CYSTIC FIBROSIS INDIA @cfindiaofficial
Cystic Fibrosis Trust of India. Official Account of Cystic Fibrosis patient in India. #waiting for miracles #waitingformiraclemedicine New Delhi, India Joined October 2020-
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I just wrote to the CEO of @VertexPharma urging her to stop denying access to lifesaving #cysticfibrosis treatment. Thousands of patients are being left to suffer & die because of Vertex's staggering $326,000 price tag! Take action here: actionnetwork.org/letters/vertex… #RightToBreathe
Today at the Brazilian Cystic Fibrosis Congress a protest was held at the @VertexPharma stand. Participants are demanding that they lower their prices and enable access to #Trikafta in Brazil and around the world. The global CF community is united and demand action now 👊💊🌎
US company @VertexPharma is charging up to $326k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! justtreatment.org/cf-drugs-for-a…
MAY IS CYSTIC FIBROSIS AWARENESS MONTH! Please share & sign the petition! bit.ly/vsupetition #RightToBreathe #Trikafta4All #NoOneLeftBehind
On #WorldHealthDay please join us and sign the petition if you agree that every #cysticfibrosis patient, everywhere should have access to lifesaving drugs. No family should have to watch their loves-ones suffer and die when lifesaving drugs exist. 🔻🔻🔻 actionnetwork.org/forms/cf-drugs…
cysticfibrosisnewstoday.com/news/cf-patien… Some awesome news here! This is what we were campaigning for. A life unlimited by #cysticfibrosis. @VertexPharma MUST make global access its priority. #CFcantwait.
Chelsea Stahl (Spruance) was afraid she wouldn’t get married because of her cystic fibrosis. She shared three approaches that helped her manage her CF while celebrating her dream wedding. on.cff.org/3JelZPc
US company @VertexPharma is charging up to $326k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! justtreatment.org/cf-drugs-for-a…
@PMOIndia @ORDI @Cipla_Global , @SunPharma_Live , @LupinGlobal, @Bharathbiotech Win-win Business Opportunity. Vertex produces and sells CF meds for exorbitant cost. Many from non first world countries suffer and do not have access to these drugs which are out of patients reach.
Thank you to @ChrisMRiches and the @Daily_Express for this excellent coverage of yesterday's hand in @10DowningStreet, calling on the Prime Minister @RishiSunak to urgently review the outdated prescription charges exemption list. @Jeremy_Hunt @SteveBarclay #ReviewTheList
@Cipla_Global , @SunPharma_Live , @LupinGlobal, @Bharathbiotech Win-win Business Opportunity. Vertex produces and sells CF meds for exorbitant cost. Many from non first world countries suffer and do not have access to these drugs which are out of patients #Indianpharamapickitup.
“It is not for the pharma industry to decide who lives and who dies in order to maximise its profits” 👏 Thanks @MedsLawPolicy for this write-up of our Right to Breathe campaign: medicineslawandpolicy.org/2023/02/right-… We demand global access to lifesaving #cysticfibrosis treatment NOW! 🌍
"The cost of the #cysticfibrosis medicine that his 2-year-old started taking was about to climb from just $180 to a whopping $43,600 in 2023... due to a decision by @VertexPharma to slash the amount of financial assistance that it offers" READ MORE👇 statnews.com/pharmalot/2023…
US company @VertexPharma is charging up to $326k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! justtreatment.org/cf-drugs-for-a…
Read: 📚 "One company holds a monopoly on the manufacture and sale of CFTR modulator therapies and is choosing not to make new CF treatments available to people in the developing world through the normal channels..." - that co. is @VertexPharma Link:📲 spotlightnsp.co.za/2023/03/07/ana…
