Hooks n Threads @hooks_n_threads
Textile designer•Hand Embroidery•Myalgic Encephalomyelitis & Myasthenia Gravis Warrior•Spoonie life hooksthreads.com Todmorden, England Joined January 2018-
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@TRobinsonNewEra Can you get the singers of this song on your stage on Sept 13. Peter Lynch and Tommy is featured in this or at least get permisson to let someone else sing it. youtu.be/IdN9dL98-Cg
I’ve only ever witnessed PEM patients expand their energy envelope through meticulous and painstaking pacing with HRV monitoring, not GET. Anyone with PEM can tell you that conserving, not pushing, their envelope is how you preserve and expand it. Prove me wrong.
To all the Supermarkets and big commercial stores that operate 'Self Check-outs'....... You are heading towards almost exclusively self-checkout now. Yesterday I went shopping at one such store and the lady checking receipts at the exit was stopping everyone. I didn't choose to…
Two days ago, we released our initial genetic results! Want to learn more about our findings? Have questions for our management team? Register for our genetic results webinar now: shorturl.at/RywTZ There will be a recording available afterwards on our website.
A secret DWP report on disabled claimant suicides has finally been released Thank God for @johnpringdns and its perseverance in uncovering this suppressed DWP report - otherwise the public would be none the wiser. Shocking, shocking, shocking. thecanary.co/uk/news/2025/0…
Children sending grown foreign men Valentines cards... And the government thinks social media is dangerous???? Sounds like the education system is the real danger.
Children sending grown foreign men Valentines cards... And the government thinks social media is dangerous???? Sounds like the education system is the real danger.
If you'd like to support the researchers behind #DecodeME with other projects such as #SequenceME (clinicalresearchnewsonline.com/cln/pressrelea… ) , here's a donation link decodeme.org.uk/support-us/ Alternatively donate directly to Prof Ponting's #MECFS lab research donate.ed.ac.uk/support/ME-CFS… #PwME
If you'd like to support the researchers behind #DecodeME with other projects such as #SequenceME (clinicalresearchnewsonline.com/cln/pressrelea… ) , here's a donation link decodeme.org.uk/support-us/ Alternatively donate directly to Prof Ponting's #MECFS lab research donate.ed.ac.uk/support/ME-CFS… #PwME https://t.co/vtBrOy3Vux
Why have children been making Valentine’s cards for asylum seekers?
‘Simple blood test could provide first reliable diagnosis for ME’ 116 biomarkers found which could diagnose #ME ..🤞🙏 thetimes.com/article/72d962…
REVERSE-PAINTING ON GLASS leslietate.com/2022/11/07/the… 🍎💥📍THANX 4 RTS/LIKES! @TinaBrescanu @hooks_n_threads @burfoa @LordWoolamaloo @jmtdesignstudio @swedhopkins @MichelleU_Wood @WallisEates @hari962 @andtheHare @ravatarts @victorshannock @waelseif72 @AdamIanbarry @VisitsAngel
The Government is planning “catastrophic” cuts to benefits that experts say will force disabled people into poverty, and even those with extreme disabilities will lose money. Our social safety net isn’t up for grabs: add your name now. 38d.gs/m2l5
New Trailer for the #MECFS Scandal Explainer Video. It highlights the stigma, abuse, bad science, and harm in the treatment of #MECFS, which has been described by George Monbiot as the #GreatestMedicalScandal of the 21st century.
This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. theguardian.com/commentisfree/…
‘How did a mistaken view – that the illness is largely psychological – come to prevail? The story harks back to one of the strangest political groups ever to have emerged in the UK’ @GeorgeMonbiot #ME 🌟🌟🌟💥 theguardian.com/commentisfree/…
Dr Nina Muirhead did some research with students who interviewed 10 patients about their presentation with #MECFS to their GPs. Not one of them said they felt fatigue or tired. Most of them said they felt ill or couldn't go on or felt like they were dying. youtu.be/jGN_BBhSz7U?si…
Dr Anthony Koramoff explaining why patients could develop #MECFS after #Covid19. He lists 15 studies of infections that trigger an ME/CFS like illness. Full webinar (August 2020) youtu.be/dcSX2ZjzNek
"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS
Cynthia Bill @CyntiaDinhou
45 Followers 552 Following I`m not a photographer..but I can picture us together :)
a prednisone hate acc... @vvictorman_uel
10K Followers 5K Following that (formerly) homeless trans kid. 27. queer. aspec. german. latino. charrúa. jewish. disabled 👨🏻🦼. EDS & co. ADHD & autism. he/him. 💉 7.11.17 | 🔪 1.3.19
Fwawserl @Fwawserl0586
27 Followers 610 Following
Niko Suvisto @nikosuvisto
774 Followers 404 Following Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland
etc @kissbarnes
5 Followers 4K Following
Emily @Smairkoavp8QGb
34 Followers 3K Following
Sirnasl @SirnaslLuGPPO
81 Followers 2K Following
Arthur @unreal_arthur
431 Followers 2K Following ME Patient-ly Waiting for Biomedical Research | Volunteer @WeCrunchME #GreatestMEdicalScandal https://t.co/9VY3sk6fK2
EndMalnutritioninME @MalnutritionME
533 Followers 685 Following Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. https://t.co/fOkzoiJqv2
It's M.E. Linda 💙 ... @HappyHoundHouse
2K Followers 3K Following 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. Brain/fitness 'not what it used be'. Beloved Lisnakill Myles-Happy Hound himself🌈 💔
Cinnamon rolling alon... @LongCovidFight
2K Followers 2K Following Supporting people with chronic illnesses, including #MECFS #pwME #LongCovid #pwLC #LongCovidKids #PoTS #MCAS. #CovidIsNotOver #AirborneAware
