CFLF @CFLifestyle
Helping people with Cystic Fibrosis with Recreation Grants toward Living STROnger & LOnger #STROLO CFLF.org United States Joined January 2010-
Tweets3K
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Followers1K
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Following706
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Likes2K
The CFLF has proudly merged with @MilesforCF, and will be re-branding under a new combined organizational name and logo. While we work to merge our social platforms, we ask for you to follow MilesForCF now for more information on BreatheStrong Exercise Grants!
Do you or your child have at least 1 copy of a nonsense mutation of CF? Join @EmilysEntourage'sCF nonsense mutation patient registry to learn about clinical trial opportunities! emilysentourage.org/patient-regist…
Calling all Males with CF! What's Your Interest? - mailchi.mp/cflf/strolo-un…
Thank you to our sponsors for supporting STROLO University!
This week’s STROLO U schedule! Register here! cflf.org/strolou
STROLO University Spring semester registration is open! Go to CFLF.org/strolou
Click the link to purchase coffee, tea, cocoa, chai etc. part of the proceeds goes toward the CFLF! givingbean.com/store/home.php…
Today is Giving Tuesday! Click the link below to help us reach our goal! Thank you to all our supporters! support.cflf.org/campaign/givin…
We want to see your Flat Champ! Make sure to download and print the Flat Champ off the champschallenge.org website and color him in to make it your own. Share your photos with us! The most creative Flat Champ photo wins a prize!!
The CFLF is excited for Champ's Challenge in #Colorado this weekend! Join us Sept 19th at Mount Sherman for a 14er hike to benefit the CFLF and people with #cysticfibrosis --> Register at champschallenge.org #hiking #denver
The CFLF is excited for Champ's Challenge in #Colorado this weekend! Join us Sept 19th at Mount Sherman for a 14er hike to benefit the CFLF and people with #cysticfibrosis --> Register at champschallenge.org #hiking
Thank you @abbvie for supporting the 14th Annual Champ's Challenge for Cystic Fibrosis.
Champ's Challenge for #cysticfibrosis is happening now, through the month of September! Join us in-person this weekend in #NewYork or #Colorado OR create your own challenge and join VIRTUALLY! Sign up at champschallenge.org
The CFLF is excited for Champ's Challenge in #NewYorkCity this weekend! Join us Sept 19th at Jones Beach State Park for a #5K Walk/Run to benefit the CFLF and people with #cysticfibrosis --> Register at champschallenge.org
The CFLF is excited for Champ's Challenge in #NewYorkCity this weekend! Join us Sept 19th at Jones Beach State Park for a #5K Walk/Run to benefit the CFLF and people with #cysticfibrosis --> Register at champschallenge.org
Champ's Challenge for #cysticfibrosis is happening now, through the month of September! Join us in-person this weekend in #NewYork or #Colorado OR create your own challenge and join VIRTUALLY! Sign up at champschallenge.org
Champ's Challenge for #cysticfibrosis is happening now, through the month of September! Join us in-person this weekend in #NewYork or #Colorado OR create your own challenge and join VIRTUALLY! Sign up at champschallenge.org
The CFLF would like to thank @abbvie for their sponsorship and participation in the 14th Annual Champ's Challenge for Cystic Fibrosis this year. We truly appreciate your support. champschallenge.org
We want to see your Flat Champ! Make sure to download and print the Flat Champ off the champschallenge.org website and color him in to make it your own. Share your photos with us! The most creative Flat Champ photo wins a prize!! #cysticfibrosis
Champ's Challenge for #cysticfibrosis is happening now, through the month of September! Join us in-person this weekend in #NewYork or #Colorado OR create your own challenge and join VIRTUALLY! Sign up at champschallenge.org
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
beth Vanstone @bethdenniss
467 Followers 246 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Jerry Cahill @jcahillYCF
4K Followers 5K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Beam for Cystic Fibro.. @Beam_CF
1K Followers 673 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Laura Teicher Bonnell.. @LauraTbonnell
2K Followers 2K Following Covered breaking news in Detroit. Founder of the Bonnell Foundation: helps families w/ cystic fibrosis. [email protected]
Beating The Odds @ChrisMacleodBTO
217 Followers 450 Following “Beating The Odds” is Chris MacLeod’s inspirational book with 11 lessons to help you overcome a health crisis and lead a more resilient life.
