Kristiana Salmon @KristianaSalmon
Director, Clinical Development at QurAlis. ALS advocate, genetics nerd, 🇨🇦, #womeninstem. Tweets & opinions are my own. she/her Toronto, Ontario Joined August 2009-
Tweets1K
-
Followers526
-
Following359
-
Likes4K
QurAlis at #AAN24! QurAlis' head of development Emma Bowden, PhD, presented a poster on two Phase 1 clinical trials of QRL-101 in #ALS patients. QRL-101 is a first-in-class #Kv7 #precisionmedicine for ALS. #neurodegenerativediseases
Meet our ✨ new ✨ Pre-Fellow🥼 @HevMarriott is further investigating if people with #MND #ALS can be grouped based on shared biology. This could help better predict disease progression and move towards personalised treatment options. Learn more: mndassociation.org/research/our-r…
A new research project has launched as part of the Pre-Fellowship scheme, funded by the MND Association and administered by @MNDScotland. Dr Heather Marriott will work on a project that aims to find early indicators of #MND progression. Read the full story below 👇
A great opportunity for an enthusiastic graduate to contribute to the development of online materials as part of the @GeneTherapyHubs Skills and Training provided by the #GTIMC at University of Sheffield Find out more here: bit.ly/3J3OyPR Application Deadline: 16 April
Today @profcjmcdermott and I have written to the Rt Hon Andrew Stephenson CBE MP, Minister for Health and Social Care, asking for an urgent meeting to discuss how NICE evaluates new treatments for #MND #ALS in light of their decision on Tofersen. @UKMNDRI @mndassoc @MNDoddie5
Our letter to @Andrew4Pendle requesting an urgent meeting on #Tofersen for #ALS #MND and the evaluation by @NICEComms is available to read here: ukmndri.org/2024/04/02/uk-… @UKMNDRI @profcjmcdermott @united2endmnd @mndassoc @MNDoddie5 @MNDScotland @ENCALS
Our letter to @Andrew4Pendle requesting an urgent meeting on #Tofersen for #ALS #MND and the evaluation by @NICEComms is available to read here: ukmndri.org/2024/04/02/uk-… @UKMNDRI @profcjmcdermott @united2endmnd @mndassoc @MNDoddie5 @MNDScotland @ENCALS
We welcome this development from @jennagregory488. Whilst not currently a diagnostic test - having been conducted on post-mortem brain tissue - it does provide an exciting advance with potential to lead to an early diagnostic - desperately needed for MND. abdn.ac.uk/news/22988/
As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. @NICEComms #MND @UKMNDRI @UK_mnd_CSG @mndassoc mndcsg.org.uk/#h.vl5d4roawb92
We are trying to understand how to better support genetic #MND#ALS families in accessing reproductive medicine options. As part of this we need to survey MND clinicians experience and views. Please consider completing: shef.qualtrics.com/jfe/form/SV_1S…
#ALS touches so many including QurAlis' very own @michaelmcmillan. Mike's uncle, Kevin Gosnell, helped found @alsone_official. QurAlis is a proud sponsor of the ALSONE 2024 Snow Ball to raise funds to advance critical ALS research and care. #ribbontreesofhopeandremembrance
QurAlis is honored to sponsor the @alsone_official 2024 Snow Ball to help raise much-needed funds to advance critical #ALS research and care. It was a truly magical evening! #precisionmedicine #neurodegenerativediseases
Looking forward to participating in this event 😀
Looking forward to participating in this event 😀
Thanks @AmmarAlChalabi, @AlfredoIacoange and @AhmadAlKhleifat for your invaluable guidance and support over the last 3 years 🌟, and to @tammarynlashley and Kevin Kenna for making the viva experience so positive and enjoyable!!!
Thanks @AmmarAlChalabi, @AlfredoIacoange and @AhmadAlKhleifat for your invaluable guidance and support over the last 3 years 🌟, and to @tammarynlashley and Kevin Kenna for making the viva experience so positive and enjoyable!!!
