cf/Aware @CFAware
All about Cystic Fibrosis. Always refer to your team for specialist advice. Oh and we don't always agree with RTs. cfaware.co.uk Joined February 2012-
Tweets80K
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Followers13K
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Following9K
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Likes11K
The consultation on the proposed benefits change is now live. Please have your say and tell the Government about it , follow the link, please SHARE. gov.uk/government/con…
▶️Three weeks until petition closes ▶️No recent updates ▶️Sign/share for the next generation of #cysticfibrosis patients #NoOneLeftBehind petition.parliament.uk/petitions/6506… @CFAware @VarnalsVintage @RacheyCole @liammchugh1961 @InfamousGreggyG @myCFHero @CFcarer @evergreennebs
Wishing everyone running the #LondonMarathon today the very best and a very big cheer to all those running for #TeamCF
SACFA and it's affiliated doctors make announcement on #Trikafta in South Africa The legal case against Vertex Pharmaceuticals in South Africa is still proceeding. Possibly only a third of SA #cysticfibrosis patients will benefit from this deal. sacfa.org.za/2024-trikaftan…
Great to see the James Lind Alliance refresh for Cystic Fibrosis getting a shout out from @paula_sommer at #CFGI24. Research priorities for CF jointly agreed by people with CF and clinicians. @CFAware @questionCF @cftrust @CF_Foundation
Update on Creon availability. 50000 packs of Creon 25000 expected Thursday (18th ) and Friday 19th to be sent to the wholesalers. This is approximately ¼ of usual demand. Creon 10000 uncertain on delivery dates but hoping in the next couple of weeks.
‘I had to do an 80-mile trip’: the stress caused by UK drug shortages | Health | The Guardian theguardian.com/society/2024/a…
Arm skin patch system could warn of organ rejection - BBC News bbc.co.uk/news/health-68…
#cysticfibrosis @cftrust @CF_Foundation @CFCanada @AMFQMX @mecfassoc @FibrosisQuistic @AFQMALAGA @fqasturias @CFAware @CFCalgary @cf_care @liammchugh1961 @RacheyCole @CFcarer @kifder @Rida_ZA @JoleneinAfrica @TanyaKoorts @vihaan_cfindia @DMoKreis @DrMeghanMcGarry @OlgaGurgula
Fewer transplants are taking place and waiting times have grown... So has the drive to make us all organ donors unless we opt out worsened the crisis? | Daily Mail Online dailymail.co.uk/health/article…
Cystic fibrosis sufferer to run half-marathon for her lost sibling | UK | News | Express.co.uk express.co.uk/news/uk/187899…
Sweat study in CF finds room for improvement in CFTR modulators cysticfibrosisnewstoday.com/news/sweat-stu…
In CF, stopping inhaled therapies while on Trikafta doesn't mar mucus clearance cysticfibrosisnewstoday.com/news/cf-stoppi…
Impact of CFTR Modulation on Pseudomonas aeruginosa Infection in People With Cystic Fibrosis | The Journal of Infectious Diseases | Oxford Academic academic.oup.com/jid/advance-ar…
A nurse-led memorial event for families bereaved by cystic fibrosis | Nursing Times nursingtimes.net/roles/speciali…
Very grateful to those that have completed my survey or shared it - it will close in a couple of weeks so any further help in boosting response numbers would be much appreciated. Particularly keen to hear from more people with CF & carers! 🙏🏻 #CysticFibrosis #MRI
Very grateful to those that have completed my survey or shared it - it will close in a couple of weeks so any further help in boosting response numbers would be much appreciated. Particularly keen to hear from more people with CF & carers! 🙏🏻 #CysticFibrosis #MRI
New paper on phage therapy out now! Fantastic work by Eleri. How can we treat pan-resistant Pseudomonas aeruginosa? With phages. Lungs are harder to treat than other organs but phage steering successfully used to resensitise and then eradicate infection. nature.com/articles/s4146…
Let's clean the air in medical settings. This will help to protect patients from all airborne diseases and also help those with #asthma #cysticfibrosis and all #clinicallyvulnerable patients petition.parliament.uk/petitions/6545… #health @CFAware @asthmalunguk @AprilMay001 @asthmalungscot
Vertex meets own cystic fibrosis record with next-gen treatment fiercebiotech.com/biotech/vertex…
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Andrew @Andyassert
645 Followers 195 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
CF News Today @CFNewsToday
5K Followers 2K Following We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.
