TRiNDS @trinds_nmd
Therapeutic Research in Neuromuscular Disorders Solutions: a specialized neuromuscular CRO trinds.com Joined April 2016-
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April is #NationalVolunteerMonth. One of the many ways that TRiNDS empowers employees is by offering paid time off for volunteer opportunities related to rare neuromuscular disorders. We thank our dedicated team for their generosity and commitment to making a difference.
Yesterday was #WorldHealthDay2024. World Health Day began to mark the anniversary of the founding of the World Health Organization on April 7th, 1948. This year's theme is #MyHealthMyRight chosen to champion the right of everyone, everywhere.
TRiNDS is unwaveringly committed to making significant advancements in combating all #neuromusculardisorders. We are driving towards a future where effective and accessible treatments for DM1 and DM2 become a reality. Learn more here: trinds.com/expertise/dise…
Today TRiNDS recognizes #NationalDoctorsDay. We extend our sincerest thanks to those physicians who tirelessly serve those in our rare disease community. Your impact is immeasurable, and we are honored to work alongside you in the pursuit of better health outcomes for all.
#BMD is a slower moving neuromuscular disorder that affects muscle function due to deficiencies in the protein dystrophin. At TRiNDS we are dedicated to making meaningful strides in the fight against all #neuromusculardisorders. Learn more here: trinds.com/expertise/dise…
Our subject matter experts select and validate clinical outcome assessments, train and supervise sites, and conduct central quality control. Contact us to add TRiNDS #StudyMeasurements to your next #ClinicalTrial: trinds.com/contact-us/
On this #InternationalWomensDay TRiNDS celebrates the strength, resilience, and brilliance of women around the world. Together, let's continue to strive for equality, empower one another, and create a future where every woman and girl can thrive.
March is #WomensHistoryMonth. Let us take a moment to celebrate the countless contributions of women throughout history. From advocating for change, to breaking barriers and shattering glass ceilings, their impact echoes throughout every corner of society. #WomenInScience
TRiNDS is in booth #612 at the #MDAConference soaking up the latest breakthroughs in #NMD and allowing us an opportunity to engage in discussions with our sites and current clients, forge new partnerships, & bring back invaluable insights to fuel our journey forward.
Today, #EmployeeAppreciationDay, we celebrate the heartbeat of our organization – our incredible team members. The diverse team at TRiNDS is the pillar of our company achievements and we are endlessly grateful for their contributions towards #RareDiseaseResearch.
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
On this #RareDiseaseDay, we raise awareness about the challenges faced by patients and their caregivers, advocates, and families. Every individual impacted by a rare condition has their own unique journey, yet together, form a powerful community united by hope and determination.
This week we welcome Maryland local Lisa Hunegs to TRiNDS! We're thrilled to have her on board and can't wait to see all the amazing contributions she brings to the team. #Musculardystrophy #Cureduchenne #Rarediseasecommunity #Mdawareness
Today we celebrate the 23rd anniversary of the historical senate hearing of 2001, the first hearing to focus solely on #DMD. This hearing ultimately led to congress enacting the MD-CARE Act. We are grateful to those who contributed to the monumental event.
This week we welcomed Denotria Osteen to the team! Denotria lives in Tennessee and brings a wealth of talent and expertise that we're incredibly excited to have on board. #ClinicalResearch #ClinicalTrials
Today, in recognition of #NationalLeadershipDay, we thank the visionaries, motivators, and trailblazers that lead our teams at TRiNDS. Whether it’s leading a team, a community, or their own journeys, their influence is paramount. #NLD2024 #LeadwithPurpose
Sunday is #InternationalDayofWomenandGirlsinScience. Let us honor the trailblazers, innovators, and change-makers who have shaped the world through their contributions to STEM, ultimately lighting the way for a brighter, more inclusive future. #WomeninScience #IDWGS2024
TRiNDS is a proud annual participant in the #MDAconference. We look forward to connecting with you as we come together to share knowledge, inspire hope, and support those affected by #musculardystrophy. Find more information about the conference here: mdaconference.org
A skilled clinical operations team is the backbone of every successful #clinicaltrial. TRiNDS specializes in services tailored to #NMD research to ensure comprehensive understanding of the clinical context within any given study protocol. Learn more here: trinds.com/contact-us/
The TRiNDS team is dedicated to supporting #neuromuscular disorder clinical programs. TRiNDS history is founded on the academic clinical trial consortium: #CINRG (Cooperative International Neuromuscular Research Group). Learn more here: trinds.com/expertise/dise… #NMDawareness
AnnemiekeAartsma-Rus @oligogirl
3K Followers 486 Following Translating science from bench to bedside and from jargon to lay language
WMS @WorldMuscleSoc
2K Followers 663 Following We invite you to the 28th International Annual Congress of the World Muscle Society in 2023. This is the premier annual Congress on #neuromuscular disorders.
