Liz text LOVE to 644-33 🇺🇦🌻 @makerisafer
Mom of 3 one with FUS-ALS P525L, RN BSN, art lover, @MomsDemand, hobby photographer, blood donor🩸 cyclist 🚴🏻♀️,#endals, grandma 💙 ♥️ #jacifusen #nurown tst.als.net/fundraise/?p=5… Joined July 2012-
Tweets19K
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Support my goal to help #endALS by donating to my efforts in @TriStateTrek. Ride, Volunteer, Donate, RT tst.als.net//fundraise/?p=…
A Florida 14-year-old shot his sister to death during an argument over Christmas gifts. Moments later, he was shot by his 15-year-old brother. No adults have been arrested; only children given access to loaded guns. This doesn’t happen in peer nations. nydailynews.com/2023/12/26/flo…
Standing ovations for the Lalji award winners for the development of Jacifusen, a gene therapy for FUS-ALS. We heard from Anna who since receiving Jacifusen has shown improvements in function. Jacifusion is now undergoing a phase 3 trial to fully test the benefit for FUS-ALS.
This was a really fun day honoring veterans - meeting new friends and spending time with old ones and family. My 94 year old Korean War veteran dad was so impressed with the RI Veterans Home and staff he wanted to stick around! Thanks to all who care for our veterans.
This was a really fun day honoring veterans - meeting new friends and spending time with old ones and family. My 94 year old Korean War veteran dad was so impressed with the RI Veterans Home and staff he wanted to stick around! Thanks to all who care for our veterans.
If you don’t respect our troops, you can’t lead them.
WATCH: @Everytown's #DemandASeat program is training the next generation of gun safety advocates on how to build and run successful campaigns. The goal: to shift the tide on gun violence through public service. Take a few minutes tonight to learn more. etwn.us/3ubLSvy
“We are not going to let anyone tell us that we talk about it too much on the campaign trail. Because every time we talk about [abortion], we win," Rep. Sara Jacobs, California axios.com/2023/11/11/bid…
FBI Director Chris Wray: “…our most immediate concern is that violent extremists — individuals or small groups — will draw inspiration from the events in the Middle East to carry out attacks against Americans going about their daily lives." axios.com/2023/11/11/ant…
I have about 9 hours in NYC today with my girlfriend with nothing to do- what should we do? Both of us have only ever been here for work related stuff so we’ve never explored the city.
Sending thoughts and prayers.
Is @AdyBarkan on your mind today? Take 3 minutes to watch the @11thHour @MSNBC segment honoring him. Thank you @SRuhle and @MauraTweets, Ady would have loved this. ❤️ msnbc.com/11th-hour/watc…
loved seeing a picture of @AdyBarkan in the opening credits of @LastWeekTonight but the proper way to honor him would be to give us a main story on the nightmares of medicare advantage
Thoughts & prayers are all that are given to dying #ALS while effective treatment exists, but is out of reach because of a RIGID @FDACBER. #NurownWorks #100PercentFatal #CriticalUnmetNeed CONGRESS, hold @DrCaliff_FDA accountable for perpetuating the CRUEL @US_FDA regulatory…
Thoughts & prayers are all that are given to dying #ALS while effective treatment exists, but is out of reach because of a RIGID @FDACBER. #NurownWorks #100PercentFatal #CriticalUnmetNeed CONGRESS, hold @DrCaliff_FDA accountable for perpetuating the CRUEL @US_FDA regulatory…
"...10-year-old Cayson McClung was shot in the face and arm as he tried to protect his mother." This week, SCOTUS will hear a case that could make it easier for domestic abusers to access and own guns. people.com/alabama-mom-ki…
For the past six years, Sandra and I have advocated nonstop. We do so because people living with ALS right now deserve the chance to be a part of the first generation to survive ALS. Not today, ALS. Not today.
