HILARY @onelittleword
Long covid since April 22 - how long a time lies in one little word. London, England Joined June 2023-
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In Maeve Boothby O'Neill's final weeks, when she was dying of malnutrition caused by ME, social services were investigating her mother Sarah Boothby for fabricating or inducing her illness - and considering Maeve's removal from her care. thetimes.com/article/c5de6b…
Could we please thank Israel for preventing the world's journalists from going into Gaza? They say that this has been in order to keep journalists safe from danger in Gaza. As proof of how dangerous it is, Israel has killed six journalists.
The “full force of the law” being: • Not arresting half of the sign-holders • Processing people in pop-up gazebos • Releasing everyone with no legitimate bail conditions (not attend PA protests) • Zero charges brought • Lifting The Ban (pending). wedonotcomply.org
The “full force of the law” being: • Not arresting half of the sign-holders • Processing people in pop-up gazebos • Releasing everyone with no legitimate bail conditions (not attend PA protests) • Zero charges brought • Lifting The Ban (pending). wedonotcomply.org
**Full episodes wherever you get your podcasts or at LongCovidPodcast.com** I spoke to the fabulous @sallyeriggs for a deeper dive into #LongCovid & the nervous system Direct link to episode & transcript: buzzsprout.com/1835170/132846…
Ashamed to be British under this Tory government
Ashamed to be British under this Tory government
Fundraiser by Tess Falor : RemissionBiome MECFS Study-Protocol to the People! gofund.me/f67c08c5
Calling Long Covid advocacy organisations: have you been invited to testify to the Inquiry? I don't see why the press speak as if the only people 'damaged' by the pandemic are the bereaved. We long covids are in a similar boat so the bereaved. Please, let's unite on this.
#pwLC I saw a post which with doc explained LC to friends and family - can’t find now but if anyone can point me to it 🙏
barbie’s wheelchair vs my actual wheelchair: a critical comparison aka the best twitter thread i will ever post strap in #Barbie
Is it ok to take l citruline as well as ALCAR ? pwME# pwLC# any advice grateful
pwLC# and pwME# got blood results and Vit D elevated - yes take supplements but only 4000 GP wants me stop and test again anyone else had this?
Andy Murray has been criticised by the Right Wing Media for saying this Wimbledon advertisement is bad. It features 5 male tennis stars in the foreground and the women hidden in the back. If you agree with Andy that this advert is horrible give this a RT Shame on Wimbledon
Hey if you followed a #LongCovid guy on here called Sierra3 (also posted stock market stuff) his account was suspended (for no apparent reason other than he posted about covid & lab leak theory.) He’s now back as @ShortTurdStox - So give him a follow and retweet this message 🙂
@CiaraGlenville hope your crash ends ASAP. I find lying on the ground and looking up at trees so calming

Faithless @FaithOxenbridge
3K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
DAngel1111 @Angel1111D
263 Followers 1K Following
Ignorance Wins @ROFLtheZebra
2K Followers 2K Following Supporting Proportional Representation and a Progressive Alliance. She/Her.ME/CFS.
محمد عاصم س�... @AsimAli1717
2K Followers 2K Following The most expensive thing in the world is Trust 💕 It can take years to earn & just a matter of seconds to lose
Catherine Kiszkiel @KiszkielC
172 Followers 990 Following
MEinSeattle @emmydugas
1K Followers 4K Following 🧑💻 #Healthcare 👩⚕️ #HousingCrisis 🏠 #JusticeReform🧑⚖️ #LeftandRightUnite 🤝#UnitetoFight 🥊#MECFS 🩺 #Covid 🦠#LongCovid 🐦#BirdFlu
Lia @LiaLoves34
569 Followers 3K Following mother #audhd with severe #longcovid dysautonomia pots since early 2020, now bedbound
bethereificould @bethereificould
567 Followers 1K Following A mirrorbox and map taking messages from people with M.E. or Long Covid to places they love but can no longer get to #ACEsupported #socialart #missingmillions
Chantal #LongCovid �... @Ninjazz636
2K Followers 3K Following First-waver. Lost my health, my career, my home and proximity to everyone I know. #NotRecovered #MaskUp #CovidIsAirborne No longer here. Same handle on 🦋
N Rog @Nc_Rog
1K Followers 2K Following Once highly active. Now mostly housebound due to Long Covid and resulting ME/CFS and POTS. First waver March 2020. Yes BEFORE the vaccine.
