Christine Noke @christine_noke
Founder and CEO of the Middle East CF Association, MECFA. On a mission to help improve the lives of people born with CF in the MENA region. mecfa.org Izmir, Turkey Joined October 2019-
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Our founding clinicians paved the way for a brighter, healthier, and happier future of CF patients in MENA and Central Asia.
Did you know that the life expectancy of someone living in the Middle East with cystic fibrosis is roughly 50% of that reported in Western countries?
A decline in the health of cystic fibrosis patients in the Middle East can be attributed to a general lack of centers specializing in the diagnosis and care of patients with CF.
At MECFA, we believe that even small acts of generosity can create lasting change in CF patient's lives, their families, and their communities. Ultimately, transforming the future of patients in the region.
In this article, we share how MECFA works to improve the lives of #CFpatients in the Middle East through access to better healthcare. bit.ly/3kLxyTv
In this article, we explore MECFA’s #MissionStatement outlining our impact to-date.
MECFA thanks to doctors! shoutout.wix.com/so/19N5tmqDw
Preston Campbell, MD (president and CEO CFF) speaking at MECFA conference in Izmir, Turkey
MECFA programs aid clinicians in the region who are committed to improving quality of life and life expectancy for CF patients in their countries.
MECFA's organizing principles are three-fold: 1️⃣ Early and Accurate Diagnosis 2️⃣ Training of Clinicians and Allied Health Professionals 3️⃣ Access to Essential Therapies
Did you know that most MECFA member countries do not have access to diagnostics, essential therapies or CF centers?
"I hope you can find some space for hope" - Kristin Entler shares what has been helping her cope with the unsettling stages of the covid pandemic. Read it all here: buff.ly/3s4h0cL #cysticfibrosisnewstoday #cysticfibrosis #livingwithCF #CFnews #CF #treatingCF
MECFA’S Impact To-Date: Donated… 👉10 Iontophoresis units, 👉10 sweat chloride analysers 👉supplies for 10,000 tests to hospitals in Egypt, Jordan, Sudan, Azerbaijan, and Ethiopia
In this article, we outline how MECFA works to improve the lives of #CFpatients in the Middle East through access to better health care. bit.ly/3kLxyTv
The high costs of effective #CysticFibrosis treatments make obtaining them a major challenge for CF patients in Africa, the Middle East & Central Asia
The MECFA mission is to improve the health outcomes of #CysticFibrosis patients in the Middle East, Northern Africa, and Central Asia.
ICYMI - Middle East Cf Association (Mecfa): Impact Overview.
ICYMI - Middle East Hospitals Gain Access to Much Needed Cystic Fibrosis Diagnosis and Treatment Resources
Katie Haswell 🇺�.. @KatieHaswell
172 Followers 2K Following #MentalHealthMatters |Making my way through @theacademy winners | trying to emulate Mary Tyler Moore | Musings are mine only
Elaine Cagnina @e_cagnina
43 Followers 106 Following Pulm CCM at BWH, former UVA ‘Hoo. Trying to unravel immunology in CF and lung infections.
Reesa Nicholson🟦�.. @reesanicholson
111 Followers 458 Following Science geek, TBI survivor, cancer survivor, hell on wheels ♿️ Still making a difference in the world. she/her/mineminemine 🟦🟧
David Nannini @david_nannini
104 Followers 982 Following Interested in Medical Causes, especially Cystic Fibrosis.
CF Vests 4 Life @cfvests4life
299 Followers 2K Following We are a Nonprofit Organization that provides CF equipment to add more mornings to the lives of CF Warriors the world over which was established June 2020.
Mark Tremblay @MarkTre88197226
48 Followers 136 Following 50 year old sober biker with Cystic Fibrosis liv’in out loud
kifder @kistikfibrozi.. @kifder
2K Followers 1K Following Bu sayfa KifDER tarafından, kistik fibrozisle ilgili güncel haberleri hasta ve hasta yakınlarıyla paylaşmak için oluşturulmuştur.