JWMDRC @jwmdrc
1K Followers 501 Following John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University #dmd #sma #lgmd #fshd #dm1 #gne #col6 #cnm
Matthew S. Alexander @Matt_Muscle_Guy
5K Followers 4K Following Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. All tweets are my own. Instagram @thealexanderlab
TREAT-NMD @TREAT_NMD
4K Followers 565 Following Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
Jordi Díaz-Manera @querques2000
773 Followers 968 Following Professor of Neuromuscular Diseases at Newcastle University @jwmdrc. Passionate about clinical and basic research, but also about wine, sport, music and books.
World Duchenne Organi.. @worldduchenne
3K Followers 1K Following Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
Defeat Duchenne Canad.. @defeatduchenne
1K Followers 795 Following Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy.
ern euro_nmd @euro_nmd
2K Followers 738 Following Building bridges and breaking barriers in rare neuromuscular diseases.
Alyson Fiorillo, PhD @AlysonAFiorillo
560 Followers 706 Following Assistant Professor working towards therapeutics for Duchenne Muscular Dystrophy. Tweets are my own.
Terri Ellsworth @TerriEllsworth
2K Followers 2K Following Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
Helen Walker @helenmwalker44
657 Followers 1K Following UK Myotonic Dystrophy and UK FSHD Patient Registry Manager and Curator (she/her) *Views my own* #neuromuscular #PatientRegistries #dm1 #dm2 #fshd #RareDisease
Virginia Arechavala @VArechavala
2K Followers 2K Following Scientist and mum. @ikerbasque Professor @biocrucesHR Interested in #RNAtherapy for #neuromuscular disorders. De Bilbao de toda la vida and adopted Londoner.
Duchenne Centre NL @duchennecentrum
293 Followers 161 Following Centre of expertise considering care, treatment and research for #Duchenne and #Becker muscular dystrophy.
CureDuchenne @CureDuchenne
6K Followers 510 Following We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
Neuromuscular Disease.. @NMD4Canada
1K Followers 504 Following Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Centre for Muscle Res.. @UniMelbCMR
3K Followers 1K Following Advancing muscle biology and its importance in health and disease. #myotwitter #sarcopenia #myology #skeletalmuscle #musculoskeletal #neuromuscular #cachexia
Perry Esler @4kidsforever
572 Followers 1K Following Husband, proud father of 4 (one heavenly), die hard Leaf's fan, love travel and craft beer.
Sheonad Laidlaw @h0pefulmummy
2K Followers 4K Following Constantly juggling life unfamiliar. Mum to 2 girls, 1 with SMA. Palliative Care SAS Dr: special interest in young adults, transition & neuromuscular disease
Shelley Simmonds FRSA.. @Shelley_Simmo
4K Followers 5K Following Duchenne Mum | Parent Carer | Disability Rights & Rare Disease Advocate | Accessibility & Inclusion Campaigner | Healthcare Equality & Ethics Enthusiast
kirubakaranpalaniyapp.. @kirubakaranpal1
0 Followers 21 Following
EPNS @EPNSnews
3K Followers 3K Following European Paediatric Neurology Society (EPNS): a society for physicians, health professionals, scientists and students with an interest in Child Neurology.
ImagingNMD @ImagingNMD
53 Followers 84 Following We are dedicated to advancing research for Becker muscular dystrophy (BMD) and Duchenne muscular dystrophy (DMD).