Join us for our next event : Practical Updates in Genetic Testing in ALS and FTD. Hear from genetic counselor Tara Jones and clinician researcher Dr Ammar Al-Chalabi regarding updates and perspectives on genetic testing in ALS and FTD. endthelegacy.org/event-details/…
Great step forward for those w/ familial SOD1-MND - the European Medicines Agency has recommended approval for tofersen as a treatment. This isn't the final step, but fingers crossed that this treatment gets approved by the European Commission & then in the UK too! #ALS #MND
📢 Latest news! 📢 Tofersen (Qalsody) receives positive opinion from @EMA_News for the treatment of #SOD1 #MND #ALS. This positive opinion will now be sent to the European commission to make a final decision on approval. Read more ⬇️ ema.europa.eu/en/news/new-tr…
@EMA_News has just approved Tofersen for the treatment of #SOD1 #ALS #MND. Thank you @stephfradette for steering this through. Announcement from @biogen here: investors.biogen.com/news-releases/… @mndassoc @MNDoddie5 @MNDScotland @ENCALS @End_The_Legacy @UKMNDRI @kingsmnd
We’ve received a positive opinion from the European Medicine Agency’s Committee for Medicinal Products for Human Use (CHMP) for our treatment for amyotrophic lateral sclerosis (#ALS) in adults who have a specific gene mutation. Learn more about this news: bit.ly/4bP14ju
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
Jean C9orf72 @Jeanc9orf72
1K Followers 855 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
David Taylor @VPResearch_ALS
1K Followers 1K Following ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Dr Ahmad Al-Khleifat @AhmadAlKhleifat
2K Followers 351 Following Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
Steven Gallagher @SteveGMedia
4K Followers 1K Following Olivia’s dad. Family first. Niagara booster, healthcare communicator. Loyal Bills, Blue Jays and Sabres fan. als WARRIOR
Danielle Boyce @DataSciDanielle
581 Followers 1K Following Data scientist/Drug Repurposing, Neurodegen + Epilepsy + ID + Oncology//art lover//patient advocate//mom of 4 / Views strictly my own.
Hani Nadhir @NadhirHani5226
9 Followers 164 Following
Sclerosis MDPI @SclerosisMdpi
39 Followers 347 Following Sclerosis is an international open-access journal on sclerosis and related diseases, published quarterly by @MDPIOpenAccess.
Dorothy Jones @DorothyJon71404
64 Followers 710 Following
superduperdraper @superduperdrap1
1 Followers 162 Following
David Ali @davidiali
358 Followers 407 Following MND advocate and supporter and working towards a world free from ALS/MND. Views/RT my own
Ankur Kumar @AnkurKu68142441
17 Followers 202 Following
PreciousLesage @LesagePrec23722
49 Followers 2K Following
Zenith_Zap @ZapZenith41194
21 Followers 1K Following
Jaiswalshree @jaiswalshree
71 Followers 374 Following Neuroscientist, Innovator, Editor, Writer, Research ALS disease, Single-Cell Multiomics. Views Personal. RTs not endorsement. Faculty @MountSinaiNYC,@SinaiBrain
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Zhi Yao @zyao2010
652 Followers 653 Following Neuroscientist, drug discovery scientist 🔬🧫👩💻💊. Volunteer emergency ambulance crew @stjohnambulance 🚑 All views are my own 🙂
EmbrSrn_ty @embrsrn67416
13 Followers 432 Following
ling chen @LingChen353
397 Followers 3K Following
Jim Swank @JimSwank18
204 Followers 691 Following
Samuel Hume @SamuelBHume
3K Followers 5K Following Scientist, medic. PhD from @UniofOxford, Fellow of @FoulkesFdn. Writing about new innovations in biology and medicine.
Sarah Barouni @princessesarah
50 Followers 655 Following
Eikonizo Therapeutics @Eikonizo
157 Followers 305 Following Envisioning an end to neurodegenerative and other diseases
AhmedNewbrough @AhmedNewbr67276
72 Followers 2K Following
Nicole @NicoleFrand
74 Followers 383 Following just a girl talking to the world wide web...startup person turned nurse practitioner
Mari Carmen Pelaez @MariCPelaez
46 Followers 153 Following
Daniel Ack @meadowcopse
1K Followers 2K Following Meadow, Orchard, Woodland. Conservation, Landscape History, etc. Goth & Folk music. Crohn's Disease & ALS / MND... Also @WurthympWood
GregoryLab @GregoryLab7
370 Followers 403 Following Our lab are interested in understanding the non-motor manifestations of motor neuron disease including cognition and the gut-brain axis.
