Pernille Frisvoll @painclustering
A twitter page for a doctoral research project about the psychological treatment needs of people who live with persistent pain. edinburgh.eu.qualtrics.com/jfe/form/SV_6W… Edinburgh Joined April 2021-
Tweets23
-
Followers47
-
Following102
-
Likes14
Participants needed! I am looking for participants to complete a brief online survey. If you are 45 or over and suffer from IBS, CFS or fibromyalgia, please consider taking part. Many thanks! 🙏 Click here to find out more and to access the survey: edinburgh.eu.qualtrics.com/jfe/form/SV_9Y…
Have you experienced the #Menopause and have #Arthritis? We’re creating new content about menopause and arthritis and will hold a focus group where you can help us shape our content. Get involved by emailing [email protected] this #WorldMenopauseDay2021. Thank you!
arthursplace.co.uk/life/life-hack… Uni can be exciting, nerve wracking and scary. But how different is it when you have arthritis? Our website has a jam packed article by blogger Collette full of hints and tips. Click the link to read now! #wad #arthritis #arthursplace #arthursplacesocial
Please consider taking part in this research project (hoping to inform psychological treatment) if you are over 18 and live with pain. Please RT or share in relevant forums to help us get the participants we need! edinburgh.eu.qualtrics.com/jfe/form/SV_6W…
Thanks so much for sharing! Still in need of participants, please consider taking part if you live with pain: edinburgh.eu.qualtrics.com/jfe/form/SV_6W…
Thanks so much for sharing! Still in need of participants, please consider taking part if you live with pain: edinburgh.eu.qualtrics.com/jfe/form/SV_6W…
Pain Toolkit Workshop for people living with persistent pain 16th October 2021 from 10am - 12.20pm eventbrite.co.uk/e/pain-toolkit… "Loved the workshop and at a pace everyone had time to share. Wished I'd attended one sooner. Pacing info was useful. I can now do more, without more pain."
Looking for more people with pain to take part in our 20 min survey. Please RT or share in relevant forums to help us get the numbers we need - we are 1/3 of the way there!
What pain books should I add to this reading list? These authors are already included: @DrDavidHanscom, @PainChampions, @US_Pain, @CorKinetic, @MayoClinic, @umichmedicine, @Honest_Physio, @paintoolkit2, @RestoringVenus, @DrZoffness, @noigroup, @DeepakRavindra5, @monty_lyman
Are you over 18 and have persistent pain? Please consider completing my 20 minute online survey. Please feel free to RT or share in relevant forums edinburgh.eu.qualtrics.com/jfe/form/SV_6W…
An excellent report from @VersusArthritis , focusing on how people live with pain and its management, during the COVID-19 pandemic. @AudreyBirt @AngelaD83621 versusarthritis.org/media/23507/va…
Acceptance is not approval. keep 👂ing people R told 2 accept their pain. I don’t know any1 that approves of being in pain. Acceptance is about understanding the position we are in at the present moment. Acceptance acknowledges change, willingness, adaptation, growth, curiosity
Excited to share our meta-analysis on the efficacy of online Acceptance and Commitment Therapy for chronic pain in the Journal of Pain: jpain.org/article/S1526-…
Today we’ve published our guideline on chronic pain. It makes recommendations about effective treatments for people with a type of chronic pain, called chronic primary pain, where the cause of the pain is unknown. Read more here: bit.ly/3s5z1Et
Clinical innovation by streamline assessment and group allocation pathways according to the client's behavioral plasticity and their differential needs of ACT processes! The latest development of ACT for chronic conditions (mental and somatic health). sciencedirect.com/science/articl…
The online survey for my doctoral research is now live! Looking for participants over 18 with persistent pain. Please RT #painresearch #persistentpain #chronicpain edinburgh.eu.qualtrics.com/jfe/form/SV_6W…

NRS Pain Research Com... @nrs_pain
401 Followers 298 Following Supporting internationally competitive research via a network of pain researchers, clinicians, third sector, patients and other stakeholders across Scotland
Rachael Stabler (she/... @rachaelstabler
64 Followers 341 Following Trainee Clinical Psychologist at UoE
Well-aHead @DrSuePeacock
2K Followers 2K Following Well aHead -‘providing psychological health solutions’ Special interests- chronic pain, cancer, preparing for surgery, IBS, sleep, dental anxiety
Salt14 @Salt14
781 Followers 3K Following Mum. Mental health first aider & campaigner. Working within Influence & Participation as Expert by Experience
Karen Burley @KBurley7
30 Followers 64 Following
amanda_butterfly_room @Amanda_Mck
2K Followers 2K Following award winning wellbeing & creativity coach( Butterfly room is my biz baby & an #SBS winner), author & artist living with fibromyalgia.