Ami Hallgarth @AHJewellery1
381 Followers 1K Following I make beautiful handmade sterling silver jewellery, based in West Yorkshire, England.
Gary Carr @gajinwords
41 Followers 77 Following A man who surprises words, then writes those he can capture
Post-Exertional Mayon... @pempodcast23
858 Followers 624 Following Podcast about living with ME/CFS & chronic illness, creativity and making meaning with Dov Zeller and @talmandaniel
Maria-louise Williams @Mariararoo
1K Followers 3K Following Severe M.E warrior (One of the missing millions). Crohn's disease in remission.
Reader Pere @PereReader
3K Followers 7K Following Shared account between husband/wife. Catholic 🍄, 🇺🇸💙 👑 Sugars=🚫 Team BRF! Cal.husband: You know him. Wife:Dr/Teacher
Josh Fenton-Glynn MP @JoshFG
9K Followers 5K Following Labour MP for Calder Valley. Member of @CommonsHealth Select Committee. Mediocre fell runner.
A 😎 @AaronCa11
5K Followers 6K Following
Derek @Toughth329832
327 Followers 5K Following See the world on the road, and get to know yourself on the way!
Stefan @tannapyt8170
267 Followers 5K Following See the world on the road, and get to know yourself on the way!
FionaPWME @fioname.bs... @FionaPWME
2K Followers 3K Following Was a journo/writer/editor. #MECFS has crushed my life for 15 years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) #POTS #MCAS & her ME advocate spouse/caregiver. Before: Architect, software interaction designer.
T @noFO__allMO
527 Followers 4K Following Queen of Vertigo👸Empress of Brainfog👑Wanderluster Interrupted🌎Inconsistent Gardener🌱#SevereMECFS #MigraineWithBrainstemAura #VestibularMigraine +etc,etc🙄
Jochen Gren @j_u_gren
5 Followers 44 Following I love to experiment, to work out how things happen. In my life the words who, what, when, where, why and how. How does a painting catch you I love to play!
Lyalls Todmorden @LyallsTodmorden
1K Followers 1K Following Lyalls second-hand bookshop, Todmorden. Open Weds-Sun 11am-4.30pm. Specialisms from art to esoterica, fiction and non-fiction. DM for any queries.
Leslie Tate (he/she/L... @LSTateAuthor
17K Followers 17K Following Nonbinary Quaker New book: https://t.co/EXmdx88bYt Radio/web interviewer Fan of V Woolf/Siouxsie/Rite of Spring #LGBTQ #BLM #XR
KLM Auctioneers @KLMAuctioneers
994 Followers 2K Following Antiques, collectables, household goods. Auction every fortnight, Friday 10am start. Tel 01422 751626 Moderna Business Park, Mytholmroyd
Renate #severeME #Mya... @Renate17597475
331 Followers 318 Following #MEICC #ME in -87 🦠 happily Married since-95. Housebound/bedridden since -09 #severeME 🛌♿️💊#MyalgicEncephalomyelitis #POTS #MyalgicEncapalomyelitt
Gone @TizzyCanucci
889 Followers 947 Following Long inactive since whatshisface took over, now gone. Bluesky: tess-baxter
Samantha Billingham @SODASam_
16K Followers 11K Following Coercive Control Consultant driving change around coercive control. https://t.co/21kBSz9qV7
Birmingham Rag Market @Bullringmarkets
134 Followers 754 Following Here you will find loads of information about the market, the stalls and traders, and useful information about the family of Birmingham Bullring markets.
Sunnystars2020💜 @sunnystars2020
227 Followers 1K Following Hates Injustice, Freedom Fighter and Truth Finder
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Love4iksTabi 🟧 @love4_ikse
391 Followers 2K Following One person eats, one person travels, one person goes home, one person works, one person, always one person...