Center For Latino Pat.. @LatinoswithCF
168 Followers 198 Following Our mission is to improve the health and quality of life for Latino patients with Cystic Fibrosis through research, education, advocacy, & patient engagement.
heidi sammons @heidisammons
2K Followers 5K Following Proud mama & Salty Bitch with Cystic Fibrosis CU-alum 1992 LET’S GO BUFFS #65Roses
Rebecca Calthorpe @DrRCalthorpe
177 Followers 290 Following East Midlands Paediatrics Trainee. CARDS-CF Clinical Research Fellow investigating gut symptoms in CF
CF BDA Specialist Gro.. @bda_cf
529 Followers 506 Following British Dietetic Association Cystic Fibrosis Specialist Group, Established over 20 years ago, but launched as an official BDA Specialist Group on 1 March 2019
Anthony Thompson @bigbaddoctor
2K Followers 5K Following 58, Hubby, Dad, Runner, Gamer,Cystic Fibrosis (pw), 🔺F508 & 2798+ 5G - A, Consultant in Palliative Medicine, Recent #clavicle 🚴 crash, ManU fan, ❤️NHS
Question CF @questionCF
2K Followers 2K Following 2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
Afaf Kasassbeh @KasassbehAfaf
34 Followers 85 Following وأما حُزني فَسرمدٌ يا عُمر ،لا يبرحُ من قلبي حتى يختار الله لي دارك التي أنت فيها مُقيم وإلى الله أشكو وهو خير الحاكمين 💔
Stichting Muco & Frie.. @MucoFriendsNL
526 Followers 2K Following De Stichting Muco & Friends ondersteunt wetenschappelijk onderzoek naar oorzaak, behandeling en genezing van CF middels het inzamelen van geld
Jan Born @Jan_Born
5K Followers 4K Following Onderzoeksjournalist Privacy Toezicht, Old Boys/Girls Network, Justitie, Defensie, Politie, Klokkenluiders Fraude, Publeaks
Perfectly Imperfect P.. @PrintsByPIP
73 Followers 248 Following Just a graphic desinger & CF fighter trying to bring more beauty into this world through my art while helping to raise awareness for Cystic Fibrosis.
Reem Fawzi Al-faraj @ReemFawzi1999
905 Followers 610 Following 🩻 Resident #KFSHRC And an artist 👩🏻🎨 + CF Warrior 💐😶🌫️💜 ; my weakest point 🐍 turned out to be the strongest one that made me the person I am today 🦌
Todd Baillie @TBaillie2
974 Followers 3K Following Proud Georgia Tech, UNG, and NGHS dad! Fighter of Cystic Fibrosis (not me, my son), Clemson Grad, Janam Technologies & Board Member of Miles4CF.
CYSTIC FIBROSIS INDIA @cfindiaofficial
253 Followers 304 Following Cystic Fibrosis Trust of India. Official Account of Cystic Fibrosis patient in India. #waiting for miracles #waitingformiraclemedicine
Zoey @_ZoeyJones_
734 Followers 2K Following Mother, Lecturer in Social Work, PhD researcher @edgehill. Campaigner for CF #cysticfibrosis #CF 🌹🌹🌹🌹🌹🌹🌹
Ibrahim A Janahi @Dr_Janahi
681 Followers 323 Following استشاري الجهاز التنفسي في الأطفال-سدرة للطب Consultant ped pulmo-Sidra med استاذ امراض الأطفال السريرية-ويل كورنيل للطب Professor of clinical pediatrics-WCM-Q
CF Srbija @SrbijaCf
38 Followers 143 Following #hocemotrikaftu #cistična_fibroza #cfsrbija #cfserbia #cysticfibrosis #wewanttrikafta #weneedtrikafta #fightcysticfibrosis #HocemoKaftrio #kaftrio
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Dr Zoe Bagley @VarnalsVintage
417 Followers 349 Following Historian. Researcher. Raising awareness of CF. Fighting for Orkambi. Mum of a child with CF
Joanne Osmond @Joanneosmond
1K Followers 3K Following Passionate about Cystic Fibrosis, Homelessness, ASD inclusion, our Planet. Own Views.
Jacob Jaramillo @JacobCFGetLoud
178 Followers 342 Following chef, advocate, husband, dog parent, CF warrior @CFGetLoud
Nicole Kohr @cystic4real
2K Followers 2K Following new lungs, who dis ♻️🫁 6/14/19 • creator of @fallriskmusical and @coliecreations 🎭📚 • award-winning writer and advocate 🏆
Bokamoso Cebisa @cebisa1993
1K Followers 5K Following 👩🏼💻 Corretora | Ajudo você a diversificar seu capital no mercado de criptomoedas de forma segura, transparente e consistente 🚀 Locação de ativos criptográ
Schenker Frédérik @SchenkerFrdrik2
787 Followers 5K Following Relations internationales Institutions & ONGs Associations & fondations Religions & spiritualité Musique Presse économique Presse politique Presse culturelle
BADIO, The Civil Enge.. @Badio18839450
175 Followers 5K Following Structural Engineer, Politic and Specialist in International Relations.
craig holmes @HolmeMadeHulme
57 Followers 495 Following Hand made, unique gifts made by me. Website coming soon. insta- @holme_made_23 #handmade #christmasgiftideas #hulme #sustainable #cfartist #manchester 😀
Natali @Natali50841361
39 Followers 97 Following Mother of daughter with cystic fibrosis. My dream is Trikafta..
Ranel Madrid @ranelmadrid0531
30 Followers 344 Following
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Vihaan Krishna @vihaan_cfindia
1K Followers 851 Following Sharing the journey of Vihaan's life with cystic fibrosis,Join us in spreading awareness, celebrating victories, and embracing the beauty in every moment 💜.