Troy Roach @Canal1point5
2K Followers 690 Following I teach English for Health Sciences at San Rafael in Madrid. Born in California, worked in five countries. #LongCovid 03/20. Brain fog induced views my own
Merve Tepe, PhD @mervetepePhD
1K Followers 2K Following Microbiologist//Biomineralization, Phage Therapy, AMR, Biofilms//@remissionbiome team// @mervetepephd.bsky.social //Defend science, resist ignorance 🚫
Prof Doug Kell CBE #F... @dbkell
14K Followers 10K Following I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice
luke anderson @lukeand27520593
107 Followers 1K Following Claim extraordinary or ordinary will claim you
Potatie @__potatie__
2K Followers 3K Following FREE PALESTINE 🇵🇸🇵🇸🇵🇸 “It is no measure of health to be well adjusted to a profoundly sick society." 😷 Disabled by Long Covid/ME/POTS/MCAS
Emma 🦋✝️ @Emma40025133
3K Followers 1K Following Long Covid since my first infection in 2021. Caused POTS, MCAS & extreme fatigue. I just never recovered from my acute infection. I feel acutely unwell daily
Sarah O'Connell @SarahOC_MECFS
4K Followers 5K Following #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Catherine Hale @octoberpoppy
3K Followers 3K Following Disability research, coproduction and inclusion consultant. now over at [email protected] 🦋
LongCovidPodcast @longcovidpod
5K Followers 3K Following Podcast hosted by Jackie Baxter, bringing together lived experience, medical experts, researchers & solidarity on this lonely #LongCovid journey #FBLC
PJ Morrison @wastelessme
2K Followers 1K Following I was born-I will die-in between I try- previously a Crisis Management Pro-Troubleshooter & Late-night comic-Now health advocating-LongCovid 63 months
under_transformation @_trans4m8tion
617 Followers 890 Following Long covid brought me here, fascist owner drove me away . In a shitty club with great people #FBLC #PEM #PESE #MECFS bluer skies: trans4m8tion
TheSunshineVitamin @TheSunshineVit1
956 Followers 1K Following 🌞🌞🌞Registered Dietitian MS, RD #LongCovid 9/2020 #MECFS
Isabel Burnett | Rene... @IsabelRamirezRD
4K Followers 2K Following CEO & founding member Renegade Research, Co-founder Renegade Medical Coaching, Director Remissionbiome Decentralized, human-centered research. #MECFS #longcovid
Elaine 🌻☘️⚘�... @elainemdc
826 Followers 616 Following Doggie mom, love(d) the outdoors. Long Covid, Long Hauler #CovidIsntOver #BringBackMasks #NotRecovered #CureLongCovid#CountLongCovid #pwLC
Tracey Burgess @TraceyABurgess
3K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Cam Regier @CamRegier
2K Followers 1K Following Husband, Father, Engineer, Buildings Nerd, LongCOVID. Views are my own. Likes and retweets are not endorsements.
Long Covid Commentary @LongCovidComms
3K Followers 3K Following Long covid patient who thinks the world needs more resources to solve and treat long covid and me/cfs #FBLC #pwLC #LongCovid #mecfs #pwME treat #PEM
GeoCK @GeoEduOne
6K Followers 863 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Mary Clare @MaryCla72653695
116 Followers 2K Following
Cat @Catinmyfamily
2K Followers 3K Following Long Covid of the ME type since 6/22 | Clean air in schools | 😷in healthcare
Cinnamon rolling alon... @LongCovidFight
2K Followers 2K Following Supporting people with chronic illnesses, including #MECFS #pwME #LongCovid #pwLC #LongCovidKids #PoTS #MCAS. #CovidIsNotOver #AirborneAware
Anne Lawtey @AnneLawtey
702 Followers 1K Following Long Covid pathfinder. Outrageous granny. Twitter for trying to make sense of politics & Long Covid - FB for chaotic family, friends, horses & dogs life.
