The Spoonie Journal @SpoonieJournal
Spreading some love for all the spoonies out there Joined January 2022-
Tweets24
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Followers73
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Following122
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Likes36
Transcend ❤️ #spoonie instagram.com/p/CZjlao6sm4e/…
My disease isn’t as ageist as you are. #spoonie #ageism #ableism instagram.com/p/CZg8gjxM4L5/…
“It never gets easier you just get better” #spoonie instagram.com/p/CZegSKOMNfE/…
Just gotta make it through the storm 💪🏻 #spoonie instagram.com/p/CZUtJelsR6c/…
“6 Things to Do on a Couch Day” by Storm Ramsey link.medium.com/2E9UlxGA9mb
Be your own greatest cheerleader! #spoonie instagram.com/p/CZMt7hhMJU7/…
Your illness is not your defining quality. You are so much more! #spoonie instagram.com/p/CZHAtoxs47Q/…
“It does not matter how slowly you go, as long as you do not stop” - Confucius instagram.com/p/CZB74k7snn-/…
“Every day may not be good, but there is something good in every day” - Alice Morse Earle instagram.com/thespooniejour…
You have already survived 100% of your bad days. Today will be no different #spoonie instagram.com/thespooniejour…
“30-day Bone Broth Challenge” by Storm Ramsey link.medium.com/yoAeFNDFWmb
“Be Kind to Yourself During a Flare-up” by Storm Ramsey link.medium.com/uxqfN7AFWmb
It’s just one foot in front of the other #spoonie instagram.com/p/CY6F4e6My7n/…
This too shall pass #spoonie instagram.com/p/CY3QpCtsEw4/…
I make my health a priority #spoonie instagram.com/p/CY0V2ptqssq/…
My body is stronger than I think #spoonie instagram.com/p/CYyQudgMENd/…
I deserve to be loved #spoonie instagram.com/p/CYv_udCMinH/…
I deserve to be happy. My illness does not stand in the way of my happiness #spoonie instagram.com/p/CYpW19mjyLT/…
A day spent resting is not a wasted day #spoonie instagram.com/thespooniejour…
slow burning fire @boots79online
40 Followers 39 Following 43, separated and don’t ever want to be caged again. living my life, my way. DID 180+ alters, and the rest of the alphabet in diagnosesSpoonie Talks Chronic.. @saltybedbug
428 Followers 957 Following 🦓 Spoonie on a healing journey • 24F • Fibro • POTS • CFS • & more 😪 • sleepy bed bug • salt addict • Recovering workaholic 🧠She Who Shall Not Be .. @one_spoon_short
649 Followers 769 Following Chronic Illness Warrior, Comic Book Lover, Romantic Sap, Mom of Teenagers, She/Her | Out looking for my ducksMiss Diagnoses @miss_diagnoses
2K Followers 2K Following #Spoonie blogger and cartoonist. #Lyme, #MCAS, #CIRS, #endo. Cartoons at IG: https://t.co/uKsFxaDtD0 and FB: https://t.co/ANzby97dqTEmma, thechronicsurvi.. @chronicsurv1vor
58K Followers 45K Following Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖Emma-louise Hawke @emzylou78
112 Followers 707 Following Occupational Health Nurse @UHP_NHS. Mental Health First Aider-@MHFAEnglandPrincess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPPJoseph Falzone MD @JosephFalzoneMD
1K Followers 3K Following A physician with interests in neuroscience, psychiatry, chronic pain, and many othersWellnish. @WellnishCo
231 Followers 503 Following Wellnish Collaborative: Wellness without standards. 🌿 #mentalhealth #chronicillness #executivefunction #selfcare #lifestyle #coping + more.HighAbility @HighAbilityTW
1K Followers 4K Following HighAbility is a network of disabled people, their allies, decision makers with a shared passion for the inclusion of disabled people in local decision makingRoger Martin Doran @RogerMartinDor3
264 Followers 3K FollowingMotivated tones @Budasfeather
361 Followers 548 Following Poet, author and lover of words. Inspire to motivate and love to fulfill. ms warrior and fighter.Child of God✝️Fib.. @Virgiaj