Adam Lowe, AKA Beyonc... @adambeyoncelowe
7K Followers 4K Following LGBT+ History Month Poet Laureate @SchoolsOUTUK Chair @BlackGoldArts Drag queen in verse He/his (mostly) Patterflash (@peepaltreepress, 2023) Views all my own
Christina @christina4hope
4K Followers 6K Following ME/CFS ,Fibromyalgia ,Longcovid,lyme Boriliose,MCS ,Vax Injured( not corrona vax ),Hearing loss ect . Also find me on @christina4hope.bsky.social
DT #MECFS #freepalest... @davro_t
1K Followers 1K Following #MECFS since 2018. Socialist, antifascist, nerd, gamer, horror/sci-fi/fantasy. Used to read & run a lot. Now a 'useless eater' #millionsmissing #autistic #audhd
Danielle Boobyer @Primate_Girl
2K Followers 5K Following Animal & biology geek studying bird calls 🦜🐵. Mobilisation Expert @more_onion Ex: @greenpeaceuk @wwf🐼 @DecodeMEStudy. she/her. #MECFS #Autistic
#MillionsMissingDenma... @MillionsMissin2
2K Followers 4K Following
Climate Challenge Col... @climate_college
506 Followers 2K Following This account is no longer active. Please visit https://t.co/8Hc4lGq5Sv or go to our link tree to find contact information and social media 🌱
todmordenmakery @todmordenmakery
66 Followers 168 Following Todmorden Makery is a new community workshop with a space in Tordmorden College. Help us create a vibrant community space built around repairing and making :)
Phoenix Rising @aboutmecfs
6K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
Natures Rainbow @Walker55Ashley
1K Followers 3K Following Natural Dye Workshops, Dye Plant Growers, Talks and Magazine Articles. We are Susan Dye and Ashley Walker. We are a little obsessed with natural dyeing!
Nuriyah Khan 🎗 @nuriyahk
55K Followers 4K Following Ex-Muslim Commentator | YouTuber (50K+) | Public Critic of Islamism & Woke Ideology | Free Speech Advocate | 📺 GB News, TalkTV, Heretics, New Culture Forum
Massachusetts ME/CFS ... @MassMECFS
2K Followers 724 Following To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
Disability News Servi... @johnpringdns
33K Followers 5K Following John Pring: editor/founder of Disability News Service; author of The Department, published by @PlutoPress; disabled journalist; autistic.
Tommy Robinson 🇬�... @TRobinsonNewEra
1.7M Followers 12K Following Journalist Support us: https://t.co/IBf12EjvdO My books: https://t.co/deh3pH9EEk for direct contact https://t.co/zOcM3ad9DX
Zarah Sultana MP @zarahsultana
408K Followers 950 Following MP for Coventry South | [email protected] | she/her
SoleaMiels @SoleaMiels
93 Followers 2 Following Celebrating women's beauty and individuality with every exquisite accessory at SoleaMiels
Peter Hope @IPeterHope
520 Followers 1K Following Saving people with ME/CFS time, money, and sanity on the cure-chasing treadmill. Helping them improve QoL and survive the ride.
Niko Suvisto @nikosuvisto
774 Followers 404 Following Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland
Rupert Lowe MP @RupertLowe10
460K Followers 766 Following Great Yarmouth MP. Ex-Southampton FC Chairman. Businessman. Farmer. Former MEP. Leader, @restorebritain_.