Melissa Mazur @PhillyPhile215
3K Followers 4K Following Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
K3LLYB33N 🇨🇦�... @K3LLYB33N
3K Followers 4K Following Covid Cautious Canadian https://t.co/g0HvuL7w4Y #CovidIsAirborne #SARSCoV2 #KeepMasksInHealthcare #LongCovidAwareness
Jo @cfs_jo
4K Followers 2K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu
Peanut @MrsProctor2010
1K Followers 1K Following 1st wave longhauler, 80% recovered. Spending my days quizzing. #LongCovid #MEcfs #CovidIsNotOver
Gary Robinson @lessorfewer
907 Followers 2K Following PhD geography: money & finance • Life mostly on hold from #LongCovid 03/2021 Same handle elsewhere
oracling in the fucki... @noralove
3K Followers 2K Following Do not mistake my kindness for weakness. #LongCovid #MECFS #intersectionalfeminism STOP THE GENOCIDE 🇵🇸😷
Marianne @hout_marianne
1K Followers 1K Following Dutch. Bedbound with severe ME/CFS. Trying to find my way back to life.
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Clare Daly @clarejdaly
5K Followers 1K Following Year 5 of #LongCovid (2020) | #MECFS (1993). (occasionally) Support @visible_health
Sandy B @Sam_B_79
331 Followers 1K Following
A 😎 @AaronCa11
5K Followers 6K Following
Defend Our Juries @DefendourJuries
15K Followers 160 Following Jurors have a right to acquit a defendant according to their conscience, irrespective of a Judge’s directions. Every defendant deserves access to fair justice.
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Marianne @hout_marianne
1K Followers 1K Following Dutch. Bedbound with severe ME/CFS. Trying to find my way back to life.
oracling in the fucki... @noralove
3K Followers 2K Following Do not mistake my kindness for weakness. #LongCovid #MECFS #intersectionalfeminism STOP THE GENOCIDE 🇵🇸😷
Gary Robinson @lessorfewer
907 Followers 2K Following PhD geography: money & finance • Life mostly on hold from #LongCovid 03/2021 Same handle elsewhere
Isabel Burnett | Rene... @IsabelRamirezRD
4K Followers 2K Following CEO & founding member Renegade Research, Co-founder Renegade Medical Coaching, Director Remissionbiome Decentralized, human-centered research. #MECFS #longcovid
Sarah O'Connell @SarahOC_MECFS
4K Followers 5K Following #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
longhauler73 @patrickG731
2K Followers 3K Following
Georgie Grier @georgie_grier
11K Followers 1K Following Actor & Writer | Host of The Screenster Podcast | Instagram: @screensteruk | Wrote a One Woman Play called 'Sunsets'
bri @briimii
2K Followers 3K Following former indie music lover and sunny weather seeker. #LongCovid #NotRecovered #CovidTinnitus
Simon Spichak @SpichakSimon
2K Followers 1K Following Neuroscience MSc 🦔 dad Founded @Resolvve_inc to make therapy affordable for students Words @Being_Patient_ @thedailybeast @TVO @ObserverUK @dailydot
Renegade Research @RenegadeRes
3K Followers 3K Following Patient led nonprofit 501c3 on #MECFS & #LongCovid • https://t.co/Tv4Sb4yLzd 💙 Runs project @remissionbiome • Donate ▶️ https://t.co/Qovzyu0mqp
Dr. Marco Leitzke @LeitzkeMarco
2K Followers 232 Following »» no updates »» no activities »» no messages »»
Richelle Sepulveda @Really_Richelle
1K Followers 945 Following Former Psych instructor. Like a magpie, in that I gather weird facts, though, not shiny bits. She/her, I think? Allergic to garlic 😭.
