gemmaleighweir @gemmaleighweir

In the fight for #orkambi find me @fight4orkambi U.K. Joined September 2014

Tweets

477
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134
Following

487
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229

#UK CF campaigner Sharon @CFno1LeftBehind

4 years ago

This is heartbreaking After a successful transplant the @NHSEngland admitted a mix up with anti rejection drugs. But now they refuse to allow a second tx A brilliant surgeon in Geneva has agreed to do this Please donate💛 gofundme.com/f/ben-wolfende… facebook.com/510528477/post…

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Cystic Fibrosis Trust @cftrust

4 years ago

@nhsCFwarriormum @Kayz45 @BarneyCalman @DavidRamCFT @blakeydark @VertexPharma @Alidilly @Getemmahawkey @Guatemalagirl @MotherhoodvsCF @_MissMoo_ @emmagadie2009 @Daily_Express @DailyMailUK @janedaviescf We are continuing to engage with Vertex, the NHS, NICE and the SMC and governments, so that everyone in the UK who is eligible for this life saving drug can get it as soon as possible. (2/2)

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Cystic Fibrosis Trust @cftrust

4 years ago

@nhsCFwarriormum @Kayz45 @BarneyCalman @DavidRamCFT @blakeydark @VertexPharma @Alidilly @Getemmahawkey @Guatemalagirl @MotherhoodvsCF @_MissMoo_ @emmagadie2009 @Daily_Express @DailyMailUK @janedaviescf We are seeking a formal update from all parties. Now that the EMA have given Kaftrio the green light, it will take around two months for the EU to formally issue a licence which we expect will be in the Autumn. (1/2)

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Cystic Fibrosis Trust @cftrust

4 years ago

This is a critical step on the road to ensuring that the Vertex triple therapy is licensed for all who would benefit from it and available on the NHS without delay. We will not stop until life-saving drugs are available for everyone with cystic fibrosis in the UK.

EU Medicines Agency @EMA_News

4 years ago

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#UK CF campaigner Sharon @CFno1LeftBehind

4 years ago

.@MattHancock @DHSCgovuk .@blakeydark ThankYou You are giving this beautiful girl a future that she never dreamed she’d have @jess_cranfield 💕 @VertexPharma @NHSEngland if this story is true, I’m delighted the deal will be agreed & our CF warriors will get to breathe easy🙏🏻💛

#UK CF campaigner Sharon @CFno1LeftBehind

4 years ago

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gemmaleighweir @gemmaleighweir

5 years ago

Great to see Charlie enjoying his transition day today, he looks very happy 😃 here’s to new beginnings and the #classof25

Portchester Community School @PCSInformation

5 years ago

Great to see Charlie enjoying his transition day today, he looks very happy 😃 here’s to new beginnings and the #classof25

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Portchester Community School @PCSInformation

5 years ago

An important part of our transition week today- we welcomed our new Year 7 & their families as part of their induction day. They’ve had a great day and evening getting to know their new school, a successful start 😊👍🏽 #classof25 #proudteachers

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Cystic Fibrosis Trust @cftrust

6 years ago

Really pleased to have @fight4orkambi join us here on stage at #UKCFC to give a parent perspective of what access to new medicines like #Orkambi mean to those affected by #cysticfibrosis

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Strawfie Challenge @strawfie

6 years ago

@alstewitn @claireywilzz @GreatStrides65 @gemmaleigh24fit @cftrust @cftrustYouth @CFAware @oli_rayner @sarahboseley @BBCFergusWalsh @VertexPharma @jamesosh @itvnews @alstewitn So many in UK need access to #Orkambi youtube.com/watch?v=hVqiOK… Thank you for covering on @itvnews

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gemmaleighweir @gemmaleighweir

6 years ago

We have organised some fab events in the coming months We have a Bake Sale at our loca... gofundme.com/ivysphysiovest…

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David Turner @GreatStrides65

6 years ago

Could we please have an update, @VertexPharma? Have you submitted your new offer yet? UK patients are dying for #OrkambiNow while you dawdle ... x.com/cftrust/status…