Ayana @shoadeight32791
32 Followers 2K Following
Fergal Waldron @FergalWaldron
436 Followers 484 Following Advanced Research Fellow @aberdeenuni | MND/ALS & neurodegenerative diseases | Clinical heterogeneity | Immunity & neuroinflammation | Genetics | Data synthesis
Geoff @Gebinh1
15K Followers 13K Following MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
C. Zhang @Hansen_010101
15 Followers 81 Following
Mdm @Mdm34554139
77 Followers 262 Following
KEMAL OZ2023 @kemaloztly
9 Followers 382 Following Sadece önem verip takip ettiklerim için açtığım bir hesaptır. Takip ettiğim kişilerin dışında gelen istekleri kabul etmiyorum.
Carolynse67 @chapunkL9
111 Followers 988 Following I believe Bitcoin is a very convenient way to shop and to transfer money to any account around the world. Governments
Tulips And Jeans (Tul.. @TulipsJeans
41 Followers 224 Following Proud mother of a toddler boy Working in the field of occupational@medicine. area of interest: gut microbiome
Nitesh Sanghai, PhD C.. @Sanghai_MedChem
163 Followers 573 Following Medicinal Chemistry, Drug Discovery. Doing Science to bring meaningful impact in human life. Let’s come together to bring “Hope” in People’s Lives. Love you God
Jennie Starkey @StarkeyJennie
479 Followers 320 Following Mum of 4, educator, PhD student, diagnosed with MND Sept 2021. recently retired. Raising MND awareness through humour (sometimes dark) with my blog.
Betty’s Brigade Fou.. @No_More_ALS
346 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
Kevin Geraghty @KevinMGeraghty
234 Followers 351 Following 40 year old hell bent on living and fighting #ALS with every fiber of my being. If you’re going through hell, keep going. #IAMALS #EndALS #fuckALS
Nguyen Tran Minh Duc,.. @DuckyM2
190 Followers 2K Following Co-First Author of "A Consensus-Based Checklist for Reporting of Survey Studies (CROSS)" in the Journal of General Internal Medicine.
Readers' Division @ReadersDivision
42K Followers 9K Following Welcome to Reader's Division, where we share the best stories, funny jokes, trending news, motivational advice, and more. Follow us!
EndTheLegacy @End_The_Legacy
327 Followers 65 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
Nicole Cimbura @nicolecimbura
1K Followers 2K Following
Dr Hannah Smith @DrHannahSmith
128 Followers 138 Following (she/her, PhD in Neuroscience) Post-doctoral research fellow @EdinburghUni studying the translatome in ALS, under Prof Tom Gillingwater (@GillingwaterLab)
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Jean C9orf72 @Jeanc9orf72
1K Followers 855 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy
Chris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
David Taylor @VPResearch_ALS
1K Followers 1K Following ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
Dr Ahmad Al-Khleifat @AhmadAlKhleifat
2K Followers 351 Following Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
Steven Gallagher @SteveGMedia
4K Followers 1K Following Olivia’s dad. Family first. Niagara booster, healthcare communicator. Loyal Bills, Blue Jays and Sabres fan. als WARRIOR
Danielle Boyce @DataSciDanielle
581 Followers 1K Following Data scientist/Drug Repurposing, Neurodegen + Epilepsy + ID + Oncology//art lover//patient advocate//mom of 4 / Views strictly my own.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Henk-Jan Westeneng @HJWesteneng
7K Followers 12 Following MD | MND researcher | Neurology | Imaging | Integration | Prediction | (Bayesian) statistics | Probability
Eikonizo Therapeutics @Eikonizo
157 Followers 305 Following Envisioning an end to neurodegenerative and other diseases
Amber Sewell-Green @AmberGreen67157
28 Followers 77 Following BrainMoodDietitian🌱🍓🍇🥑 BuddingNeuroscientist🧠🔬@Steyn_Lab @Ngo_Lab @UQ_News MND Research ||PhD Student
Mari Carmen Pelaez @MariCPelaez
46 Followers 153 Following
David Ali @davidiali
358 Followers 407 Following MND advocate and supporter and working towards a world free from ALS/MND. Views/RT my own
Daniel Ack @meadowcopse
1K Followers 2K Following Meadow, Orchard, Woodland. Conservation, Landscape History, etc. Goth & Folk music. Crohn's Disease & ALS / MND... Also @WurthympWood
ProJenX @ProJenX
36 Followers 31 Following
Fergal Waldron @FergalWaldron
436 Followers 484 Following Advanced Research Fellow @aberdeenuni | MND/ALS & neurodegenerative diseases | Clinical heterogeneity | Immunity & neuroinflammation | Genetics | Data synthesis
Geoff @Gebinh1
15K Followers 13K Following MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
UK MND Research Insti.. @UKMNDRI
551 Followers 58 Following A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
Nitesh Sanghai, PhD C.. @Sanghai_MedChem
163 Followers 573 Following Medicinal Chemistry, Drug Discovery. Doing Science to bring meaningful impact in human life. Let’s come together to bring “Hope” in People’s Lives. Love you God
Jennie Starkey @StarkeyJennie
479 Followers 320 Following Mum of 4, educator, PhD student, diagnosed with MND Sept 2021. recently retired. Raising MND awareness through humour (sometimes dark) with my blog.