Court battle looms over life-saving drug for #CysticFibrosis as @VertexPharma monopolises the market and sets extremely high prices. We will continue fighting for affordable access to CF medicines until it is available for every patient, everywhere! health-e.org.za/2023/02/21/cys…
“The number of people with CF who need a lung transplant continues to decrease with only 32 lung transplants for people with CF in 2022 and very few on the wait list. Prior to 2019, about 250 individuals received a lung transplant each year on average.” – Whitney Brown, MD
The @CfVests Team is THRILLED to have provided a vest to JOSE living in CUENCA, ECUADOR. This is the SECOND vest CFVWW has donated to Ecuador. Have a vest to donate? Please contact me. All donations are TAX DEDUCTIBLE. 195 vests DONATED to CF patients in 49 COUNTRIES
The @CfVests Team’s Question of the Week: How many vest sessions do you take each day? One? Two? Or has Trikafta allowed you to stop using the vest? Have a vest to donate? Please contact me. All donations are TAX DEDUCTIBLE. 190 vests DONATED to CF patients in 48 COUNTRIES
Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
Tracey Daniels @thecfphysio
2K Followers 3K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
Just Treatment 💊 @JustTreatment
10K Followers 10K Following We campaign to put patients and the #NHS before profit. ✊ #FBNHS
my CF Hero 💙 @myCFHero
1K Followers 2K Following Mother to a 9 year old girl, with the life limiting condition #CysticFibrosis. Fighting for access to medicines #Orkambi #Kaftrio (#Trikafta) #DoTheRightThing
UHB CF Dietitians @CF_dietitians
743 Followers 247 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Nicole Kohr @cystic4real
2K Followers 2K Following new lungs, who dis ♻️🫁 6/14/19 • creator of @fallriskmusical and @coliecreations 🎭📚 • award-winning writer and advocate 🏆
Melodie Ramone @Melodie_Ramone
82K Followers 35K Following Author. Mom to autonomous wild things. Cystic Fibrosis Advocate. Certified Kitchen Witch. A Goddess with a Godzilla twist. I am my mother's savage daughter.
Beam for Cystic Fibro.. @Beam_CF
1K Followers 673 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Katie Jane Marsden RD @KatieJaneM_RD
215 Followers 345 Following Cystic Fibrosis Specialist Dietitian 💜 Dietetic Learner Lead 💙 CF BDA Group Secretary 💚 HCPC registered - All views are my own! She / Her 🏳️🌈
Catherine Meredith @873Meredith
2K Followers 5K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Gayle Pledger @gayle_pledger
530 Followers 597 Following CF mum fighting for all our CF warriors b/c lifesaving drugs should never cost lives. Founder @VertexSaveUs, ‘Right to Breathe’ campaign, working @JustTreatment
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
John Schroeder @cffschroeder
2K Followers 2K Following Advocating for CF tomorrows! All tweets are mine. Einstein: Only two things are infinite, the universe and human stupidity, and I'm not sure about the former.
CF Get Loud @CFgetloud
512 Followers 332 Following A resource for patients and their networks to GET LOUD for access to medications in Canada for cystic fibrosis patients. Speak up to help save Canadians with CF
Ella Balasa @ellabalasa1
657 Followers 1K Following #patientadvocate | speaker | published writer | living with #cysticfibrosis. Antibiotic resistance and patient co-creation in healthcare are my passions
CF Warriors @CFwarriorsUK
836 Followers 414 Following CF Warriors is a charity focussed on promoting sport and exercise to help people with cystic fibrosis to be as fit and healthy as possible.
Brian Servey @servey_brian
841 Followers 2K Following
Patti Tweed @PattiTweed
91 Followers 119 Following Nutritionist | Health & Wellness Advocate | Healthy Lifestyle Supporter | Vision Keeper | Goal-setting Partner | Tennis Lover | Avid Reader | Glam-Ma
