CF Get Loud @CFgetloud
A resource for patients and their networks to GET LOUD for access to medications in Canada for cystic fibrosis patients. Speak up to help save Canadians with CF cfgetloud.ca Canada Joined February 2020-
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Following316
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CF Get Loud retweeted
Brilliant to see @uaem supporting our calls for global access to @VertexPharma’s lifesaving #CysticFibrosis drugs. Lifesaving drugs should never be a luxury for the few. 💊🌍 #RightToBreathe #Trikafta4All
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Thank @IpsosCanada for listening to the #RareCommunity and elevating our voice.
Attending the @raredisorders #RareDisease Conference today virtually. Looking forward to hearing details regarding the National Strategy for Rare Disease Drugs. Looking forward to actionable progress! @raredisorders #rare4rare #Canada4rare
Our community is celebrating progress today with @raredisorders @Durhane @johnadams51677
Our community is celebrating progress today with @raredisorders @Durhane @johnadams51677
Seeing many familiar, hardworking people on today’s announcement. #canada4rare We look forward to how this will eliminate the #postalcodelottery @Durhane
Seeing many familiar, hardworking people on today’s announcement. #canada4rare We look forward to how this will eliminate the #postalcodelottery @Durhane
Attending the Rare Disease Announcement regarding our National Rare Disease Strategy & reviewing how this will positively impact the CF and rare communities in Canada.
CF Get Loud retweeted
👏 Thank you @RobinMartinPC for joining us today on #RareDiseaseDay2023
We are proud to be attending @raredisorders #RareDisease breakfast at Queen’s Park this morning.
CF Get Loud retweeted
Important to have a national Rare Disease strategy to help people with a rare diagnosis. Family of Ontario man with rare cancer faces $300K bill for treatment they feel will save his life | CBC News cbc.ca/news/canada/th…
CF Get Loud retweeted
Fabulous day of advocacy. #CFCantwait @fixthebrokensystem #OntarioRareDiseaseDrugProgram
CF Get Loud retweeted
Great chatting with @BobBaileyPC @ONPARLeducation this morning. It was fabulous to know he remembered Madi and was looking forward to getting further involved in solving the issues still plaguing CF patients regarding access to modulators.#CFcantwait #OntarioRarediseaseprogram
CF Get Loud retweeted
Time to look for solutions Ontario, they’re out there! #cfcantwait
Time to look for solutions Ontario, they’re out there! #cfcantwait
CF Get Loud retweeted
Madi and I are excited to continue the work we started with @mppjimwilson all those years ago with @BrianSaunderson. Our meeting this morning was fruitful and I we feel can work together to fill the gaps in our system. #CFcantwait #Fixthebrokensystem #OntarioRareDiseaseStrategy
Madi and I are excited to continue the work we started with @mppjimwilson all those years ago with @BrianSaunderson. Our meeting this morning was fruitful and I we feel can work together to fill the gaps in our system. #CFcantwait #Fixthebrokensystem #OntarioRareDiseaseStrategy
CF Get Loud retweeted
@BrianSaunderson @CFCanada So great meeting with you! Look forward to continuing to make Ontario more equitable for patients with #cysticfibrosis and other #RareDisease.
CF Get Loud retweeted
CF Get Loud retweeted
.@SylviaJonesMPP Some #Ontarians living with #CF can’t afford the high deductible to access their #RareDiseaseMeds others must leave private insurance plans to access. #FixTheBrokenSystem #OntarioRareDisease
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
CF Vests Worldwide @CfVests
7K Followers 7K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Vertex Save Us @VertexSaveUs
906 Followers 684 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Tanya Koorts @TanyaKoorts
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Canadian Cystic Fibro... @CFAdvocacynow
1K Followers 1K Following Access to CF medication is a moral, ethical & medical imperative. With your help, we're going to make it a legal requirement. Please join our fight. #CFcantwait
CF Adventurers @CfAdventurers
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Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
CORD @raredisorders
5K Followers 696 Following CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare
Annabelle💘 @fatallyfibrosed
431 Followers 207 Following ✨My lungs don’t work very well and I have a dead pancreas floating inside my body✨ she/her
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Sasha Haughian @Sweet_Sasha30
227 Followers 615 Following Old fashion housewife at heart. Candy Maker. Blogger. Mother of 3. Cystic Fibrosis advocate. Baking sweets is my hobby, a healthy lifestyle is my passion.