For the past six years, Sandra and I have advocated nonstop. We do so because people living with ALS right now deserve the chance to be a part of the first generation to survive ALS. Not today, ALS. Not today.
Tonight in Maine, more people were killed by one man with a gun than in the entire last year in the state. If you haven’t been impacted yet by gun violence, God bless you. But sadly it’s coming - to your state, community, school. sunjournal.com/2023/10/16/fbi…
The shootings occurred less than 50 miles from where I live. I went to high school in Lisbon. It’s the rapid-fire killing machines, people. This is madness in the name of freedom. Stop electing apologists for murder.
Shannon Watts @shannonrwatts
596K Followers 19K Following Founder of @MomsDemand, Co-founder @Everytown / Board @emergeamerica / Substack https://t.co/yuv4tlDRne
Moms Demand Action @MomsDemand
338K Followers 10K Following Join our grassroots movement of Americans demanding reasonable solutions to address our nation’s culture of gun violence. @MomsDemand is a part of @Everytown.
Rebecca Truszkowski @RTruszkowski
7K Followers 4K Following Mom, community activist, @MomsDemand volunteer and @Everytown Grassroots Organizer. All views my own. #DisarmHate #EndGunViolence she/her
Amy Axtell 🧡 @amybett
7K Followers 6K Following Missouri @MomsDemand Grassroots Social Media Lead Volunteer #MomsAreEverywhere Amy Axtell, she/her Former: HS Art Teacher, AA Flight Attendant, Big Apple Circus
Voting Mom, JD @VotingMomIL
2K Followers 4K Following JD. GVP advocate. I 💜 evidence-based policies. Laundry will always be here, our democracy may not. All opinions and typos my own. She/her 🏳️🌈
Cathie (she/her) @cathnjrn
2K Followers 3K Following Woman,pediatric nurse,wife, mother,grandmother,sister,aunt, educator,friend,activist,child advocate,Mom's Demand Action South Jersey Co-Lead, CGV Lead Camden NJ
Moms Demand Fan @MomsDemandFan
6K Followers 5K Following Maryland @MomsDemand Chapter Lead, @Everytown, #ExpectUs, #MDPolitics, #MomsAreEverywhere, my opinions are my own
michele mueller @hilarybama
3K Followers 4K Following gun violence prevention activist @momsdemand @everytown Text READY to 64433 #keepgoing
brigette russell @ms_bea_kind
7K Followers 8K Following mom of 6 | artist • creative | 🌱🖖🏼 | activist • advocate | raised in montana • residing in virginia | cycle breaker | dv survivor | she/her | opinions my own
Zachary Mallory @zacharydmallory
6K Followers 6K Following No longer active on here. Please find me on LinkedIn, or Facebook! @MomsDemand @Everytown
lisa hendricks @MsLisaHendricks
14K Followers 10K Following mom | survivor | gun violence prevention advocate | digital at @everytown | @momsdemand volunteer | beer geek | she/her
Heather RN Demands Ac.. @winterpersists
4K Followers 5K Following @momsdemand Volunteer, Social Justice Catholic, Nurse, Wicked Red Sox Fan Views & tweets all my own she/her/hers @Everytown
Elizabeth @Eliza6666
10K Followers 10K Following Speech/Language Pathologist, mom of 5, gun violence prevention advocate, volunteer leader @MomsDemand. Text BAN to 64433. #MomsAreEverywhere
Ann says text #SOCIAL.. @AnnDubDub
2K Followers 3K Following Former photographer at Topeka Capital-Journal. Montana Journalism school alum, Montana born, Kansan by choice. @momsdemand volunteer. Opinions mine. She/her.
Katie Fights for Suic.. @ChemyKatie
2K Followers 2K Following Unstoppable gun violence prevention advocate.🧡 Survivor of suicide loss & suicidal ideation.💚 Mental health advocate. Scientist.👩🔬 Zioness.✡️
Jennifer Boylan🟧HD.. @JBoylan4RI
2K Followers 3K Following Representative for RI House of Representatives District 66. Democrat. Moms Demand exCL. Feminist. Pro-choice. REFUSE Reduce Reuse Recycle. Stop global heating.