sally @sallyhack
145 Followers 828 Following
SIVAREDDY @SIVAREDDY250689
2 Followers 149 Following
Kalpana @102Capricorn
0 Followers 1 Following
Fibrosis_SCIEPublish @Fibrosis_htu
29 Followers 482 Following The official journal of Henan Normal University.
Majid Kirmani @majidkirmani
38 Followers 25 Following Gadget Freak-Quiet-Enjoy minding my own business-🥩Lover-Love-Peace-Humanity 1st
HARSHCHHIBBA @harshchhibba
69 Followers 298 Following
Sanjana Sinha @SanjanaSinha121
24 Followers 68 Following Growth begins when both the input and environment are optimum...🧠#Biotechnologist, working in the fascinating world of #Neuroscience
Sibille Merz @SibilleMerz
31 Followers 96 Following sociologist interested in biomedicine, genomics and public health, especially vis-à-vis race and ethnicity
Abhishek Adoni @adoni_abhishek
0 Followers 6 Following
Cystic Fibrosis KW @CF_KW
572 Followers 184 Following Kitchener-Waterloo and District Chapter (Ontario) covers Cambridge in the south, north to Tobermory, west to Kindcardine, east to Fergus
Amy Sylvis @SylvisCapital
422 Followers 469 Following I help you generate Passive Income through Real Estate 🏡 without the hassles of Tenants, Termites and Toilets | 42 year old living with cystic fibrosis. 🫁 💪
Aneri Gandhi @gandhianeri16
7 Followers 54 Following
Leticia Lemgruber @Le_Lemgruber
51 Followers 282 Following
Jalapeno.83 @83Jalapeno
0 Followers 3 Following
Bülent Karadag @karadag68
5K Followers 2K Following Marmara Universitesi, Profesör, Paediatric pulmonologist. Hayatta herkesten öğrenecek birşeyim var, her anın değerlendirilmesi ve zevk alınması=Mutluluk.
Bhanu Kishore Mandav @mandavabhanu
4 Followers 20 Following
Elenora @elenora_shackel
1K Followers 3K Following
Amar Pawar @amarpawar92
8 Followers 24 Following
Karen Griffiths @queen49e
391 Followers 1K Following
Can @cancilm
11 Followers 233 Following
Narendra Kulkarni @Narendra9541853
1 Followers 27 Following
Cathy Baird @CathyBa38033225
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banuvk1 @banuvk13
1 Followers 6 Following
Amanda Van Zetten @avanzetten91
12 Followers 183 Following
PradeepTanwani @PradeepKTanwani
3 Followers 14 Following
Rohit Sinha @RohitSi08921177
0 Followers 6 Following
AMnike @Augusti80208410
199 Followers 2K Following Pharmacist, Entrepreneur and Pharma Consulting. MD Pillzone Healthcare Ltd
Rakesh Menon @menonragi
7 Followers 103 Following
Rahul Kumar @rahul_603
88 Followers 237 Following
Mark Tremblay @tremblay_mark
34 Followers 159 Following Director of Celebrate Recovery, follower of Jesus Christ. For when I am weak, then I am strong. 2 Corinthians 12:10
CF Vests 4 Life @cfvests4life
300 Followers 2K Following We are a Nonprofit Organization that provides CF equipment to add more mornings to the lives of CF Warriors the world over which was established June 2020.
Accelsiors Cystic Fib.. @AccCysticFibro
24 Followers 148 Following We are on a mission to promote and support the development of future therapies to combat Cystic Fibrosis. #cysticfibrosis
Sameer Desai @SameerDesai1
133 Followers 426 Following
Mark H. Forsyth @MHForsyth
132 Followers 317 Following Microbiologist, interested in signal transduction and evolution of virulence. Oh yeah, birds too!
Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
Tracey Daniels @thecfphysio
2K Followers 3K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
Just Treatment 💊 @JustTreatment
10K Followers 10K Following We campaign to put patients and the #NHS before profit. ✊ #FBNHS
Dr Meghan McGarry @DrMeghanMcGarry
960 Followers 1K Following @UCSF Pediatric Pulmonary Doctor, Cystic Fibrosis & Health Equity Researcher, Mom of 2, Opinions are my own (she/her)
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
Vertex Pharmaceutical.. @VertexPharma
72K Followers 89 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
Peter Hodge @peter100percent
3K Followers 3K Following 100% committed to curing CF for 100% of CF'ers by raising funds for the CFF & advocating at the State & National level. #cff #curecf #cysticfibrosis #cfdad