Joaquim Brites @JoaquimBrites
91 Followers 208 Following Electrotécnico - Gestor Presidente da Direção da APN -Associação Port. de Neuromusculares Conselheiro no Conselho Nacional de Saúde, Patient Advocate, EURO NMD
ابو زكريا أ�.. @yahiaalgaufy
124 Followers 720 Following
Glendalee deRuiter @MGMdeRuiter77
23 Followers 63 Following
Damián Kalmár @DamianKalmar
147 Followers 235 Following Student of Experimental and molecular biology with a focus on physiology • Neuroscience, biology and philosophy enjoyer • Art enthusiast • Freedom lover
RxDataWatch @RxDataWatch
37 Followers 194 Following
SA @SamA_3210
19 Followers 30 Following
Mentsük meg Benit @micskooo
78 Followers 283 Following My name is Benjámin Micskó. I just turned 4 years old. I am a wonderful, cheerful, curious, ever-moving little boy. In December 2023, I was diagnosed with DMD
Ömer Doğan @malido4147
19 Followers 154 Following
Dr Katherine Forsey @DrBiol
3K Followers 4K Following Chief Research Officer | Charcot-Marie-Tooth Association @CMTAusa #CMTASTAR #CMTresearch CSciTeach | STEM Ambassador
Jagan Allu @Jaganmohanallu
64 Followers 990 Following Freelance Biostatistician/ Consultant Data Scientist
Jon Rees PhD @BiotechJon
1K Followers 1K Following CEO, MitoRx Therapeutics. Pioneering therapeutics in mitochondrial-driven disease.
Shirlyn Adkins @ShirlynAdkins
889 Followers 738 Following @AANEMorg Executive Director of the AANEM & American Neuromuscular Foundation- tweeting items related to neuromuscular and electrodiagnostic medicine.
Enza Leone @leone_enza
224 Followers 564 Following PhD student in Physiotherapy at @KeeleUniversity and Research Officer at @StaffsUni | Neurophysiotherapy MSc at @ucl
corrado.angelini@unip.. @corradoangelin7
51 Followers 96 Following Mayo Clinic Researcher Expert in neuromuscular disorders and mountain medicine Metabolic disorder investigator
Sadıka Özdemir @Sadkazdemir2
28 Followers 455 Following
Aurelio Antonio Alvar.. @neurophys18
2K Followers 1K Following Médico especialista en Neurofisiologia Clínica y Medicina Física & Rehabilitación Graduado en Harvard Medical School
Alayna T @AlaynaTress
68 Followers 124 Following MPH with a curiosity for people and families living with Duchenne and DM1. Patient Advocate at PepGen. Tweets are my own.
DepressionPlus - Illn.. @DepressionPlus
1K Followers 3K Following #LIFE #JOURNEY WITH #DEPRESSION, #LUPUS, #FIBROMYALGIA, #AUTOIMMUNE DISORDERS, #PAIN, #FATIGUE & #STIGMA. #ARTTHERAPY
Katarzyna Juszczak @KatarzynaJusz11
0 Followers 103 Following
Theruthventrust @theruthventrust
1 Followers 28 Following We raise awareness and funds for Duchenne muscular dystrophy, a life limiting rare genetic disease that has no cure. 💙 Our sons were diagnosed in 2019.
N-of-1 Hub @nof1hub
85 Followers 522 Following N-of-1 Hub is the market leader in consultancy, collaboration and training in N-of-1 trials and Single-Case Designs (personalised clinical studies).
DMD Dayanışma Platf.. @DMDdayanisma
6K Followers 27 Following #Duchenne M.D. hakkında içerikler sunarak toplumsal farkındalık oluşturmak ve @DMDaileleri_'nin eğitimine katkı sağlamak amacıyla kurulmuştur. https://t.co/ZDMdWbnSZe
Angelini Corrado @AngeliniCorrado
296 Followers 368 Following Professor of Neurology,expert in mountain medicine and neuromuscular disorders
KC YANG @KCYANG13
6 Followers 76 Following
Levi Fenrich @LeviFenrich
114 Followers 359 Following
shpresa @shpresa81449145
22 Followers 91 Following
EpiCARE @EpiCARE_ERN
3K Followers 469 Following European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
Sheila Vasconcelos @Sheilavcs
90 Followers 240 Following
Leslie Nelson @llnpt
17 Followers 207 Following
COL6A2 @COL6A2
184 Followers 927 Following Let's find each other, support those who are looking for a cure for this disease. #col6a2 #genemutation #colágenovi #musculardystrophy #collagenvi #colvi #col6
ORBIT @haney103
23 Followers 260 Following I love long drive, rain, coffee, cold night, full moon, books, golf, horse riding, silence, black colour & history
Twine Therapeutics, I.. @twinetx
0 Followers 19 Following
Rafael @_RafaelSierra
8 Followers 14 Following Medical Affairs Leader for Interested in #Neurology #RareDiseases
Dara Goldberg Spar @daracgold
81 Followers 5K Following
SMA-Europe @SMAEurope
2K Followers 1K Following SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
MAGIC @MAGIC_horizon
130 Followers 212 Following Accelerating the development of gene therapies for muscular dystrophies. Funded by @HorizonEU, @UKRI_News and @SBFI_CH
nancy de coninck @nancydeconinck
11 Followers 186 Following
Daruieste Speranta Di.. @daruieste25
18 Followers 181 Following Sprijinirea persoanelor in faza de diagnosticare cât și pentru cei ajunsi in stadiul de a avea nevoi concrete 🤗
essentiallyjody @essentiallyjody
570 Followers 3K Following Sharing information on health and healing the natural way with Essential Oils. Feel free to share and ask questions. http://t.co/6K1iIumJLJ
aedak1234567 @aedak1234567
5 Followers 242 Following
AnnemiekeAartsma-Rus @oligogirl
3K Followers 486 Following Translating science from bench to bedside and from jargon to lay language
WMS @WorldMuscleSoc
2K Followers 663 Following We invite you to the 28th International Annual Congress of the World Muscle Society in 2023. This is the premier annual Congress on #neuromuscular disorders.
