Search results for #kaftrio
The day of diagnosis with Cystic Fibrosis in the first pic to the second one turning 6. Darcey’s sweat Chloride result was 101 on 13 April 2018, roll on to today’s result of 15. A sweat Chloride test of under 40 is normal!! Here’s to a life unlimited 🎉🥳💛 #kaftrio @cftrust @cf
Cela fait de nbreux mois que le ministre me répond qu’il va «examiner» le remboursement du #Kaftrio pour des patients atteints de #mucoviscidose hors delF508. C’est pourtant une question de vie et de mort…Et les patients en bénéficient en France par ex. 7sur7.be/belgique/je-ne…
@ChrisMRiches @VertexPharma @NICEComms @NHSEngland @cftrust @VictoriaAtkins @NHSuk @RishiSunak If my daughter Sarah #CF had not had access to the wonder drug #Kaftrio, her chest would never have been good enough to have the #liver #transplant, which saved her life.
Love these @GoZwift @wattbike @Strava sprints versus myself Boom 💥 #cysticfibrosis #kaftrio
express.co.uk/news/uk/189309… Great to see how some p/w #cysticfibrosis are doing on @VertexPharma drug #kaftrio. See @NICEComms … it is a drug worthy of being available on @NHSEngland ! @cftrust @VictoriaAtkins @NHSuk @RishiSunak
CF modulator therapies like #kaftrio have improved the lives of many #cysticfibrosis patients already. We want the Government to ensure access to these life changing drugs. PETITION petition.parliament.uk/petitions/6506…
Que no se nos olvide que la lucha continúa. Santi, por fortuna, sigue sus terapias y en breve su vida experimentará una revolución con la tan ansiada llegada del #Kaftrio. Seguiremos informando.
Que no se nos olvide que la lucha continúa. Santi, por fortuna, sigue sus terapias y en breve su vida experimentará una revolución con la tan ansiada llegada del #Kaftrio. Seguiremos informando.
#CysticFibrosis : 'Kaftrio drug changed our lives,' say family bbc.co.uk/news/uk-englan… @BBCNews #Kaftrio
@VictoriaAtkins Whole heartedly support the ban on cigarettes 👏 and the damage they create. @VictoriaAtkins - could you share your position to ensure patients born with lung issue #cysticfibrosis continue to be able to access life saving medicines #Kaftrio #Orkambi - some face refusal .
It would be incomprehensible to deny #LifeSavingDrugs4CF to some #cysticfibrosis patients based on NHS contract renewal dates. #Kaftrio has given @myCFHero normal function / a future. We must dothe same for all patients. @VictoriaAtkins Will you #LetThemLive? @Daily_Express
It would be incomprehensible to deny #LifeSavingDrugs4CF to some #cysticfibrosis patients based on NHS contract renewal dates. #Kaftrio has given @myCFHero normal function / a future. We must dothe same for all patients. @VictoriaAtkins Will you #LetThemLive? @Daily_Express
Nell and her brother both have #cysticfibrosis Thanks to #Kaftrio she is achieving her goal of running the #LondonMarathon DONATE in aid of @cftrust ⬇️ 2024tcslondonmarathon.enthuse.com/pf/nell-summer… #LondonMarathon2024
Blustery Sefton Coast Run Lungs 🫁 still feeling good & pace creeping back up Very happy chappy Spared you the face today 😉 @maddog10k #maddog10K #sunnysouthport #kaftrio
Best run in weeks pace wise and 🫁 wise 10s/K faster than a week ago, same route and 20s/K faster than two weeks ago I enjoy these good days ❤️❤️ #cysticfibrosis #kaftrio
Fantastic achievement thanks to #cysticfibrosis community 👏👏 only 72 more needed! This study will provide invaluable info about impact of #Kaftrio therapy and the potential to reduce burden of #treatment by being able to stop some of them. Great +ve strides made for PWCF
Fantastic achievement thanks to #cysticfibrosis community 👏👏 only 72 more needed! This study will provide invaluable info about impact of #Kaftrio therapy and the potential to reduce burden of #treatment by being able to stop some of them. Great +ve strides made for PWCF
The magic number 72 to complete this invaluable study #CFSTORM please share & help inform individuals with #cysticfibrosis and their families 🙏 This #research will tell us much more about the impact of #modulator therapy with #Kaftrio & help inform future care management
The magic number 72 to complete this invaluable study #CFSTORM please share & help inform individuals with #cysticfibrosis and their families 🙏 This #research will tell us much more about the impact of #modulator therapy with #Kaftrio & help inform future care management
Turns out the interview I gave back in December led to an article! Only found out cos I was googling myself 😂 It’s behind a paywall sorry. Same situation as then, except Clay has now been on #kaftrio for a few months and he’s doing brilliantly on it. thetimes.co.uk/article/life-s…
‘ETI’ is a much better way of putting it than ‘#Kaftrio / #Trikafta’ like on our poster @MicrobioSoc #MicroBio24 😂 If anyone is interested, we have a poster about the transcriptional response of #Pseudomonas to these drugs.