Normal Life @NormalLife7
2K Followers 300 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Nick Talbot @CF_vs_Everest
2K Followers 946 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Holly Seay @LifeAsHolly
957 Followers 375 Following your local stay at home dog mom, trophy wife, and diet coke addict. ~cystic fibrosis & colon cancer fighter~ jesus follower. IG: hollyseay
CF inpatient unit -Pe.. @PearceWardMFT
740 Followers 497 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
Alan Smyth @AlanRSmyth
628 Followers 181 Following Paediatrician, Clinical Researcher, Cyclist and Pilot. The views expressed are my own
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
UHB CF Dietitians @CF_dietitians
743 Followers 247 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Heather @C_F_Doc
490 Followers 254 Following Consultant at Manchester Adult Cystic Fibrosis Centre, interested in all things CF especially home care, adherence and unusual bugs
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
nicola @CFmskphysio
247 Followers 605 Following Musculoskeletal physiotherapist- Manchester Adult Cystic Fibrosis Unit. Treasurer of the acptmd @JawPhysio. Early careers researcher pathway. Views my own.
n4l2p4fr8o @gkngw6iwpvc
3 Followers 245 Following
Kathy C @KCPoco
6 Followers 153 Following
Anna Zolin @AnnaZolin
8 Followers 73 Following
Stephanie Tasayco @tasaycohu
124 Followers 248 Following Pancreatóloga. Gastroenteróloga. Unidad de Fibrosis Quística. Unidad de Inmunodeficiencias Primarias del adulto. Hospital Universitario Vall d'Hebron.
The TWells Lab @TheWellsLab
96 Followers 49 Following Dr Timothy Wells laboratory investigating gram-negative host-pathogen interactions at the Frazer Institute, the University of Queensland.
lyn nixdorf @nixdorf_lyn
10 Followers 96 Following
Zoyaa @LalaZoyaa
0 Followers 14 Following
Cody Thomas @CodyThomas79444
2 Followers 17 Following
Chris van der Gast @ChrisvanderGast
398 Followers 299 Following Professor of Microbiomics. Honorary Consultant Microbiologist. #Firstgen. Gut & Lung Microbiomes in Cystic Fibrosis. Microbial Ecology. Ex2nd/BackRow🏉
🔔🕊Leela🙏💕 @LeelaAlvarez
911 Followers 2K Following 🙏 Whole Earth Entirety Health Safety Enforcement & Healing Abounds 🔔Become a Field Messenger Join the Restoration of our Earth at United Network News 🕊🔔
Janica Leppanen @LeppanenJa54487
25 Followers 278 Following
Adrian 🇨🇦🇭�.. @adrianmk
432 Followers 933 Following GR/PR in life sciences. Passionate about improving care for rare diseases like #cysticfibrosis. Father of 2. Tweets & views are my own.
Retta Vialpando @rettaLV
142 Followers 1K Following Disabled former journalist trying to heal a broken body. Trying to learn, share my experiences with a broken health care system. #pwME #hEDS #longCovid
Rick Geremia @RickGeremi56076
59 Followers 164 Following
Molly @mollyyellen99
3K Followers 3K Following PhD student interested in clinical decision-making & passionate about nurses wellbeing💙 Currently conducting my final study, please take part if you can☺️
Strain-Pabotoy Team @keysrealtorteam
51 Followers 100 Following
Nancy Wozencraft @nancyw1985
188 Followers 705 Following
Chris Perkins @tazperks
248 Followers 1K Following Father, darts/rugby player, music lover, drinker and employee. Green party member.
Mahasen Mohamed💗 @MahasenMohamed_
7 Followers 78 Following Aseel🐣💛 لا اله الا انت سبحانك اني كنت من الظالمين 💗
Jean Leah @JeanLeah15
25 Followers 98 Following
Mike Wadehn @MWadehn7534
116 Followers 606 Following
Fatimah Khathun @fatimah_rd2b
1K Followers 2K Following #RD2B | Final Year BSc Dietetics Student & Former President Nutrition and Dietetics Soc @LeedsBeckett | #150Leaders ‘22 | Views are my own 💫
Emily potter @Emilypotte47677
5 Followers 13 Following
Adventures_in_Avenrie @Adv_in_Avenrie
17 Followers 26 Following Welcome to Adventures in Avenrie, where the magic of storytelling meets the power of resilience. 📚✨ Learn more at our website:
Make mine a treble @trebletime23
222 Followers 671 Following We never win at home and we never win away......
Mumhan Abú @SportsAnon7
52 Followers 685 Following #dabears #bullsnation #mancity #nextstartshere #blackhawks #munsterrugby @irishrugby #GoIrish☘️ #foreverfreo
Tim Devine @TimDevine3
134 Followers 306 Following
3CF @3CF_ie
257 Followers 492 Following We are the Cork Centre for Cystic Fibrosis (3CF) at the Cork University Hospital. Updating our patients, the public, and researchers on our work
Earth Admirals 🌎 @CherylKimNYC
607 Followers 3K Following
Rachel Williams @Rachel250985
46 Followers 263 Following
Patty @PattyMoAuthor
57 Followers 263 Following Writing a nonfiction book about: a stunning medical breakthrough, a child cut off from lifesaving meds when Russia bombs Ukraine, and heroes in our midst.
Amanda Van Zetten @avanzetten91
12 Followers 183 Following
English Bulldog Lover.. @eng_bulldog11
463 Followers 2K Following welcome to @eng_bulldog11 we share daily @eng_bulldog11 contents Follow us if you really love @eng_bulldog11
Sanet Bharara @sanet_bharara
3 Followers 29 Following
Kimberly Dillard @KimberlyD94766
8 Followers 84 Following
Nate Fitch, PhD @docfitch480
4K Followers 4K Following Writer of Horror Fiction // Biomedical Scientist // 🖋️@getfreewrite author advocate & @Inkitt published author
Rini Bhatnagar @BhatnagarRini
92 Followers 246 Following PhD candiate at University College Dublin | Irish Comparative Outcome Study of Cystic Fibrosis (Part 2)
Fibrose Kystique CA @fkcanada
179 Followers 101 Following Organisme national sans but lucratif engagé dans la recherche d’un traitement curatif contre la fibrose kystique au Canada et dans le monde. English: @CFCanada
Tricia Morris @TriciaM43462252
12 Followers 228 Following A person who believes Americans deserve better!
Amalia Miro alfaro @alfaro_miro
12 Followers 152 Following
Live Tv Service @Fire_stick69
93 Followers 161 Following I provide best Uk USA based subscription all world provide Not buffring and rolling Everything is ok Good working https://t.co/LFt5RSeBE9
Tinkler @Tinkler51030821
9 Followers 33 Following
_laurenclayton_ @laurenclayton__
75 Followers 144 Following Respiratory physiologist 🫁 | PhD researcher @UoPSportScience - Exercise physiology in cystic fibrosis during the modulator era 👩🏼⚕️🫁🚴🏼♀️ @CFwarriors
Carlye Bickings @CystikPiggy4
3 Followers 8 Following
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Andrew @Andyassert
645 Followers 195 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
CF News Today @CFNewsToday
5K Followers 2K Following We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.
Holly Rosanna 🌻 @hollyrosanna
4K Followers 427 Following 3rd yr Student OT 💚 lived experience: Cystic Fibrosis, ICU, Double lung transplant 02/2015 🫁
Normal Life @NormalLife7
2K Followers 300 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Nick Talbot @CF_vs_Everest
2K Followers 946 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Holly Seay @LifeAsHolly
957 Followers 375 Following your local stay at home dog mom, trophy wife, and diet coke addict. ~cystic fibrosis & colon cancer fighter~ jesus follower. IG: hollyseay
CF inpatient unit -Pe.. @PearceWardMFT
740 Followers 497 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
Alan Smyth @AlanRSmyth
628 Followers 181 Following Paediatrician, Clinical Researcher, Cyclist and Pilot. The views expressed are my own
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
UHB CF Dietitians @CF_dietitians
743 Followers 247 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Heather @C_F_Doc
490 Followers 254 Following Consultant at Manchester Adult Cystic Fibrosis Centre, interested in all things CF especially home care, adherence and unusual bugs