Nicole Hollywood @BuzzNicki
2K Followers 2K Following Professor, mom, President of Salisbury PFLAG, Maryland @MomsDemand Deputy CL, cheese enthusiast, & lover of disco & glitter 🏳️🌈 Text ACT to 644-33
Allison B 🟧 @allisonball570
2K Followers 4K Following mom. #billsmafia audiobook addict. gun sense voter. @momsdemand volunteer - text READY TO 644-33 to join. all opinions are my own.
Katie 💪🏽🌻❤ @KatieMangelsdo1
2K Followers 1K Following Text READY to 644-33 Full of bees. 🐝 Mom. Kansan. 🌻 @MomsDemand volunteer @everytown Ad Astra per Aspera. All views are my own. She/Her
Valerie Text READY to.. @quakermom401
604 Followers 850 Following PVD RI @MomsDemand volunteer working to #EndGunViolence. Views are my own.
Seraphina @Seraphina576198
29 Followers 2K Following
Sicoush @Sicoush175483
38 Followers 2K Following
Freda_US_ @freda_us39580
29 Followers 2K Following
MST_On_This_Date @mst_on35116
118 Followers 296 Following Companion Twitter account that lists "On This Day" mass shootings as listed at https://t.co/ynsFcc5OwS
Deb Bellina @BellinaDeb
99 Followers 155 Following Lean Six Sigma Black Belt. Matt’s mom, advocating for people living with ALS today and people who will be diagnosed tomorrow, and the next day, and the next
SD4GVP @GvpSd4
517 Followers 596 Following We are a coalition of Gun Violence Prevention organizations in San Diego, CA. Stronger Together.
Allen Peters @AllenPe86183659
95 Followers 3K Following
Angela Gibson @AngelaGibs18916
53 Followers 799 Following Follow The Steps Click Bio Link👇 Install The App⬇️ DM me “Freedom” to link💬 https://t.co/CoaJoepmS3
Bradley Billy @BradleyBil91345
141 Followers 1K Following Inspired ♌️Service to others is the rent you pay for your room here on earth✈️🇺🇸🇰🇭🇰🇪🇵🇭🇱🇦🇮🇷proudly Physician. Surgeon. Humanitarian 🥼|Dog lover| 🐶
Shannon Sorrels @SSorrels34199
46 Followers 293 Following
marc supreme @WLoss41958
419 Followers 6K Following
Lacey Ottesen @lacey_otte59023
87 Followers 316 Following
Zackary Hall @hall_zacka52104
134 Followers 3K Following
Audrina Braun @AudrinaBra26187
208 Followers 3K Following
Mike Louis @MikeLouisand1
562 Followers 2K Following
Crystal Dykstra @CrystalDyk75942
114 Followers 3K Following
Blaine Gutierrez @BlaineGuti6611
113 Followers 3K Following
MassShootingTracker @massshootingtrk
15K Followers 1K Following Official Twitter account for the Mass Shooting Tracker at https://t.co/QsnCp1oVD0
Mathew Cook @MathewCook19962
95 Followers 3K Following
Solomon Klein @klein_solo31619
140 Followers 3K Following
Lyn Alden @LynAldanCantect
140 Followers 1K Following Founder of Lyn Alden Investment Strategy. Fundamental investing with a global macro overlay. Finance/Engineering blended background.
Geoff @Gebinh1
15K Followers 13K Following MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
Farmstrong @farmstronginfo
1K Followers 4K Following Foodie, #wine-y, fan of good UX & #techcomm. Together we can save my husband & hundreds of thousands w/ #ALS. #EsriMaps #DyingWaiting #BLM #LGBTQIA #mirfanda
David Jackson @jasegagne8371
118 Followers 2K Following Everyone wants to live on top of the mountain, but all the happiness and growth occurs while you're climbing it.