Amy Vatne Bintliff @amybintliff
228 Followers 440 Following Educator, researcher, dev. psychologist. Social justice ally. Researching the effects of trauma & adolescent wellbeing. An RJ Circle Keeper. Tweets are my own.
Elena Falla Fowler @FallaFowler
416 Followers 3K Following Disabled feminist unschooling GAPS māmā. Māori & Pākehā. Speaking out: bullying, coercive control, CRPS, Dupuytren's, DV, whakawhanaungatanga using DNA.
Pig Witch @pig_witch
2K Followers 2K Following Uni lecturer (English for Specific Purposes). HE mentor (ND & SpLD). Ex KS4 special school teacher. MA Ed (Inclusive Practice). The edge of London. hEDS 🦓
IBS, CFS and fibromya... @IBS_CFS_FMstudy
10 Followers 11 Following Doctoral research project: IBS, CFS and fibromyalgia in those aged 45 and older – the impact of emotions and relationships on symptom severity.
Learning Disability a... @IDandLGBQ
387 Followers 1K Following Caitlin, Trainee Clinical Psychologist, she/her. Exploring the experiences of family of adults with learning disabilities who identify as LGBQ+ @edinburghuni
Airey Stuart @Stuart_Airey
6 Followers 26 Following
Nicky Temple @NJTempleofDoom
8 Followers 127 Following
The Patient Voice of ... @PatientBps
2K Followers 2K Following We are the The Patient Voice Committee of The British Pain Society & endeavour to ensure our collective voice is heard throughout the work of the society.
Scottish Care @scottishcare
15K Followers 14K Following The voice of the independent care sector in Scotland. Retweets do not indicate endorsement. #careaboutcare
Mary Galbraith @Mary_Galb
2K Followers 4K Following Islander, geographer, heart patient - #SCAD #WomensHeartHealth #INOCA #MINOCA.
Burning Nights CRPS @BNightsCRPS
11K Followers 10K Following Burning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). RT=Not Endorsement
Professor Ian Welsh O... @IanMWelsh
11K Followers 3K Following Chair; C-Change Scotland, Ayrshire Cancer Support, DementiaFriendlyPrestwick, PrestwickCivicPride;FRSA:MA(Hons):MA:DPSE: D.Univ:HonProf UWS
Henry Watt @Charlie_Dimmock
10K Followers 9K Following On the Origin of the Universe: Watt’s Cielo-Ciela Cosmoses✨ @GoogleCloud ☁️ #Arsenal #DJDimmock
Louise Rogers @Alliance_Louise
692 Followers 624 Following Development Officer for the Self Management Team at the Health and Social Care Alliance Scotland. Views are my own
PCRMM Society @pcrsociety
4K Followers 3K Following charity organisation for GPs and AHPs for education , conferences and webinars
Erin @erin_b_robinson
317 Followers 330 Following Trainee Clinical Psychologist. Reader. Writer. Cat-lover. Interested in perinatal, chronic pain, 3rd wave. Lived experience mental health and chronic pain
Effie Marathia @effie_mar
787 Followers 1K Following Research Fellow @stirhealthpsych | PhD candidate @UoDPsychology | Events co-Lead @HealthPsyScot
Roxy Parry @RoxanneParry56
81 Followers 307 Following Aston Uni MSc Health Psychology Student. Apologies in advance for spelling mistakes. Interested in disability research and activism.
kateandprada 🐈�... @kateandgucci
4K Followers 3K Following I've been with my mummy since i was 8 weeks old. I'm Prada and i love my mummy and boxes 😻📦📦📦📦 P.S i have selective hearing. Please don't ask us for cash.