Cystic Fibrosis Trust @cftrust

6 years ago

Could we please have an update, @VertexPharma? Have you submitted your new offer yet? UK patients are dying for #OrkambiNow while you dawdle ... x.com/cftrust/status…

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Ian Austin @LordIanAustin

6 years ago

Last week, Europe has granted a license to the drug, #Orkambi, for children aged 6-11. I want to see people who suffer from #CysticFibrosis here in the UK having the same access to life-changing treatment as people in Europe have. tinyurl.com/yaubauko

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gemmaleighweir @gemmaleighweir

6 years ago

NEARLY AT 50K #OrkambiNow #ukneedsorkambi facebook.com/gemma.daysh/po…

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Ali Dillon 💙 NHS @Alidilly

6 years ago

Please please keep signing and Retweeting petition.parliament.uk/petitions/2094…

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Jenny Agutter News @4JennyAgutter

6 years ago

Jenny has been pleased to be able to support this; please have a look and see if you’d like to too x.com/chelle_frank/s…

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HH #TacticalVoter #GTTO🌻🇺🇦🕊🙏 @brightsider123

6 years ago

Orkambi is the first drug that addresses Cystic Fibrosis itself, rather than trying to treat symptoms. Many other Countries use it but England doesn't. On Friday we buried 11 year old Elle who fought this illness every day of her short life. Please sign. x.com/cfisnoparty50/…

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Kirk Hardwick @Cptkirk1353

6 years ago

Please take a minute to sign and it could very well save lives - Petition: Make Orkambi available on the NHS for people with Cystic Fibrosis petition.parliament.uk/petitions/2094…

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Ali Dillon 💙 NHS @Alidilly

6 years ago

92K people hv watched & been helped by this video Oli did. Now he’s grown up and needs your help. He needs #OrkambiNow pls sign the petition. Getting Nosey about CF with Oli and Nush | Children and cystic fibrosis youtu.be/WuI72eMrIQI via @YouTube

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CFArtists @CF_Artists

3K Followers 4K Following From the most basic to the most advanced artwork from Cystics, let the world see your talent.

Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.

CF Vests Worldwide @CfVests

764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.

Max @Maxs_Story

631 Followers 2K Following This is Max. He was diagnosed with Cystic Fibrosis when he was 10 days old. Hes now 9! Trying to raise awareness for CF!

Cystic Fibrosis campaigner and mum to two children, military family, one is a cf warrior princess!!! precision medicine and fighting for a life unlimited!

Michelle @TheFrank1001

46 Followers 179 Following Cystic Fibrosis campaigner and mum to two children, military family, one is a cf warrior princess!!! precision medicine and fighting for a life unlimited!

Jx @jullie_julie

230 Followers 477 Following 🌹#cysticfibrosis

mom of 5 children (4 have Cystic Fibrosis,1 carrier) My eldest son Leon with CF passed away 28/08/2015. I can’t lose my other children. Fighting for #KaftrioNow

Kat @KATKaftrio

109 Followers 201 Following mom of 5 children (4 have Cystic Fibrosis,1 carrier) My eldest son Leon with CF passed away 28/08/2015. I can’t lose my other children. Fighting for #KaftrioNow

Bernie KieransMartin @littlemisssalt1

419 Followers 1K Following Writer and mother of a CF fighter. Find me at https://t.co/3qy1jgecb9 and https://t.co/JPwabMVbkg.

Older bloke doing what I can to reduce my impact on the environment and keeping as fit as I can ... retweet’s not endorsed ... avi is not me for clarity .. ISFJ

joe bloggs 🇺🇦 @Baloobbear100

890 Followers 5K Following Older bloke doing what I can to reduce my impact on the environment and keeping as fit as I can ... retweet’s not endorsed ... avi is not me for clarity .. ISFJ

Emma Corr @EmmaKCorr

2K Followers 5K Following wife, mother, cystic fibrosis parent, campaigner, English Teacher.

linda mcguinness @lindamcguinnes8

157 Followers 731 Following Wife of the century, mother to 3 “little” darlings.Mum to a CF fighter. #cysticfibrosis #orkambinow

Legal in a Box UK @LegalinaBoxUK1

193 Followers 2K Following We provide access to legal services and forms on a subscription basis along with other value to subscribers.

