#UK CF campaigner Sharon @CFno1LeftBehind
🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter Surrey, England, UK, Europe. Joined October 2010-
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What a great piece in the paper today and £8,000 raised for @cftrust and @GOSHCharity , what a way to remember Elle and her #elleswishes campaign! Thank you as ever @ChrisMRiches and @Daily_Express @CFno1LeftBehind @gemmaleighweir @eabibb
Seems like very good new @cftrust Will this replace #kaftrio & will it need a new negotiation with @VertexPharma The new combination treatment outperformed the approved CFTR modulator therapy Trikafta at reducing sweat chloride levels in Phase 3 trials. cysticfibrosisnewstoday.com/news/phase-3-c…
Exciting stuff: once daily new @VertexPharma CFTR triple therapy shown to be equivalent to kaftrio (which has twice daily dosing) with improved sweat chloride. Great to have taken part in this @ManchesterCRF @Manchester_cf
Exciting stuff: once daily new @VertexPharma CFTR triple therapy shown to be equivalent to kaftrio (which has twice daily dosing) with improved sweat chloride. Great to have taken part in this @ManchesterCRF @Manchester_cf
What a fantastic occasion to celebrate Elles heavenly 18th b’day🌟 My #cysticfibrosis mama friends were honoured to be there with @BeckyWhitfiel14 @Peck1 to help raise funds for the @cftrust & @GOSHCharity #EllesWishes🩷 @DavidRamCFT @ChrisMRiches @Daily_Express @nantwichnews
This is incredible #Kaftrio
Groundhog day, @scullyp @KarlTurnerMP @LordIanAustin @RachaelMaskell @KerryMP. Please can you help spread the word 🙏
Groundhog day, @scullyp @KarlTurnerMP @LordIanAustin @RachaelMaskell @KerryMP. Please can you help spread the word 🙏
We've got over 30,000 signatures on the petition! Thank you to everyone who has signed and shared, please, please, continue to share so that we can reach 100,000 before December and convince NICE to put lives first before cost! petition.parliament.uk/petitions/6506… (UK residents can sign)
This⬇️ @VertexPharma are amazing Now they’re the 1st pharma to get gene editing technology approved by @MHRAgovuk for use in UK The future is bright We need to gear up our @NHSuk so we can pay for all of these amazing drugs & medical advances & we need to invest #BigPharma
This⬇️ @VertexPharma are amazing Now they’re the 1st pharma to get gene editing technology approved by @MHRAgovuk for use in UK The future is bright We need to gear up our @NHSuk so we can pay for all of these amazing drugs & medical advances & we need to invest #BigPharma
Please RT #CysticFibrosis #Kaftrio
This thread tells you everything you need to know about the latest news on @VertexPharma #kaftrio for some #cysticfibrosis patients in the uk & ongoing the @NICEComms review A step in the right direction 💛Read full thread from @cftrust here ⬇️⬇️
This thread tells you everything you need to know about the latest news on @VertexPharma #kaftrio for some #cysticfibrosis patients in the uk & ongoing the @NICEComms review A step in the right direction 💛Read full thread from @cftrust here ⬇️⬇️
It’s done 👏👏 fantastic news! gov.uk/government/org…
It’s done 👏👏 fantastic news! gov.uk/government/org…
Now we just need @NICEComms to announce next month their approval of @VertexPharma range of #cysticfibrosis drugs for all future patients - so we won't end up with two-tier health system of current patients on life-saving drugs but newborns facing growing up without them.
Now we just need @NICEComms to announce next month their approval of @VertexPharma range of #cysticfibrosis drugs for all future patients - so we won't end up with two-tier health system of current patients on life-saving drugs but newborns facing growing up without them.