Merve Tepe, PhD @mervetepePhD
1K Followers 2K Following Microbiologist//Biomineralization, Phage Therapy, AMR, Biofilms//@remissionbiome team// @mervetepephd.bsky.social //Defend science, resist ignorance 🚫
Troy Roach @Canal1point5
2K Followers 690 Following I teach English for Health Sciences at San Rafael in Madrid. Born in California, worked in five countries. #LongCovid 03/20. Brain fog induced views my own
Nick Chambers @NickChambers2
782 Followers 387 Following Using Twitter to improve my health. CFS since 2015. Worsened in 2021 after vaccine. Let’s do this 👏🏼💪🏼
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Catherine Hale @octoberpoppy
3K Followers 3K Following Disability research, coproduction and inclusion consultant. now over at [email protected] 🦋
Slapchop 🇵🇸 @SplendidSpeseia
878 Followers 817 Following A way that can be followed is not the real way Tweeting through my experience with chronic illness. I love self-experimenting and I hate lies ME/CFS, POTS, MCAS
RemissionBiome MECFS/... @remissionbiome
10K Followers 990 Following Project run by @renegaderes, a non-profit 501c3 focused on #MECFS & #LongCovid • https://t.co/kbmqa2yImN • https://t.co/IkTfALVBWC💙 Donate now ▶️ https://t.co/yNyiFapV80
Renuka Dhinakaran @renudhinakaran
6K Followers 662 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid Focusing on marriage, parenting & chronic illness
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
#TheNicotineTest -- C... @TheNicotineTest
6K Followers 622 Following A Patient-Led, Citizen Science Project. Low-Dose Nicotine Patch data collection/sharing for #LongCovid, #MECFS/post-viral disease. Admin: @Canal1point5
Vicky van der Togt @Vickyvdtogt
7K Followers 1K Following Facilitator | Researcher | Advocate | Author of The Long Covid Symptom Diary - @ddxpublishing
Prof. Christina Pagel... @chrischirp
180K Followers 914 Following Prof Operational Research @UCL_CORU, . Member of @independentsage. only posting now at chrischirp at bluesky. https://t.co/nNW5zMenx2
under_transformation @_trans4m8tion
617 Followers 890 Following Long covid brought me here, fascist owner drove me away . In a shitty club with great people #FBLC #PEM #PESE #MECFS bluer skies: trans4m8tion
Elaine 🌻☘️⚘�... @elainemdc
826 Followers 616 Following Doggie mom, love(d) the outdoors. Long Covid, Long Hauler #CovidIsntOver #BringBackMasks #NotRecovered #CureLongCovid#CountLongCovid #pwLC
Tracey Burgess @TraceyABurgess
3K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Long Covid Commentary @LongCovidComms
3K Followers 3K Following Long covid patient who thinks the world needs more resources to solve and treat long covid and me/cfs #FBLC #pwLC #LongCovid #mecfs #pwME treat #PEM
Cam Regier @CamRegier
2K Followers 1K Following Husband, Father, Engineer, Buildings Nerd, LongCOVID. Views are my own. Likes and retweets are not endorsements.
A 😎 @AaronCa11
5K Followers 6K Following
K3LLYB33N 🇨🇦�... @K3LLYB33N
3K Followers 4K Following Covid Cautious Canadian https://t.co/g0HvuL7w4Y #CovidIsAirborne #SARSCoV2 #KeepMasksInHealthcare #LongCovidAwareness
Hacked @hackedd24
8 Followers 0 Following
Melissa Mazur @PhillyPhile215
3K Followers 4K Following Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
Cinnamon rolling alon... @LongCovidFight
2K Followers 2K Following Supporting people with chronic illnesses, including #MECFS #pwME #LongCovid #pwLC #LongCovidKids #PoTS #MCAS. #CovidIsNotOver #AirborneAware
Cat @Catinmyfamily
2K Followers 3K Following Long Covid of the ME type since 6/22 | Clean air in schools | 😷in healthcare
Mary Clare @MaryCla72653695
116 Followers 2K Following
Christine Goldschmidt @artandsoles_co
1K Followers 929 Following 👩🏻🎨🦋Artist and Illustrator. #LongCovid survivor; Hyperbaric Oxygen and pacing helped. 👀my Etsy shop for maps about #LongCovid. 👇⬇️
Ciara Wright PhD, Pos... @CiaraGlenville
3K Followers 902 Following Nutritionist+Scientist - Positive Nutrition Clinics. Long Covid 2022 Remission/ Recovering with Enoxaparin & Lyme treatment 2025 🤞