5K Followers 3K Following I love Jesus✝️ My God is the Creator of Heaven and Earth✝️ Fibromyalgia🦋💜 Chronic pain Tinnitus My voice fades away when pain kicks in NO DM's PLEASE🚫ReadySportz @ReadySportz
58 Followers 269 Following Assisting the hypermobile or stressed in stabilizing the body they deserve.PacingPixie @PacingPixie
99 Followers 42 FollowingKimm Deardorff @KimmerLove79
114 Followers 917 Following Still educating daily :), mother, good listener, groovyCoralie C. Burnell @CCBurnell1
1K Followers 3K Following Fun-loving compassionate soul♥ Proud Mom of 2 boys 💙#MastCellWarrior #MEWarrior #FibromyalgiaWarrior #EndometriosisWarrior #SpinalstenosisWarrior #EDSWarriorTarheelGirl1959 @TarheelGirl1959
452 Followers 773 Following I have a pain problem not a drug problem, #CPP, #FMS, Love Kids, Generally HappyInvisABLE @HopeG75
9 Followers 98 Following Promoting simple inclusivity hacks to diversify the environment. Celebrating those people making us able. #EDS#POTS#MCAS#ChronicFatigue#EDSnotjoinedupKay Julier (she/her) @KayJulier
821 Followers 412 Following Scientist; feminist; interested in everything! Special interest in healthcare, Ehlers-Danlos syndromes and hypermobility. All views are my own.Jane Green MBE FCCT c.. @JGjanegreen
6K Followers 4K Following Founder/Chair @SEDSconnective / MBE for Neurodivergence Tissue FELLOW MA Ed. exAHT NED Aut/ADHD/ND ParentCarer / Columnist / Disabled often discombobulated 😶sueemmahEDS @sueemmahEDS
848 Followers 2K Following #latediagnosedAutistic #hEDS #POTS #MCAS, she/her🎀 x_neurodiverse_f.. @Justbeing_Lou_x
1K Followers 1K Following #Fibromyalgia warrior💜 #Depression warrior🖤 #Anxiety warrior💛 Mum ❤ scorpio ♏🦂 #Mentalhealth & #Autism advocateCisWhiteMansplainer @MistSprayer
375 Followers 1K Following TRUST NO GOVT....My preferred pronouns are Thatguy/Thatguy'sChronicallyFullySick @ChronicFullSick
2K Followers 3K Following A rude & silly chronic illness podcast, with two sick Aussie trashbags. Chloe @chlosarge & Jo @joannajnilson. We also kill Instagram @chronicallyfullysickAnnaB @professorannab
727 Followers 1K Following Loving Aunt, Educator, Baseball Fan, l have a very painful chronic illness but I live every day to its fullestDress for ME Charity .. @DressFor_ME
3K Followers 5K Following I am @JenGovey & use my powers of #cosplay to raise money for @invest_in_ME Take the #DressForME challenge! https://t.co/jOqrVcbVKb 😍 #pwME She/theyPaula Knight @Paula_JKnight
5K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/herMary Mihalcin @mazsamem
1K Followers 1K Following Advocate. You're one bad accident, illness, or surgery away from a world of pain. Fight for safe and effective pain medication that works.TheFibroWarrior 🌻�.. @FibroWarriorThe
7K Followers 7K Following I'm Billy. Fibromyalgia and mental health are my ailment. Tarot. Games. Pagan. Wiccan. Crystals. Art. Wrestling and memes. I'm also annoying. 😒FibromyalgiaWellness .. @fibrowellness
20K Followers 16K Following Increasing awareness of fibromyalgia and helping those who have it to live well. No spam please. If you spam me, I will block you.Lu @LuPwME
2K Followers 2K Following Moderate ME/CFS patient. One of the #MillionsMissing since 2016. Animal/nature/wildflower lover. Miss walking, writing and cooking (lost to this illness).Katie @chronic_illmess
2K Followers 2K Following #ChronicallyFabulous #CatMom 🐾 & Wifey💍 Beauty lover 💄 Tall ♉ #Introverted🙃 #Michigander making my way through this journey called life. 🚫DM'sfighting chronic life.. @LifeFighting
471 Followers 364 Following my day-to-day life, the ups the downs, the laughs the appointments, the questions and answers. FND,NEAD,Tics,hyper-mobility, autism and much more xxxMelissa @melynabbe
2K Followers 3K Following Just a wife and dog mom trying to survive this crazy, scary world we live in. #Fibromyalgia #MECFS #PTSD #HSP #INFJ 🌊🌊🌊🌊🌊Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.Hope-seeker 🇺🇦 @Hope_seeker_0