Raki_philisophy @RPhilisophy
1 Followers 52 Following
Christina Walker 💙 @Guatemalagirl
613 Followers 1K Following Mostly serious views on cystic fibrosis, health matters & drug pricing, with a bit of horticulture thrown in for good measure
Gayle Pledger @gayle_pledger
530 Followers 597 Following CF mum fighting for all our CF warriors b/c lifesaving drugs should never cost lives. Founder @VertexSaveUs, ‘Right to Breathe’ campaign, working @JustTreatment
tré 🤌🏼 @trelarosa
364 Followers 4K Following all views expressed here are mine & do not represent my employer. writer, scientist, leftist, father to duncan. a better world is possible. he/him. 🌹✊🏼🕊
Nicola Johnson @JohnsonMNicola
968 Followers 1K Following Director of People & Culture in a Multi-Academy Trust. School Governor. Mum, Step-mum, and raising awareness of Cystic Fibrosis when possible. #NoOneLeftBehind
Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Fall Risk the Musical @FallRiskMusical
318 Followers 768 Following 2x CFF Impact Grant Winner • a new musical comedy about CF and transplant • we’re moving from script to stage! • DONATE! • based on a true story by @cystic4real
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Liam Mc Hugh @liammchugh1961
1K Followers 2K Following CYSTIC FIBROSIS TRUST AMBASSADOR, BEM 2015, PRIDE OF BRITAIN FINALIST 2016, ULSTER HERALD SPORTS PERSONALITY 2017. PRIDE OF BRITAIN WINNER 2020.
hannah jeffers @clairvoygiraffe
66 Followers 662 Following i have #cysticfibrosis. i am post emergency life saving double lung transplant since 12.13.18! 🤘🏻😌 very very blessed. 👏🏻
KA Associates @KaminkerLaw
1K Followers 4K Following Kaminker & Associates Immigration Law. Personal & Corporate Canadian immigration services. Technology companies are our specialty. Contact: 416 840 0525
Ashleigh's Life Found.. @AshleighLife
82 Followers 522 Following Mission: To provide monetary Grant Awards to those who are at or near End Stage Cystic Fibrosis.
ACPCF @acpcf
793 Followers 34 Following Association of Chartered Physiotherapists in Cystic Fibrosis - for all things relating to the physiotherapy management of CF, for professionals and families
Question CF @questionCF
2K Followers 2K Following 2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
Anthony Thompson @bigbaddoctor
2K Followers 5K Following 58, Hubby, Dad, Runner, Gamer,Cystic Fibrosis (pw), 🔺F508 & 2798+ 5G - A, Consultant in Palliative Medicine, Recent #clavicle 🚴 crash, ManU fan, ❤️NHS
tré 🤌🏼 @trelarosa
364 Followers 4K Following all views expressed here are mine & do not represent my employer. writer, scientist, leftist, father to duncan. a better world is possible. he/him. 🌹✊🏼🕊
Jan Born @Jan_Born
5K Followers 4K Following Onderzoeksjournalist Privacy Toezicht, Old Boys/Girls Network, Justitie, Defensie, Politie, Klokkenluiders Fraude, Publeaks
Todd Baillie @TBaillie2
974 Followers 3K Following Proud Georgia Tech, UNG, and NGHS dad! Fighter of Cystic Fibrosis (not me, my son), Clemson Grad, Janam Technologies & Board Member of Miles4CF.
Afaf Kasassbeh @KasassbehAfaf
34 Followers 85 Following وأما حُزني فَسرمدٌ يا عُمر ،لا يبرحُ من قلبي حتى يختار الله لي دارك التي أنت فيها مُقيم وإلى الله أشكو وهو خير الحاكمين 💔
Child Health Internat.. @ChildHealthInt1
91 Followers 69 Following Helping children and young adults with #cysticfibrosis live life. Building international medical partnerships and sharing best practice across borders.