Brain Inflammation Co... @BrainInflCollab
8K Followers 71 Following We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
MIRAME ARTS @MIRAME_ARTS
1K Followers 138 Following Verein von #MECFS- und #LongCovid-Patienten und Unterstützern. Wir produzieren Medien und Events,um Fehlbehandlungen zu stoppen. Spenden: siehe -linktr.ee-
Emma GL 🐙🦋 @GoreLloyd
1K Followers 1K Following DELTA-qualified ESL/EAP teacher. Caregiver to neuroscientist partner w. v severe ME from LC & Lyme. Co-founder #ThereForME She/her 🏳️⚧️🏳️🌈🇵🇸
Karen Hargrave @karen... @KarenLHargrave
2K Followers 2K Following Independent researcher & policy analyst | @karenlhargrave.bsky.social | Research Associate @ODI_Global | Co-founder #ThereForME https://t.co/qzdifn9AUg
Oonagh Cousins @oonagh_cousins
3K Followers 967 Following Communications and Policy @visible_health | @long_covid | @ThereForME_UK Anti-Recovery Activist 👀
Adam 🇬🇧 ME/LC @AdamB92_
543 Followers 457 Following 33. 🏋️ turned very severe progressive LC ME/CFS + co from Covid in 2022 - 100% bedbound unable to sit, stand or walk. Bell score 0. *Rarely can reply*
Ror Preston @RorPreston
3K Followers 779 Following Founder @wecrunchme | Data-informed advocacy to accelerate research on infection-associated chronic illnesses (IACIs) 💙 | #MECFS #LongCovid
CrunchME @wecrunchme
1K Followers 43 Following Data-informed advocacy to accelerate research on ME/CFS, Long COVID, and other infection-associated chronic conditions (IACCs) 💙
Andrew Gwynne MP @GwynneMP
52K Followers 816 Following MP for Gorton & Denton (Burnage, Levenshulme & Longsight) | Husband/Dad/Grandad | VIC20 user🕹👾
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
EndMalnutritioninME @MalnutritionME
533 Followers 685 Following Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. https://t.co/fOkzoiJqv2
Michael Gordon @TeamKarenGordon
445 Followers 14 Following
Bill Clayton @clanman3
1K Followers 800 Following Running The York ME Community & Caring About Accessibility. The Word Doodle Trilogy is out now on Amazon ! (Just a bit of ‘poetry’)! https://t.co/V3C9QHZkuc
helen stangret @StangretHelen
38 Followers 67 Following Mattress Warrior 9 years. walking wounded 20 years
World ME Alliance @WorldMEAlliance
2K Followers 253 Following An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
Cinnamon rolling alon... @LongCovidFight
2K Followers 2K Following Supporting people with chronic illnesses, including #MECFS #pwME #LongCovid #pwLC #LongCovidKids #PoTS #MCAS. #CovidIsNotOver #AirborneAware
🕸️Dr.T, PhD @chydorina
16K Followers 5K Following PhD in Biology (not an MD). Cognitive health and chronic disease recovery.
Sajid Javid @sajidjavid
295K Followers 1K Following Rt Hon Sir Sajid Javid | Partner, Centricus Partners | Chair, Holocaust Memorial Day Trust | Former Chancellor of the Exchequer
Fiona Hamilton @Fhamiltontimes
20K Followers 3K Following Chief Reporter, The Times. [email protected]
Daniel Moore @Talmandaniel
5K Followers 4K Following Founder of Northern Life Stories, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Post-Exertional Mayon... @pempodcast23
858 Followers 624 Following Podcast about living with ME/CFS & chronic illness, creativity and making meaning with Dov Zeller and @talmandaniel
ASA @ASA_UK
13K Followers 1K Following We're the Advertising Standards Authority, the UK's independent regulator for advertising across all media, including online and in social media.
Maria-louise Williams @Mariararoo
1K Followers 3K Following Severe M.E warrior (One of the missing millions). Crohn's disease in remission.
Alex Sprackland @AlexSprackland
2K Followers 2K Following Engineer. BMX. Powerlifter. Electronic music producer. Long Covid since March 2020 has put all that on hold, though 😓. https://t.co/NwtnfzoDjG
It'sME(Jaime) @exceedhergrasp1
19K Followers 4K Following Scientific Director, #MEAction Stanford Med TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own [email protected] (really not on X anymore!)
Solve ME/CFS Initiati... @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4
Lucinda Bateman @LBatemanMD
6K Followers 747 Following Physician determined to mainstream ME/CFS and FM into modern science and medicine
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Nicola Jeffery @NicolaCJeffery
5K Followers 4K Following 'Behind that loud-mouthed journalist @MrTopple is an even louder-mouthed woman!' Digital Editor https://t.co/xMDS7UtHEl #FreePalestine 🏳️🌈🏳️⚧️✊️
Steve Topple @MrTopple
31K Followers 5K Following Journalist @TheCanaryUK | Journalist @BywireNews | Vibes @Reggaeville @PauzeRadio | Contrib @RadArtReview | Project lead @ #CanaryAmplify | Views my own etc.
NICE @NICEComms
241K Followers 1K Following Official feed of NICE - National Institute for Health and Care Excellence. We produce evidence-based health and social care guidance. Tweets by the comms team.
@TheChronicCollaborat... @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Science for ME online... @s4me_info
6K Followers 265 Following We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
Josh Fenton-Glynn MP @JoshFG
9K Followers 5K Following Labour MP for Calder Valley. Member of @CommonsHealth Select Committee. Mediocre fell runner.
MoneySavingExpert @MoneySavingExp
618K Followers 334 Following Founded by @MartinSLewis dedicated to cutting your costs, finding deals, beating the system & fighting your corner. Retweets aren't endorsements.
Martin Lewis @MartinSLewis
3.3M Followers 713 Following Founder @moneysavingexp, @mmhpi & (ish) @itvmlshow & Martin Lewis Podcast. Home of t'daily twitter poll, tips, puns, musings. Mrs MSE’s husband, Sapphire's dad
Cort Johnson @CortJohnson
11K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus yearsTrends for United States
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