York Hull Adult CF Ce.. @yorkhullcf
432 Followers 340 Following Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.
my CF Hero 💙 @myCFHero
1K Followers 2K Following Mother to a 9 year old girl, with the life limiting condition #CysticFibrosis. Fighting for access to medicines #Orkambi #Kaftrio (#Trikafta) #DoTheRightThing
UHB CF Dietitians @CF_dietitians
743 Followers 247 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Salty AF 🫁♻️ @saltylungs
14K Followers 2K Following Physician Scientist in industry. Queer AF. I have 3 boys and a cute 🐈⬛. 2x dbl lung transplant recipient. she/her #cysticfibrosis #doubledocs 🌈🏳️🌈
beth Vanstone @bethdenniss
467 Followers 246 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Nicole Kohr @cystic4real
2K Followers 2K Following new lungs, who dis ♻️🫁 6/14/19 • creator of @fallriskmusical and @coliecreations 🎭📚 • award-winning writer and advocate 🏆
Amar Pawar @amarpawar92
8 Followers 24 Following
JINDAL STEEL @JSPLCorporate
62K Followers 273 Following Jindal Steel - The Steel of India https://t.co/i2WvNiEMT8
JSW Steel @jswsteel
90K Followers 77 Following JSW Steel, a leading integrated steel company is part of the diversified, USD 23 Billion JSW Group.
Charlotte Anderson @CharlotteAnd1
383 Followers 612 Following 4th Year Dietetics Student @ Newcastle University | Interested in #publichealth, #maternalnutrition and #militarynutrition | all views are my own
Paed Resp CNS & PNA @PaedRespNurse
813 Followers 2K Following Paediatric Respiratory Nurse Specialist #NMP #PNA @uhbtrust Introvert, Geek, Lover of Naps, Daydream Believer, Time Traveller Wannabe.
SWFTDietitians @DietitiansSwft
460 Followers 520 Following We are a team of dietitians based across Warwickshire - all views are our own. For medical advice please contact your GP/ HCP
nitish @untrammeledmind
31 Followers 102 Following
Project Fizzyo @FizzyoCF
687 Followers 755 Following Using tech and games to improve #physiotherapy for children and young people with #CysticFibrosis funders: @RosetreesT @CFTrust @UCLPartners
June Crowley @JuneCrowley11
13 Followers 304 Following
Jamie Stephenson 🦜.. @ssnjimb
2K Followers 5K Following I'm Jamie I suffer from #Cysticfibrosis I'm #openlyautistic They/Them 🌈 love Music/vintage computers, #CureCF #Supportthestrikes. Only Follows Back Real PPL
Lucy Craig @CraigLucy
113 Followers 372 Following Paediatric Clinical Lead Physiotherapist and CF specialist at Royal Alexandra Children's Hospital, Brighton. Views are my own.
Elon Musk @elonmusk
181.7M Followers 585 Following
Lesley Porter @Porter4Lesley
205 Followers 849 Following Mum to CF warrior Frankie and ADHD Warrior Toni #Kaftrioforall
Leticia Lemgruber @Le_Lemgruber
51 Followers 282 Following
4DMT @4DMolecular
180 Followers 56 Following Developing the best Adeno-Associated Vectors to meet unmet needs and unlock the true potential of gene therapy space. Check us out at http://t.co/TMesTiEIl7
Lisa Stackhouse @lmstackhouse
23 Followers 114 Following Cystic Fibrosis, Double Lung Transplant Recipient - Oct 2015, ToyPoodleLover :)
Rebecca Calthorpe @DrRCalthorpe
177 Followers 290 Following East Midlands Paediatrics Trainee. CARDS-CF Clinical Research Fellow investigating gut symptoms in CF
svaidy @svaidy2
52 Followers 121 Following
Afaf Kasassbeh @KasassbehAfaf
34 Followers 85 Following وأما حُزني فَسرمدٌ يا عُمر ،لا يبرحُ من قلبي حتى يختار الله لي دارك التي أنت فيها مُقيم وإلى الله أشكو وهو خير الحاكمين 💔
NOTTO @NottoIndia
4K Followers 296 Following Official account of National Organ and Tissue Transplant Organisation, MoHFW, Government of India.
