Fall Risk the Musical @FallRiskMusical
2x CFF Impact Grant Winner • a new musical comedy about CF and transplant • we’re moving from script to stage! • DONATE! • based on a true story by @cystic4real fallriskthemusical.com Joined June 2019-
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Fall Risk the Musical retweeted
Check out the new video series from @FallRiskMusical, Theater 101! You can view the entire series here: fallriskthemusical.com/theater-101/ A special thank you to @CFLifestyle for the collaboration. And thank you to @CF_Foundation and @LetsRockCF for making this series possible.
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Fall Risk the Musical retweeted
I made it, mom! 🥹🏆 I can’t believe I was named one of the @Diversability D-30 Disability Impact Honorees 2022. Thank you, all. 🎗💋 “most impactful community members globally” 🌎 The full list: mydiversability.com/2022-d30-honor…
Presenting the 2022-2023 Community Events! Stay tuned for the launch of our first project… Theater 101! 🎭
Working on it 👀
CFF Community Grant Info 🎭🏆 us1.campaign-archive.com/?u=2ed75b095bb…
Table Read NYC 2022 More at fallriskthemusical.com
Fall Risk the Musical retweeted
In celebration of 65 Roses Day, we’re thrilled to be featured on the @Nasdaq Tower in @TimesSquareNYC! The display will be live through Sunday, June 5.
We made it to NYC because of YOU. Happy #cysticfibrosis awareness month! 🎵🌹🫁 📸: Rebecca J Michelson
Fall Risk the Musical retweeted
it isn’t musical theater unless someone has made a joke about new jersey
Define the•a•ter /noun/: It presents in many shapes and sizes, much like diseases, and we must adapt to keep the source alive. “Fall Risk” is not just a new musical. It’s an enormous visibility campaign. Because EVERYONE is a fall risk. #worldtheatreday #worldtheaterday
Fall Risk the Musical retweeted
We’re thrilled to announce that KC White has been elected by the Foundation’s Board of Trustees as its next Board Chair. This marks the first time in our history that the Board will be led by a person with #cysticfibrosis. on.cff.org/KC-White-Next-…
The FALL RISK EP is in final production! Background vocalists, ten minute call! 🎤💿 #fallriskmusical #fallriskfriday
Fall Risk the Musical retweeted
Jan 2022 Newsletter mailchi.mp/0af28165fc27/n… #childrensbooks #cysticfibrosis @FallRiskMusical
Fall Risk the Musical retweeted
Avery (Young Gabby) and I exchanged videos during hospital stays. This is the latest one I sent her. 🍝 For Avery’s version: instagram.com/p/CYujF0mvpmT/… @FallRiskMusical
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Catherine Meredith @873Meredith
2K Followers 4K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
#UK CF campaigner Sha... @CFno1LeftBehind
1K Followers 1K Following 🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter
Evann Griffiths @evann_lfc
3K Followers 5K Following 30.Liverpool fc ⚽️ have cystic fibrosis. Horror films. True Crime . Music. Greys. L.o.D. Scream. Saw.❤️ Love Alanis Morissette, Avril Lavigne, Mcfly, Paramore
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315 Followers 415 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Jody65 #CFcarer @CFcarer
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CF Adventurers @CfAdventurers
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Chris Riches @ChrisMRiches
1K Followers 765 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2019 British Press Awards🏆& 2020 British Journalism Awards Campaign Journalist of the Year 🏆. ❤️Spurs
Holly Rosanna 🌻 @hollyrosanna
3K Followers 405 Following Final year OT Student 💚 lived experience: Cystic Fibrosis, ICU, Double lung transplant 02/2015 🫁
Nicole Kohr @cystic4real
2K Followers 2K Following new lungs, who dis ♻️🫁 6/14/19 • creator of @fallriskmusical and @coliecreations 🎭📚 • award-winning writer and advocate 🏆
Prof. Dr. rer. nat. M... @michael_kormann
988 Followers 2K Following PhD in biology (focus on genetics). ERC grantee (focus on gene editing, CF patients). Interested in mRNA, AI and collaborations. Peer review is folklore.
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Heather McCoy @heather_mccoy3
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CFF Carolinas Central... @CFF_Carolinas
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Melissa Grindon @melissa_writes_
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Colie Creations Inc @ColieCreations
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Mary A. Sullivan @mary_a_sullivan
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Jane Roberts 💙 @redtop63
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Nick (aka Rocky) @Rocky_84_
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Christina J. Nicolais... @CJ_Nicolais
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Mark Robinson @markrobsf
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Morgan Coxhead @MorganCoxhead
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Beth Skaggs🌻 @BethDonahueSkag
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Access Your Life @accessyourlife
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Ella Balasa @ellabalasa1
653 Followers 1K Following #patientadvocate | speaker | published writer | living with #cysticfibrosis. Antibiotic resistance and patient co-creation in healthcare are my passions
Adrian W. @AdrianLWaller
822 Followers 775 Following Licensed Therapist (LMFT), he/him | disabled w PCD + hydrocephalus | @ChurchClarity Scoring Lead | KS ➡️ CA
PleaseHelpTimmy @help_timmy
14 Followers 99 Following Help Timmy live. Timmy is 1.5 year old cat who was diagnosed with diaphragmatic hernia. He needs at least 7000$ for a life saving surgery that we can't afford.