JWMDRC @jwmdrc
1K Followers 501 Following John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University #dmd #sma #lgmd #fshd #dm1 #gne #col6 #cnm
TREAT-NMD @TREAT_NMD
4K Followers 565 Following Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
World Duchenne Organi.. @worldduchenne
3K Followers 1K Following Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
Defeat Duchenne Canad.. @defeatduchenne
1K Followers 795 Following Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy.
Muscular Dystrophy UK @MDUK_News
18K Followers 3K Following We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Joining Jack @alljoinjack
63K Followers 2K Following We are joining Jack in the fight to find a cure for duchenne muscular dystrophy. Will you?
ern euro_nmd @euro_nmd
2K Followers 738 Following Building bridges and breaking barriers in rare neuromuscular diseases.
Alyson Fiorillo, PhD @AlysonAFiorillo
560 Followers 706 Following Assistant Professor working towards therapeutics for Duchenne Muscular Dystrophy. Tweets are my own.
Terri Ellsworth @TerriEllsworth
2K Followers 2K Following Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
elizabeth vroom @elizabethvroom
768 Followers 158 Following @worldduchenne 🌍 @duchennepp 🇳🇱 @duchenneday 🎈
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Virginia Arechavala @VArechavala
2K Followers 2K Following Scientist and mum. @ikerbasque Professor @biocrucesHR Interested in #RNAtherapy for #neuromuscular disorders. De Bilbao de toda la vida and adopted Londoner.
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
CureDuchenne @CureDuchenne
6K Followers 510 Following We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
Parent Project Muscul.. @ParentProjectMD
7K Followers 1K Following Let's fight for every future. #PPMDeveryfuture #EndDuchenne
FSHD Society @FSHDSociety
2K Followers 786 Following World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD
Pathfinders Neuromusc.. @PathfindersNMA
2K Followers 436 Following User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info
MDA Advocacy @MDA_Advocacy
2K Followers 316 Following MDA's Advocacy empowers the voice of the @MDAorg community & protects the interests of those we serve.
UPMC Children's Hospi.. @ChildrensPgh
33K Followers 366 Following The official twitter feed of UPMC Children's Hospital of Pittsburgh, one of the nation's leading pediatric hospitals. Follow for news/info.
Laura Hagerty @Hagerty_Laura
412 Followers 518 Following Interested in Neuromuscular Disease Research and Drug Development
The Duchenne Registry.. @duchenneregaus
37 Followers 41 Following
Journal of Neuromuscu.. @journal_nd
2K Followers 600 Following JND | Dedicated to expediting our understanding & improving treatments of neuromuscular diseases | Editors: Carsten G. Bönnemann & Hanns Lochmüller
Melissa Spencer @MspencerUCLA
139 Followers 2K Following Professor, Scientist, and mom who is really sick of anti-science rhetoric
Brian Denger @regned2
10 Followers 7 Following
Duchenne Alliance @DuchenneAllianc
591 Followers 270 Following We are an alliance of over 40 international non-profit organizations dedicated to finding treatments for Duchenne Muscular Dystrophy. United to beat time!
Jeff Marrazzo @jeffmarrazzo
2K Followers 279 Following Co-founder and former CEO of @Spark_tx, passionate about gene therapy enabling change in our healthcare system | He/him.
Spark Therapeutics @spark_tx
6K Followers 468 Following Our mission is to unlock the power of gene therapy to accelerate healthcare transformation. Page monitored business hours M-F; https://t.co/ER7NJcXED0
Patrick May @PatrickSMay
18 Followers 745 Following
Duchenne Now @DuchenneNow
3K Followers 460 Following Zero cost Charity dedicated to finding treatments and a cure for all living with Duchennne Muscular Dystrophy. Your Charity. Your Goal. Your Voice.