Nick Talbot @CF_vs_Everest
2K Followers 946 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Quynh Tran @QT_mph
368 Followers 984 Following 🙋🏻♀️ Here to listen, curate, & synthesize so people can manage their chronic illness by making informed decisions about their health. 🍎💊📈 #GiveMeMyData
Cat Williams @dizzycatdesign
6K Followers 6K Following NYU Film alum, artist,❤️ my rescue pup, writing, tango dancing. Double lung transplant 12/17/20 for cystic fibrosis. ♻️🫁
The Bonnell Foundatio.. @RoadmapToCF
844 Followers 1K Following The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls
Melodie Ramone @Melodie_Ramone
82K Followers 34K Following Author. Mom to autonomous wild things. Cystic Fibrosis Advocate. Certified Kitchen Witch. A Goddess with a Godzilla twist. I am my mother's savage daughter.
Bob Coughlin @BobCoughlin
7K Followers 2K Following Managing Director, Life Sciences @JLL, former @MassBio CEO. Public Speaker, Former MA House of Representatives, Patient Advocate, CF Dad, #PatientDriven
Retta Vialpando @rettaLV
142 Followers 1K Following Disabled former journalist trying to heal a broken body. Trying to learn, share my experiences with a broken health care system. #pwME #hEDS #longCovid
Doris Doney @DoneyDoris61910
85 Followers 5K Following
Elizabeth_Mill @ElizabethM8053
18 Followers 2K Following
Susanna McColley MD (.. @SusannaMcColley
2K Followers 2K Following Professor of Pediatrics @NUFeinbergMed @LurieChildrens, @NUCATSInstitute, Editor-in-Chief, Pediatric Pulmonology. CF, Child Health, Health Equity. Tweets=mine.
Fibrosis_SCIEPublish @Fibrosis_htu
29 Followers 482 Following The official journal of Henan Normal University.
Rachel a Hampton @Rachelanne6981
24 Followers 68 Following 41. Leaving Cystic Fibrosis and all the good stuff that comes with it. Meeting people to talk to about adults yet and not having a support group
Rae Alder @AuthenticlyRae
43 Followers 149 Following Advocate, Speaker, and Fighter: Cystic Fibrosis, EDS, POTS. Advocating for equity & our right to authenticity ✊🏾 ♥︎ 🏳️🌈
Accelsiors Cystic Fib.. @AccCysticFibro
24 Followers 148 Following We are on a mission to promote and support the development of future therapies to combat Cystic Fibrosis. #cysticfibrosis
The Extroverted Intro.. @_joelNOTosteen_
1K Followers 4K Following Private musings of a public school educator |👨🏻🏫🎶🎹 |🧑🏻💻|✝️|♍️|7️⃣0️⃣4️⃣|🏳️🌈🙇🏻♂️|🔴⚫️🟡 | 6️⃣5️⃣🌹|
Judy Hamblen @MomJudyHamblen
16 Followers 127 Following HEARTBROKEN LOST 3 SON'S TO CRITICAL DISEASES!:GOD BLESS ALWAYS SISTER IN CHRIST JUDY ANN HAMBLEN
Kelly McPartland Borz.. @KMMcPartland
105 Followers 622 Following Non-profit professional, diabetes and cystic fibrosis advocate, amateur runner, Bowie fanatic.
Marrah Lachowicz-Scro.. @LachowiczMarrah
1K Followers 3K Following Program Director NHLBI: cilia/mucus, CF, PCD, gene therapy tech, women's health, COVID/PASC. Any opinions expressed are my own not the views of my employer.
Stacey Stein @smmstein39
134 Followers 1K Following To know You is to Love 💕 You. Mother, wife- and everything else that comes with life as a Woman ♌️ 🦁
Taylor Baumann @TaylorFromPulm
163 Followers 379 Following MedPeds Pulmonary fellow @BostonChildrens & @BrighamWomens, Transitions for kids with chronic lung disease into adult care.
Sean McCooe @seanmccooe
2K Followers 5K Following networker, recruiter, executive search, partner, career counselor, contract recruiter
#1 MeMa 🟧 🌈 �.. @sabra_serreyn
2K Followers 2K Following Mistakes don’t define a person, how they respond to them do. 💙
Nancy Paradis @NancyParadis66
116 Followers 170 Following Born & raised in Southwest Detroit…Saw JOHNNY DEPP in Louisville October 22,2022 I advocate for Chiari Malformation and Cystic Fibrosis🤘🏼😈☠️🖤☮️
Elpis Hatziagorou @hatziagorou
20 Followers 952 Following
amgra8e @amgra8e
45 Followers 235 Following Trying to find my way through a life I'm just surviving & not living. Covid has taken it all from those who still have to shield!