Hunter Guindon @HunterGuindon
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Kaity Brady @kaitybrady
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Lori-Lynn Anita 🇨�... @LoriLynnAnita
435 Followers 538 Following CF mom, avid reader and animal lover.
Brian Saunderson, MPP... @BrianSaunderson
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Just Treatment 💊 @JustTreatment
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Katie Fielding @KatieF
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ALS Action Canada @ALSAction
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eotweets @eotweets
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Kira Taylor @TheKiraTaylor
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Evan W. Craig @EvanWCraig369
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sutsef iatum @SutsefI8960
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Helio Ribeiro @heliorib
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Lstarkloff @Lstar1983
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Tracey Daniels @thecfphysio
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CF Vests 4 Life @cfvests4life
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MPP Jamie West @jamiewestndp
10K Followers 8K Following Jamie West is the @OntarioNDP MPP for Sudbury. Thank you #TeamThreepeat for our 3rd election win!🍊 He/Him. @JamieWestNDP on Social Media
Rudy Cuzzetto 🇨�... @RudyCuzzetto
12K Followers 11K Following MPP for #MississaugaLakeshore, Parliamentary Assistant to the Minister of @ONenergy @Sflecce. #TeamRudy #ProtectOntario #GetItDone #ForThePeople 🇨🇦🇺🇦
Terry Dowdall @TerryDowdall
387 Followers 923 Following Member of Parliament for Simcoe-Grey! Canada First 🇨🇦
Medibanx @Medibanx
102 Followers 429 Following Empowering rare disease research through patient-centric longitudinal data aggregation and active patient participation.
PatrickDCL @PatrickDLucht
2K Followers 6K Following Nutrition Manager, Chef, Culinary Professor, dog person, scotch afficionado, and grilled cheese enthusiast. https://t.co/Wjmz2z6CLZ
Center For Latino Pat... @LatinoswithCF
159 Followers 191 Following Our mission is to improve the health and quality of life for Latino patients with Cystic Fibrosis through research, education, advocacy, & patient engagement.
Simply Kristy @SimplyKristyD
527 Followers 713 Following Wife. Mother of 3 awesome kids. Founder of Chronically Simple (@cshealthapp). #EDS Warrior. Advocate for patient empowerment. Lover of coffee.
NICHOLA @nichrey35
147 Followers 1K Following Cf Mum 2 the most amazing little 6 year old. mum 2 a furry old girl, aquarian, borderline nutter, wine drinker. keen cyclist & organic farmer 🌷
A. Roberts 📸 @hippylovephotos
269 Followers 420 Following 'Cuse🍊✖️est.2013 ✖️Published Photographer 📚 ✖️CF🫁
Robert Kulik @rokulik
75 Followers 530 Following Dad, husband, life sciences professional and race car driver wannabe.
Devin Ilg @devin_ilg
16 Followers 80 Following
Megan Danielle @MeganDanielless
159 Followers 610 Following Slowly healing the brokenness inside of me
Leigh Funston @FunstonLeigh
34 Followers 283 Following
Gardner @gcatsman
112 Followers 1K Following
Murray Simser @murraysimser
515 Followers 3K Following Founder at CITIZN | Millions Used My Software | 3x Tech Founder | 2x PublicCo CEO | Silicon Valley | Microsoft HQ | Invented Societalism & Societal Networks
heidi sammons 🪷 @heidisammons
2K Followers 5K Following Proud mama & Salty Bitch with Cystic Fibrosis CU-alum 1992 LET’S GO BUFFS #65Roses
MECFA @mecfassoc
465 Followers 646 Following Working to help Middle East Cystic Fibrosis patients live longer healthier lives. Follow us to learn how we make a difference.
