Doug Lindsay @Doug_Lind_Say
Personal Medical Consultant | Keynote Speaker | Making unlikely things happen lindsaycenter.com Joined January 2016-
Tweets142
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Followers2K
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Following667
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This week I'm on the CBS News podcast #UnsungScience! David @Pogue has authored or coauthored over 100 books & he helps me tell the story of the dog surgery that gave me back my life! Take a listen!!!!! #RareDisease #spoonie unsungscience.com/the-podcast/se…
#RareDisease is a community 25 million strong in the US. Together, we are a COMMUNITY. We must be recognized as a "Health Disparity Group" or we will continue to suffer needlessly & invisibly! #equity #SDoH #RareDiseaseDay health-hats.com/pod159/
Biggest lesson to MDs on #RareDisease Diagnosis: "Rare" doesn't mean "Never." If smart docs struggle, throw up a flag🚩This might be a rare disease! health-hats.com/pod159/
Great piece in the @NYTHealth on #LongCOVID. A strong summary & overview, plus links & resources to people & sources generally respected in the #postviral, #MECFS & Long COVID worlds! nytimes.com/interactive/20…
Love how @Doug_Lind_Say saved himself and now helps other people solve their own mysteries. That's some potent #PeerHealthAdvice - lending people the courage to try people.com/human-interest…
Today is my 1st day working on a project funded by @theNCI. The best part is, the study is focused on a condition I am living with. 1st order of business: Re-writing the entire aims page so other patients like me can better understand what the study is about. #patientresearcher
Reminds me of what I read about Rhode Island hospital before they committed to a healthy hospital culture instead of a fear box. God bless and good luck, @KDRichardson924
Reminds me of what I read about Rhode Island hospital before they committed to a healthy hospital culture instead of a fear box. God bless and good luck, @KDRichardson924
S Blitshteyn MD, FAAN.. @dysclinic
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60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedMark Lewis @marklewismd
88K Followers 39K Following Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.Stacy Hurt (she/her)�.. @stacy_hurt
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299 Followers 4K Following Your favorite Latina's favorite Latina 😈 Backup account, follow my main : @bellaaa_lewisHealthcare & Medical .. @Medical_Conf
111 Followers 669 Following "3rd World Congress on Health Care & Medical Science,” in London, UK , from November 23-25, 2023.#conference #MedicalConference #conferences #conference2023Curious Sam @curiousiamsam
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15 Followers 247 FollowingAide aux Victimes du .. @AVFIN_asso
68 Followers 107 Following L'AVFIN s'adresse aux victimes du finastéride et à leur famille. Nous sommes en relation avec les autorités de santé pour que leur état soit pris en charge.merakoi @merakoi_AG
214 Followers 635 Following Bridging the gap between patients and healthcare companies, thanks to merakoi’s global network of patients 🙌 #PatientExperience #PatientsIncluded #AskPatientsDiane goodman @dianegsbureau
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25 Followers 73 Following I just want to say something, I'm awkward and not so good at everything I do 😑fredtrotter @fredtrotter
8K Followers 2K Following I work on #health #data and #cybersecurity. https://t.co/FKPgIlY4jz Wrote Hacking Healthcare: https://t.co/kSOx3TYGDi and started https://t.co/sttCtOaEnU. Views my own. RT != endorsement.Helena Weibel @HelenaRae
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10 Followers 331 FollowingLaura A. Pace, MD, Ph.. @LauraAPace
3K Followers 1K Following Physician-scientist | Neurogastroenterology | Microbiota-Neuroimmune Axis | Women's Health. Be a part of the solution. Tweets are my own.Shinobi @ShinobiCCTV
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15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.Stacy Hurt (she/her)�.. @stacy_hurt
10K Followers 2K Following Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my ownLiz Salmi @TheLizArmy
9K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.Martin Hippe @pausedME
7K Followers 474 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!Rasu Shrestha MD MBA @RasuShrestha
41K Followers 889 Following Bridge builder & strategist. EVP, Chief Innovation & Commercialization Officer. In pursuit of person-centered value-based health & care. Tweets are my own.Andrea @BraveBosom
5K Followers 5K Following Security Researcher, BRCA1 Advocate, Founder of The Light Collective @BeLikeLight | https://t.co/j6EGKi1LlaNick Adkins @nickisnpdx
32K Followers 670 Following kilt wearing pink furry bike riding healthcare MBA. 🌍💖😊 the world is full of good! when u believe it, u see it. keep doing that! ✨ #pinksocksTatiana Prowell, MD @tmprowell
63K Followers 8K Following Oncologist serving people w/ #cancer via #MedEd/#bcsm clinic/#regulatory. #ASCO20 Ed Chair. Co-founder @HCWvsHunger. #LongCovid. Team hope/good trouble/go high.Patient-Led Research .. @patientled
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231K Followers 243 Following 7 months pregnant Argentinian natural girl next door ❤️ Mommy loves you! ❤️ Autistic babe ❤️ I love active and pervy followers 👹IrmaRaste ✨ Influen.. @IrmaRaste
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2K Followers 445 Following 33. Desert Mother. Fish and Wildlife Biologist. Duck Knife Lady. Local Cryptid. Pockets full of lizards.Dr. John Whyte @drjohnwhyte
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11K Followers 9K Following Human Being. pain patient, chronic illness, healthcare EDS/Arachnoiditis.@_HeartofGrace_ That was so interesting and amazing. The humour with the surgeon who spent half a page on how he accidentally invented the beer bong & only half a sentence on the surgery, too funny😆but what a great story.