1K Followers 1K Following Humanitarian activist and chronically ill and disabled people advocate. #chronicillness #Disability #ME #EDS , #Cancer, etcFreddy J's Fibro Figh.. @anquinetteroll1
1K Followers 526 Following 501c3 Nonprofit Organization that brings awareness to Chronic Pain & the pain disorder Fibromyalgia & does social outreach for the Chronic Illness community.Pagan666 @InvisiblePagan
1K Followers 2K Following Ex-Nurse, Now Differently Abled, Autistic, Pagan, Witch, Wildlife Lover & Tree Hugger #ME #FMS #HEDS #CKD #CPTSD #Autistic 🚫No DM’s🚫Sarah O'Connell @SarahOC_MECFS
4K Followers 4K Following ME #pwME patient 10 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie loverFibroTamz @FibroTamz
3K Followers 3K Following live with Fibro, M.E, Arthritis & depression 😖🤪, SEN mum👪, autism advocate, carer to my mum👩🏽⚕️ wrestling & horror fan😱 I’m just me!! 🏳️🌈💖💜💙 🏳️🌈Annette Streich @annetteStreich9
965 Followers 2K Following ME/CFS , POTS and fibromyalgia . Love food , foreign films and my wee Siamese beasties .Once was witty now happy if I can form complete sentences 🤪Penny Pepper @PenPep
5K Followers 5K Following Author, storyteller, poet, @BylineTimes regular. Novel in the wings & loads more to offer. Let's talk! Disabled activist cat mum in Hastings.Misshell @PROPisthedevil
208 Followers 257 Following Abandoned pain sufferer. Left medically untreated by the US gov/Drs 🛑 medical trauma 🛑 medical gaslightingJen jj love @Jenjjlove1
456 Followers 554 Following #Hashimotos🦋#Fibromyalgia #Athritis #ccptsd.Mum of 2,Counsellor Level 1. https://t.co/N5rY2QvxG8 Lover.Trying to get through everyday with a Smile🚫No DM🚫Dr Gemma Pearce @GemmaSPearce
4K Followers 3K Following Associate Professor | Lead for @hEDStogether research | UK lead for @CoCreatingWell projects | #HealthPsychology #Migraine #EDS #POTS | Views ownEmma Reinhold @DrEReinhold
7K Followers 4K Following Former GP/Research/Advisor on #EDS #MCAS #MUS #fatigue #EDI Disabled🌈ally #NHS #gardening #miniatures Often irreverent Never disrespectful Views are mine, obvsKathy @KathyEl55537777
139 Followers 451 Following #TN, #CRPS, #PTSD, #Anxiety, I'm my own hot little mess lol I suffer with severe #chronicpain and have for over 13 years. But Damnit I will smile!EDS Today @EDS_Today
6K Followers 512 Following Nonprofit - Ehlers-Danlos Syndromes. Sadly, many never receive a proper diagnosis or treatment within their lifetime.sueemmahEDS @sueemmahEDS
848 Followers 2K Following #latediagnosedAutistic #hEDS #POTS #MCAS, she/herKay Julier (she/her) @KayJulier
821 Followers 412 Following Scientist; feminist; interested in everything! Special interest in healthcare, Ehlers-Danlos syndromes and hypermobility. All views are my own.EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.Chronic Pain @ChronicPain18
2K Followers 1K Following Chronic pain advocate. We are human beings and WE matter. Let’s us support one another and fight for our lives...⭐️💐🙏🙌The Ehlers-Danlos Soc.. @TheEDSociety
24K Followers 6K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).Jane Green MBE FCCT c.. @JGjanegreen
6K Followers 4K Following Founder/Chair @SEDSconnective / MBE for Neurodivergence Tissue FELLOW MA Ed. exAHT NED Aut/ADHD/ND ParentCarer / Columnist / Disabled often discombobulated 😶HMSA Charity @HMSACharity
12K Followers 7K Following Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.Cortney Gensemer, PhD @CortDoesScience
7K Followers 937 Following Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and EducationJeannie Di Bon @jdibon
10K Followers 1K Following Internationally recognised EDS/HSD Movement Therapist. 15 yrs EDS experience. Author, Speaker, Educator. IMM, The Zebra Club & Moovlite. MSc Pain MgtOh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.Hypermobility MD: Dr .. @BluesteinLinda
