Do #DizzyClap4ME challenge to help those with chronic illness (like my Mummy) on PERMANENT #lockdown How many can you do?! #millionsmissing #myalgicE #pwmejustgiving.com/owner-email/pl…Joined May 2020
3K Followers 3K Followingfeel like a mole living in a dark ME/CFS #mecfs hole sharing thoughts ,trying to make a small difference. Lancs U.K. - #bekind also https://t.co/KxMHrvrqZ8
13K Followers 6K FollowingOn a crusade to find health with #Lyme Disease - Advocate/Writer. Bylines @TheMightySite @ProHealth Lover of dogs & connoisseur of chocolate
562 Followers 2K FollowingKoodausyhteisö ja -verkosto. Jeesaa ja tule jeesatuksi. Tviittaa ongelmasi tägäyksen kera, niin Ohjelmointikielikylpy retviittaa sen yhteisölle ratkaistavaksi.
141 Followers 368 FollowingA dauntless warrior using Twitter 2 raise awareness 4 @ME_intl @MECentraal & Injustice worldwide. DM or Private Account? I like to keep the initiative.
5K Followers 3K FollowingFundraising for @Invest_in_ME charity Centre of Excellence @CofEforME programme of biomedical research and medical education for M.E. #MyalgicEncephalomyelitis
13K Followers 2K Following501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
2K Followers 5K FollowingME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
2K Followers 1K FollowingAuthor of "Doctor with M.E." Founder of Doctors with M.E. (DwME), international professional association. Views our own (me + friends) not DwME.
1K Followers 2K FollowingFounder of the ROCK ME Project. Wife, Cat mom, Author, Advocate, and medical DUMPSTER FIRE. Living life one SPOON at a time.
ME is a DISEASE not a LIFESTYLE!
626 Followers 4K FollowingThis account is to document my journey w/CFS.ME.🌷 Poet. NW Native. | Memories interwoven in my tweets.| Chronic Pain. Chronic Fatigue.|
571 Followers 492 Following'EPIDEMIC M.E.' is a 'POST-INFECTIOUS ENCEPHALOMYELITIS' caused by an 'ENTEROVIRUS'. 'MYALGIC ENCEPHALOMYELITIS' causes a NEUROMUSCULAR DISEASE + MOTOR DISORDER
2K Followers 5K FollowingME/FM patient since 2006, I hope some info helpful to those unaware of them you can also gain an insight. Advocate & sufferer invisible illnesses/chronic pain
19K Followers 15K FollowingIncreasing awareness of fibromyalgia and helping those who have it to live well. NO DMs PLEASE. If you spam me, I will block you.
173 Followers 647 FollowingHi, I'm Kaci. I am just a trans girl with many chronic illnesses. I try my best to be the best I can. #spoonie #EDS #MCAS #POTS #MECFS #LGBTQIA #polyamorous
2K Followers 5K FollowingLiving with & advocating for ME, POTS & FM, ex IT. Homebound & at times bedridden. I regularly delete tweets.
@allyann.bsky.social
#mecfs #pots #fm #endo
2K Followers 3K FollowingBit poorly. Campaigning for ME Research/Awareness. Music ⭐️ Films ⭐️ Sport ⭐️ Comedy ❤️ Nieces ❤️ Animals ⭐️ Spurs ⭐️ Thomas Dolby ❤️ Janey ❤️
931 Followers 1K FollowingA visual #artist living with severe #myalgicE. Moving away from oil painting I now focus on digital artwork, animation, photography. FB https://t.co/pqJuBuN9F5
328 Followers 272 FollowingFollow biological evidence-based #MECFS research. Bedbound #pwME, 1 of #MillionsMissing 34 yrs. Love & miss nature, wildlife, photography, living life fully.
11K Followers 1K FollowingFounder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
610 Followers 706 FollowingFormer software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. https://t.co/XXMOOo00yd
#pwme #mecfs
437 Followers 138 FollowingCarer for my son with Myalgic Encephalomyelitis. Believer in social justice. Living on Oryang-Ora land of the Dharug Nation. Wear a mask please.
261 Followers 399 FollowingMissing life since 2015 due to #ME from being a mum/grandma/daughter/friend/productive worker/driver/ballroom & latin dancer #MILLIONSMISSING #CanYouSeeMENow
424 Followers 593 FollowingOld broken ex PICU sister, 10y+ patient safety. ME 22yrs+ LC Finally diagnosed with POTS. Medically retired, still seeking baseline. Usually a day behind. 🙄
373 Followers 698 FollowingMadre🙋🏻♀️Cuidadora y amiga de una joven con SFC y SSQM Severo que necesita🍀calidad de vida 🚨 y lograr con urgencia el 👉 #ElSueñoDeAlison #TodoPorAlison
826 Followers 1K FollowingME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs.Wildlife. Books. Bit of Politics. #pwme
@joannesmith.bsky.social
602 Followers 819 FollowingMum of 19 yr old with ME wanting to raise awareness #BPT as a baby #StomachMigraines, Hypermobility POTS. MCAS ?? trying to stay positive. #Twofacesofme
584 Followers 372 FollowingOne step at a time, my ME/CFS PoTS journey. Shop owner but unable to work since 2017.
Have now stopped my keto diet, saw no difference after 13 months 😔
♿
156 Followers 207 FollowingHealth justice. ME + Long Covid activist. #pwME and #POTS. Living life deliberately from my bed. Bunny mom. Partner of @lexanderthomp. (She/her)
2K Followers 5K FollowingME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
571 Followers 492 Following'EPIDEMIC M.E.' is a 'POST-INFECTIOUS ENCEPHALOMYELITIS' caused by an 'ENTEROVIRUS'. 'MYALGIC ENCEPHALOMYELITIS' causes a NEUROMUSCULAR DISEASE + MOTOR DISORDER
1K Followers 1K FollowingEach condition, illness & cancer is represented by a different awareness color but together, we make a beautiful Bouquet of Hope! #Educate #Hope #awarenessrose
900 Followers 727 FollowingMum, wife and spoon life! PWME, Fibromyalgia, diagnosed with ME /CFS since January 2018 , suffering since 2012 Powered by cold water therapy since March 2021
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