Lori Robinson @LoriRobinson78
168 Followers 2K Following
Jackson @lifewithALS
1K Followers 699 Following Mum of 2 wonderful boys. 3 cats. Diagnosed August 2022 with ALS determined to fight and stay strong until a cure is found. Forever hopeful 🧡💙🧡💙
Ukraine Fighter 🇺�.. @Ukrainefighter1
496 Followers 5K Following Slava Ukraini 🇺🇦 we will definitely win💙💛 thanks your prayers and support 💙💛 🇺🇦🇺🇦🇺🇦🇺🇦🇺🇲🇺🇲🇺🇲🇺🇲🇺🇲🇺🇲🇬🇧🇬🇧🇬🇧🇬🇧🇬🇧🇨🇦🇨🇦🇨🇦🇨🇦
Evan Campa @EvanCampa
3K Followers 2K Following Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
Tracy raven @Tracyraven74019
101 Followers 442 Following My name is Tracy Raven from New Zealand .... Also i am in to coaching and also a sports Athletic
Tavares Speer @TavaresSpeer
436 Followers 204 Following Husband, Dog Dad, Former Business Analyst & FSU Alum. I was dx w/ #als 10/4/18. Still fighting. #alsfighter #alsawareness #Endals
Vince b @vincebrooks380
326 Followers 1K Following
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
Jane Marple ♿ 🇵�.. @Arianrhod11
3K Followers 4K Following #pwME #MyalgicE triggered by 2nd #AZ 💉#MyalgicEncephalomyelitis #vaccineinjured Loved & miss 🏊🚣🏄🚵🤸🛶🥋🚶🛼🎶
Tal Gazanda @Tal_Gazanda
137 Followers 363 Following
Cristian Solaligue @CristianSo9524
699 Followers 2K Following
The Blue Collar Philo.. @BlueCollarBret
97K Followers 90K Following World Peace. Teamster. Big Brother. Veteran. Animals. Nature. #Progressive #StrongerTogether #Resist #FBR #BLM #LGBTQ #amwriting
WebbOliver @WebbOliver38080
51 Followers 447 Following RECRUITING SECTION CHIEF🛡️🇺🇸DRILL SERGEANT & COLLEGE GRADE👨🎓PROUD DAD
Morrison Harrison Aze.. @MorrisonHa26579
718 Followers 5K Following Journalist, Optimist, Activist, integrity. Gratitude. Libra.
Graubart @graubart
4K Followers 2K Following Head of Product @ Agolo | NYS Advocacy Lead for @MomsDemand | He/Him. Find me at https://t.co/P9ydK1l8E6 and as graubart on Spoutible and https://t.co/HD8sV55TLW
Francis @francis_bridgem
164 Followers 3K Following
David @ErhinyoreO
49 Followers 600 Following
Mark anderson @kamila20681
338 Followers 3K Following A military Surgeon Doctor from japan And Also An advocate to the UN nation organization,Love politics,makes friends..dms open
Anthony G @Tony323g
60K Followers 61K Following #Resist,#impeachedtheMF! #FBR#BLM🌊🌊🌊. Not on Instagram!
Lorri Cavaliere @LorriCav
1K Followers 4K Following A mom in CT, fighting and advocating every day for the life of my 32-year old daughter, Alexandra, diagnosed with sporadic bulbar-onset ALS in July of 2020.
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Shannon Watts @shannonrwatts
596K Followers 19K Following Founder of @MomsDemand, Co-founder @Everytown / Board @emergeamerica / Substack https://t.co/yuv4tlDRne
Moms Demand Action @MomsDemand
338K Followers 10K Following Join our grassroots movement of Americans demanding reasonable solutions to address our nation’s culture of gun violence. @MomsDemand is a part of @Everytown.