8K Followers 662 Following 🩺 Pain & inflammation specialist 🦓 Ehlers-Dani’s, HSD & MCAS 🎙Founder Bendy Bodies Podcast ⚕️@mayoclinic trained 🚫Not medical advice.Emily♡ @ItsEmilyKaty
69K Followers 1K Following Author of GIRL UNMASKED: HOW UNCOVERING MY AUTISM SAVED MY LIFE (The Sunday Times Bestseller) 📚 & Trustee of @AutisticGirls_ 🦋Ehlers-Danlos Support.. @ehlersdanlosuk
19K Followers 11K Following EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.SEDSConnective @SEDSConnective
5K Followers 3K Following Sympt.Hypermobility EDS HSD NEURODIVERGENT vol. Charity / health/education/care/work Chair/Founder Jane Green MBE @JGJanegreen Patron Dr Eccles @BendybrainBendyBrain: Dr Jessic.. @BendyBrain
8K Followers 2K Following hypermobility (and related conditions) brain-body neuro research @bsmsmedschool | Dr Jessica Eccles | https://t.co/HayQnrkpZk | views own | patron @sedsconnectivePOTS Rage @RagePOTS
2K Followers 1K Following Here for the #NEISvoid. POTS, MCAS, ADHD, Autoimmune, etc. etc.Hope-seeker 🇺🇦 @Hope_seeker_0
1K Followers 1K Following Humanitarian activist and chronically ill and disabled people advocate. #chronicillness #Disability #ME #EDS , #Cancer, etcChronicallyFullySick @ChronicFullSick
2K Followers 3K Following A rude & silly chronic illness podcast, with two sick Aussie trashbags. Chloe @chlosarge & Jo @joannajnilson. We also kill Instagram @chronicallyfullysickA Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depressionfighting chronic life.. @LifeFighting
471 Followers 364 Following my day-to-day life, the ups the downs, the laughs the appointments, the questions and answers. FND,NEAD,Tics,hyper-mobility, autism and much more xxxFreddy J's Fibro Figh.. @anquinetteroll1
1K Followers 526 Following 501c3 Nonprofit Organization that brings awareness to Chronic Pain & the pain disorder Fibromyalgia & does social outreach for the Chronic Illness community.UK Fibromyalgia @ukfibromyalgia
3K Followers 97 Following 💜 The independent voice of UK Fibromyalgia 🗞 Published monthly for over 20 years #UKFibromyalgiaFibromyalgiaWellness .. @fibrowellness
20K Followers 16K Following Increasing awareness of fibromyalgia and helping those who have it to live well. No spam please. If you spam me, I will block you.Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 EndometriosisAmbassador Alexa @AmbassadorAlexa
970 Followers 363 Following Brand Affiliate & Ambassador. Creative director at “White Rabbit Antiques” Lyme Warrior.Colleen Steckel @KCSteckel
2K Followers 2K Following Opinions my own. #Myalgicencephalomyelitis. Founder FB ME-ICC & other marginalized diseases group (formerly NC/Ohio ME & FM) & volunteer @meadvocacy_orgPagan666 @InvisiblePagan
1K Followers 2K Following Ex-Nurse, Now Differently Abled, Autistic, Pagan, Witch, Wildlife Lover & Tree Hugger #ME #FMS #HEDS #CKD #CPTSD #Autistic 🚫No DM’s🚫Dress for ME Charity .. @DressFor_ME
3K Followers 5K Following I am @JenGovey & use my powers of #cosplay to raise money for @invest_in_ME Take the #DressForME challenge! https://t.co/jOqrVcbVKb 😍 #pwME She/theyPhoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.The Raven Jeep @Amanda04219329
707 Followers 749 Following 2020 Wrangler ✌🏼VA✌🏼 TikTok-@theravenjeep IG: theravenjeeper2022. 💜🖤OIIIIIIIO🖤💜Chronic Well Being @ChronicWellBe
410 Followers 365 Following I’m a chronic pain & illness LIFE COACH nurturing you into living your best life in spite of difficulties. Let’s build your wellness roadmap together!Albania Support for F.. @AlbaniaAsff
51 Followers 186 Following Albania Support for Fibromyalgia Association offers services from a multidisciplinary team (Doctor, Psychologist, Physiotherapist).Katie @chronic_illmess