Bizitalk @Bizitalk

107K Followers 64K Following Supporting and Promoting small businesses to get them noticed and stay noticed.

Sixty-Five Roses raising money for the Cystic Fibrosis Trust - The last ball was in September 2018 - we will let you know here when the next one is …

Sixty-Five Roses @CF65Roses

195 Followers 481 Following Sixty-Five Roses raising money for the Cystic Fibrosis Trust - The last ball was in September 2018 - we will let you know here when the next one is …

This is a page for raising awareness for CYSTIC FIBROSIS and also a fundraiser page on behalf of my son's Rhyan and Rhys who both suffer with CF.

Natasha Robinson R&R .. @rrcffighters

334 Followers 941 Following This is a page for raising awareness for CYSTIC FIBROSIS and also a fundraiser page on behalf of my son's Rhyan and Rhys who both suffer with CF.

Leanne Olney @LeanneOlney

424 Followers 3K Following Mum to one CF super warrior. Fighting for #orkambinow and a life unlimited 💛

Zoey @_ZoeyJones_

734 Followers 2K Following Mother, Lecturer in Social Work, PhD researcher @edgehill. Campaigner for CF #cysticfibrosis #CF 🌹🌹🌹🌹🌹🌹🌹

Rose Savage @rosesavage65

37 Followers 108 Following Have been married for 38 yrs and have 6 grandchildren and 6 great-grandchildren

katie_c @Katie_Coates64

95 Followers 172 Following Campaigning for a life unlimited!#PrecisionMedicines.

Mostly serious views on cystic fibrosis, health matters & drug pricing, with a bit of horticulture thrown in for good measure

Christina Walker 💙 @Guatemalagirl

614 Followers 1K Following Mostly serious views on cystic fibrosis, health matters & drug pricing, with a bit of horticulture thrown in for good measure

CF mum fighting for all our CF warriors b/c lifesaving drugs should never cost lives. Founder @VertexSaveUs, ‘Right to Breathe’ campaign, working @JustTreatment

Gayle Pledger @gayle_pledger

530 Followers 597 Following CF mum fighting for all our CF warriors b/c lifesaving drugs should never cost lives. Founder @VertexSaveUs, ‘Right to Breathe’ campaign, working @JustTreatment

Public Affairs Officer @cftrust, Volunteer @CrohnsColitisUK. MRSB @RoyalSocBio. Science writer, fundraiser, bassist. Defender @StrikeForce_FC Views are my own.

Grace Paget @gtpaget

365 Followers 952 Following Public Affairs Officer @cftrust, Volunteer @CrohnsColitisUK. MRSB @RoyalSocBio. Science writer, fundraiser, bassist. Defender @StrikeForce_FC Views are my own.

ally porter @ajpjane

41 Followers 36 Following Mummy to a CF warrior. #KaftrioNow #Kaftrio 💙

Jo Mc Laughlin @JoMcLaughlin16

211 Followers 305 Following

leonne @leonne12043362

3 Followers 86 Following

campaigning 4 ALL fighting this hideous disease #CF 2 have the best Precision meds #LifeSavingDrugs4ALL on the NHS #STOPTHECLOCK #WeHaveKaftrio #Now4thelast10%

Teresa #kaftrio @CFinit4ALLuk

505 Followers 752 Following campaigning 4 ALL fighting this hideous disease #CF 2 have the best Precision meds #LifeSavingDrugs4ALL on the NHS #STOPTHECLOCK #WeHaveKaftrio #Now4thelast10%

Emma Ward @emmagadie2009

755 Followers 566 Following My son Olly and my daughter Grace are my whole world. Couldn't imagine my life without them! #CysticFibrosis #diabetes