Jean-Luc Raes @jlraes
27 Followers 208 Following
𝗩𝗮𝗹𝗲𝗿�.. @ValDimitrva
211 Followers 837 Following Multilingual MD2025 @uOttawaMed | passionate about #communityhealth & all things #pediatrics 🧡 | Francophile, avid musician, researcher | always learning 🌎
Project CF Spouse @ProjectCFSpouse
121 Followers 267 Following Are you the spouse or partner of someone with cystic fibrosis? Have you been looking to connect with other CF spouses and partners? Well, look no further!!
Kyle Kresina @KyleKresina22
8 Followers 75 Following
JenniferArt&Iconograp.. @JenniferArtIcon
3 Followers 49 Following The art and religious iconography of visual artist, Jennifer M. McDaniel. Posting original works of art both digital and physical.
A. Roberts 📸 @hippylovephotos
280 Followers 454 Following 'Cuse🍊✖️est.2013 ✖️Published Photographer 📚 ✖️CF🫁
The Charity CRM @CrmCharity
270 Followers 2K Following Providing CRM solutions that enable charities to simplify and enhance fund raising activities.
Lisa Wells @dth3
17 Followers 274 Following
Deborah Derrig @DeborahDerrig
34 Followers 278 Following
Allison Griffin @Altomyfriends
54 Followers 248 Following Overextended Lake Highlands Mom and Community Volunteer, Business Owner, Dog Whisperer and Recovering Runner.
Lisa Stackhouse @lmstackhouse
23 Followers 114 Following Cystic Fibrosis, Double Lung Transplant Recipient - Oct 2015, ToyPoodleLover :)
Discapacidad Fibrosis.. @DiscapacidadFQ
11 Followers 75 Following Cuenta creada para solicitar la equiparación en la concesión de la discapacidad en los pacientes de Fibrosis Quística en todo el territorio Español.
Suzanne Lagemann @SuzanneLagemann
0 Followers 10 Following
GADGET ESSENCE 21 @GoGoGadgets21
51 Followers 424 Following We like to promote and develop cool gadgets.
Hey, Lisa @delsonno9_lisa
3K Followers 4K Following 💙”Live Life to the Fullest,” In Memory of Analisa!💙 Happily Married - No DM
Kathleen McShane @KathleenMcSha17
1 Followers 21 Following
Felix Biotechnology @felixbiotech
2K Followers 2K Following Passionate and focused on accelerating the development and deployment of novel biotherapeutics to manage microbes in human health and beyond.