Good news 👍🏻🙌🏻🙌🏻🙌🏻 Now let’s get these drugs to everyone that needs them No one should be excluded from these #lifesaving highly specialised medicines which are on the @NHSuk #cysticfibrosis #kaftrio @cftrust @NHSEnglandNMD @DavidRamCFT @ChrisMRiches @NICEComms @VertexPharma
Good news 👍🏻🙌🏻🙌🏻🙌🏻 Now let’s get these drugs to everyone that needs them No one should be excluded from these #lifesaving highly specialised medicines which are on the @NHSuk #cysticfibrosis #kaftrio @cftrust @NHSEnglandNMD @DavidRamCFT @ChrisMRiches @NICEComms @VertexPharma
Personally I’ve seen many people using this latest glitch (which will get resolved) to bash big bad pharma @VertexPharma🙈🤷♀️ Why? Don’t we need them to develop the drugs that will be “even better” than #kaftrio & I believe they have a very promising drug in trials currently🤞🏻
Personally I’ve seen many people using this latest glitch (which will get resolved) to bash big bad pharma @VertexPharma🙈🤷♀️ Why? Don’t we need them to develop the drugs that will be “even better” than #kaftrio & I believe they have a very promising drug in trials currently🤞🏻
@olilewington @cftrust Apparently there’s a #creon manufacturing shortage & only 10,000 available🤷♀️ But if everyone’s who needs 25,000 starts taking 10,000, then that will go out of stock too 🙈😫 Be good to get answers as to why this keeps happening #cysticfibrosis @ecfpg @cftrust @TheGPhC @NPA1921
Please @MHRAmedicines @MHRAgovuk, parents with children eligible for #Kaftrio but not Orkambi are desperate to see the age for eligibility to Kaftrio reduced to 2yrs to enable them to join the pipeline of amazing @VertexPharma meds to ensure their ongoing access.
It would be great if @cftrust could update the community today as there has been some confusion on the helpline. ThankYou @DavidRamCFT
It would be great if @cftrust could update the community today as there has been some confusion on the helpline. ThankYou @DavidRamCFT
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Chris Riches @ChrisMRiches
1K Followers 792 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2020 Society of Editors 🏆& 2020 Press Gazette Campaign Journalist of the Year 🏆. ❤️Spurs. Opinions own.
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Catherine Meredith @873Meredith
2K Followers 5K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
Shane Howard Magill @TransManKnits
301 Followers 486 Following If it wasn't for my C.F. team I wouldn't be half the man I am today. I can't thank them enough for all their recent support.
Jess Meredith🐾 @jessicameredi16
3K Followers 4K Following Organ Donation | Sister of a liver transplant recipient | We won the campaign for CF meds! | Save our NHS | Animal rights | Adopt don't shop | Civil Engineer
Josh Llewellyn-Jones .. @JoshLJ24
4K Followers 794 Following Endurance Athlete & WR Holder with Cystic Fibrosis 🚀 Performance Coach 🔸 Lift Club Enquiries- [email protected] [email protected]
David Turner @GreatStrides65
3K Followers 1K Following Past organiser of #GreatStrides65 team walk in @SurreyHillsAONB for @cftrust | Labradors | Insurance silk @4NewSquare | 📷
CF Get Loud @CFgetloud
512 Followers 332 Following A resource for patients and their networks to GET LOUD for access to medications in Canada for cystic fibrosis patients. Speak up to help save Canadians with CF
Share Your Wishes @share_wishes
5K Followers 3K Following it is vital everyone throughout the UK shares their organ donation wishes with their next of kin as ultimately it is they who will make the final decision.
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
CF Trust Youth @CFTrustYouth
1K Followers 232 Following Community of and for young people with cystic fibrosis. Part of @cftrust, we run online workshops, talks, meetings and socials. Stay up to date here :)
Nicola Johnson @JohnsonMNicola
968 Followers 1K Following Director of People & Culture in a Multi-Academy Trust. School Governor. Mum, Step-mum, and raising awareness of Cystic Fibrosis when possible. #NoOneLeftBehind
Evann Griffiths @evann_lfc
3K Followers 5K Following 29.Liverpool fc ⚽️ have cystic fibrosis. Horror films. True Crime . Music. Greys. L.o.D. Scream. Saw.❤️ Love Alanis Morissette, Avril Lavigne, Mcfly, Paramore
Khadeejah Knickrehm @KhadeejahK43936
47 Followers 5K Following
Luna @RinaFL375554
3 Followers 781 Following
Luna @LilyAllen526190
10 Followers 783 Following
Summer Hoppenstedt @SummerHopp84918
68 Followers 5K Following
Caprice Fadeley @capr_fade
72 Followers 5K Following
Sasha Magnan @magn_sas
37 Followers 5K Following
Luna @AzureBreez50483
6 Followers 794 Following
Luna @Lie8Nata36736
3 Followers 792 Following
Monaghan Medical @MonaghanMedical
537 Followers 2K Following
Janica Leppanen @LeppanenJa54487
26 Followers 278 Following
K @MrsKSteel
535 Followers 939 Following
Laura 🙊🙉🙈 @LKoshulak30321
2K Followers 4K Following #cyclebreaker ☯️ #mentalhealthmatters ❣️#lightworker #healer 🌙💫✨ #Agentofchange 🐛🦋 No DMs 🙏🏼 #INFJ #bpd
Molly @mollyyellen99
3K Followers 3K Following PhD student interested in clinical decision-making & passionate about nurses wellbeing💙 Currently conducting my final study, please take part if you can☺️