Non-profit one mission to cure CF! Affiliate Walk sponsor @soardogg code- djsdudes Great Strides walks in NY. PA & MO for the CF Foundation

DJ's Dudes Fund @DJsDudes

534 Followers 805 Following Non-profit one mission to cure CF! Affiliate Walk sponsor @soardogg code- djsdudes Great Strides walks in NY. PA & MO for the CF Foundation

Mummy to 3 gorgeous kids, 2 daughters and a son who is also a cystic fibrosis warrior! just waiting on the day we find a cure ❤️💚💜

Jaxson’s Journey �.. @LindsayReilly35

10 Followers 218 Following Mummy to 3 gorgeous kids, 2 daughters and a son who is also a cystic fibrosis warrior! just waiting on the day we find a cure ❤️💚💜

april raynor @aprilraynor1

65 Followers 45 Following

Catherine Sheahan @CatherineSheah2

174 Followers 199 Following

Proud mother of 3 amazing young adults; doctoral student; longstanding fundraiser/supporter for those affected by cystic fibrosis.

DJS @NetSparkes

51 Followers 202 Following Proud mother of 3 amazing young adults; doctoral student; longstanding fundraiser/supporter for those affected by cystic fibrosis.

Greg Barber @InfamousGreggyG

510 Followers 1K Following Husband to lovely Ang, Dad to 2 beauties - my son is a CF warrior #lifeunlimited #cysticfibrosis #itfc #uppatowen

Hello 👋🏼 I’m Romy, 23. My Fiancé Jack, 24, has Cystic Fibrosis and we have a son Rocky born 09.08.17 through IVF (ICSI). Insta -@lovelifeandhelpingtosurvive X

Romy Reyes @CFWife

125 Followers 798 Following Hello 👋🏼 I’m Romy, 23. My Fiancé Jack, 24, has Cystic Fibrosis and we have a son Rocky born 09.08.17 through IVF (ICSI). Insta -@lovelifeandhelpingtosurvive X

We Are Miya....Stunning Nightclub in the heart of Chelmsford. With Hand Picked DJs from Around Essex & London playing on a state of the art sound system.

Miya Nightclub @Miya_Nightclub

2K Followers 513 Following We Are Miya....Stunning Nightclub in the heart of Chelmsford. With Hand Picked DJs from Around Essex & London playing on a state of the art sound system.

David Turner @GreatStrides65

3K Followers 1K Following Past organiser of #GreatStrides65 team walk in @SurreyHillsAONB for @cftrust | Labradors | Insurance silk @4NewSquare | 📷

#UK CF campaigner Sha.. @CFno1LeftBehind

1K Followers 1K Following 🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter

Helen Hughes @HelenHughes_sim

210 Followers 428 Following Simply Red fan. Cure Cystic Fibrosis!🙏 #NotTooMuchToMask

I look into the eyes of my first born child, holding her hand, fighting back the tears I promised her that I'd not let CF win, Orkambi is our only chance.

Ayrin Armstrong @Zona65Roses

34 Followers 120 Following I look into the eyes of my first born child, holding her hand, fighting back the tears I promised her that I'd not let CF win, Orkambi is our only chance.

becky s @mrsswincfmommy

93 Followers 126 Following Everyday girl. Mommy to two beautiful boys . Fighting for a life unlimited by cf . Living loving laughing.

We Need Everyone's Help
In Our Campaign For Access To ALL Precision Medicines For People With CF In The UK. Please join our FB group.
👇🏾

#Lifesavingdrugs4cf #.. @sade_39

470 Followers 421 Following We Need Everyone's Help In Our Campaign For Access To ALL Precision Medicines For People With CF In The UK. Please join our FB group. 👇🏾