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Madison Parrotta @midbop
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Vihaan Krishna @vihaan_cfindia
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Demerada 💙 #Suppor... @Demerada
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cystic_fibrosis_champ @laytoncf12
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Hailey @haileyhuyser
0 Followers 3 Following ‘23 Ambassador for @sixtyfiveapparel “Hailey” for 10% off Raising awareness for Cystic Fibrosis 💜💜
Kristy O'Connell @Kris_AnnO
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Rahaf @Rahaf00558023
2 Followers 12 Following
ShilohChildren @Shiloh_children
41 Followers 193 Following https://t.co/rG2gxat2sj Donate here: https://t.co/InkqWJrBr7…
Henry Brewer @HenryBr04904812
60 Followers 571 Following
Wendy Caroline @wendycaroline91
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CYSTIC FIBROSIS INDIA @cfindiaofficial
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Jacob Jaramillo @JacobCFGetLoud
161 Followers 329 Following chef, advocate, husband, dog parent, CF warrior @CFGetLoud
Elizabeth Talbott @betsytalbott1
1K Followers 3K Following Public policy & advocacy #4specialeducation #individualswithdisabilitieseducationact @IESresearch | Views my own |
Kat @KATKaftrio
100 Followers 184 Following mom of 5 children (4 have Cystic Fibrosis,1 carrier) My eldest son Leon with CF passed away 28/08/2015. I can’t lose my other children. Fighting for #KaftrioNow
Philip Mayfield @p_mayfield352
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Paris Connolly @ParisConnolly_
292 Followers 549 Following 28 | UK 🇬🇧| MH Expert By Experience | 🏳️🌈LGBTQ+ | Musical Theatre Love 🎭 | All views are my own.
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Krall @Krall
363 Followers 2K Following I'm a 40 year old, post-transplant dreamer. Interested in voice acting, writing, and plain being creative.
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Cystic Fibrosis Trust @cftrust
27K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Andrew @Andyassert
589 Followers 179 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
Catherine Meredith @873Meredith
2K Followers 4K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Annabelle💘 @fatallyfibrosed
431 Followers 206 Following ✨My lungs don’t work very well and I have a dead pancreas floating inside my body✨ she/her
#UK CF campaigner Sha... @CFno1LeftBehind
1K Followers 1K Following 🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter
Evann Griffiths @evann_lfc
3K Followers 5K Following 30.Liverpool fc ⚽️ have cystic fibrosis. Horror films. True Crime . Music. Greys. L.o.D. Scream. Saw.❤️ Love Alanis Morissette, Avril Lavigne, Mcfly, Paramore
Vertex Pharmaceutical... @VertexPharma
71K Followers 83 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
Tanya Koorts @TanyaKoorts
315 Followers 415 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Jody65 #CFcarer @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Chris Riches @ChrisMRiches
1K Followers 765 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2019 British Press Awards🏆& 2020 British Journalism Awards Campaign Journalist of the Year 🏆. ❤️Spurs
Lucy Taylor @LucyMaryTaylor
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Alex Stobbs @AlexStobbs
1K Followers 1K Following Pianist, Composer | Teacher @StPaulsSchool | ex-@Kings_College @RCMLondon @choirofkingscam @OasisSouthBank @TeachFirst | @FaireIsTheXI | Cystic Fibrosis
Holly Rosanna 🌻 @hollyrosanna
3K Followers 405 Following Final year OT Student 💚 lived experience: Cystic Fibrosis, ICU, Double lung transplant 02/2015 🫁
Nicole Kohr @cystic4real
2K Followers 2K Following new lungs, who dis ♻️🫁 6/14/19 • creator of @fallriskmusical and @coliecreations 🎭📚 • award-winning writer and advocate 🏆
Ayanna P. @AyannaPrescod
17K Followers 913 Following a theatre person • president, head of influencer marketing @relayinfluence • advisory committee @thewing • [email protected]
Scott Lilly @DoodlesByScott
146 Followers 58 Following NYC-based Actor, Artist, theatre Director, Designer and all-around master of Awesomeness!
Mark Robinson @markrobsf
3K Followers 346 Following Actor/singer/freelance editor. Former features editor at WIRED. Former editor in chief of Epic magazine. Co-coiner of the term crowdsourcing.
Adrian W. @AdrianLWaller
822 Followers 775 Following Licensed Therapist (LMFT), he/him | disabled w PCD + hydrocephalus | @ChurchClarity Scoring Lead | KS ➡️ CA
Singing at the Top of... @SATMLfoundation
103 Followers 108 Following Singing at the Top of My Lungs (SATML) • 501 (c)(3) nonprofit organization • Dedicated to empowering hospitalized children through music, art, and play.