Natalie @natalieheslop4
1K Followers 3K Following
Tom Walker 🇺🇦 @tom86walker
221 Followers 2K Following Philanthropist. Cook. Average footballer. Views my own.
Tammy @tammyba41194268
429 Followers 3K Following
Chris Perkins @tazperks
248 Followers 1K Following Father, darts/rugby player, music lover, drinker and employee. Green party member.
Rosie Nation @rosienation1312
8 Followers 14 Following
James @CaneloJames
405 Followers 1K Following Pro-Science/ True Crime/ Boxing 🥊 Bit of Politics/ If You Pay Elon I Pity You/Slava Ukraini 🇺🇦
Tati Ra. @TatianiRamina
35 Followers 313 Following
Tayebwa Arthur @Art6996Arthur
161 Followers 946 Following Single and studying in higher levels of education
Edwin @Edwin86517205
521 Followers 8K Following
HangchenLi @HangchenLi
8 Followers 318 Following
Dr. W @LetsGoWVPower
546 Followers 656 Following Disabled US Army vet. Physician. 15 yo with cf & ASD "Man is put on Earth destined to die. Time & method of execution to be determined." Mortui vivos docent
Center For Latino Pat.. @LatinoswithCF
168 Followers 198 Following Our mission is to improve the health and quality of life for Latino patients with Cystic Fibrosis through research, education, advocacy, & patient engagement.
_laurenclayton_ @laurenclayton__
75 Followers 144 Following Respiratory physiologist 🫁 | PhD researcher @UoPSportScience - Exercise physiology in cystic fibrosis during the modulator era 👩🏼⚕️🫁🚴🏼♀️ @CFwarriors
ongaku @sekando789
62K Followers 68K Following I support freedom and democracy. I'm spreading the news of the United States and the People's Republic of China from youtube.
Murithi Nabea @MurithiNab80870
184 Followers 1K Following
Rachel 🏒🪐✨�.. @dollarsNdonuts
600 Followers 2K Following Sean Sullivan 💍 22/12/2022💍 Boston❤️🇺🇸 BOSTON BRUINS🏒🖤💛 King Patrice forever👑 UK born🇬🇧 Gamer 🎮 Working in the financial sector 💵
Birmingham Childrens .. @BWCCFTeam
568 Followers 727 Following We are Ambitious, Brave & Compassionate in providing care for our paediatric Cystic Fibrosis population in the West Midlands.
Dee Shimmin @DeeShimmin
281 Followers 420 Following Consultant CF Dietitian at Leeds Adult Cystic Fibrosis Unit . CF, CF- related diabetes. Dog lover. Lifelong @LFC fan. Views my own
European Cystic Fibro.. @ecfs_ecfng
292 Followers 242 Following European Dietitians working with people with cystic fibrosis to support optimum nutrition and improve clinical outcomes
Alys - CF Study @CFstudy23
22 Followers 79 Following Are you an adult woman with Cystic Fibrosis? Would you be willing to take part in a research project understanding the expereinces of taking Kaftrio? Please DM!
Dr. Louise Oni @louise_oni
2K Followers 3K Following U.K Senior Lecturer & honorary NHS consultant in paediatric nephrology with interest in renal inflammatory diseases. All comments are personal opinion.