Peace In Pain @PeaceInPain1
1K Followers 4K Following Founder & manager of @CheshireWandMF lives daily with #trigeminalneuralgia #chronicpain #bowelincontinence #failedbacksurgerysyndrome
Social Identity and P... @SocialIdentity3
428 Followers 3K Following CLOSED Participants needed for a 10-20 minute anonymous online survey looking at how we identify with others and the relationship with paranoia 💻 (+16y UK)
Rebekah Davies @RemotelyPossib1
639 Followers 1K Following Clinical Lead & CSO NHS App|Login @NHSDigital | HCPC SLT| @RCSLT Telehealth Gdlines co-author| Topol Fellow 2| @UKFCI|NHS Clinical Entrepreneur #Cohort6
Dr Robyn Atcheson @randomrobyn
1K Followers 2K Following Random yet inspiring. Historian of poverty & history of medicine. Chronic conditions& messed up body. Eccentric. Personification of pink. Eater of biscuits.
Arthur's Place @ArthursPlaceUK
884 Followers 714 Following 🤝Bringing Together Adults 18-35yrs with Arthritis 💪 Info.Blogs•Podcasts•TV.FB Social•Facts&Tips🙌 Award-Winning Non-Profit CIC Found 2011
Executive function @a_pisze
49 Followers 244 Following works in the corporate world, but loves academia. need for cognition. neuro-nerd, metalhead, feminist, and mom.
Graciela Rovner @GracielaRovner
212 Followers 175 Following
Stephen McMurray @StephenHypno
240 Followers 963 Following Clinical Hypnotherapist. Graduate Member of the BPS. Writer. Tweet about personal development and psychology. Check out my free stress buster report at website.
Janey 🏴�... @14mJEM
1K Followers 3K Following Adult Human Female = Woman. Founder member Alba. #BelieverinBiology #VoteAlba #SexNotGender #ProReality #Feminist #SALVO🏴🏴
Jenna Love @jennalove_psych
593 Followers 1K Following Anthony Nolan Clinical Psychologist at St George's Hospital. Health psych esp #stemcell transplants, cancer, pain, sickle cell, tinnitus. Tweets own views.
Dr Isobel Williams @isobel_anne
876 Followers 560 Following Clinical Psychologist in Neuropsychology. Researching FND, movement and seizure disorders. DClinPsy. PhD. She/her. *Tweeting in a personal capacity.*
cath tyler @cath_tyler
624 Followers 902 Following
Dr Aliénor (Lili) LC @alienorlc
1K Followers 3K Following Clinical Psychologist, researcher, Big Nerd™. Interested in homelessness, addictions, trauma, disability, sex ed, diversity in Clin Psych. Queer femme 🌈
Chronic Pain Network @cpn_rdc
5K Followers 2K Following Working with patients as partners to identify priorities and new treatments in the prevention and management of chronic pain in Canada.
Rachel Atherton @RJ_Atherton
23 Followers 159 Following
Scottish Network of P... @scotpsychCP
36 Followers 17 Following This is the official twitter feed for the Network of Scottish psychologists working in Chronic Pain
David Gillanders @davidgillander
2K Followers 1K Following Senior Lecturer in Clinical Psychology at the University of Edinburgh. My research programme is concerned with how people live well with illness.
Dr Sarah Keith @sarahkeith
378 Followers 834 Following Health Psychologist @SouthTees | Specialist Weight Management, Long COVID and Long Term Conditions | Research Associate with iPrepwell
Dr Adam G W Burley �... @DrAdamGWBurley
1K Followers 809 Following Still holding fast to the notion that 'On Fire' by Galaxie 500 is the greatest record ever made, and one of the seven cornerstones of Western art. No, really.
Elena Falla Fowler @FallaFowler
416 Followers 3K Following Disabled feminist unschooling GAPS māmā. Māori & Pākehā. Speaking out: bullying, coercive control, CRPS, Dupuytren's, DV, whakawhanaungatanga using DNA.
Katie Clark @klclark525
3K Followers 4K Following Writer. Retired 6th grade ELA teacher-reading/writing workshop. Teach w/Tech. 💗living FULLY despite the pain! #fibromyalgia #wellnessblogger #amwriting
Airey Stuart @Stuart_Airey
6 Followers 26 Following
Learning Disability a... @IDandLGBQ
387 Followers 1K Following Caitlin, Trainee Clinical Psychologist, she/her. Exploring the experiences of family of adults with learning disabilities who identify as LGBQ+ @edinburghuni
IBS, CFS and fibromya... @IBS_CFS_FMstudy
10 Followers 11 Following Doctoral research project: IBS, CFS and fibromyalgia in those aged 45 and older – the impact of emotions and relationships on symptom severity.