Alison Fare @BrynSeiriol

393 Followers 382 Following

Claire O'Grady @ClaireO281

926 Followers 197 Following #CysticFibrosis mother, raising awareness and fundraising #afightwemustwin #lifeunlimited

Mother to a 9 year old girl, with the life limiting condition #CysticFibrosis. Fighting for access to medicines #Orkambi #Kaftrio (#Trikafta) #DoTheRightThing

my CF Hero 💙 @myCFHero

1K Followers 2K Following Mother to a 9 year old girl, with the life limiting condition #CysticFibrosis. Fighting for access to medicines #Orkambi #Kaftrio (#Trikafta) #DoTheRightThing

Esther Valentine @Est_Valentine

777 Followers 404 Following CF mummy, Management consultant, Physiotherapy experience, #ukneedsorkambi

100% committed to curing CF for 100% of CF'ers by raising funds for the CFF & advocating at the State & National level. #cff #curecf #cysticfibrosis #cfdad

Peter Hodge @peter100percent

3K Followers 3K Following 100% committed to curing CF for 100% of CF'ers by raising funds for the CFF & advocating at the State & National level. #cff #curecf #cysticfibrosis #cfdad

Mandy (Hughes)Laffert.. @mandylafferty

44 Followers 147 Following I am 47, skin & beauty consultant with Beyond Beauty Club

Cardiologist UK & CH - Editor-in-Chief @Open_HeartBMJ. News on #Cardiology #UkrainiansAreDyingWhileRepublicansAreLying #Ukraine #Ukranian

Pascal Meier,MD @DrPascalMeier

109K Followers 120K Following Cardiologist UK & CH - Editor-in-Chief @Open_HeartBMJ. News on #Cardiology #UkrainiansAreDyingWhileRepublicansAreLying #Ukraine #Ukranian

Hi there!

Losing weight seems to be mission impossible for many people — but hey, trust me that it’s not really that difficult.

Online Weight Loss C @WeightLossTwo

105 Followers 365 Following Hi there! Losing weight seems to be mission impossible for many people — but hey, trust me that it’s not really that difficult.

Dr Zoe Bagley @VarnalsVintage

417 Followers 349 Following Historian. Researcher. Raising awareness of CF. Fighting for Orkambi. Mum of a child with CF

Vikki Jump @VikkihareHare

130 Followers 357 Following

#UK CF campaigner Sha.. @CFno1LeftBehind

1K Followers 1K Following 🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter

Kat @KATKaftrio

109 Followers 201 Following mom of 5 children (4 have Cystic Fibrosis,1 carrier) My eldest son Leon with CF passed away 28/08/2015. I can’t lose my other children. Fighting for #KaftrioNow

Portchester PE Dept @PortchesterPE

1K Followers 171 Following

AFC Portchester @AFCPortchester

8K Followers 97 Following Official Twitter Account for AFC Portchester - The Royals. Playing In the Wessex League Premier Division

The official feed for news, information and photos of our super school. Proud to be part of Portchester community, Hampshire.

Portchester Community.. @PCSInformation

1K Followers 120 Following The official feed for news, information and photos of our super school. Proud to be part of Portchester community, Hampshire.

Mandy (Hughes)Laffert.. @mandylafferty

44 Followers 147 Following I am 47, skin & beauty consultant with Beyond Beauty Club

sarahdave21 @davensarah21

108 Followers 184 Following Cystic Fibrosis - taking time away - but not the memories you create x

BBC Three @bbcthree

725K Followers 8K Following Let's glow for it ✨💄 #GlowUp #iPlayer

Vikki Jump @VikkihareHare

130 Followers 357 Following

Former UK Prime Minister, now UN Envoy for Global Education and WHO Ambassador for Global Health Financing, always Raith Rovers.

Gordon Brown @GordonBrown

227K Followers 488 Following Former UK Prime Minister, now UN Envoy for Global Education and WHO Ambassador for Global Health Financing, always Raith Rovers.

susan janet kruk @KrukSusan

5 Followers 15 Following

Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊

Jo Davidson @CFcarer

2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊

ROBERT KARDASHIAN @robkardashian

6.9M Followers 1K Following snapchat: 👻 robphuckedme Instagram: robkardashianofficial

Theresa May @theresa_may

993K Followers 34 Following Member of Parliament for Maidenhead. Former Prime Minister of the United Kingdom.