Kay Moynihan @kaymoynihan
1 Followers 46 Following
Ty Scott @tyyscott65
44 Followers 206 Following
Ryan Padgett @RyantPadgettPsy
13 Followers 85 Following MSc Psychology @leedsbeckett // Crisis Support Worker @LSLCS // Volunteer @GiveUsAShout // Join our study on cancer screening & cystic fibrosis 👇👇
Ayla @Aylailtus
82 Followers 308 Following kistik fibrozis annesi mücadelemize devam ve kazanacağınızzzzz🙏🙏 Allah'ın izniyle 👏👏☘️☀️
65MilesIn65Hours4CF @65HoursForCF
52 Followers 182 Following Raising $1 million for the @cf_foundation ➡️ running 6.5 miles x 6.5 hours for 65 hours. AUG 25-27, 2023 @cff_centralOH #CureCF
Vicky Langner @Rednippa
1 Followers 29 Following
Nick Smith @ZanzibarSmith
148 Followers 148 Following please donate if able: https://t.co/vna1U9sR5x RAF, Sqn Ldr, Air Ops
Adrian 🇨🇦🇭�.. @adrianmk
433 Followers 933 Following GR/PR in life sciences. Passionate about improving care for rare diseases like #cysticfibrosis. Father of 2. Tweets & views are my own.
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Normal Life @NormalLife7
2K Followers 300 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Andrew @Andyassert
645 Followers 195 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
Chris Riches @ChrisMRiches
1K Followers 792 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2020 Society of Editors 🏆& 2020 Press Gazette Campaign Journalist of the Year 🏆. ❤️Spurs. Opinions own.
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
Shane Howard Magill @TransManKnits
301 Followers 486 Following If it wasn't for my C.F. team I wouldn't be half the man I am today. I can't thank them enough for all their recent support.
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Jess Meredith🐾 @jessicameredi16
3K Followers 4K Following Organ Donation | Sister of a liver transplant recipient | We won the campaign for CF meds! | Save our NHS | Animal rights | Adopt don't shop | Civil Engineer
Josh Llewellyn-Jones .. @JoshLJ24
4K Followers 794 Following Endurance Athlete & WR Holder with Cystic Fibrosis 🚀 Performance Coach 🔸 Lift Club Enquiries- [email protected] [email protected]
David Turner @GreatStrides65
3K Followers 1K Following Past organiser of #GreatStrides65 team walk in @SurreyHillsAONB for @cftrust | Labradors | Insurance silk @4NewSquare | 📷
Nick Talbot @CF_vs_Everest
2K Followers 946 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Dean Puckering @MrDeanP
1K Followers 1K Following Husband & Father / Cystic Fibrosis / Wigan Athletic Fan / Audio & Video Engineer / Retro Gamer / 90s Music Expert
CF Get Loud @CFgetloud
512 Followers 332 Following A resource for patients and their networks to GET LOUD for access to medications in Canada for cystic fibrosis patients. Speak up to help save Canadians with CF
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
@AllWalesCF @allwalescf
225 Followers 84 Following Twitter feed for All Wales Adult CF Centre. Info on all things CF in Wales 🏴 (Monitored 9-5 Mon-Fri, No clinical queries please)
Daniel Hanvey @tenorengineer
457 Followers 335 Following Engineer, @SparksQuarks podcast host, @simonoxfphys admin, Cystic Fibrosis fighter. All views and opinions my own - especially the funny ones. He/Him.
Dignity in Dying @dignityindying
57K Followers 9K Following We believe in choice at the end of life. Including the option of #AssistedDying for terminally ill, mentally competent adults. #YesToDignity
Rosie Nation @rosienation1312
8 Followers 14 Following
JmeMc123 @JmeMc123
591 Followers 725 Following Working class grub. Aspiring author and/or script writer. Avid gamer, reader, and devourer of TV and film. Former Wigan Warriors PDRL player. CF Warrior.
Paul Faulkner @ThePaulFaulkner
8K Followers 412 Following Co-Founder of @ElementRh45. Interim CEO at @TheKidsVillage. Passionate about business & the West Midlands. @cftrust parent
Dr Waheed Arian @DrWaheedArian
36K Followers 10K Following From child refugee and trauma survivor to doctor humanitarian. Sharing stories of hope, compassion. Founder @ArianWellbeing @teleheal https://t.co/vhNPYUJAEX
CF STORM @cfstormstudy
245 Followers 67 Following Working with the CF community to find out if we can reduce long term nebulised treatments once people with cystic fibrosis are established on triple therapy.