UPPMD @UPPMD2016
13 Followers 0 Following![Official Twitter account of the NIH/NINDS [Privacy Policy: https://t.co/uXZ2BEHgFz]](https://pbs.twimg.com/profile_images/880747540672589825/CqraUhnN.jpg)
NINDStrials @NINDStrials
3K Followers 476 Following Official Twitter account of the NIH/NINDS [Privacy Policy: https://t.co/uXZ2BEHgFz]
ACRP - Assoc. of Clin.. @ACRPDC
8K Followers 3K Following The Association of Clinical Research Professionals (ACRP) is moving the people and practice of clinical research forward™. Advancing People Advancing Health™
CureCalpain3 @CureCalpain3
339 Followers 162 Following C3 is a non-profit organization driving research to cure limb-girdle muscular dystrophy type 2A, also referred to as LGMD2A/R1 and Calpainopathy
The RYR-1 Foundation @RYR1foundation
320 Followers 10 Following
Jain Foundation @JainFoundation
1K Followers 3K Following Orchestrating a Cure - LGMD2B/Dysferlinopathy/Miyoshi
Myotonic Dystrophy Fo.. @MyotonicStrong
2K Followers 348 Following The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure.
DuchenneMD @DuchenneMD
113 Followers 123 Following Dining Away Duchenne, a premiere charity event with DC chefs is on September 25, 2018. #DiningAway18
Bio-Optronics @BioOptronics
444 Followers 197 Following Unparalleled clinical trial management systems (CTMS), unmatched physician scheduling, unsurpassed patient ID systems, and unbeatable customer care.
CDISC @CDISC
4K Followers 700 Following CDISC creates clarity in clinical research by bringing together a global community of experts to develop and advance data standards of the highest quality.
SOCRA @SOCRAnow
2K Followers 118 Following Society of Clinical Research Associates, is a non-profit, professional organization dedicated to the continuing education and development of clinical research
SCDM @SCDM_DataDriven
7K Followers 169 Following “Leading innovative clinical data science to advance global health research and development”
Hera Hub DC @HeraHubDC
2K Followers 2K Following Hera Hub DC, a shared, flexible work & meeting space for entrepreneurial women in Friendship Heights! #coworking #smallbiz https://t.co/LXgVm0uC3G
OpenClinica @OpenClinica
2K Followers 378 Following Electronic Data Capture (EDC) for Clinical Research and Clinical Trials.
Smile with Shiv @svt_mands
1K Followers 3K Following Our mission, to raise awareness & funds to find a treatment/cure for Duchenne Muscular Dystrophy (DMD). Sadly, we lost our Shiv on 20 Mar 23. Go fly our angel!
Steve Grossman @stevenjgrossman
2K Followers 4K Following Interests #AAV, #RareDisease, @ADCY5 , DOCK3, movement disorders, drug discovery https://t.co/bUjHXNnoa7. #ViralVector Business Development Views expressed are my own
myo-mri @myo_mri
28 Followers 15 Following MYO-MRI focuses on the rollout of MR techniques by sharing expertise and exploring the potential of MRI as a quantitative outcome measure in NMD clinical trials
Little O against DMD @littleo_dmd
318 Followers 295 Following Fighting Duchenne Muscular Dystrophy (with Duchenne Parent Project Belgium)
Iain Clarke @IainClarkeAD
328 Followers 406 Following
Francesca Ceradini @franceradini
804 Followers 903 Following Molecular Biologist Science Writer #scicomm #Rarediseases #AdvancedTherapies #patients. Scientific Director @TerapieAvanzate @OssMalattieRare Views are my own
Klair Bayley @klair_bayley
119 Followers 329 Following Founder Duchenne Australia, Board Member Duchenne Data Foundation, Nurse, Midwife, Senior Program Officer WA Dept of Health Office of Popultion Health Genomics
Zoe Davidson (she/her.. @davidson_zoe
865 Followers 754 Following Dietitian-researcher providing updates on the latest nutrition (and related) research in neuromuscular disorders. @MonashNutrition @MCRI_for_kids
Duchenne Foundation @DMDfoundation
2K Followers 770 Following Focusing on Improving the quality and length of life for those living with Duchenne across Australia, through, research, education, support, care and advocacy.
