutations in their CFTR gene. buff.ly/3LyxC50 #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Cystic fibrosis is considered as an invisible disease. Looking at most CFers you wouldn’t know from the outside how rough their body is going through things on the inside. Not all battles are ones you can see 🫁 #cfawarenessmonth
If you cannot make the coronation of King Charles tomorrow I have a great idea! Come to the meet and greet with @dianeshadersmth and Dylan Mortimer! Education Day is a day to meet other CF parents and eat a nice meal! It’s free. #joinus #CF
✨Fundraiser Friday✨ Over the many years Carol has been fundraising for us, she has raised over £14,500 from attending fetes and fayres. Proving that every single donation, no matter how big or small, can add up to one magnificent total 💛
☀️ Every year, Lawn Summer Nights brings the best vibes for a great cause. Take a break from work and have some fun this summer by registering your team right now. bit.ly/3Vx4lME
.@Rep_Stansbury @MartinHeinrich @SenatorLujan, as your constituent I urge you to cosponsor the PASTEUR Act. People with #cysticfibrosis and all Americans need innovative antibiotics to fight infections. #CFadvocacy
An honour and a privilege to work with @YouLiveTheBrand on the advocacy efforts to get these life sustaining medications.
Six years of advocating for cystic fibrosis patients on Twitter! Thank you to everyone who has supported us in our fight. Together we've made a difference. #CFCantWait #MyTwitterAnniversary
Join Katie and Zoom Zoom in going #FurtherForAll by registering your team for the Walk today. If your team raises a minimum of $1,500 before April 19, you will automatically be entered for a chance to win SWAG for your whole crew! Sign up now: bit.ly/3ZVs6zH
The phone call we will always remember - 04.05.16 #GiftOfLife 💚 #ThankYouDonor 🫁 #BeADonor ♻️
ATTN RESEARCH COMMUNITY: We’ve extended our registration deadline to April 7, at 11:59 PM EST, for the 18th Broken Arrow Conference at the Delta Hotel Toronto & Airport & Conference Centre! Register here: bit.ly/3ZCaCI8
Hmmm.. I am turning 9 today. I guess it made sense to have my 9th surgery this past weekend. I like opening presents early too! 😁🎁 #MyTwitterAnniversary
Six years of advocating for cystic fibrosis patients on Twitter! Thank you to everyone who has supported us in our fight. Together we've made a difference. #CFCantWait #MyTwitterAnniversary
Happy the work of the Rare Disease Community has been rewarded. A HUGE thank you to those that have led the charge, especially @Durhane and @johnadams51677 . bradfordtoday.ca/local-news/bra… via @BradfordTodayCa #Canada4Rare #RareDisease
Trends for United States
You might like