Stephen Fry @stephenfry
11.9M Followers 45K Following Twitter account of Stephen Fry reactivated to prevent impersonation accounts.
Hugh Grant @HackedOffHugh
834K Followers 1K Following
Robert Peston @Peston
1.4M Followers 2K Following ITV (pol ed), Speakers for Schools (founder), writer (WTF), Hospice UK (vice pres), Arsenal (East Stand), Peston (as in #Peston show, 10.45pm Weds). So?
Leigh Day @LeighDay_Law
19K Followers 740 Following One of the UK’s leading law firms for people who have been injured, discriminated against or had their human rights breached - [email protected]
Eoin Ó Broin @EOBroin
53K Followers 3K Following Sinn Fein T.D. for Dub Mid-West. Spox on Housing, Local Govt & Heritage. Author of 5 books inc The Dignity of Everyday Life, Celebrating Michael Scott's Busáras
Construction Defects .. @AllianceDefects
774 Followers 625 Following Construction Defects Alliance is an informal alliance of homeowners and Owners’ Management Companies campaigning for redress for owners of defective homes
Collex @Collex61987493
34 Followers 35 Following Abandoned Trolley Collection Service. Send all your requests to our UK collection Teams now! Street name and Town, what 3 words, or Postcodes :)
kgrover @kgroverto
386 Followers 617 Following Pres/CEO @cfcanada Lover of pop culture and great clothes and wanting to live in a world that embraces diversity and is kind to people. Opinions are my own.
Bahar - Digital Youth.. @DYOO_cft
224 Followers 294 Following Digital Youth Programme Coordinator at @cftrust responsible for running Building Brighter Futures+ Games Nights for young people with CF in the UK
Skye Deva St. John Be.. @sdsjb
14K Followers 182 Following Actor / Musician (@devastjohn) Amy in Dead Island 2 😈 the badass patreon art mob help make it all happen. come party with us! 👇
Julie kelly @Juleskelly67
1K Followers 2K Following Wedding planner & Co-ordinator specialising in Village Hall, Marquee Garden & DIY Weddings. based in Thirsk. fearless breast cancer warrior living for today
Fiona Kennedy @FKennedy73
30 Followers 89 Following Mum to a lovely daughter who has Cystic Fibrosis
Felix Biotechnology @felixbiotech
2K Followers 2K Following Passionate and focused on accelerating the development and deployment of novel biotherapeutics to manage microbes in human health and beyond.
Comite Center for Pre.. @comitecenter
1K Followers 964 Following The leading establishment in Precision Medicine & Health. We are clinically proven and scientifically based to optimize our client’s healthspan.
Joanna Barrett @Joanna_Barrett
1K Followers 2K Following Occasional, poorly-performing tweets on politics, weans, space, cystic fibrosis, Gàidhlig Duolingo, knitting, ParkRun…
flynn @victoriaflynn
538 Followers 1K Following Reading, writing and illustrating things. Also social media manager @cftrust, views my own. ✨ She/Her ✨
Arya Stark @TomDoyle23
587 Followers 2K Following NYR. NYY. NYJ. NYK. I know too many movie quotes and i love quesadillas. #TSIJ #CURECF
Stacey Ryan @Stacey_Oxbridge
508 Followers 77 Following Proud Associate of Oxbridge. Driving forward e-learning and education for all. Irritatingly persuasive, potential prime minister.
Richard Bon @BonRichard
2K Followers 721 Following Love family, red wine, media, good food, cycling and ooh! My views are mine... AI generated profile pic ;-)
Rebecca Calthorpe @DrRCalthorpe
177 Followers 290 Following East Midlands Paediatrics Trainee. CARDS-CF Clinical Research Fellow investigating gut symptoms in CF
𝓔𝓶𝓲𝓵𝔂 .. @thatemilyjade
180 Followers 338 Following
Loren Cameron @LorenCameron_
130 Followers 353 Following Data & Projects Manager for Clinical Trials Accelerator Platform (CTAP) @cftrust. Previously a post-doctoral researcher @imperialcollege. All views my own.
katy kettleborough @katykettle
5 Followers 2 Following
LifeArc @lifearc1
7K Followers 3K Following Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.