Charlie's fight @Fight4Charlie

6K Followers 352 Following Help save baby Charlie! https://t.co/QbJKAb4Lfw Instagram-charliesfight. #charliesfight #charliesarmy

Donald J. Trump @realDonaldTrump

87.3M Followers 51 Following 45th President of the United States of America🇺🇸

Constitutional Conservative #WI01. Factory Floor 2 Fortune 500. Killed TPP. Inventor w/many patents. Media inquiries: Tweet or DM @EmericaFirst
#ShallNotCensor

Paul Nehlen @pnehlen

50K Followers 973 Following Constitutional Conservative #WI01. Factory Floor 2 Fortune 500. Killed TPP. Inventor w/many patents. Media inquiries: Tweet or DM @EmericaFirst #ShallNotCensor

The NHS has never been under greater threat.
Sharing good news stories reminds both the public and politicians that we must not allow it to fail.

Big Up the NHS 💙 @butNHS

51K Followers 560 Following The NHS has never been under greater threat. Sharing good news stories reminds both the public and politicians that we must not allow it to fail.

Creating a team of a million people who are willing to fight for the NHS and its staff at this challenging time. Here to highlight key issues and boost morale.

NHS Million @NHSMillion

828K Followers 14K Following Creating a team of a million people who are willing to fight for the NHS and its staff at this challenging time. Here to highlight key issues and boost morale.

UK Independence Party @UKIP

195K Followers 4K Following Led by @NeilUKIP, UKIP is the only party that puts our own people first 🇬🇧

Conservatives @Conservatives

618K Followers 2K Following Get a DM from the PM 👇

The Labour Party @UKLabour

1.0M Followers 11K Following Labour is the party of working people.

We lead the UK’s work internationally, promoting the UK overseas, defending our security, projecting our values, reducing poverty and tackling global challenges

Foreign, Commonwealth.. @FCDOGovUK

1.1M Followers 3K Following We lead the UK’s work internationally, promoting the UK overseas, defending our security, projecting our values, reducing poverty and tackling global challenges

News, features and analysis from the World's newsroom. Breaking news, follow @BBCBreaking. UK news, @BBCNews. Latest sports news @BBCSport

BBC News (World) @BBCWorld

40.7M Followers 16 Following News, features and analysis from the World's newsroom. Breaking news, follow @BBCBreaking. UK news, @BBCNews. Latest sports news @BBCSport

News, features and analysis. For world news, follow @BBCWorld. Breaking news, follow @BBCBreaking. Latest sport news @BBCSport. Our Instagram: BBCNews

BBC News (UK) @BBCNews

15.3M Followers 85 Following News, features and analysis. For world news, follow @BBCWorld. Breaking news, follow @BBCBreaking. Latest sport news @BBCSport. Our Instagram: BBCNews

Secretary of State for Foreign, Commonwealth and Development Affairs; and Former Prime Minister of the United Kingdom

David Cameron @David_Cameron

1.8M Followers 406 Following Secretary of State for Foreign, Commonwealth and Development Affairs; and Former Prime Minister of the United Kingdom

Mayor of London @MayorofLondon

3.2M Followers 2K Following Tweets before 9 May 2016 are from the previous Mayor.

Jeremy Corbyn @jeremycorbyn

2.6M Followers 3K Following MP for Islington North 🌹

Vicky Bratherton @nomorenewblog

453 Followers 731 Following Senior Events Development Manager for @cftrust. Thrifty blogger. Opinions given are my own.

Social Media/Community Manager @CFTrust & tweets for @GariRedhill community pub. Lover of baking & dinosaurs. Owner of rubbish lungs & singing voice.

Emma Lake @EC_Lake

1K Followers 1K Following Social Media/Community Manager @CFTrust & tweets for @GariRedhill community pub. Lover of baking & dinosaurs. Owner of rubbish lungs & singing voice.