Tracey Daniels @thecfphysio
2K Followers 3K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
CF BDA Specialist Gro.. @bda_cf
529 Followers 506 Following British Dietetic Association Cystic Fibrosis Specialist Group, Established over 20 years ago, but launched as an official BDA Specialist Group on 1 March 2019
Zoey @_ZoeyJones_
734 Followers 2K Following Mother, Lecturer in Social Work, PhD researcher @edgehill. Campaigner for CF #cysticfibrosis #CF 🌹🌹🌹🌹🌹🌹🌹
NOAACF @noaacf
128 Followers 33 Following The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
Jamie Stephenson 🦜.. @ssnjimb
2K Followers 5K Following I'm Jamie I suffer from #Cysticfibrosis I'm #openlyautistic They/Them 🌈 love Music/vintage computers, #CureCF #Supportthestrikes. Only Follows Back Real PPL
Vaishnavi @CFbites
37 Followers 17 Following My take on living with Cystic Fibrosis (CF) P.s. It can get funny, sarcastic and sometimes emotional.
CF Get Loud @CFgetloud
512 Followers 332 Following A resource for patients and their networks to GET LOUD for access to medications in Canada for cystic fibrosis patients. Speak up to help save Canadians with CF
The Bonnell Foundatio.. @RoadmapToCF
844 Followers 1K Following The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls
Joanne Osmond @Joanneosmond
1K Followers 3K Following Passionate about Cystic Fibrosis, Homelessness, ASD inclusion, our Planet. Own Views.
Fiveroses CF Team @FiverosesTeam
88 Followers 93 Following We are here to support of the fight against cystic fibrosis and raise awareness of cystic fibrosis🎈. Platforms where you can follow us ⬇️
CF Srbija @SrbijaCf
38 Followers 143 Following #hocemotrikaftu #cistična_fibroza #cfsrbija #cfserbia #cysticfibrosis #wewanttrikafta #weneedtrikafta #fightcysticfibrosis #HocemoKaftrio #kaftrio
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
BADIO, The Civil Enge.. @Badio18839450
175 Followers 5K Following Structural Engineer, Politic and Specialist in International Relations.
Dr Zoe Bagley @VarnalsVintage
417 Followers 349 Following Historian. Researcher. Raising awareness of CF. Fighting for Orkambi. Mum of a child with CF
CYSTIC FIBROSIS INDIA @cfindiaofficial
253 Followers 304 Following Cystic Fibrosis Trust of India. Official Account of Cystic Fibrosis patient in India. #waiting for miracles #waitingformiraclemedicine
Jacob Jaramillo @JacobCFGetLoud
178 Followers 342 Following chef, advocate, husband, dog parent, CF warrior @CFGetLoud
Schenker Frédérik @SchenkerFrdrik2
787 Followers 5K Following Relations internationales Institutions & ONGs Associations & fondations Religions & spiritualité Musique Presse économique Presse politique Presse culturelle
Fall Risk the Musical @FallRiskMusical
318 Followers 768 Following 2x CFF Impact Grant Winner • a new musical comedy about CF and transplant • we’re moving from script to stage! • DONATE! • based on a true story by @cystic4real
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Liam Mc Hugh @liammchugh1961
1K Followers 2K Following CYSTIC FIBROSIS TRUST AMBASSADOR, BEM 2015, PRIDE OF BRITAIN FINALIST 2016, ULSTER HERALD SPORTS PERSONALITY 2017. PRIDE OF BRITAIN WINNER 2020.
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Vihaan Krishna @vihaan_cfindia
1K Followers 851 Following Sharing the journey of Vihaan's life with cystic fibrosis,Join us in spreading awareness, celebrating victories, and embracing the beauty in every moment 💜.