BlueBoxDigital @BlueBoxDigital1
66 Followers 63 Following Digital media production company specializing in video production and photography.
विजय प्�.. @7F02Z8nbj80FeUi
11 Followers 240 Following
Roby Turpin @MyRobo555
101 Followers 689 Following
Cystic Fibrosis Found.. @CF_Foundation
31K Followers 3K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
CysticFibrosisCanada @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
beth Vanstone @bethdenniss
467 Followers 246 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.
Jerry Cahill @jcahillYCF
4K Followers 5K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Beam for Cystic Fibro.. @Beam_CF
1K Followers 673 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Vertex Pharmaceutical.. @VertexPharma
72K Followers 89 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
Boomer Esiason Founda.. @cysticfibrosis
10K Followers 964 Following Fighting Cystic Fibrosis - Advocacy - Education - Fundraising
claire wineland @clairewineland
21K Followers 611 Following Claire Wineland started Claire's Place Foundation at 13 yrs of age in 2011. We are a 501c3 committed to helping others living with cystic fibrosis like Claire
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Laura Teicher Bonnell.. @LauraTbonnell
2K Followers 2K Following Covered breaking news in Detroit. Founder of the Bonnell Foundation: helps families w/ cystic fibrosis. [email protected]
Nick Talbot @CF_vs_Everest
2K Followers 946 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
Cat Williams @dizzycatdesign
6K Followers 6K Following NYU Film alum, artist,❤️ my rescue pup, writing, tango dancing. Double lung transplant 12/17/20 for cystic fibrosis. ♻️🫁
The Bonnell Foundatio.. @RoadmapToCF
844 Followers 1K Following The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls
Bob Coughlin @BobCoughlin
7K Followers 2K Following Managing Director, Life Sciences @JLL, former @MassBio CEO. Public Speaker, Former MA House of Representatives, Patient Advocate, CF Dad, #PatientDriven
Boomer Esiason @7BOOMERESIASON
237K Followers 368 Following CBS Sports NFL TODAY,WFAN,CBSSN, WASPS HOCKEY
AbbVie @abbvie
80K Followers 481 Following Official global handle sharing the latest news about our company, science & people. Review our guidelines: https://t.co/AY8CXTtpuM
Gregory Sawicki MD MP.. @GregSawickiMD
416 Followers 165 Following Pediatric pulmonologist, CF Center Director @BostonChildrens, CF advocate, health services researcher, 👨👨👧👦
Bobby Foster @_bobbyfoster
19K Followers 568 Following Music. Movies. Reviews. Make Life Worth It 🎵🎬🎮 Cystic Fibrosis 💜
CFPhysio.com Inc @CfphysioInc
180 Followers 97 Following https://t.co/LNQmXVSsy9 Inc is a group of specialist physiotherapists from Aus & NZ. We’ve co-designed online educational resources for people living with & working in CF.
American Flatbread @Flatbreadbtv
1K Followers 211 Following Incredible local flatbread, salad and Zero Gravity Beer made here.
NestleHealthScience @NestleHealthUS
3K Followers 265 Following Official Twitter account of Nestlé Health Science U.S.
Beth Finn @eabibb
611 Followers 945 Following Mother to a beautiful daughter who has cystic fibrosis. Nurse. Wife. Live for today.....you never know what tomorrow may bring 💛
CF Nutritional Suppor.. @llc_cf
101 Followers 549 Following My goal is to help CF'ers better access vitamins, probiotics & supplements they need to thrive until CF stands for #CureFound e:[email protected]
Ron DeSantis @GovRonDeSantis
4.8M Followers 1 Following 46th Governor of the great state of Florida.
NestléHealthScience @NestleNHSc
800 Followers 56 Following Empowering healthier lives through nutrition
STAT @statnews
165K Followers 5K Following Reporting from the frontiers of health & medicine. Sign up for any of our 10 free newsletters here: https://t.co/CBx3GZBv31
Audrey Chansard @audrey_945
384 Followers 789 Following 🧬Research assistant on epigenome maintenance at @polosophie🔬Vice president at CF Europe💊Patient advocate for Cystic Fibrosis🫁animals and travels lover🦊🚀
Anthony Thompson @bigbaddoctor
2K Followers 5K Following 58, Hubby, Dad, Runner, Gamer,Cystic Fibrosis (pw), 🔺F508 & 2798+ 5G - A, Consultant in Palliative Medicine, Recent #clavicle 🚴 crash, ManU fan, ❤️NHS
Diane Calello 😷�.. @DrDianeC
2K Followers 2K Following Toxicologist, Pediatrician, Writer, Poison Control. Tweets not medical advice. @toxandhound #cysticfibrosis
Standup Journal @StandupJournal
10K Followers 723 Following @standupjournal represents the spirit, personalities and jaw dropping images surrounding the stand up paddling lifestyle. #sup #standuppaddle #paddleboarding
Anthony I McDaniel: M.. @L_A_T_E_Podcast
15 Followers 21 Following This is the twitter page for the Better Late Then Never Podcast. We discuss Anime, Video Games, and everything in between.
65 Roses Podcast Show @65RosesPodcast
20 Followers 17 Following Hi, this is a podcast about discussing and raising awareness on the disease known as Cystic Fibrosis (or CF for short).
Chronically Chill Pod.. @CC_Podcast_
10 Followers 13 Following Hi this is Anthony I McDaniel. This page is for my Chronically Chill Podcast. We will be covering several other disabilities.
Kevin Laurence @kevinlaurence1
192 Followers 56 Following
Chad Riedy @cjriedy
479 Followers 574 Following Husband, father of 2 incredible boys and friend, living with #CysticFibrosis and no longer a long suffering DC sports fan.