Katrina Scaife @kattyscaife
136 Followers 262 Following Corporate Partnerships for The Cystic Fibrosis Trust @cftrust.
Kelsie Jade McHugh @kjbaker1304
62 Followers 177 Following Wife to Danny & Mummy to our beautiful daughter Renae Ellen, 09/10/22 at 31 weeks.
Peter Boxer @peter_boxer
2K Followers 3K Following Peripatetic Londoner. Resident of many places 🇨🇾🇫🇷🇵🇰🇲🇦🇮🇶🇿🇦🇮🇲 and currently Sussex. Lover of good food, wine and equality.
♥♣CrazyMonkeyLady.. @rose_37981
536 Followers 1K Following Not a known giver of fucks, gamer, here to raise awareness of cystic fibrosis uk
Scott Buckler @PrecisionScottB
14 Followers 38 Following Business Partnerships Manager for Precision Medicine Forum #Precisionmedicine
Sarah Kay @SarahKay1985
52 Followers 245 Following Cystic Fibrosis Advocate and Warrior. Speaking about wellbeing through breath work makes me happy 😊 Community minded yoga lover🧘🏼♀️💚💛💜
Elise Brooke X @elwatsonx
5K Followers 307 Following
Catherine Weekley @Weekleythoughts
129 Followers 393 Following Family & my Grandchildren are my world 💙💗💛 Tweets are my own Weekly/Weekley observations & thoughts x Cystic Fibrosis aware x My Cancer Fight begins 17/2/23
Chris van der Gast @ChrisvanderGast
398 Followers 299 Following Professor of Microbiomics. Honorary Consultant Microbiologist. #Firstgen. Gut & Lung Microbiomes in Cystic Fibrosis. Microbial Ecology. Ex2nd/BackRow🏉
Nick (aka Rocky) @Rocky_84_
227 Followers 622 Following BIG fan of the @backstreetboys, Stepfather, fighting Cystic Fibrosis (CF)! ✝️ 🇳🇿born. Victim of Adultery😐 #IstandbyNickCarter
Stanford Center for E.. @StanfordCEPB
119 Followers 132 Following Promoting lifelong lung health through excellence in scientific discovery, in partnership with Stanford Medicine's Division of Pediatric Pulmonology.
Stephen Gamache @StephenGamach12
22 Followers 65 Following Born with Cystic Fibrosis and Type 1 Diabetes. The father to a beautiful 3 year old boy Greyson.
MECFA @mecfassoc
491 Followers 688 Following Working to help Middle East Cystic Fibrosis patients live longer healthier lives. Follow us to learn how we make a difference.
So, fans of Slow Horses, I have all of it to watch from scratch. Is it as superb as they say?
I enjoyed chatting to @BBCRadioLondon as one of the 26 miles, 26 stories series ahead of the @LondonMarathon : I'm running for the @royalmarsden & grateful for donations via 2024tcslondonmarathon.enthuse.com/pf/paul-scully. Listen to the interview at on.soundcloud.com/LJHf2da1aULKNk…
Pam, the founder of the amazing CF Mamas, has a quick message for you about the upcoming CF Mamas and Papas Meet Up. Get your tickets now: cysticfibrosis.org.uk/cf-mamas-and-p…
More exciting research to support people living with ##cysticfibrosis 💛👏🧘♂️🧘♀️ ... yoga is not just about being 'bendy'!😂
Really excited to be starting this trial with our amazing collaborators @Beam_CF @PamelaS_Beam
Well done everyone ! What an achievement !