2K Followers 2K Following #ChronicallyFabulous #CatMom 🐾 & Wifey💍 Beauty lover 💄 Tall ♉ #Introverted🙃 #Michigander making my way through this journey called life. 🚫DM'sJen jj love @Jenjjlove1
456 Followers 554 Following #Hashimotos🦋#Fibromyalgia #Athritis #ccptsd.Mum of 2,Counsellor Level 1. https://t.co/N5rY2QvxG8 Lover.Trying to get through everyday with a Smile🚫No DM🚫Lisa.Fibro.Warrior �.. @FibromyalgiaX
167 Followers 293 Following Love eating vegan & vegetarian meals. Fibromyalgia sufferer. $XceptionXslow burning fire @boots79online
40 Followers 39 Following 43, separated and don’t ever want to be caged again. living my life, my way. DID 180+ alters, and the rest of the alphabet in diagnosesCameron (He/Him) 🏳.. @CammieCameronx
111 Followers 872 Following He/They 🏳️🌈 I'm Autistic & disabled; FND, hEDS, ME, Fibro. 27yo, ✊BLM✊ minors DNI please. Show me plants & pets.Storm Ramsey @strmramsey
5 Followers 17 FollowingFibroTamz @FibroTamz
3K Followers 3K Following live with Fibro, M.E, Arthritis & depression 😖🤪, SEN mum👪, autism advocate, carer to my mum👩🏽⚕️ wrestling & horror fan😱 I’m just me!! 🏳️🌈💖💜💙 🏳️🌈TheFibroWarrior 🌻�.. @FibroWarriorThe
7K Followers 7K Following I'm Billy. Fibromyalgia and mental health are my ailment. Tarot. Games. Pagan. Wiccan. Crystals. Art. Wrestling and memes. I'm also annoying. 😒Lu @LuPwME
2K Followers 2K Following Moderate ME/CFS patient. One of the #MillionsMissing since 2016. Animal/nature/wildflower lover. Miss walking, writing and cooking (lost to this illness).Penny Pepper @PenPep
5K Followers 5K Following Author, storyteller, poet, @BylineTimes regular. Novel in the wings & loads more to offer. Let's talk! Disabled activist cat mum in Hastings.Paula Knight @Paula_JKnight
5K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/herShaun Peter Qureshi, .. @shaun_qureshi
2K Followers 1K Following Data-driven change ➡️ better outcomes inc. care for neglected groups & excellent palliative care┃Fellow @ChurchillFship┃Fellow @artofdyingwell ✝️When you have a chronic illness there are always people who assume you’re not doing everything you can to help. Like?? Yes I want to be like this it’s so fun.
People asking me 'what I do all day' Trying to survive #pwME #millionsmissing
"For those struggling to be kind to yourself when your illness becomes too much, just remember that it is okay. There is nothing wrong with taking the time you need to take care of yourself." medium.com/the-spoonie-jo… via @SpoonieJournal & @strmramsey #ChronicIllness
@SpoonieJournal Lol not your fault! Made me giggle 🤭
@SpoonieJournal I thought you were calling me cheap at first and then I read the rest and realized what post this comment was on 😂
Tell me, is there any other seriously debilitating and life changing illness that despite causing such intense and prolonged suffering receives no real understanding, no monitoring, no guidance, no support, no care plan and no treatment - or is it just ME? 🤔
Do you ever just let people misgender you bc you’re not in the mood
My baby girl just left us. Asthma attack exacerbated by Covid. She spent 3 days on a ventilator. She was only 22.
@SpoonieJournal thank you for following us.
Hey @SpoonieJournal, Thank you for the follow!
“30-day Bone Broth Challenge” by Storm Ramsey link.medium.com/yoAeFNDFWmb
It’s just one foot in front of the other #spoonie instagram.com/p/CY6F4e6My7n/…
This too shall pass #spoonie instagram.com/p/CY3QpCtsEw4/…
I make my health a priority #spoonie instagram.com/p/CY0V2ptqssq/…
My body is stronger than I think #spoonie instagram.com/p/CYyQudgMENd/…
I deserve to be loved #spoonie instagram.com/p/CYv_udCMinH/…
I deserve to be happy. My illness does not stand in the way of my happiness #spoonie instagram.com/p/CYpW19mjyLT/…
A day spent resting is not a wasted day #spoonie instagram.com/thespooniejour…
“Let it Snow, Let it Snow, Let it Snow… COVID” by Storm Ramsey link.medium.com/W5TxILGJzmb