Rare Disease Report @RareDR
16K Followers 1K Following Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: https://t.co/xUkFDfCDUV, hosted by @GiulianaGrossi
Capricor Therapeutics @Capricor
2K Followers 249 Following Capricor (NASDAQ: $CAPR) is a biotech company focused on the development of cell & exosome-based therapeutics for treatment and prevention of serious diseases.
PTC Therapeutics @PTCBio
2K Followers 311 Following PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for patients with rare disease
Stand for Duchenne @DuchenneCanada
230 Followers 52 Following
RareConnect @RareConnect
19K Followers 5K Following 🌐Connecting #raredisease patients globally at https://t.co/v6rTTK0X6I. 💻Website help at @RareConnectSup.
Cure CMD @CureCMD
666 Followers 172 Following Cure CMD’s mission is to advance research toward treatments for congenital muscular dystrophies and empower those living with CMD.
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
U.S. FDA @US_FDA
563K Followers 145 Following Our posts are FDA Approved! Privacy Policy - https://t.co/LbTJXYRXVP FDA Authentic Accounts - https://t.co/w2LNbzG7M0
Cure SMA Canada @CureSMACanada
368 Followers 112 Following Cure SMA Canada is a National Charity that funds research for Spinal Muscular Atrophy and supports Canadian Families affected by SMA.On May 29, you can choose to walk your way in support of Defeat Duchenne Canada. Participate anywhere - in any way - to bring us a step, run or roll close to a future without #Duchenne #musculardystrophy. Register today at walktodefeatduchenne.com.
Take the first step towards supporting boys and young men in their fight against #Duchenne #musculardystrophy. 📆 Save the date to walk, run, or roll in your community as part of this year’s virtual Walk to Defeat Duchenne - Sunday, May 29, 2022. #walktodefeatduchenne
Vamorolone Phase 2b (VISION-DMD): Now recruiting at all UK sites. View the trial on the DMD Hub website here: dmdhub.org/trials/vamorol…
TREAT-NMD presenting a poster this afternoon the value of TACT in therapy development P36. Come and find out more #MDAConference
Fantastic morning @MDAorg learning about congenital muscle diseases with Jim Dowling, Reghan Foley & Carsten Bonneman #MDAconference #coll6 #mtm1 #myotubularmyopathy #cmd
When 9mos into your 1st full time prenatal GC position, you suddenly find yourself doing prenatal, adult, and cancer genetics. 😳🙃 Counseled my first cancer appts as a full time GC today and it went well! Feeling pretty accomplished right now. 😊 #GCchat #IAmAGeneticCounselor
Happy New Year from all of us at DMD Pathfinders, we hope this is a good one for you all
VISION-DMD - December Newsletter - mailchi.mp/3ee816a6b650/v… Catch up on our latest project news!
Today, September 7, is #WorldDuchenneAwarenessDay! Sharing our story is one of the most impactful ways we can raise awareness on #WDAD18. Share your family's story today in honor of #WDAD18 and help us #EndDuchenne!
Delighted to announce #DMD #Duchenne Guide for Families 2018 is now available in time for #WDAD18 download US & UK translations - more languages to follow! treat-nmd.eu/care/dmd/famil…
Starting tweeting! Every tweet with #TheDeed from now until 8 PM will raise $1 for #CureDuchenne and @TeamGleason! Thank you for your support @SidneyDTorresIV and @thedeedcnbc!
Eric Hoffman, Phd. is sharing his an update about a first-in-patient Phase 2a study of Vamorolone, a dissociative steroidal agent that is designed to retain and increase the efficacy of corticosteroids as, while reducing the side effects. #confPP18 #duchenne #visiondmd
Eric P. Hoffman presenta Vamorolone #ConfPP18 che agisce (speriamo) sull’infiammazione come gli steroidi ma senza effetti collaterali @Parent_Project #Duchenne
Eric Hoffman @ReveraGen updating on #vamorolone at #ConfPP18 @trinds_nmd @uppmdduchenne @Vision_DMD attending & happy to answer questions x.com/vision_dmd/sta…
2a completed with 48 boys Nov’17. Study report is in preparation. Update as soon as results are publically available @uppmdduchenne x.com/ulasdemirci01/…
Our #vamorlone Phase 2b trial initiated based on 2a results. PR vision-dmd.info/press-releases/ @trinds_nmd @uppmdduchenne @TREAT_NMD @ReveraGen
The @Pontifex sends his greetings will pray for a good @Parent_Project conference and all of us #ConfPP18 #Duchenne #becker
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