Allison Bulat @AllisonBulat
26 Followers 42 Following
The AFTD @AFTDHope
3K Followers 991 Following We envision a world with compassionate care, effective support, and a future free of FTD #endFTD
Nguyen Tran Minh Duc,.. @DuckyM2
190 Followers 2K Following Co-First Author of "A Consensus-Based Checklist for Reporting of Survey Studies (CROSS)" in the Journal of General Internal Medicine.
Joshua Elkington @elkingtonxy
25K Followers 3K Following Founder and General Partner at Axial @axialxyz
The New Yorker @NewYorker
8.8M Followers 405 Following Unparalleled reporting and commentary on politics and culture, plus humor and cartoons, fiction and poetry. Get our Daily newsletter: https://t.co/CW0Z2jHao9
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
Alex Cammack @AlexCammack
512 Followers 726 Following @EMBO and @LiveLikeLou4 postdoctoral fellow | @UCL and @UKDRI | @adrianisaacslab | mechanisms of FTD/ALS | formerly @WUSTL and @Tulane
Dr Puja R. Mehta 🩺.. @DrPujaM
1K Followers 2K Following Wellcome clinical PhD fellow at Queen Square Institute of Neurology @FrattaLab 🧪 • Motor neuron disease researcher 🧠 • Neurologist 🩺 • @Cambridge_Uni alumna
Dr Hannah Smith @DrHannahSmith
128 Followers 138 Following (she/her, PhD in Neuroscience) Post-doctoral research fellow @EdinburghUni studying the translatome in ALS, under Prof Tom Gillingwater (@GillingwaterLab)
S. Can Akerman @CanAkerman
119 Followers 224 Following Postdoctoral Fellow @johnshopkins, Rothstein lab, studying neurodegeneration.
Florence Townend @florencetownend
120 Followers 134 Following Author of the Python package Fusilli 🌸 UCL PhD Student in AI for MND progression, in the AI-enabled healthcare CDT @cdt_ai_health and MANIFOLD Lab @CmicUcl.
Sarah Granger @SarahMGranger
127 Followers 227 Following PhD student researching Cystatin C in MND/ALS @ SITraN, University of Sheffield
Georgia @ge0rgiaprice
24 Followers 94 Following
Helen Devine 💙 @HelenDevine10
1K Followers 2K Following Clinical Academic @NUAcT_NCL 🔬 Neurology Consultant 🩺 Academic strand lead for MBBS @uniofnewcastle med school #MND #ALS #mitochondria #neuromuscular
Charlotte Massey @Char_Massey
863 Followers 587 Following Specialist Neuromuscular Respiratory Physiotherapist @NHNN_therapies @UCL_QS_CNMD @UCLH @SheffieldHosp and NIHR clinical doctoral fellow @neuroshef
Heather Marriott @HevMarriott
266 Followers 370 Following Postdoc in Translational Bioinformatics of ALS/MND @kingsmnd 🧠 | @mndassoc and @MNDScotland Pre-Fellow | All views are my own. she/they 🌈
Hannah Bailey @Hannah_Bailey00
99 Followers 91 Following PhD student @UniOfNottingham researching astrocytes in ALS. MND Association Symposium Communications Ambassador. All views are my own.