Person Centred Voices @PersonCentredVo
8K Followers 3K Following Person Centred Voices works with health and social care and other sectors to encourage culture change on person centred practices. Managed by @ALLIANCEScot
Well-aHead @DrSuePeacock
2K Followers 2K Following Well aHead -‘providing psychological health solutions’ Special interests- chronic pain, cancer, preparing for surgery, IBS, sleep, dental anxiety
SDS Options (Fife) @SDS_Options
508 Followers 393 Following We offer info & support to explore your SDS options & outcomes.
Brown Therapist Netwo... @Browntherapist1
449 Followers 161 Following A global community for South Asian therapists & wellbeing professionals who collaborate, learn, grow and challenge Eurocentric mental health together
Mary Galbraith @Mary_Galb
2K Followers 4K Following Islander, geographer, heart patient - #SCAD #WomensHeartHealth #INOCA #MINOCA.
Jo Brett @jmrbrett
273 Followers 151 Following she/her. Clinical Psychologist. CBT Therapist. Feminist. Queer 🏳️🌈. Neurodivergent. Roller derby player. Trying my best in a weird, hard world.
The Patient Voice of ... @PatientBps
2K Followers 2K Following We are the The Patient Voice Committee of The British Pain Society & endeavour to ensure our collective voice is heard throughout the work of the society.
Color The World Orang... @CRPSOrangeDay
2K Followers 1K Following Color The World Orange™ is an annual event held the first Monday of November to spread awareness of CRPS/RSD. Retweets aren't endorsements. #CRPSORANGEDAY™
Henry Watt @Charlie_Dimmock
10K Followers 9K Following On the Origin of the Universe: Watt’s Cielo-Ciela Cosmoses✨ @GoogleCloud ☁️ #Arsenal #DJDimmock
Professor Ian Welsh O... @IanMWelsh
11K Followers 3K Following Chair; C-Change Scotland, Ayrshire Cancer Support, DementiaFriendlyPrestwick, PrestwickCivicPride;FRSA:MA(Hons):MA:DPSE: D.Univ:HonProf UWS
𝕊𝕙𝕖𝕣𝕖�... @SherenGaulbert
564 Followers 523 Following Clinician & Therapist Coach | https://t.co/uj2S7eqGc8 | Trauma Trained Pain Therapist #QCH #PainScience | Lived Experience | Trustee @VulvalPainVPS
Louise Rogers @Alliance_Louise
692 Followers 624 Following Development Officer for the Self Management Team at the Health and Social Care Alliance Scotland. Views are my own
Mairi O'Keefe @MairiOKeefe
521 Followers 620 Following MBE , Founder and Patron @LeuchieHouse national respite centre. Scottish advisory board for Marie Curie
Dr IreneOldfather �... @IreneOldfather
3K Followers 2K Following Irene Oldfather BA MSc D.Univ former MSP+Chair ScotParl European Com Director HealthSocial Care Alliance;former Member EU EESC; SAS Board;VC UK DAG TCA
Elena Nikiphorou @ElenaNikiUK
3K Followers 2K Following Rheumatologist/Researcher, KCL. Main interest: Inflammatory arthritis, multi-morbidity, social determinants of health.
Melissa - Going My Ow... @thefibromama
3K Followers 705 Following Fiction author & chronic illness advocate 💛 I write heartfelt romance & cozy stories about love, resilience, mindfulness and friendship. 🌟
UoM Musculoskeletal @UoMMskResearch
1K Followers 239 Following
UCL Rheumatology for ... @UCL_RheumAYA
1K Followers 267 Following Centre for Adolescent Rheumatology Versus Arthritis at University College London
Centre for Epidemiolo... @CfE_UoM
984 Followers 1K Following The Centre for Epidemiology Versus Arthritis: improving the lives of people with musculoskeletal diseases through asking patients’ most important questions.
Erin @erin_b_robinson
317 Followers 330 Following Trainee Clinical Psychologist. Reader. Writer. Cat-lover. Interested in perinatal, chronic pain, 3rd wave. Lived experience mental health and chronic pain
Effie Marathia @effie_mar
787 Followers 1K Following Research Fellow @stirhealthpsych | PhD candidate @UoDPsychology | Events co-Lead @HealthPsyScot
Roxy Parry @RoxanneParry56
81 Followers 307 Following Aston Uni MSc Health Psychology Student. Apologies in advance for spelling mistakes. Interested in disability research and activism.