Jean Leah @JeanLeah15
25 Followers 98 Following
Make mine a treble @trebletime23
222 Followers 671 Following We never win at home and we never win away......
Tim Devine @TimDevine3
134 Followers 306 Following
3CF @3CF_ie
257 Followers 492 Following We are the Cork Centre for Cystic Fibrosis (3CF) at the Cork University Hospital. Updating our patients, the public, and researchers on our work
Rachel Williams @Rachel250985
46 Followers 263 Following
English Bulldog Lover.. @eng_bulldog11
463 Followers 2K Following welcome to @eng_bulldog11 we share daily @eng_bulldog11 contents Follow us if you really love @eng_bulldog11
Kimberly Dillard @KimberlyD94766
8 Followers 84 Following
Sanet Bharara @sanet_bharara
3 Followers 29 Following
Nate Fitch, PhD @docfitch480
4K Followers 4K Following Writer of Horror Fiction // Biomedical Scientist // 🖋️@getfreewrite author advocate & @Inkitt published author
Tinkler @Tinkler51030821
9 Followers 33 Following
_laurenclayton_ @laurenclayton__
75 Followers 144 Following Respiratory physiologist 🫁 | PhD researcher @UoPSportScience - Exercise physiology in cystic fibrosis during the modulator era 👩🏼⚕️🫁🚴🏼♀️ @CFwarriors
Selvarani Subbarayan @selvs11
215 Followers 1K Following Medical Doctor, Researcher, Interested in Ageing research, Drug safety, Clinical Trials, Real World Evidence and Systemic reviews
Kelly McPartland Borz.. @KMMcPartland
105 Followers 622 Following Non-profit professional, diabetes and cystic fibrosis advocate, amateur runner, Bowie fanatic.
Gloria Watkins @GloriaWat0406
131 Followers 272 Following
Rachel a Hampton @Rachelanne6981
24 Followers 68 Following 41. Leaving Cystic Fibrosis and all the good stuff that comes with it. Meeting people to talk to about adults yet and not having a support group
...GAZ... @00_gaz_00
755 Followers 779 Following Hiding in the shadows like a shit vampire..failed actor,failing comedian #GingerProblems
Sally Evans @Sally_Evans19
59 Followers 111 Following Cystic Fibrosis Nurse Specialist at Birmingham Women’s and Children’s Hospital. All views are my own.
Lucy James @lucy_jamesRD2B
46 Followers 114 Following Final year Nutrition and Dietetics BSc - University of Chester🎓 Hockey Player 🏑 #RD2B
HARSHCHHIBBA @harshchhibba
69 Followers 298 Following
Paige Burvill @BurvillPaige
213 Followers 543 Following Registered Dietitian working in Paediatrics. South Wales 🏴. she/her 🏳️🌈. Views my own.
Mehdi Amiripanah @MehdiAmiripanah
73 Followers 137 Following کاملا شخصی و در ضمینه های همه مردم دنیا برای آرامش و راحتی فکر
JODIE MORGAN @CFCHAMP12
34 Followers 119 Following You never know how strong you are , until being strong is the only choice you have 💫
Alys - CF Study @CFstudy23
22 Followers 79 Following Are you an adult woman with Cystic Fibrosis? Would you be willing to take part in a research project understanding the expereinces of taking Kaftrio? Please DM!
Brittany Magner @Brittan99179933
10 Followers 47 Following
Lightheaded @Lightheaded_ZA
20 Followers 155 Following We believe in creating meaningful experiences, either through the artists and businesses we represent or the content we create. Fortune favours the Bold.
freya @freyapudney
5 Followers 56 Following
PhagesIPR @PhagesIPR
1K Followers 3K Following Phages @DrAtunga's Lab Phages for AMR, biocontrol, decon & display [email protected] or [email protected].
Stephen Partlett @StephenPartlet5
4 Followers 17 Following
FiguringItOut223 @MoreTays
5 Followers 17 Following I Creat Writing Journals aslo Ebooks Plannerd I want to bring more awareness to Cystic Fibrosis https://t.co/2Kg9TZ9DT8…
HALUK @halukipek
89 Followers 432 Following
LouisaLouiseHiggins �.. @lewizaaaah
93 Followers 154 Following 🗣️I am transphobic !! I have a fear of men in women’s safe places.
Zoe Phillips @zoephilps
28 Followers 275 Following
Katherine Ochoa @Katisuka86
6 Followers 78 Following
Mark Tremblay @MarkTre88197226
48 Followers 136 Following 50 year old sober biker with Cystic Fibrosis liv’in out loud
Katie @Katiecros11
4 Followers 102 Following
Maude Perrine -Writer.. @MaudePerrine
3K Followers 3K Following Author of 'Love you' & audiobook narrator 📚🎧 Cystic fibrosis & diabetes warrior 🫁💜 Spoonie🥄Married 💍 #cysticfibrosisawareness
CF Vests 4 Life @cfvests4life
300 Followers 2K Following We are a Nonprofit Organization that provides CF equipment to add more mornings to the lives of CF Warriors the world over which was established June 2020.