Madison Parrotta @midbop
408 Followers 1K Following Disability representation in lit advocate. Founding Member, @disabilityinpub 📚 aspiring production editor 📖 She/Her
Tracey Daniels @thecfphysio
2K Followers 2K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
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913 Followers 684 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Vihaan Krishna @vihaan_cfindia
2K Followers 863 Following Vihaan's life with cystic fibrosis, Join us in spreading awareness, celebrating victories, and embracing the beauty in every moment 💜.Account Managed by Mom.
Jordonne Harris Memor... @HarrisFund
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Singing4Breathing CIC @CopdSingers
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Rob Reynolds @robreynolds87
186 Followers 308 Following Gin & chocolate connoisseur 🍹🍫 Classical music & Motown enthusiast 🎶🎷 Board game geek ♠️🎲 CF warrior 🌹🚣♂️ 🏳️🌈 He/him
🥀🎼 @Trace___65roses
4K Followers 4K Following ~♡in the end it's not going to matter how many breaths you took but how many moments took your breath away♡~
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cystic_fibrosis_champ @laytoncf12
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Zoey @_ZoeyJones_
687 Followers 2K Following Mother, Lecturer in Social Work, PhD researcher @edgehill. Campaigner for CF #cysticfibrosis #CF 🌹🌹🌹🌹🌹🌹🌹
Jacob Jaramillo @JacobCFGetLoud
161 Followers 329 Following chef, advocate, husband, dog parent, CF warrior @CFGetLoud
Sandy Stevens @sandycantwait
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184 Followers 628 Following Huge fan of my husband, two kids, four mutts, a cure for CF, Red Sox, A's
Trish Roon @ktsmommabear
12 Followers 75 Following Mom, Elementary Teacher, Rare Disease Wrangler, and Mischief Manager #klippeltrenaunaysyndrome #pik3ca #cftr
NICHOLA @nichrey35
147 Followers 1K Following Cf Mum 2 the most amazing little 6 year old. mum 2 a furry old girl, aquarian, borderline nutter, wine drinker. keen cyclist & organic farmer 🌷
Christine Noke @christine_noke
71 Followers 100 Following Founder and CEO of the Middle East CF Association, MECFA. On a mission to help improve the lives of people born with CF in the MENA region.
jackspack @jackspackwpg
71 Followers 287 Following Walking with our son Jack on our journey with Cystic Fibrosis. Thankful for each day.
Transitions in Cystic... @TransitionsInCF
58 Followers 162 Following Study investigating the barriers and facilitators of the transition of care among young adults with CF and their parents in Ireland. email: [email protected]
SaltyGirl13 @SaltyGirl_13
29 Followers 54 Following Life isn’t about waitin’ for the storm to pass - it’s about learning to dance in the rain🌹#65roses #saltylife #justbreathe #CFWarrior
Philippa: life, trave... @unlagoblog
81 Followers 66 Following Tweeting and blogging about life, life with CF, life outside of CF
Kat @KATKaftrio
100 Followers 184 Following mom of 5 children (4 have Cystic Fibrosis,1 carrier) My eldest son Leon with CF passed away 28/08/2015. I can’t lose my other children. Fighting for #KaftrioNow
Ripley @draculadyke
64 Followers 92 Following don’t ask me for personal details or i’ll kill us both
James Allen @James_SkydiveCF
34 Followers 72 Following My friend Leo suffers from CF so we're both doing a skydive to raise money and awareness of @CFTrust. Any and all support is gratefully recieved
Lori-Lynn Anita 🇨�... @LoriLynnAnita
435 Followers 545 Following CF mom, avid reader and animal lover.
TJAE CF Foundation @TjaeFoundation
117 Followers 167 Following Cystic Fibrosis is our mission, purpose & lifestyle! STAY SAFE & HOME
PMCFNI @pmcfni
111 Followers 181 Following Precision Medication for Cystic Fibrosis- Northern Ireland. #LifesavingDrugs4CFNI. This account is not run by a clinician. It exists to share developments.
Liam Mc Hugh @liammchugh1961
1K Followers 2K Following CYSTIC FIBROSIS TRUST AMBASSADOR, BEM 2015, PRIDE OF BRITAIN FINALIST 2016, ULSTER HERALD SPORTS PERSONALITY 2017. PRIDE OF BRITAIN WINNER 2020.
CF Dental Study UCC @cf_ucc
115 Followers 187 Following Research Study into the Oral Health of Adults with Cystic Fibrosis
Colleen Rue @ColleenRue6
18 Followers 141 Following My name is Colleen.Proud pet parent.Greatful for the fellowship of Alcoholics Anonymous.Cystic Fibrosis awareness and advocacy. ❤
Mehro-Nissa🤍 @mehro_65roses
131 Followers 145 Following 23💖CF PATIENT💛BSc (Hons) Biomedical Science 👩🏽🎓
CF Get Loud @CFgetloud
466 Followers 316 Following A resource for patients and their networks to GET LOUD for access to medications in Canada for cystic fibrosis patients. Speak up to help save Canadians with CF
Cassidy’s Lemonade ... @cassidylemonade
59 Followers 90 Following Bravely striving to find a cure for Cystic Fibrosis. ▫️Mobile Lemonade Truck ▫️Online BoutiqueTrends for United States
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