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Epilepsy Positivity @epilepsyposi

Hopjng to support people living with and affected by epilepsy and educate the general public. Mental Health Project: @mindsofepilepsy epilepsypositivity.co.uk Joined June 2015
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    4K
  • Followers
    16K
  • Following
    14K
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    4K
Epilepsy Positivity retweeted
BrainAblaze Profile Picture

Brain Ablaze @BrainAblaze

a month ago

Tomorrow is April Fools. Can we all agree not to include #epilepsy (or #seizures) in our pranks tomorrow? The estimated 65 million people with Epilepsy don't think seizures are funny. #epilepsyAwareness

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Epilepsy Positivity @epilepsyposi

a month ago

It’s #PurpleDay 💜 What is one thing you are planning to do today? 💜 #epilepsy

Epilepsy Positivity retweeted
myepilepsystory Profile Picture

My Epilepsy Story @myepilepsystory

3 months ago

It is with great sadness we share that our Advisory Board Member but more importantly our friend, colleague and mentor has passed away. Dr Sanjeev Thomas was a huge advocate for women and girls living with #epilepsy not only in #India but across the world. Our hearts are broken

Epilepsy Positivity retweeted
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All On The Board @allontheboard

3 months ago

Today is International Epilepsy Day. Sending love and support to everybody in the world with this condition. #InternationalEpilepsyDay #Epilepsy #EpilepsyDay

Epilepsy Positivity retweeted
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Epilepsy Society @epilepsysociety

3 months ago

It's #psychologymonth and today we are helping to explain the role of a psychologist in the diagnosis and treatment of your epilepsy. We have future videos planned discuss epilepsy medications, memory, and more. Let us know what else you want to see us talk about! 💜👇

Epilepsy Positivity retweeted
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Aswin Chari @aswinchari

3 months ago

Early #epilepsy surgery? A huge part of designing studies that push boundaries is incorporating views of patients and carers. Delighted to be able to do this with @PESAlliance @Rachel_Batch @GOSH_NeuroSurg @DNP_ICH and @OmarSalim_5! sciencedirect.com/science/articl… 1/5

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Epilepsy Positivity @epilepsyposi

3 months ago

Question sent in from a follower about coping with #epilepsy at #university 💭 Please comment your tips!

Epilepsy Positivity retweeted
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Brain Ablaze @BrainAblaze

3 months ago

Is there a particular part of your #epilepsy story that makes people say "Wow!" when you tell it? #epilepsyAwareness

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Epilepsy Positivity @epilepsyposi

3 months ago

1 in 26 people will develop epilepsy in their lifetime #epilepsy #epilepsypositivity

Epilepsy Positivity retweeted
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Young Epilepsy @youngepilepsy

3 months ago

We’re proud to be supporting @_Place2Be this ‘Children’s Mental Health Week’! 🎈 This year’s theme, ‘My Voice Matters’ is so important to us and the work we do at Young Epilepsy, our Youth Voice Network are the driving force and champions behind it!✨ #myvoicematters

epilepsyposi Profile Picture

Epilepsy Positivity @epilepsyposi

3 months ago

Research on the experiences and perspectives of peer support among young adults with epilepsy 🧠 #epilepsy #peersupport sciencedirect.com/science/articl…

Epilepsy Positivity retweeted
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Brain Ablaze @BrainAblaze

3 months ago

After being diagnosed with #epilepsy, what was the first misconception about epilepsy (or #seizures) you realized was untrue? #epilepsyAwareness

Epilepsy Positivity retweeted
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lisa @lisasophiaa

3 months ago

Take your morning medsssssssss epilepsy friends

Epilepsy Positivity retweeted
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Epilepsy Action @epilepsyaction

3 months ago

Would you like to share your experiences of neurology care in the media? Have you had a long wait to see your neurologist or epilepsy specialist nurse ? Have you had to travel, or go private to be seen quicker? We want to hear from you. Please email [email protected]

Epilepsy Positivity retweeted
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ILAE @IlaeWeb

3 months ago

The countdown is on: #epilepsyDay is in 1 WEEK! Let’s share our #epilepsyJourney & learn how we can effectively implement the #IGAP 10-year roadmap to overcome obstacles & improve lives affected by #epilepsy worldwide. internationalepilepsyday.org #MyEpilepsyJourney @IBESocialMedia

Epilepsy Positivity retweeted
epilepsysociety Profile Picture

Epilepsy Society @epilepsysociety

3 months ago

Tommy Freeman, the @EnglandRugby player, spoke about his epilepsy publicly for the first time since he was diagnosed in his teens. He hopes his story can inspire others who are going through something similar. 💜🏉 For more: bit.ly/3SfYcTQ @SaintsRugby @SixNationsRugby

Epilepsy Positivity retweeted
BrainAblaze Profile Picture

Brain Ablaze @BrainAblaze

3 months ago

The old saying "One has to be their own best advocate" is definitely true for people with #epilepsy. Do you have any advice that can empower someone to continue to search for the best care? #epilepsyAwareness

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Epilepsy Positivity @epilepsyposi

3 months ago

Comment your tips for people recently diagnosed with #epilepsy 💭

Epilepsy Positivity retweeted
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Nicola Adamson (She/her) @NicolaAdamson13

3 months ago

#epilepsy warriors - what organisation tools and tricks do you rely on to compensate for memory? It’s definitely getting harder!! @BrainAblaze

Epilepsy Positivity retweeted
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Brain Ablaze @BrainAblaze

3 months ago

We want everyone to share about their experience with #epilepsy, but providing unsolicited medical advice can be unproductive. A treatment that might work for one, might not work for another. -- Do you often get unsolicited advice when you share your story? #epilepsyAwareness

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