Sally Smith @choccymad

1K Followers 3K Following Love chocolate, lattes and raising awareness of cystic fibrosis

CYSTIC FIBROSIS TRUST AMBASSADOR, BEM 2015, PRIDE OF BRITAIN FINALIST 2016, ULSTER HERALD SPORTS PERSONALITY 2017. PRIDE OF BRITAIN WINNER 2020.

Liam Mc Hugh @liammchugh1961

1K Followers 2K Following CYSTIC FIBROSIS TRUST AMBASSADOR, BEM 2015, PRIDE OF BRITAIN FINALIST 2016, ULSTER HERALD SPORTS PERSONALITY 2017. PRIDE OF BRITAIN WINNER 2020.

DRudd @CF_Dad

991 Followers 915 Following Just cure CF. Three beautiful daughters...two have Cystic Fibrosis and they are winning the daily battle!

Max @Maxs_Story

631 Followers 2K Following This is Max. He was diagnosed with Cystic Fibrosis when he was 10 days old. Hes now 9! Trying to raise awareness for CF!

ChloeJohnstoneCF @CJTrustCF

288 Followers 655 Following Fundraising in memory of my beautiful Niece Chloe Johnstone with all money going to The Cystic Fibrosis Trust.

Would you take an organ if needed? In the UK only 31% have joined Organ Donor Register & 3 die per day waiting! Save a life & register today. Run by @Seb4CHUF

OrganDonation @OrganDonorLife

3K Followers 3K Following Would you take an organ if needed? In the UK only 31% have joined Organ Donor Register & 3 die per day waiting! Save a life & register today. Run by @Seb4CHUF

This account is no longer active.

Please follow @NHSNEY and @NHSNW for the latest news and updates from NHS England and NHS Improvement in the North of England

NHS England North @NHSEnglandNorth

23K Followers 3 Following This account is no longer active. Please follow @NHSNEY and @NHSNW for the latest news and updates from NHS England and NHS Improvement in the North of England

Official Page of the North Florida Chapter of the Cystic Fibrosis Foundation. We cover north Florida from Jacksonville to Pensacola and south to Gainesville

CFF North Florida @CFFNorthFL

502 Followers 203 Following Official Page of the North Florida Chapter of the Cystic Fibrosis Foundation. We cover north Florida from Jacksonville to Pensacola and south to Gainesville

The @CF_Foundation Greater New York Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.

CFF Greater New York .. @CFF_GNYC

1K Followers 540 Following The @CF_Foundation Greater New York Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.

Cystic Fibrosis Foundation's largest fundraising event with 400 walks nationwide where thousands come together to raise money to help find a cure for CF.

Great Strides @CF_GreatStrides

8K Followers 4K Following Cystic Fibrosis Foundation's largest fundraising event with 400 walks nationwide where thousands come together to raise money to help find a cure for CF.

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

Cystic Fibrosis Found.. @CF_Foundation

31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

CFWorldwide @CFWorldwide

2K Followers 341 Following CFW is an international non-profit aiding people with CF globally. http://t.co/08CEhMn9OC for more info!

CysticFibrosis @KnowCF

5K Followers 2K Following Join the https://t.co/5vKxrrS4po community and our movement -- together we are building knowledge and reaching for a cure.

CysticLife @CysticLife

4K Followers 375 Following Serving the Cystic Fibrosis community.

Father of 2 with DD F508.Spreading awareness,sharing support,looking forward to a cure for #cysticfibrosis. #YesOrkambi

CFAwareness @CFAwareness

4K Followers 1K Following Father of 2 with DD F508.Spreading awareness,sharing support,looking forward to a cure for #cysticfibrosis. #YesOrkambi

CFK support the children under Portsmouth Hospital with Cystic Fibrosis. We provide hospital and sports equipment along with activity grants and other services.

Cystic Fibrosis Kids @CFKidsUK

3K Followers 2K Following CFK support the children under Portsmouth Hospital with Cystic Fibrosis. We provide hospital and sports equipment along with activity grants and other services.