Karen McCulloch @hbyc7
455 Followers 928 Following Health & Environment Advocate; Cystic Fibrosis Canada -- K-W & District - co-president, Walk to Make Cystic Fibrosis History committee; ENJO Canada associate
Judy Schloss @JudySchloss
759 Followers 2K Following Respiratory Therapist- mom of three crazies- dog lover -hobby farmer - crafter. Opinions are my own! #RespiratoryTwitter
beth Vanstone @bethdenniss
448 Followers 238 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
Vertex Save Us @VertexSaveUs
906 Followers 684 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
CF News Today @CFNewsToday
5K Followers 2K Following We are dedicated to sharing the latest news, research, and patient perspectives from the CF community.
Tanya Koorts @TanyaKoorts
311 Followers 416 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Canadian Cystic Fibro... @CFAdvocacynow
1K Followers 1K Following Access to CF medication is a moral, ethical & medical imperative. With your help, we're going to make it a legal requirement. Please join our fight. #CFcantwait
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
CORD @raredisorders
5K Followers 696 Following CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare
Annabelle💘 @fatallyfibrosed
431 Followers 207 Following ✨My lungs don’t work very well and I have a dead pancreas floating inside my body✨ she/her
Sasha Haughian @Sweet_Sasha30
227 Followers 615 Following Old fashion housewife at heart. Candy Maker. Blogger. Mother of 3. Cystic Fibrosis advocate. Baking sweets is my hobby, a healthy lifestyle is my passion.
Hunter Guindon @HunterGuindon
500 Followers 384 Following
Cystic Fibrosis Trust @cftrust
27K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Beating The Odds @ChrisMacleodBTO
212 Followers 424 Following “Beating The Odds” is Chris MacLeod’s inspirational book with 11 lessons to help you overcome a health crisis and lead a more resilient life.
Cat Williams @dizzycatdesign
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Melissa Shiffman @smelis73
1K Followers 3K Following Healthcare advocate for @CF_Foundation. #cysticfibrosis. @GrandStreetDems. Eternal optimist w/a splash of generalized anxiety disorder. Love this guy @ssatlon.
Kaity Brady @kaitybrady
679 Followers 3K Following 2024 Joan Donaldson Scholar @CBCNews @PnPCBC 👩🏻💻 previously @CanadaLJI x @CJLO1690AM @TheCurrentCBC @JournalismCU @canadian_irish [email protected]
Innovative Medicines ... @innovativemeds
9K Followers 2K Following National association representing Canada’s research-based pharmaceutical industry. Dedicated to improving health through the discovery of medicines & vaccines.
Sylvia Jones @SylviaJonesMPP
16K Followers 4K Following MPP for Dufferin-Caledon • Ontario's Deputy Premier and Minister of Health
Susan Holt @susanholt
19K Followers 4K Following Premier of New Brunswick / Première ministre du Nouveau-Brunswick MLA / Députée Fredericton South/Sud Silverwood Leader @NBLA_ALNB 🦋 @susanholtnb.bsky.social
Adrian Dix @adriandix
59K Followers 4K Following BC NDP MLA for Vancouver-Renfrew. Minister of Energy and Climate Solutions. Collingwood resident.
Adriana LaGrange @AdrianaLaGrange
14K Followers 534 Following Alberta’s Minister of Primary and Preventative Health Services|MLA for Red Deer-North
Geraldine Dunegan @GeraldineDuneg1
276 Followers 2K Following I’m a survivor and a mom of a CFer & a GiGi of 4
The Hospital for Sick... @SickKidsNews
57K Followers 2K Following Official Twitter account for The Hospital for Sick Children (SickKids). Our vision: Healthier Children. A Better World.™ Account not monitored 24/7.
Ipsos Canada @IpsosCanada
6K Followers 1K Following Our experts uncover data & insights, providing actionable market research for businesses. Be sure to follow us @ https://t.co/oRzXPyQC9A !