CARDS-CF @CARDSCFresearch
151 Followers 172 Following A comprehensive approach to the relief of digestive symptoms in cystic fibrosis. CARDS-CF research study.
Melodie Ramone @Melodie_Ramone
82K Followers 35K Following Author. Mom to autonomous wild things. Cystic Fibrosis Advocate. Certified Kitchen Witch. A Goddess with a Godzilla twist. I am my mother's savage daughter.
Azhar @azharagwaan11
15 Followers 286 Following
Abhinav jha @Abhinav91938416
3 Followers 16 Following
Nothing @nothing
868K Followers 4 Following Making tech fun again. Tag #withNothing for the chance to be featured. @nothingsupport is here to help.
Bestofhealthcare.com @bestofhealth1
374 Followers 3K Following https://t.co/TWr4erjEuB wishes to make a difference in all lives. To give back, enlighten, and encourage all to live their healthiest and happiest lives always.
Robyn Cohen MD,MPH @RobynCohenMD
2K Followers 644 Following Pediatric pulmonologist @the_BMC #asthma #sicklecelldisease researcher, advocate, ally, unprepared mom of teen daughters, proud wife of @jserdoc. She/her, #BLM.
Hopkins CF Center @hopkinscf
876 Followers 1K Following We optimize the quality of life for those with CF, perform research to develop new therapies and train the next generation of care providers
Salt In My Soul @SaltInMySoulDoc
366 Followers 411 Following Documentary based on the best-selling memoir by Mallory Smith, who lived life to the fullest while battling #CysticFibrosis. Directed by Will Battersby.
Emily's Entourage @EmilysEntourage
2K Followers 2K Following Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
Terri Laguna MD MSCS .. @terrilaguna
1K Followers 1K Following Latina pediatric lung doc, fierce advocate for equity, diversity and inclusion. Strong and powerful women rock. Science saves lives. My opinions are my own. 🌈
Susanna McColley MD (.. @SusannaMcColley
2K Followers 2K Following Professor of Pediatrics @NUFeinbergMed @LurieChildrens, @NUCATSInstitute, Editor-in-Chief, Pediatric Pulmonology. CF, Child Health, Health Equity. Tweets=mine.
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Dr Trust @drtrustisin
624 Followers 2 Following Trust What's Best For Your Health. Advanced Features | Smart Technology | Precise Monitoring USFDA & CE Approved Products
Natali @Natali50841361
39 Followers 97 Following Mother of daughter with cystic fibrosis. My dream is Trikafta..
CF Society Org @CFSocietyOrg
375 Followers 45 Following CF Society is here to help battle Cystic Fibrosis (CF). We can be reached at [email protected]
Team Michael Moeschl @TeamMikeMoeschl
607 Followers 2K Following Help find a Cure for Cystic Fibrosis, for kids and adults with Cystic Fibrosis. Donate to the Cystic Fibrosis Foundation! I'm Mike's mom, his biggest fan!
Sean Setterfield @seanset
835 Followers 270 Following Married to the lovely Jo, father to 3 daughters. Old Mod - music, cycling, footie #COYI #keepsonburning #fireandskill
ANSHUL SHARMA @ANSHULS12913264
2 Followers 26 Following
Gates Foundation @gatesfoundation
2.1M Followers 1K Following Partners of Human Potential | When you get the right partners together, the potential is endless.
US company @VertexPharma is charging up to $326k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! justtreatment.org/cf-drugs-for-a…
MAY IS CYSTIC FIBROSIS AWARENESS MONTH! Please share & sign the petition! bit.ly/vsupetition #RightToBreathe #Trikafta4All #NoOneLeftBehind
@VertexPharma @SCCConsortium Beware @SCCConsortium - Vertex have form for befriending vulnerable communities before revealing extortionate drug prices that leave 000’s of them to die. You only need to look at #CysticFibrosis 😢 #GlobalCFFamily #NoOneLeftBehind
@Cipla_Global , @SunPharma_Live , @LupinGlobal, @Bharathbiotech Win-win Business Opportunity. Vertex produces and sells CF meds for exorbitant cost. Many from non first world countries suffer and do not have access to these drugs which are out of patients #Indianpharamapickitup.
