Emma M Smith 💙 @EmmaMSmith2
Driving instructor (ADI) with Bill Plant Driving School and mum to 2 teenagers, the youngest a cf warrior! Music lover, I love to sing! West Midlands, England Joined March 2019-
Tweets3K
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Followers240
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Following181
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Likes31K
Petition: Fund continued access to modulators drugs for Cystic Fibrosis patients petition.parliament.uk/petitions/6506…
@richardm56 what are your thoughts on this? These drugs are life changing, life extending and therefore life saving. Will you be covering this on @GMB. The life line is being taken away from most of the UK CF community #Kaftrio #cysticfibrosis #fightingforalifeunlimited
This is absolutely awful news, so upsetting! My son has not had a hospital admission for 2 years since he started kaftrio, his medication load has reduced significantly and he now leads a near normal life just like his brother, it has changed his life!
This is absolutely awful news, so upsetting! My son has not had a hospital admission for 2 years since he started kaftrio, his medication load has reduced significantly and he now leads a near normal life just like his brother, it has changed his life!
Everyone in every country has the "Right to breathe" Please watch the video at: instagram.com/p/CsBJrB2tTVI/ Advocate for the global CF community to have access to #Trikafta and all CF modulator therapies Please sign the petition: bit.ly/vsupetition Pass. It. On
Fantastic clinic appointment for Will yesterday! Height and weight up, chest clear and no issues to report so at last we can drop his antibiotics and his hypertonic nebs!!! Thank you kaftrio!! #cysticfibrosis #kaftrio
Of course she's brilliant and working with her is the greatest blessing a scruffy music teacher like me could dream of. But Lucy is what happens when you make instrumental tuition available to disadvantaged children. Help us to get this message across to those who decide.
cysticfibrosisnewstoday.com/news/cf-patien… Mind-blowing. "In a scenario where treatment with Kaftrio is initiated between 12&17 years old, a patient’s median estimated lifespan is 82.5 years. That’s 45.4 years longer than estimates for CF patients on best supportive care alone." #cysticfibrosis
cysticfibrosisnewstoday.com/news/cf-patien… Some awesome news here! This is what we were campaigning for. A life unlimited by #cysticfibrosis. @VertexPharma MUST make global access its priority. #CFcantwait.
CF patients should not have to pay for drugs to stay alive. The Government must make all CF patients eligible for a medical exemption certificate. The exemption list was created in 1968, and CF was not included due to patients rarely living into adulthood petition.parliament.uk/petitions/6337…
Do you remember when you joined Twitter? I do! #MyTwitterAnniversary
ATTENTION! lost elephant located at Gatwick North Terminal, we know someone out there must be missing him, let's do our best to reunite him with his owner. C SECTION are currently looking after him & he has been named temporarily as NELLY. Please re-tweet let's get this trending!
Eli Parton gave Bill Plant Driving School 5 stars via @Trustpilot trstp.lt/mfiZqP14p Thank you Eli for your lovely words, it was an absolute pleasure to teach you!
Congratulations to Elias for passing your driving test this morning at Stafford DTC on your first attempt! Well deserved pass! It’s been a pleasure being your instructor. Happy car shopping! 🚙🚙
Let’s put these guys in charge… 🤔
It takes 3.2 seconds to RT and help find her missing mum Nicola Bulley who was last seen walking her dog near a Lancashire river she was last seen on the morning of Jan 27 walking her dog on a towpath by the River Wyre off Garstang Road please call 116 000 with any information
Our baby girl is 6 today!! 🎉🎂 you guys have literally seen her grow from her first video when she was only 1 to now! 😭❤️ Happy Birthday Mali 🎂 #TheKabsFamily #BirthdayGirl
I support workers going on strike. They are not alone in this struggle, and I stand with them in their efforts to improve workplaces. pic.x.com/e2om1lxfib #TogetherWeRise via @unisontheunion
Kaiser 🐾 📍 Birmingham Dogs Home
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📢 We're calling for book donations as our library has flooded! Our Library plays a vital part in reducing reoffending as it helps prisoners with education which in turn helps with employment upon release. Please email [email protected] for donations.
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Tanya Koorts @TanyaKoorts
308 Followers 441 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
CF Vests Worldwide @CfVests
764 Followers 3K Following Established in 2020 as the original & only 501(c)(3) corporation to donate Cystic Fibrosis vests, Hill Rom and RespirTech, to CF patients around the world.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Nicola Johnson @JohnsonMNicola
968 Followers 1K Following Director of People & Culture in a Multi-Academy Trust. School Governor. Mum, Step-mum, and raising awareness of Cystic Fibrosis when possible. #NoOneLeftBehind
Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.
Normal Life @NormalLife7
2K Followers 300 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Catherine Meredith @873Meredith
2K Followers 5K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Caroline Graham @CarolinePKU
439 Followers 696 Following Mum, Designer, Artist, NSPKU volunteer, 3 kids 2 with #PKU all views my own
Josh Llewellyn-Jones .. @JoshLJ24
4K Followers 794 Following Endurance Athlete & WR Holder with Cystic Fibrosis 🚀 Performance Coach Enquiries- [email protected] [email protected]
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
Shane Howard Magill @TransManKnits
301 Followers 486 Following If it wasn't for my C.F. team I wouldn't be half the man I am today. I can't thank them enough for all their recent support.