‘ETI’ is a much better way of putting it than ‘#Kaftrio / #Trikafta’ like on our poster @MicrobioSoc #MicroBio24 😂 If anyone is interested, we have a poster about the transcriptional response of #Pseudomonas to these drugs.
Pretty chuffed with a 10K run 🏃♂️ this lunchtime Forced myself to run to Ainsdale and the start of my nemesis the “Coast road”which I know is 5K back to my door A beautiful #sunnysouthport with day trippers streaming in as ever #cysticfibrosis #kaftrio #GoodFriday
KaftrioForFrance @kaftrio
34 Followers 72 Following Pour que le Kaftrio, nouveau médicament miracle qui traite la mucoviscidose soit mis sur le marché français. Sauvons nos malades
CF Tweeter - Trikafta.. @CF_Tweeter
509 Followers 218 Following We need Trikafta now! #Cysticfibrosis #UKneedstrikaftanext #Trikafta #Trikaftanext #Trikaftanow #Kaftrio
#Lifesavingdrugs4cf #.. @sade_39
470 Followers 421 Following We Need Everyone's Help In Our Campaign For Access To ALL Precision Medicines For People With CF In The UK. Please join our FB group. 👇🏾
Tears of a Clown @TearsofaclownCF
32K Followers 1K Following YouTube filling my Kaftrio Journey! Instagram: MatildaHerbert
Kaftrio en España @KaftrioY
215 Followers 78 Following Cuenta para impulsar un rápido acceso de Kaftrio a los pacientes FQ en España
Teresa #kaftrio @CFinit4ALLuk
505 Followers 752 Following campaigning 4 ALL fighting this hideous disease #CF 2 have the best Precision meds #LifeSavingDrugs4ALL on the NHS #STOPTHECLOCK #WeHaveKaftrio #Now4thelast10%
Mr. Fido Dido®️ �.. @Fidowiido
592 Followers 1K Following there's no spoon. Pensionista viejoven. YOQUESÉYOYA
assia Assia @Kaftrio2_5ans
3 Followers 26 Following
Marcus Nilsson @Ja_till_Kaftrio
4 Followers 21 Following Svenska patienter nekas det livsviktiga läkemedlet Kaftrio. Hjälp oss att ändra detta oetiska beslut.
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
my CF Hero 💙 @myCFHero
1K Followers 2K Following Mother to a 9 year old girl, with the life limiting condition #CysticFibrosis. Fighting for access to medicines #Orkambi #Kaftrio (#Trikafta) #DoTheRightThing
Ali Dillon 💙 NHS @Alidilly
1K Followers 2K Following Proud mum of 2 boys #CysticFibrosis campaigner. Facebook admin of #UKHasKaftrioNow join for up to date news all things #Kaftrio