Mushroom Moon Designs @mushroommoonart

274 Followers 245 Following Digital paper and Ephemera, junk journals, art and papercrafts

Tweet us your stories, news, events ect. CF = CURE FOUND. @Misscaley gained angel wings June 13, 2014 at 7:03 pm. 💜 #CureCysticFibrosis Follow @BreatheForCaley

Cystic Fibrosis Non-P.. @CureToLive

2K Followers 910 Following Tweet us your stories, news, events ect. CF = CURE FOUND. @Misscaley gained angel wings June 13, 2014 at 7:03 pm. 💜 #CureCysticFibrosis Follow @BreatheForCaley

Live Life Give Life @LLTGL

7K Followers 3K Following Vibrant UK transplant and organ donation awareness charity.

#mumonamission Gemma Daysh, Campaigner for access to medicines, In the fight until all with cf have the chance to live a life unlimited 💪💪💜💜

Fight4Orkambi @fight4orkambi

1K Followers 654 Following #mumonamission Gemma Daysh, Campaigner for access to medicines, In the fight until all with cf have the chance to live a life unlimited 💪💪💜💜

#UK CF campaigner Sharon @CFno1LeftBehind

4 years ago

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#UK CF campaigner Sharon @CFno1LeftBehind

4 years ago

@gemmaleighweir I’m tidying my twitter followers So please follow me if you like my bio. Cheers guys 🤣🤣

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Ali Dillon 💙 NHS @Alidilly

4 years ago

@cftrust @nhsCFwarriormum @Kayz45 @BarneyCalman @DavidRamCFT @blakeydark @VertexPharma @Getemmahawkey @Guatemalagirl @MotherhoodvsCF @_MissMoo_ @emmagadie2009 @Daily_Express @DailyMailUK @janedaviescf Thank you yes we know all of that we are a campaign group with an understanding of all that as you know, we are just intrigued as to the claims made by The Daily Mail and hoping you are looking into the claims made.

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Cystic Fibrosis Trust @cftrust

4 years ago

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Cystic Fibrosis Trust @cftrust

4 years ago

@nhsCFwarriormum @Kayz45 @BarneyCalman @DavidRamCFT @blakeydark @VertexPharma @Alidilly @Getemmahawkey @Guatemalagirl @MotherhoodvsCF @_MissMoo_ @emmagadie2009 @Daily_Express @DailyMailUK @janedaviescf We are seeking a formal update from all parties. Now that the EMA have given Kaftrio the green light, it will take around two months for the EU to formally issue a licence which we expect will be in the Autumn. (1/2)

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Cystic Fibrosis Trust @cftrust

4 years ago

EU Medicines Agency @EMA_News

4 years ago

‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: ema.europa.eu/en/news/new-me…

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#UK CF campaigner Sharon @CFno1LeftBehind

4 years ago

#UK CF campaigner Sharon @CFno1LeftBehind

4 years ago

NHS to seal the deal on miracle cystic fibrosis medicine dailymail.co.uk/health/article… via @MailOnline

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Izzie 💙 @Cfsuperstarsmum

5 years ago

A massive thank you from my little dude on finally agreeing a deal. A deal which will help him and thousands of others. You have given us hope & restored our faith in compassion and common sense. Treatment needs to be proactive not reactive. @MattHancock @VertexPharma @NHSEngland

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Portchester Community School @PCSInformation

5 years ago

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Portchester Community School @PCSInformation

5 years ago

Today we welcomed Year 5 from @castle_primary A great day for them trying secondary lessons. Everyone was a credit to their school, high participation and enthusiasm! Here are some of their highlights. We hope future PCS superstars #confident #successful

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Cystic Fibrosis Trust @cftrust

6 years ago

Really pleased to have @fight4orkambi join us here on stage at #UKCFC to give a parent perspective of what access to new medicines like #Orkambi mean to those affected by #cysticfibrosis

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David Turner @GreatStrides65

6 years ago

BREAKING: petition for UK cystic fibrosis patients to have access to #OrkambiNow (available in US and much of EU but not here) gets >100,000 signatures in just 10 days #powerofus #lifeunlimited