Everytown @Everytown
262K Followers 8K Following We are a movement of parents, students, survivors, educators, gun owners & concerned citizens fighting to end gun violence and build safer communities.
Rebecca Truszkowski @RTruszkowski
7K Followers 4K Following Mom, community activist, @MomsDemand volunteer and @Everytown Grassroots Organizer. All views my own. #DisarmHate #EndGunViolence she/her
Amy Axtell 🧡 @amybett
7K Followers 6K Following Missouri @MomsDemand Grassroots Social Media Lead Volunteer #MomsAreEverywhere Amy Axtell, she/her Former: HS Art Teacher, AA Flight Attendant, Big Apple Circus
Voting Mom, JD @VotingMomIL
2K Followers 4K Following JD. GVP advocate. I 💜 evidence-based policies. Laundry will always be here, our democracy may not. All opinions and typos my own. She/her 🏳️🌈
Cathie (she/her) @cathnjrn
2K Followers 3K Following Woman,pediatric nurse,wife, mother,grandmother,sister,aunt, educator,friend,activist,child advocate,Mom's Demand Action South Jersey Co-Lead, CGV Lead Camden NJ
Moms Demand Fan @MomsDemandFan
6K Followers 5K Following Maryland @MomsDemand Chapter Lead, @Everytown, #ExpectUs, #MDPolitics, #MomsAreEverywhere, my opinions are my own
michele mueller @hilarybama
3K Followers 4K Following gun violence prevention activist @momsdemand @everytown Text READY to 64433 #keepgoing
brigette russell @ms_bea_kind
7K Followers 8K Following mom of 6 | artist • creative | 🌱🖖🏼 | activist • advocate | raised in montana • residing in virginia | cycle breaker | dv survivor | she/her | opinions my own
Zachary Mallory @zacharydmallory
6K Followers 6K Following No longer active on here. Please find me on LinkedIn, or Facebook! @MomsDemand @Everytown
Students Demand Actio.. @StudentsDemand
17K Followers 416 Following We’re turning our outrage into action & organizing to end gun violence in America. Text STUDENTS to 644-33 for action updates ✉️
lisa hendricks @MsLisaHendricks
14K Followers 10K Following mom | survivor | gun violence prevention advocate | digital at @everytown | @momsdemand volunteer | beer geek | she/her
Newtown Action Allian.. @NewtownAction
47K Followers 2K Following Newtown Action Alliance is a national grassroots group formed after the Sandy Hook shooting to bring about legislative & cultural changes to #EndGunViolence.
Heather RN Demands Ac.. @winterpersists
4K Followers 5K Following @momsdemand Volunteer, Social Justice Catholic, Nurse, Wicked Red Sox Fan Views & tweets all my own she/her/hers @Everytown
GIFFORDS @GIFFORDS_org
105K Followers 3K Following Founded by @GabbyGiffords in 2013, we’re on a mission to save lives from gun violence. Text COURAGE to 34131 to join the fight.
Elizabeth @Eliza6666
10K Followers 10K Following Speech/Language Pathologist, mom of 5, gun violence prevention advocate, volunteer leader @MomsDemand. Text BAN to 64433. #MomsAreEverywhere
Ann says text #SOCIAL.. @AnnDubDub
2K Followers 3K Following Former photographer at Topeka Capital-Journal. Montana Journalism school alum, Montana born, Kansan by choice. @momsdemand volunteer. Opinions mine. She/her.
Katie Fights for Suic.. @ChemyKatie
2K Followers 2K Following Unstoppable gun violence prevention advocate.🧡 Survivor of suicide loss & suicidal ideation.💚 Mental health advocate. Scientist.👩🔬 Zioness.✡️
Jennifer Boylan🟧HD.. @JBoylan4RI
2K Followers 3K Following Representative for RI House of Representatives District 66. Democrat. Moms Demand exCL. Feminist. Pro-choice. REFUSE Reduce Reuse Recycle. Stop global heating.