Shaw's Supermarket @shaws
4K Followers 117 Following Here for the community, the food and the moments we share around the table. Join us, and share your stories! #SincerelyFood #SincerelyShaws
TED Talks @TEDTalks
11.1M Followers 692 Following TED is a nonprofit devoted to the ideas shaping tomorrow. 🔴 Support our mission by becoming a TED Member: https://t.co/kMHLEIyXAf
Lisa Bentley @lisabentley
2K Followers 322 Following Speaker, Author of "An Unlikely Champion", 11-time Ironman Champion, Cystic Fibrosis Fighter, Television Commentator
The Pulmonary Hyperte.. @PHAssociation
7K Followers 3K Following Our mission is to extend and improve the lives of those affected by pulmonary hypertension.
Vermont Lake Monsters @VTLakeMonsters
11K Followers 585 Following ⚾️ Futures Collegiate Baseball League franchise in Burlington, VT #LakeMonsters
UVM Medical Center @UVMMedCenter
6K Followers 1K Following A nationally recognized medical center where academic health care comes together with the values of Vermont to create one-of-a-kind care.
JAMESWYATT @jamesswyatt
364 Followers 513 Following Family man, Occupational Therapist, founder of Singing 4 Breathing (designed for respiratory conditions). Deaf specialist and hospital ward manager at STAH
Singing4Breathing CIC @CopdSingers
2K Followers 5K Following Award winning Choir + Harmonica players dx with various respiratory conditions eg COPD asthma etc Online + Live Sessions. Northampton based.
Team Michael Moeschl @TeamMikeMoeschl
607 Followers 2K Following Help find a Cure for Cystic Fibrosis, for kids and adults with Cystic Fibrosis. Donate to the Cystic Fibrosis Foundation! I'm Mike's mom, his biggest fan!
Travis Flores @travisflores
11K Followers 7K Following “5yrs to live” 31 yrs ago💪#DonateLife💙🫁💚#CysticFibrosis Speaker | Writer | Producer (He/Him) @NYUniversity: MS #YellowHeartSquad💛#lovewins🏳️🌈
Center For Latino Pat.. @LatinoswithCF
168 Followers 198 Following Our mission is to improve the health and quality of life for Latino patients with Cystic Fibrosis through research, education, advocacy, & patient engagement.
Martha Auster @marthaauster
424 Followers 5K Following I love politics, public policy & parenting; tweets are my own.
NTM Info & Research @NTMinfo
1K Followers 1K Following #NTMir Non-profit organization dedicated to patient support, medical education & research for people with nontuberculous mycobacterial lung disease (#NTM).
Michelle in Vegas ⚔.. @michelyn_vegas
854 Followers 4K Following she/her - #CFer 🫁 - Vegas Local 🌇 - Freelance Designer @pixeltherapy_LV 👩🏼💻 - #GoKnightsGo ⚔️🏒 - #GoBrowns 🏈
Mary Vought @MaryVought
18K Followers 2K Following VP of Comms @Heritage 🇺🇸 | Vought Strategies 🎥👩💼| 📝: @NYPost, @WSJ, @USAToday | Senior Fellow @IWF | Fellow @ClaremontInst | Alaska Raised 🏔️
Pioneer Institute @PioneerBoston
29K Followers 19K Following Dynamic ideas that advance prosperity and a vibrant civic life in Massachusetts and beyond. Contact: [email protected].
ABC22 & FOX44 @WVNYWFFF
20K Followers 690 Following #LocalNewsThatMatters Follow us on Instagram: @abc22fox44 Like our Facebook: @WVNYWFFF
Robin Kanarek @Rbennk
6K Followers 6K Following President, Kanarek Family Foundation, RN, Palliative Care Advocate - Foundation website: https://t.co/oUhKzPZeq5
SpaceX @SpaceX
34.6M Followers 113 Following SpaceX designs, manufactures and launches the world’s most advanced rockets and spacecraft
Global Care Capital I.. @GlobalCareCapi1
471 Followers 666 Following Global Care Capital is a global investment company that specializes in providing early-stage financing to private and public companies. CSE: $HLTH #Biotech
Purdue Research Found.. @PurdueResFound
5K Followers 2K Following We help to advance Purdue's mission in improving the world through #Purdue technologies and graduates. https://t.co/Lrf66YibvJ https://t.co/QQiAQfqyeZ
SFF @sdgirl_babe
94 Followers 518 Following Mujer. Cystic Fibrosis Parent and Advocate. Entrepreneur. Interior Decor enthusiast. 🇲🇽 🇺🇸 Views are my own.