Ipsos @Ipsos
18K Followers 627 Following Ipsos is one of the largest market research companies operating in 90 markets with more than 20,000 research professionals. #GameChangers #mrx
Robin Martin @RobinMartinPC
5K Followers 2K Following Wife, mom of 2, lawyer, policy wonk, Retweets ≠ endorsements.
heidi sammons 🪷 @heidisammons
2K Followers 5K Following Proud mama & Salty Bitch with Cystic Fibrosis CU-alum 1992 LET’S GO BUFFS #65Roses
Judy Schloss @JudySchloss
759 Followers 2K Following Respiratory Therapist- mom of three crazies- dog lover -hobby farmer - crafter. Opinions are my own! #RespiratoryTwitter
Neil Palmer - Health ... @Neil_HlthPolicy
218 Followers 160 Following Pricing, reimbursement, market access & Canadian health and pharma policy.
Vaccine Hunters Canad... @VaxHuntersCan
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Health Coalition AB @CoalitionAB
148 Followers 133 Following HEALTH COALITION OF ALBERTA is a coalition of voluntary health sector and consumer groups advocating for better access to optimal health care for all Albertans.
Jill Srigley @JillSrigleyGolf
294 Followers 1K Following Regular everyday wife and Mum who happens to have Cystic Fibrosis.
Mary@Chicago19 @MaryJToews191
35 Followers 95 Following I’m a big fan of Captain Jonathan Toews . No one I mean no one will ever fill his skates on the Chicago Blackhawks team !!
rosiecolouredglasses @rosiecolouredg1
34 Followers 169 Following Seeing the world from different perspectives.
Jennifer LeMoine Jone... @lemoine_jones
4 Followers 56 Following
Tara Mac @tmac66
25 Followers 692 Following
Doug Ford @fordnation
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12 Followers 7 Following Diploma Speech & Drama | Ext. Diploma Media | Music | Writer | Cystic Fibrosis Awareness
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13 Followers 15 Following
Nick McDonald @NickMcdonald95
43 Followers 74 Following
CAHR: Canadian Assoc.... @CAHR_ACRSS
515 Followers 229 Following
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CAPDM-ACGAP @capdm_acgap
195 Followers 344 Following CAPDM works to ensure Canada's safe, secure, and efficient pharmacy supply chain, getting medicines to the right place at the right time.
CPhA/APhC @CPhAAPhC
10K Followers 909 Following The Canadian Pharmacists Association (CPhA) is the uniting national voice of pharmacy and the pharmacist profession in Canada.
Neighbourhood Pharmac... @pharmacy_CAN
2K Followers 3K Following The Neighbourhood Pharmacy Association of Canada is the leading advocate and voice for the business of pharmacy in Canada.
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
RareConnect @RareConnect
18K Followers 5K Following 🌐Connecting #raredisease patients globally at https://t.co/v6rTTK0X6I. 💻Website help at @RareConnectSup.
RareDiseaseFdn @rarediseasefdn
8K Followers 495 Following Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL
John Haggie @Johnrockdoc
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Premier of NL @PremierofNL
43K Followers 611 Following Official Account of the Honourable John Hogan, K.C., 15th Premier of Newfoundland and Labrador.
Megan @megatronn1997
104 Followers 83 Following 27 Mason Dale 10/06/2020 💚 Georgia Jean 10/17/23 🦋 cystic fibrosis Momma 💜 Delta f508 x2
CTV News Toronto @CTVToronto
745K Followers 48 Following Toronto's #1 newsroom for top stories, exclusive content & must-see video. For local breaking news alerts, download our app: https://t.co/JLkZxrR9Z0
@CFCanada, Toronto @CFCanToronto
2K Followers 2K Following Toronto & District Chapter of Cystic Fibrosis Canada works to help Canadians with cystic fibrosis live longer, healthier lives.
shauna rempel @ShaunaRempel
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Patient Commando @PatientCommando
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Norman MacIsaac @NormanMacIsaac
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