Colleen Olson @Cpo_alberta
395 Followers 196 Following Former accountant (retired by ALS) who loves cooking, baking, crafting, gardening, but most of all my gran babies, and my dogs. Doing what I still can. #ENDALS
Mary Kay Turner @MaryKayTurner1
1K Followers 716 Following Government Affairs | Health Policy| Mom| Dog Lover | Oregon Ducks Fan| Traveler| Defender of Biopharma | Innovation Matters | ALS Advocate| Opinions Are My Own
lori andre @loriandre3
1K Followers 335 Following Mother of 3 boys, wife of Brian Andre who was diagnosed with ALS in 2016.
Laura | #EndALS at IA.. @lauramanhardt
509 Followers 302 Following Views Expressed Are My Own | She/Her | #ENDALS at the link here!
Geoff @Gebinh1
15K Followers 13K Following MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
Gia @giapolo86
610 Followers 169 Following hell hath no fury like a daughter fighting for her father's legacy #endALS #iamALS #actforALS
Lara Garey @tomstroops
380 Followers 369 Following Mom, Wife, Caregiver and now Widow b/c of ALS. 2019 Elizabeth Dole Fellow from Texas. ALS and Veteran Advocate. #tomstroops
Team Gleason @TeamGleason
6K Followers 495 Following Nonprofit founded by former New Orleans Saints player, @SteveGleason, after his diagnosis with Amyotrophic Lateral Sclerosis (ALS) in 2011. NO WHITE FLAGS
Rachel Ludwig @racheljludwig
266 Followers 136 Following
SeanBoss @Humbl4now
199 Followers 475 Following Mostly here just to follow stocks and news. Also quickly becoming a passionate ALS advocate. Google Nurown - Approval needed ASAP along with more treatments.
TJ Welches @tjwelches
807 Followers 473 Following
Phil Green @pjgreen
3K Followers 1K Following Father to 4. Husband to 1. Right-brained.. 2x Rose Bowler. 1x Nat'l Champ. ALS Advocate. PLWALS. Type with my eyes.. #PurpleReign #NoWhiteFlags #NotTodayALS
Tavares Speer @TavaresSpeer
436 Followers 204 Following Husband, Dog Dad, Former Business Analyst & FSU Alum. I was dx w/ #als 10/4/18. Still fighting. #alsfighter #alsawareness #Endals
Jackson @lifewithALS
1K Followers 699 Following Mum of 2 wonderful boys. 3 cats. Diagnosed August 2022 with ALS determined to fight and stay strong until a cure is found. Forever hopeful 🧡💙🧡💙
Emily Dhondt @EmilyKDhondt
252 Followers 249 Following Working with @ALSTDI to #EndALS 🌶️#ALSPepperChallenge #WeAreTrekFamily @tristatetrek. All thoughts are my own.
Dr. Stacy Lewin @FarberStacy
471 Followers 438 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 870 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Amber Salsberry @amber_salsberry
210 Followers 236 Following #hairstylist #salonowner #wrestlingmom #alshater #inthisfamilynoonefightsalone
Rain Consulting Group @RainConsulting
221 Followers 48 Following MPS Scholar in Transformation Leadership & Fierce Advocate for Neurological Diseases.
Evan Campa @EvanCampa
3K Followers 2K Following Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
Tal Gazanda @Tal_Gazanda
137 Followers 363 Following
Jane Marple ♿ 🇵�.. @Arianrhod11
3K Followers 4K Following #pwME #MyalgicE triggered by 2nd #AZ 💉#MyalgicEncephalomyelitis #vaccineinjured Loved & miss 🏊🚣🏄🚵🤸🛶🥋🚶🛼🎶
Ajay Sampat, MD @Sampat_md
475 Followers 37 Following Father, husband, son, and brother. Clinical educator and neurologist. Person living with ALS.
The Obama Foundation @ObamaFoundation
1.1M Followers 89 Following Our mission is to inspire people to take action, empower them to change their world for the better, and connect them so they can achieve more together.