Celine Dion @celinedion
935K Followers 105 Following Posts signed TC = Team Celine Publications signées TC = Team Céline
Miley Cyrus @MileyCyrus
46.2M Followers 77 Following Doctor (Work It Out) OUT NOW https://t.co/yLdjWxFtkO
Taylor Swift @taylorswift13
95.4M Followers 0 Following All’s fair in love and poetry... New album THE TORTURED POETS DEPARTMENT. Out now 🤍
Andy Grammer @andygrammer
140K Followers 1K Following “Expensive” ft @ptxofficial is out now! Get tickets to my fall tour⬇️Today, we announced an investment of $3.5 million in Pulmocide for the development of a potential inhaled antifungal treatment to prevent aspergillus in people who have had a lung transplant. #CFResearch cff.org/news/2021-12/c…
Thank you @abbvie for supporting the 14th Annual Champ's Challenge for Cystic Fibrosis.
Champ's Challenge for #cysticfibrosis is happening now, through the month of September! Join us in-person this weekend in #NewYork or #Colorado OR create your own challenge and join VIRTUALLY! Sign up at champschallenge.org
Hello international CF community! I’m writing a piece about differences in approval in CFTR modulators across the world. Do you mind sharing where you’re from and your experience?
Tonight at 8pm on @AmericasGotIt the @NorthwellHealth Nurse’s Choir will be singing a song from @FiveFeetApart. 3 of the nurses care for children with #CysticFibrosis. Watch on NBC and vote for them! #cfawareness @CF_Foundation @justinbaldoni @CFF_GNYC
Cystic fibrosis impacts all areas of your life – from how you navigate insurance, to your nutritional needs, and everything in between. On September 24 – 25, talk with hundreds of adults with CF at #BreatheCon ➡ on.cff.org/BreatheCon-202…
Join the 14th Annual Champ's Challenge for #cysticfibrosis, taking place in Colorado, New York, and Virtually, from wherever you live in the world! Sign up at champschallenge.org
Join the CFLF Wed, Sept 1st @ 7 PM EST for a Facebook livesteam for the Virtual Kickoff of the 14th Annual #champschallenge for #cysticfibrosis Fun giveaways, announcements, and we'll introduce you to the CFLF's 1,500th Grant Recipient! 🎉 --> champschallenge.org
Champ's Challenge is KICKING OFF NOW!!!! Join the livestream now for the Champ's Challenge for #cysticfibrosis KICKOFF!!! fb.watch/7LLK1qyfbr/
Join the 14th Annual Champ's Challenge for #cysticfibrosis, taking place in Colorado, New York, and Virtually, from wherever you live in the world! Sign up at champschallenge.org
Sign up now for the CFLF's 14th Annual Champ's Challenge for #cysticfibrosis --> Register at champschallenge.org
KALYDECO APPROVED IN CANADA TO TREAT INFANTS 4 MONTHS AND OLDER Health Canada has extended the use of #Kalydeco to treat babies as young as four months old with specific #CysticFibrosis mutations. newswire.ca/news-releases/… #GeneModulators #CFTR #CFmodulator #CFcantwait #CureCF
Congratulations to Jan van Berkel for winning the 2021 IRONMAN Switzerland Thun! 🥇 🎥 presented by @selle_italia
Many people with cystic fibrosis choose surrogacy as a family building option. Nicholas Kotowski and his wife, Amber, who is post-transplant, share why this decision was best for their family. on.cff.org/38KFLQU
So thankful to be a part of this project with @kira.taylor.99 to raise awareness for #cysticfibrosis. I am honored to help tell your story! @CFLifestyle #cfcommunityunites #cysticfibrosisawareness #cfawareness
"It wasn't until I realized that I had begun to suffer from symptoms of depression that I acknowledged that I needed to tell my support system. By doing so, I learned I was not burdening them in the slightest." on.cff.org/3jsg1P3
Boomer Esiason Foundation Charity Tee Support @cysticfibrosis your purchase! Proceeds will contribute to the fight against cystic fibrosis. flagandanthem.com/products/copy-…
FIRST #NationalCFEducationConference VIDEOS NOW AVAILABLE “Reproductive Health in Men & Women with CF: What Do We Know & What Do We Need to Know?” presented by Dr. Raksha Jain “Getting to the After Times: CF & COVID in Year 2" presented by Dr. Rick Moss youtube.com/playlist?list=…
Knowing your CF mutation: Knowing your mutations is important because it affects which treatments will work for you and which won’t. #CF #CysticFibrosis bit.ly/3ovVEkq
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