Natali @Natali50841361
39 Followers 97 Following Mother of daughter with cystic fibrosis. My dream is Trikafta..
Gayle Pledger @gayle_pledger
530 Followers 597 Following CF mum fighting for all our CF warriors b/c lifesaving drugs should never cost lives. Founder @VertexSaveUs, ‘Right to Breathe’ campaign, working @JustTreatment
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Christina Walker 💙 @Guatemalagirl
613 Followers 1K Following Mostly serious views on cystic fibrosis, health matters & drug pricing, with a bit of horticulture thrown in for good measure
Jacquelien Noordhoek @Jacqnoordhoek
2K Followers 465 Following CEO Nederlandse CF Stichting (NCFS), PhD patientenparticipatie, sociale wetenschappen en bedrijfskunde, RvT Ziekenhuis Amstelland, RvT PGOsupport
hannah jeffers @clairvoygiraffe
66 Followers 662 Following i have #cysticfibrosis. i am post emergency life saving double lung transplant since 12.13.18! 🤘🏻😌 very very blessed. 👏🏻
Nicola Johnson @JohnsonMNicola
968 Followers 1K Following Director of People & Culture in a Multi-Academy Trust. School Governor. Mum, Step-mum, and raising awareness of Cystic Fibrosis when possible. #NoOneLeftBehind
Peter Hodge @peter100percent
3K Followers 3K Following 100% committed to curing CF for 100% of CF'ers by raising funds for the CFF & advocating at the State & National level. #cff #curecf #cysticfibrosis #cfdad
Jerry Cahill @jcahillYCF
4K Followers 5K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Canadian Cystic Fibro.. @CFAdvocacynow
1K Followers 1K Following Access to CF medication is a moral, ethical & medical imperative. With your help, we're going to make it a legal requirement. Please join our fight. #CFcantwait
Gray Hair CF Club @GrayHairCFClub
2K Followers 4K Following A simple site for CFers with gray hair, CFers who plan to have gray hair, or those who love CFers with gray hair. http://t.co/Rt9N5u9G
Transitions in Cystic.. @TransitionsInCF
64 Followers 169 Following Study investigating the barriers and facilitators of the transition of care among young adults with CF and their parents in Ireland. email: [email protected]
CFRoundtable @CFRoundtable
946 Followers 342 Following We’re a community of adults with CF providing support, info, and encouragement since 1990. Sign up for our free quarterly publication!
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Ali Dillon 💙 NHS @Alidilly
1K Followers 2K Following Proud mum of 2 boys #CysticFibrosis campaigner. Facebook admin of #UKHasKaftrioNow join for up to date news all things #Kaftrio
Margarete Cassalina @MargCassalina
3K Followers 3K Following Just a grandma standing before #X trying to make friends. I’m a speaker & author of 3 books. See my website for more ⬇️ Also, an advocate @CF_FoundationThe main barrier to #CysticFibrosis patients thriving in developing countries is access to essential CF drugs and equipment to manage the disease.
Chronic lung infections and breathing difficulties are common in people with #CysticFibrosis.
Kateryna's story is out. The CF Mom escaped from Ukraine with her daughter Anna. Her story on our Living with cystic fibrosis podcast: …vingwithcysticfibrosis.simplecast.com/episodes/ukrai…
Our founding clinicians paved the way for a brighter, healthier, and happier future of CF patients in MENA and Central Asia.
Did you know that the life expectancy of someone living in the Middle East with cystic fibrosis is roughly 50% of that reported in Western countries?
A decline in the health of cystic fibrosis patients in the Middle East can be attributed to a general lack of centers specializing in the diagnosis and care of patients with CF.
It’s a chilly day 🥶🥶🥶 Sporting my TEAM BOOMER gloves at coaching today. @cysticfibrosis
According to the 2020 Patient Registry Handout, between 2016 and 2020 the median predicted survival age was 50 years – reflecting the continued progress we’re making in the fight against cystic fibrosis. Explore more in the 2020 Patient Registry Handout: on.cff.org/2020-Patient-R…
While countries are getting the access to miracle medicines, #trikafta for Cystic Fibrosis we urge @MoHFW_INDIA to come forward for discussion with @VertexPharma for access to Indian patients. @OfficeOf_MM #Indiastandforcf @aiims_newdelhi
At MECFA, we believe that even small acts of generosity can create lasting change in CF patient's lives, their families, and their communities. Ultimately, transforming the future of patients in the region.
We’re working to empower the next generation of scientific leaders. Gilead's Research Scholars program supports emerging scientists who are exploring innovative basic and/or clinical research in areas of unmet medical needs. Share or apply today.
In this article, we share how MECFA works to improve the lives of #CFpatients in the Middle East through access to better healthcare. bit.ly/3kLxyTv
In this article, we explore MECFA’s #MissionStatement outlining our impact to-date.
MECFA thanks to doctors! shoutout.wix.com/so/19N5tmqDw
Preston Campbell, MD (president and CEO CFF) speaking at MECFA conference in Izmir, Turkey
MECFA programs aid clinicians in the region who are committed to improving quality of life and life expectancy for CF patients in their countries.
Shocking statistic. Average life expectancy for those living with #cysticfibrosis in most MECFA member countries is BELOW 15. BELOW FIFTEEN 15 * 15 * 15 Below 15 years old #globalcfdrugs4all #globalcffamily #cfcantwait #breathe #cfgetloud #hope #MiddleEastCF #cfawareness
Would it shock you to learn that the average life expectancy for CF in most MECFA member countries is below 15?! Compared to the United States which is over 40!
MECFA's organizing principles are three-fold: 1️⃣ Early and Accurate Diagnosis 2️⃣ Training of Clinicians and Allied Health Professionals 3️⃣ Access to Essential Therapies
Did you know that most MECFA member countries do not have access to diagnostics, essential therapies or CF centers?
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