Burning Nights CRPS @BNightsCRPS
11K Followers 10K Following Burning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). RT=Not Endorsement
Northern Ireland Vers... @NIVArthritis
1K Followers 2K Following We want a future free from arthritis. We won’t rest until everyone with arthritis has support with a real hope for a cure. We are #VersusArthritis.
Cymru Versus Arthriti... @CymruVArthritis
2K Followers 3K Following We’re the 974,000 people with arthritis/MSK conditions in Wales. Have arthritis? We’re here for you. …local support groups, helpline, campaigning, research...
Fibro Bloggers @FibroBloggers
18K Followers 8K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
PCRMM Society @pcrsociety
4K Followers 3K Following charity organisation for GPs and AHPs for education , conferences and webinars
RACE GBN @Racegbn
726 Followers 434 Following Versus Arthritis sponsors this collaboration with Birmingham, Glasgow,Newcastle & Oxford unis to hasten progress towards finding a cure for rheumatoid arthritis
Arthritis Foundation @ArthritisFdn
39K Followers 6K Following Here for the 1 in 4 with #arthritis. | Fighting to cure the #1 cause of disability. | #KidsGetArthritisToo #ArthritisScience #AdvocateforArthritis💚💪
Rheumatology & Rheuma... @RheumJnl
13K Followers 2K Following Rheumatology & Rheumatology Advances in Practice are the official journals of @RheumatologyUK.
Fibromyalgia Awarenes... @Fibromyalgia_b
8K Followers 540 Following The official page of https://t.co/Iqr0aAg6Ev blog #Fibromyalgia awareness #Fibromom #spoonie
Dr Sarah Keith @sarahkeith
378 Followers 834 Following Health Psychologist @SouthTees | Specialist Weight Management, Long COVID and Long Term Conditions | Research Associate with iPrepwell
Arthritis National Re... @CureArthritis
12K Followers 4K Following ANRF provides research funding to investigative scientists with new ideas to cure arthritis & related autoimmune diseases.
World Arthritis Day @ArthritisDay
7K Followers 667 Following WAD is celebrated on 12 Oct to raise awareness of rheumatic & musculoskeletal diseases. The abbreviation 'CMP' in posts stands for Consult Medical Professional.
Scotland Versus Arthr... @ScotVArthritis
2K Followers 762 Following We’re the 10 million people living with arthritis. We're pushing against its impact in Scotland & together we can defy it. Formerly Arthritis Care Scotland.
BSR @RheumatologyUK
16K Followers 1K Following The UK's leading specialist medical society for adult and paediatric #rheumatology and #msk health professionals. Note: we're unable to answer patient queries.
Osteoarthritis and Ca... @OACJournal
4K Followers 272 Following Osteoarthritis and Cartilage, and Osteoarthritis and Cartilage Open - official journals of @OARSInews. Impact factor 7.2. co-EiCs: @AM_Malf & @ProfDavidHunter
NRAS @NRAS_UK
9K Followers 1K Following Patient-led charity in the UK specialising in providing info & support to those living with rheumatoid arthritis #RA & juvenile idiopathic arthritis #JIA.
Arthritis Action @Arthritis_ACTN
3K Followers 468 Following We're a UK charity helping people with arthritis to live fuller lives with less pain.
RheumaBuddy @RheumaBuddy
218 Followers 261 Following RheumaBuddy is the app for people who want to gain greater control of their RA/JIA. Track symptoms, get an overview and chat with others living with RA/JIA.
JIA-at-NRAS @JIA_NRAS
1K Followers 219 Following A new service launched by @NRAS_UK for families, children, young people and adults affected by Juvenile Idiopathic Arthritis #JIA
Scottish Care @scottishcare
15K Followers 14K Following The voice of the independent care sector in Scotland. Retweets do not indicate endorsement. #careaboutcare
JAR Project (now on B... @JARProject
1K Followers 1K Following Juvenile Arthritis Research UK charity no. 1091620 The only UK-wide charity focusing solely on #JIA. This account not actively monitored. DMs not monitored.