Huge congratulations to @CallTheMidwife1 winning an incredible ninth BEST FAMILY DRAMA award at the 2024 #tvchoicewards. @4JennyAgutter @BBCOne @NealStProds #TVChoiceMagazine #Winner #BestFamilyDrama #CallTheMidwife #BBC #BBC1
#Panorama @BBC tonight discussing 2 new drugs for #Alzheimer disease. Shocking that people are being denied access to treatment, even worse that such long waits #NHS for required #memoryclinic #scans Time is of essence! @alzheimerssoc @DementiaUK @ageukcampaigns @AlzResearchUK
@Alidilly @cftrust @ChrisMRiches @Daily_Express @CFno1LeftBehind @gemmaleighweir @eabibb That's wonderful, Ali. Thank you for all your support for GOSH in memory of Elle 💜
A great tribute to #ElleMorris @BeckyWhitfiel14 #elleswishes @cftrust @GOSHCharity @CFno1LeftBehind @Alidilly @MattisonGemma @LizBrennan28897 #cysticfibrosis @NHSEngland .@Daily_Express .@RishiSunak .@NICEComms .@DHSCgovuk .@DHSCmedia
Mum Becky Whitfield's proud legacy for her brave cystic fibrosis daughter Elle express.co.uk/news/uk/186558…
What a great piece in the paper today and £8,000 raised for @cftrust and @GOSHCharity , what a way to remember Elle and her #elleswishes campaign! Thank you as ever @ChrisMRiches and @Daily_Express @CFno1LeftBehind @gemmaleighweir @eabibb
Looks like @Conservatives are going all Monty Python: nothing but #splitters youtube.com/watch?v=QhaY1h…
New Conservatives; Conservatives for Growth and the Common Sense Group. Wow. Just wow.
How beautiful is this photo, it says it all no need for words. #climatechange #PeoplesChoice #wildlifephotography
Wildlife Photographer of the Year People's Choice Award, Nima Sarikhani
@CFno1LeftBehind @BeckyWhitfiel14 @Peck1 @GOSHCharity @DavidRamCFT @ChrisMRiches @Daily_Express @nantwichnews @Alidilly @CatherineSheah2 @MattisonGemma @JohnsonMNicola @_ZoeyJones_ @Melden45 @fight4orkambi @LucyAllen_CFT @CFTrustYouth @GreatStrides65 We did indeed! Very lovely to see them there celebrating with you all 🥰
@CFno1LeftBehind @BeckyWhitfiel14 @Peck1 @GOSHCharity @DavidRamCFT @ChrisMRiches @Daily_Express @nantwichnews @Alidilly @CatherineSheah2 @MattisonGemma @JohnsonMNicola @_ZoeyJones_ @Melden45 @fight4orkambi @LucyAllen_CFT @CFTrustYouth @GreatStrides65 A truly fantastic way to celebrate Elle 💛
Exciting stuff: once daily new @VertexPharma CFTR triple therapy shown to be equivalent to kaftrio (which has twice daily dosing) with improved sweat chloride. Great to have taken part in this @ManchesterCRF @Manchester_cf
We are pleased to announce positive Phase 3 results from our investigational triple combination therapy for the treatment of certain mutations of cystic fibrosis. Learn more: news.vrtx.com/news-releases/…
@CFno1LeftBehind @BeckyWhitfiel14 @Peck1 @cftrust @DavidRamCFT @ChrisMRiches @Daily_Express @nantwichnews @Alidilly @CatherineSheah2 @MattisonGemma @JohnsonMNicola @_ZoeyJones_ @Melden45 @fight4orkambi @LucyAllen_CFT @cftrustYouth @GreatStrides65 What an amazing way to honour Elle's memory. Thank you for choosing to support GOSH 💜
Was a wonderful evening remembering a beautiful little girl. #elleswishes #cysticfibrosis
What a fantastic occasion to celebrate Elles heavenly 18th b’day🌟 My #cysticfibrosis mama friends were honoured to be there with @BeckyWhitfiel14 @Peck1 to help raise funds for the @cftrust & @GOSHCharity #EllesWishes🩷 @DavidRamCFT @ChrisMRiches @Daily_Express @nantwichnews
We are in Davis SuperValu, Longford all day selling Valentine’s Ball for Cystic Fibrosis raffle tickets! #cysticfibrosis #charityball #raffle
Excellent news. Tax-free shopping in London has a significant knock-on effect for hospitality, taxi drivers, hotels and London as a leading European destination. Dynamic modelling of these effects is vital so thank you to the Chancellor for looking again.
Jeremy Hunt authorises OBR review of ‘tourist tax’ on.ft.com/3SJYSlz
Great to see the team from @cftrust in Wales 🏴 to meet the first minister #CF
Great to meet with the Welsh First Minister yesterday to discuss CF care and innovation and to emphasise the importance of removing any uncertainty about access to life-changing medicines for all those who could benefit in the future as soon as possible.
Great to meet with the Welsh First Minister yesterday to discuss CF care and innovation and to emphasise the importance of removing any uncertainty about access to life-changing medicines for all those who could benefit in the future as soon as possible.
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