The most inspiring and touching TED Talk I ever watched: For 11 years Dough Lindsay was bedbound by a mysterious illness before he developed the cure for his own disease. If one patient can achieve that, what could a whole community do?! youtube.com/watch?v=w4s0uN… @Doug_Lind_Say
Ok so keeled scales have 1(+) ridges down the middle of the scale. These ridges are what the lasso catches onto preventing the lizard from sliding. Can you #FindThatLizard? Let me know with #FoundThatLizard. Reveal tonight at 9pm PST!
I was instructed to mail really critical patient records to a specialist's office this morning. Mail. Like go to the post office & mail copies of #MedicalRecords & images on CD. Receptionist shared the mailing address. Said not to bother faxing bc can't fax the images on CD.🤦♀️
Happy Wednesday! I quit my job yesterday and it feels so damn good. I’m glad to be shifting my energy back to lizards, ecology, and science communication! More to come on that soon but for now #FindThatLizard is dropping tonight at 5pm PST 🦎💜
@kristileilani @Bigfoot_BC @CallahanAutoCo @EricSmithAlan @GadSaad You had a freaking hour before the dude had the gun loaded! And only a split second once it was loaded. Be a man and don't just stand there like a pansy!
So grateful to see the world recognizing the bravery of the women of Iran. Proudly voting fo them. #TIMEPOY time.com/time-person-of…
Lots of q's in digital health around companies providing equity to providers, particularly given the demand for talent. I can see the rationale either way. (the main objection is that a lot of providers don't really want or value equity vs. really prioritizing cash comp).
Here's a fun fact that's hard to work into offline conversation so I'm sharing it here while I still can: My great-uncle Cyril was the minister who presided over the wedding ceremony of Kermit & Miss Piggy -- "Because you share a love so big, I now pronounce you frog and pig."
On the latest episode of The Health Design Podcast, my friend Doug Lindsay, the epitome of courage and perseverance, tells his story of survival, and what we can learn from his experience. on.soundcloud.com/rWW6vaukHtJtZg… #raredisease #CitizenScience #adrenal
@Doug_Lind_Say is an amazing person with an incredible story to tell!
On the latest episode of The Health Design Podcast, my friend Doug Lindsay, the epitome of courage and perseverance, tells his story of survival, and what we can learn from his experience. on.soundcloud.com/rWW6vaukHtJtZg… #raredisease #CitizenScience #adrenal
@J2Novack @JHDinfo @Doug_Lind_Say @PCORI @uabmedicine Fantastic podcast @Doug_Lind_Say!!!
I fondly remember @Doug_Lind_Say’s sharing his story at #WTFIX conference. He continues to inspire!
On the latest episode of The Health Design Podcast, my friend Doug Lindsay, the epitome of courage and perseverance, tells his story of survival, and what we can learn from his experience. on.soundcloud.com/rWW6vaukHtJtZg… #raredisease #CitizenScience #adrenal
Some days, it’s very hard to be a #patientadvocate, especially for an unnecessarily controversial illness #Lyme #LongLyme We advocate, while chronically ill ourselves, because we believe change can come. We hold stakeholders accountable the best we can. It can be so exhausting.
Thanks for your likes and retweets all through this week. Have a great weekend. @Doug_Lind_Say @ProficientLearn @sabinanawaz @S4Netquest @MortonVisuals @TiER1says @RandyLeiker @Sell_Integrity @MattBarry55
A flashback to @Doug_Lind_Say's LTEN Talk about how he diagnosed his rare medical condition and got himself out of the hospital bed. It's an incredibly inspiring #patientjourney. Watch it now. youtu.be/F44cziFZ2y8 #LTEN #LTENTalk #CultureOfLearning #CommunityOfLearning
Thank you to everyone for the kind words. I was not expecting anyone to even see this, but I am so so happy everyone knows how amazing he was. I will continue to fight and be a Dave in my life. And I pray that I can change someone’s life like he changed mine. ❤️
Love you Dave. Thank you for teaching me how to change a tire, replace my brakes, watching every episode of the Simpson’s with me, saving my life literally countless times.. always said “you can have a good life in spite of your mom, or a bad 1 bc of her”. I chose the good life.
Anyways. He’s gone. I’m probably gonna be a weirdo for a while. Sorry in advance. I just needed to get that out. There is so much more but I just know I would not be where I am without him.