Gay Valimont for Cong.. @gayforcongress
3K Followers 269 Following Gay Valimont is a mom, community advocate, and the only Democrat running to unseat Matt Gaetz in Florida's 1st District. It's time for a new voice for Florida!
Anthony G @Tony323g
60K Followers 61K Following #Resist,#impeachedtheMF! #FBR#BLM🌊🌊🌊. Not on Instagram!
Mark anderson @kamila20681
338 Followers 3K Following A military Surgeon Doctor from japan And Also An advocate to the UN nation organization,Love politics,makes friends..dms open
Synapticure @synapticure
4K Followers 505 Following Personalized virtual clinical care is finally here for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's
Lorri Cavaliere @LorriCav
1K Followers 4K Following A mom in CT, fighting and advocating every day for the life of my 32-year old daughter, Alexandra, diagnosed with sporadic bulbar-onset ALS in July of 2020.
Racing for ALS @racing_als
818 Followers 636 Following An amazing group racing to make a difference... Praying for a cure!! 501c3 - Over $1.5 Million raised!! Donations & Merch via our website.
Francesca van Tartwij.. @FTartwijk
84 Followers 102 Following PhD student at Queens’ College, University of Cambridge, researching protein phase transitions and the axonal cytoskeleton. Also a big fan of tea and novels!
Rachel Doboga @RachelDoboga
775 Followers 133 Following Writer, teacher. Dx w/ALS age 28. I advocate and raise awareness by blogging to show the reality of #ALS with humanity, vulnerability, and unflinching honesty.
Karine Jean-Pierre @K_JeanPierre
541K Followers 5K Following This is my personal account. White House Account: @PressSec
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Andrew Grimaldi @AndrewNGrimaldi
591 Followers 1K Following Dad. Husband. Retired. Living with ALS. CEO Life of Leisure
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Maceo Carter @MaceoCarter
929 Followers 553 Following Father, Husband, UNC Tarheels Fan, Sibling, Living with ALS. #MelanatedpALS&cALS
Kathleen Larimer @KathLarimer
482 Followers 2K Following The picture is my son, John. John was murdered in a mass shooting in July, 2012. I am a wife, mother, grandmother, and a retired nurse.
Tim H C9orf72 @sru89
950 Followers 403 Following SUCCESS comes before WORK only in the dictionary..... COURAGE is being scared to death but saddling up anyway Carpe Diem Never go quietly into the night
Behan Strong @BehanStrong
2K Followers 2K Following Join our movement to raise funds and awareness for Bucknell Alum and former SJC DC boys bball head coach Pat Behan (@CoachBehanSJC) in his fight against ALS
Tony Rosello 🏴�.. @RealBlundetto
564 Followers 397 Following 🌵. Philly Sports. 🇮🇹🇪🇸.🖕ALS. @iamalsorg advocate. Lou Gehrig Day committee member.
. Josh__/_Swerve__End.. @SwerveALS
270 Followers 330 Following . VR & Screen Experiences. Therapeutic Dawn. Info: https://t.co/HsedAR2lPU / Josh * Website is for laptops, not phones - Yes @IamALSorg @ALSAction
AnneeK @anneek10s
375 Followers 457 Following God is bigger than #ALS, dx in 2022, Married to the love of my life, Mom and Grammy, Golden retriever lover #bourbonlover #FightlikeAGirl #ALS #ALSWarrior
ᴊᴀɴɪᴇ🫧 @plainJaniexx
2K Followers 2K Following you can’t have everything, where would you put it? #GoTiges #FightMND #FuckALS #Fight4Jon 💛🖤
Sarah Langs @SlangsOnSports
125K Followers 3K Following @MLB. Previously: @ESPN, @CSNChicago, @SNYtv & @MetsBlog. Plus, @UChicagoCollege and @ChicagoMaroon sports. Go Maroons. (Views my own.) https://t.co/WkFKDYgJ9B
All is Well: Lessons @AllsWell333
611 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
Overeducated Female, .. @OvereducatedFem
57K Followers 58K Following Democrat 🌎Climate ♀Codify Roe🎖️Veterans 🗽Democracy 🌻Ukraine✊🏾Equality 🇵🇷Puerto Rico & DC statehood 💔Gun Control 🩺Medicare 4 all #DemVoice1 #Resist
Amy Williford @drmizamy
15 Followers 67 Following
Hell yeah!!! To those of you who claim “they’re essentially the same”… can u see the difference??