US company @VertexPharma is charging up to $326k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! justtreatment.org/cf-drugs-for-a…
Court battle looms over life-saving drug for #CysticFibrosis as @VertexPharma monopolises the market and sets extremely high prices. We will continue fighting for affordable access to CF medicines until it is available for every patient, everywhere! health-e.org.za/2023/02/21/cys…
The @CfVests Team’s Question of the Week: How many vest sessions do you take each day? One? Two? Or has Trikafta allowed you to stop using the vest? Have a vest to donate? Please contact me. All donations are TAX DEDUCTIBLE. 190 vests DONATED to CF patients in 48 COUNTRIES
“We're not just asking for a price reduction, we're asking for universal access so everyone can be treated. It is not for the pharmaceutical industry to decide who lives and who dies in order to maximize its profits” 👏 @PloegSusana @GTPI @VertexPharma outraspalavras.net/outrasaude/fib…
thehindubusinessline.com/news/national/… Dear @narendramodi ji @mansukhmandviya ji @PMOIndia 🙏 Looking forward to your help for our kids 🙏
“They say it’s a miracle drug, but it’s not a miracle if it is not available to everyone who need it,” said Shwetha Sree, who also lives in Hyderabad. seattletimes.com/nation-world/m… @CFAware @cftrust @CFGT_Edinburgh @CFbites #trikaftanow #kaftrio #breathe #health @CFF_Washington
Cystic fibrosis patients pitch for life-saving drugs that are currently unavailable in India moneycontrol.com/news/business/…
Parents living a nightmare. A child begging “I want to go home”. This is the reality for 000’s of families around the world w/o access to #Trikafta. It’s not too late @VertexPharma to provide access for all but we need actions not empty words. Petition: bit.ly/vsupetition
CF Patient Advocates Launch Global Campaign Targeting Costs of Vertex’s Drugs globalgenes.org/raredaily/cf-p… @VertexSaveUs @JustTreatment @MarcCotterill @Bells50587538 @JoleneinAfrica @TanyaKoorts @Rida_ZA @CFAware @g_urte
Front page coverage of our campaign for global access for #cysticfibrosis modulator therapies in @ThePeoplesPost South Africa The first of many around the world 💜 @News24 @strawfie @JoleneinAfrica @Rida_ZA @MarcCotterill @Bells50587538 @TanyaKoorts #Trikafta4all #Trikafta
Vihaan is 5 years old and has cystic fibrosis. If he lived in the U.S., he would soon be eligible for a powerful new drug that has been transforming lives. But he lives in India, and the drug's maker is not making it available in poorer countries. nyti.ms/3lhqNLB
In celebration of the progress we’ve made against cystic fibrosis, the Boomer Esiason Foundation is partnering with Kindbody to launch an #IVF Assistance Fund to help people with CF build the families of our dreams! kindbody.com/kindbody-and-b… via @Kindbody & @cysticfibrosis
Vertex pricing under fire—again—as activists press 4 governments for Trikafta generics fiercepharma.com/pharma/vertexs… #cysticfibrosis #cfaware #health #trikaftaparatodos #trikaftaja
to expand access to pricey cystic fibrosis treatments, a coalition is petitioning 4 governments — South Africa, India, Brazil, and Ukraine — to make it possible to obtain generic @vertex CFTR modulators. This underscores the growing global battle over equal access to medicines.
STAT+: Angry at Vertex pricing of cystic fibrosis drugs, families in four countries seek to override patents trib.al/BM763RB
#cysticfibrosis drugs are still not widely available in #Turkey. 5 YEARS AGO - despite no immediate intention to supply there - @VertexPharma blocked cheaper generics entering the country. How many young lives have been lost as a direct result of that action? Beyond words 😢
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