Susanna McColley MD (.. @SusannaMcColley
2K Followers 2K Following Professor of Pediatrics @NUFeinbergMed @LurieChildrens, @NUCATSInstitute, Editor-in-Chief, Pediatric Pulmonology. CF, Child Health, Health Equity. Tweets=mine.
Sanjana Sinha @SanjanaSinha121
24 Followers 68 Following Growth begins when both the input and environment are optimum...🧠#Biotechnologist, working in the fascinating world of #Neuroscience@CFAware Hope they’re publishing all the psych side effects details.
@CFAware I love a good clinical trial. I’m doing one at the minute. “A Phase 3, Open-label Study Evaluating the Long-term Safety and Efficacy of VX-121 Combination Therapy in Subjects With Cystic Fibrosis”.
Today my CF Warrior turned 19!! Her health is outstanding. Here’s to many more happy healthy birthdays 💜@cftrust @CFAware #CysticFibrosis
On Friday 24th November at 5:37am we welcomed our beautiful daughter into this World. Emilia Rose, you have completed our family. Forever grateful to IVF for making all our dreams come true, and to my wonderful wife for giving me our son and daughter 💫
Wonderful ❤️
Doctors told me I would be dead by 30 and never have kids - but after taking a miracle drug I'm now a 33-year-old mother and in the best shape of my life | Daily Mail Online dailymail.co.uk/health/article…
@CFAware Same here this drug saved my life! I still have a very low LF but remained stable.. 👌
One of our very own founders, Charlotte, is now 12 years post her life saving #DoubleLungTransplant. Charlotte was diagnosed with #CysticFibrosis at 3 weeks old and needed a #transplant at just 17 years old to save her life. Charlotte shares her story ❤️ m.facebook.com/story.php?stor…
My 3rd #kaftrio anniversary! what a drug! Highlights since have been 1. Cycled 9,000 miles in 2021 2. Complete l’etape du tour 2022 3. Ran London Marathon in 2022 in a time of 3:42 4. Ran London Marathon in 2023 with a bad knee injury in 3:51 @cftrust @CFAware #cysticfibrosis
Smashed the £500 target for the @cftrust today 🥳🥳🥳 @CFAware justgiving.com/fundraising/ki…
To conclude our #LungMonth we must pay our own tribute to George. Without a #LungTransplant, George, who was part of our group, would have passed away 3 years prior, without her precious donor and their courageous family who said 'yes' to #OrganDonation ❤️ m.facebook.com/story.php?stor…
After 2 days racing at Whilton Mill he came p3 and bagged himself a trophy Photo on left by Dale Baldwin photography. Fins looking for sponsorship if anyone knows where we start @cftrust @strawfie @CFAware #demontweeksmotorsport @CFwarriorsUK
@abihalstead @cftrust @CFAware @CF_Foundation Just purchased your book as I look after my niece aged 13 with CF. She’s currently dealing with the teenage years of accepting CF so will be useful to read your perspective 😊
Scafell, completed it mate. With #Kaftrio and sheer determination I made it with a 70% lung capacity. Wild conditions at the summit earlier today.
@Elizabe46045399 @cftrust @CFAware @CFwarriorsUK Tell her that Pippin liked it too!
@adamfeuerstein @CFAware @pharmalot Another example of what CF would look like in the UK without the #NHS
Last race of the year and he came first with a 53 second lead #proudmomma @cftrust @strawfie @CFAware @redbullracing @Max33Verstappen
So... I've got some news! The reason I've been quiet recently. #organdonation #DoubleLungTransplant I am extremely lucky & will always be thankful to my donor. For their act of pure kindness during their darkest hour! I've shared some of my journey below. @CFAware @cftrust
@Ellyblom @AngelaRayner Unpaid carers dont even get minimum wage rate, plus their pathetic weekly 'allowance' is denied them once they reach pension age!
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