Be somebody’s hero. There’s no better feeling! They’re always watching. I may not be able to wear that badge and uniform anymore but I hope I can always be a hero in my little guys eyes. 💙 #MyGrandson #PoliceOfficer #Warrior #ALS #FightLikeAGirl
Tonight Jacob developed a rattle in his chest and can’t stop coughing. We are back in the ER for fear of aspiration or pneumonia! So far, everything looks fine but we still need your prayers! #EndALS #nowhiteflags #Godsgotthis #ALS #ion363 #Jacifusen #joshual1v9 #ButGod
Thoughts for the day..I believe we should throw as much shit at this disease and see what sticks. It’s time. We throw billions and billions of dollars to try and figure it out through research, but there is not one thing that will help everyone. Never will be. No, there is not…
My dear friend @racheljludwig brought over some meals for my family today. I am so grateful and a little jealous... it all looks amazing!
this photo was days before derek passed away, seeing this at the time we all kinda knew it was close…. within a week he took his last breathe and defeated ALS take on his once strong body. #ALSsucks
Happy Saturday! It’s a good day to grab a blanket and watch the football playoffs! #EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv #ALS #ion363 #Jacifusen #ALSawareness #joshual1v9 #ButGod
Adam Wilson who is part of our ALS community, who happens to be an amazing person, started this:👇 palspriceclub.com
Especially in a wheelchair, this view I kind of amazing!
As we end the year, I just have one thing to say: for those of you who have been following me, you ain’t seen nothing yet. Here we go 2024! Good night moon.
A Florida 14-year-old shot his sister to death during an argument over Christmas gifts. Moments later, he was shot by his 15-year-old brother. No adults have been arrested; only children given access to loaded guns. This doesn’t happen in peer nations. nydailynews.com/2023/12/26/flo…
Wonderful talks from the consortium today at @TargetALS_fdn 😍 You guys are doing an amazing job @beccysaleeb @EdBiophysics @jennagregory488 @GregoryLab7 @NeilShneider @tartaglialab (managed to catch you on the screen Beccy! 😜)
Happy to be @TargetALS_fdn with @NeilShneider, @MathewHHorrocks,@beccysaleeb, @FergalWaldron, @jennagregory488. Aptamers rock!
Progress gets a standing O. Anna. #alsmndsymp
Dr Schneider speaking to FUS ALS while receiving award. #alsmndsymp
Cheers to the FUS aso team led by Dr Schneider! Sadly their are counterparts to this, young fus carriers - with strong family history of als (as opposed to Anna who was de novo ) who develop als but do not get diagnosed until they are too sick to be in trial. We can do better.
Standing ovations for the Lalji award winners for the development of Jacifusen, a gene therapy for FUS-ALS. We heard from Anna who since receiving Jacifusen has shown improvements in function. Jacifusion is now undergoing a phase 3 trial to fully test the benefit for FUS-ALS.
A moving close to the Int. ALS/MND symposium - a brave young girl given early access to experimental therapy -Jacifusen - targeting a variant in the FUS gene - showing remarkable improvement. A huge sense of optimism - a standing ovation to her / treating team - amazing progress!
@mndresearch Go Anna!!! You are an inspiration for me!!!
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