Marianne King @DrMarianneKing
94 Followers 77 Following Postdoctoral research associate working on developing an iPSC-derived 3D model of ALS with @FerraiuoloLab. Funded by @JPNDeurope.
Paul Wright @PaulPdwright27
148 Followers 308 Following Drug Discovery Scientist, Neuroscientist, Football coach, All opinions my own :-)
Allan Shaw @Smurfation
408 Followers 1K Following PhD Student at Uni of Sheffield, trying to find cures for MND and FTD with @FerraiuoloLab Member of Vegan Runners. Proud parent to Mouse.
*#ScottAllen @ScottAllen38
389 Followers 232 Following Lecturer at the Sheffield Institute for Translational Neuroscience. Director of the neuroscience lay summary initiative - https://t.co/ulP9y4wmue
Prof Janine Kirby @J9Kirby
1K Followers 812 Following Researcher & Lecturer at SITraN, University of Sheffield. Tweeting on MND/ALS, Neuroscience & Genomics
Dr Dezerae Cox @dezeraecox
637 Followers 1K Following 🥼Working to understand how 🧠 brain cells keep their proteins healthy | 🧫🦠Cell biologist | 👩🏼💻Amateur datascientist | 🐘 [email protected]
EndTheLegacy @End_The_Legacy
327 Followers 65 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Pat Dolan @Team_Thriving
949 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmapping
Shiran Zimri @ShiranZimri
151 Followers 203 Following
Dylan Galloway @Galloway_Dylan
104 Followers 137 Following Postdoctoral fellow @MillerLabNeuro @WUSTLmed investigating neurodegeneration in ALS. Former endMS PhD @MUNMed.
Donovan McDonald @dmcdonald242
84 Followers 125 Following PhD candidate in the Duennwald Lab @westernu. Studying tRNA dysfunction and its role in ALS. Born and raised in The Bahamas.
Les wood @Leswood17
480 Followers 1K Following Retired aged 58 through ill health ( MND ) loves a bet and now involved in many horses Best is Raymond Tusk,M P R supporter fighting MND to the end
GregoryLab @GregoryLab7
370 Followers 403 Following Our lab are interested in understanding the non-motor manifestations of motor neuron disease including cognition and the gut-brain axis.
Chantelle Sephton @ChantelleSepht1
165 Followers 310 Following ALS/FTD researcher, Associate Professor at Laval University. Check out our science: https://t.co/tM3jTrbr0z
Prof. Toshi Yokota Ph.. @ToshifumiYokota
5K Followers 5K Following Garrett Cumming @MD_Canada Chair&Prof #Antisense #RNA #CRISPR #RareDiseases #Muscle #Bone #Neurology Trained @UTokyo_News @NCNP_pr @ImperialMed @ChildrensNatl
Journal of Clinical G.. @clincgenetics
690 Followers 5K FollowingQurAlis at #AAN24! QurAlis' head of development Emma Bowden, PhD, presented a poster on two Phase 1 clinical trials of QRL-101 in #ALS patients. QRL-101 is a first-in-class #Kv7 #precisionmedicine for ALS. #neurodegenerativediseases
@mndresearch @HevMarriott Excellent news - I attended the MNDA Encourage research event last year, it was amazing the range and depth of dedicated work that researchers are involved in. Absolute respect to early careers researchers in this field.
Meet our ✨ new ✨ Pre-Fellow🥼 @HevMarriott is further investigating if people with #MND #ALS can be grouped based on shared biology. This could help better predict disease progression and move towards personalised treatment options. Learn more: mndassociation.org/research/our-r…
A new research project has launched as part of the Pre-Fellowship scheme, funded by the MND Association and administered by @MNDScotland. Dr Heather Marriott will work on a project that aims to find early indicators of #MND progression. Read the full story below 👇
PROUD DAD ALERT: My 10-year-old daughter is taking on the role of team captain in @ALSCanada's Walk to End ALS. My reliance on medical equipment means I will be cheering everyone on from my home. I would love if you would please consider supporting her⬇️ alscanadawalktoendals.als.ca/ontario/olivia…
A great opportunity for an enthusiastic graduate to contribute to the development of online materials as part of the @GeneTherapyHubs Skills and Training provided by the #GTIMC at University of Sheffield Find out more here: bit.ly/3J3OyPR Application Deadline: 16 April
Today @profcjmcdermott and I have written to the Rt Hon Andrew Stephenson CBE MP, Minister for Health and Social Care, asking for an urgent meeting to discuss how NICE evaluates new treatments for #MND #ALS in light of their decision on Tofersen. @UKMNDRI @mndassoc @MNDoddie5
Our letter to @Andrew4Pendle requesting an urgent meeting on #Tofersen for #ALS #MND and the evaluation by @NICEComms is available to read here: ukmndri.org/2024/04/02/uk-… @UKMNDRI @profcjmcdermott @united2endmnd @mndassoc @MNDoddie5 @MNDScotland @ENCALS
Today @profcjmcdermott and I have written to the Rt Hon Andrew Stephenson CBE MP, Minister for Health and Social Care, asking for an urgent meeting to discuss how NICE evaluates new treatments for #MND #ALS in light of their decision on Tofersen. @UKMNDRI @mndassoc @MNDoddie5
We welcome this development from @jennagregory488. Whilst not currently a diagnostic test - having been conducted on post-mortem brain tissue - it does provide an exciting advance with potential to lead to an early diagnostic - desperately needed for MND. abdn.ac.uk/news/22988/
How do individuals at high genetic risk of developing #MND make sense of this? @mndassoc pubmed.ncbi.nlm.nih.gov/38528673/
Top line results of the TUDCA-ALS trial are announced at tudca.eu/top-line-resul…. The study did not meet the primary endpoint and there were also no significant differences observed across secondary endpoints at 18 months. Full results will likely be presented at ENCALS 2024.
@EUpALS Thank you to everyone who participated in this trial & in all TUDCA/AMX0035 programs so we could know what we now do today. Each person made an important & impactful contribution to ALS/MND science.
@Jeanc9orf72 @EnnEmmDeeDoc My PhD supervisor used to say that you should try really hard to prove your hypothesis wrong and if you can't do it, you're probably right.
@NICEComms, "Computer says no" is not acceptable. UK patients and UK scientists helped develop this groundbreaking treatment for #ALS #MND, already approved in the US and EU. Please listen to us and reverse your decision. @UKMNDRI @united2endmnd @mndassoc @MNDoddie5 @MNDScotland
As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. @NICEComms #MND @UKMNDRI @UK_mnd_CSG @mndassoc mndcsg.org.uk/#h.vl5d4roawb92
Confused as to why the UK govt would invest heavily in @UKMNDRI (as they should!) to help the world develop more tofersen equivalents for non-SOD1 ALS, while @NICEComms creates barriers for that very treatment the Research Institute would use as an example for their efforts. 🤔🤨
As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. @NICEComms #MND @UKMNDRI @UK_mnd_CSG @mndassoc mndcsg.org.uk/#h.vl5d4roawb92
Larry Gagosian has 19 galleries bearing his name, from New York to Athens to Hong Kong, which generate more than a billion dollars in annual revenue. He’s been known to say, with the satisfaction of Alexander the Great, “The sun never sets on my gallery.” nyer.cm/2Aa44wP
This decision by @NICEComms is utterly wrong and is likely to deny a life-saving treatment for people with SOD1 #ALS #MND that is already approved in Europe and the US. A terrible, wrong-headed decision that must be changed. @DHSCgovuk @mndassoc @MNDoddie5 @MNDScotland
Last week, we heard disappointing news that the National Institute for Health & Care Excellence confirmed its decision to appraise tofersen through the Single Technology Appraisal route. We join @MNDScotland & @MNDoddie5 in our statement which outlines the implications below👇
We (@FergalWaldron & @HollySneuro) have had a wonderful time at the @packardcenter meeting in Baltimore. It has been such a privilege to present our work and foster new collaborations. Thank you so much to everyone who made it such a special meeting. 🥰😎🇺🇸🤓
Trends for United States
You might like