Luna @Autumn1935693
6 Followers 794 Following
Jovan Shaw @JovanShaw24916
121 Followers 3K Following
Boolaez @boolaez68017
20 Followers 333 Following I just arrived in the UK and hope to make more friends.
Christina Williams @KatieJoine43283
207 Followers 4K Following Tasha specializes in adult products (silicone dolls) and provides you with the best quality service, please visit the Telegram channel for details.
Stephanie @Stephan37446838
73 Followers 333 Following Mammy, Work in & outside the home, I♥️Gardening & Friendly people. CF Understander🌹
Rosiesmith @Rosiesm76846933
20 Followers 291 Following
marybruce @marybru16376118
4 Followers 178 Following
GDteamspencerandterry @GDteamspencer
184 Followers 374 Following Blind Hiy, living his best life with Guide Dog Spencer by his side
CF Vests 4 Life @cfvests4life
299 Followers 2K Following We are a Nonprofit Organization that provides CF equipment to add more mornings to the lives of CF Warriors the world over which was established June 2020.
HalilMrT - Official @HalilMrT4Real
24K Followers 21K Following Baba to 2 incredible children. Proud headteacher of 1 amazing school. Turkish Cypriot. #StopNegotiatingWithYourself #EduSundayFunday
Chrisalda Le Roux @ChrisaldaR
20 Followers 28 Following
Medibanx @Medibanx
116 Followers 458 Following Empowering rare disease research through patient-centric longitudinal data aggregation and active patient participation.
Annabella Wallis @KarenNa52391981
79 Followers 925 Following to gain, for the rest of your lives, the insight that beautiful proofs
Hannah O’Hara @hannclark30
499 Followers 1K Following 30. Liverpool. Assistant Headteacher, Y6. SENDCo. Mental Health and PSHCE LEAD. TA Line Manager. Pupil Premium Lead. DSL. All views are my own.
Mark Evans @19markevans63
2K Followers 4K Following heart transplant recipient Oct 15 2011. life is precious enjoy every day, treat everyone equally in life, Miami Dolphins fan since 1984
Gabriel Flynn @gummybear917
14 Followers 1K Following Doctor, nose surgeon, passionate for 👃rhinoplasty, perfectionist soul
soulrebelno1 🎶 �.. @soulrebelno1
1K Followers 3K Following 🫂 Democracy, Socialism, Humanism, Remake/Remodel 💙 NHS 🌐 Citizen of the Democratic Republic of Liverpool 🪄 The magic of Liverpool is that it isn't England ✨
Jallow_mamadou @Jallow7125490
384 Followers 5K Following Down to earth love To make friendship from all over the world 🌍 I like to be kind an humble it always make me happy happy👍😊🙏😊
Melvin D Sach @MelvinSach
0 Followers 242 Following Single father of two beautiful girls, Stacey 10 and Chloe 8 years old.
AmyT_UrbanStrides @AmyUrbanStrides
131 Followers 615 Following Inspirational Street Dance Education - Empowering you to evolve everyday - [email protected]
Nikola Brigden @NikolaBrigden
1K Followers 3K Following Straight talking Yorkshire Lass, Wife of a Stem Cell Transplant Warrior, Mother and Campaigner for the roll out of protection for https://t.co/4t8tGMQFvh
BetaLit @annetteferracel
187 Followers 302 Following Book lover ❤ beta reader ♥️ reviewer ❤ Providing honest reviews and feedback to help authors and readers connect. 📚✍️ #BookReviews #BetaReader
SaltyNotes @saporedisale14
856 Followers 925 Following 📚🎗️ Bookworm & Cystic Fibrosis Mom 📚 Beta Reader & Reviewer 📚self-improvement, spirituality, and mind-bending science 🌌 book lover ❤
Insp Neil Taylor @WYP_NeilTaylor
12K Followers 12K Following Ex-RAF Regiment, Chair of Dementia Friendly Todmorden, Dementia Friends Ambassador and Inspector Head of Custody Services @WestYorksPolice
Urban Forest Studio @NicolaPepeART
985 Followers 710 Following 🐾FORTITUDE🐾 it’s a dog thing! https://t.co/ixYH0oOeU3
Gemma M @MattisonGemma
206 Followers 231 Following mom of 4 & chocolate lover trying to ensure cystic fibrosis patients get fair treatment such as free prescriptions in the UK 🇬🇧
Dr. Jen Taylor-Cousar @JenTaylorCousar
1K Followers 668 Following Professor of Medicine and Pediatrics @NJHealth @CUAnschutz Cystic Fibrosis, Clinical Research, Antiracism, Women's Health, Colorado native Tweets are my own.
Lorna Allen @alloonsl
834 Followers 1K Following CF Parent raising awareness of the ongoing critical and immediate need for research to improve the lives of those living with the condition
Huw Ringer @HuwRinger
982 Followers 5K Following Data geek, entrepreneur, & dad. Personal account. You can also find me on Mastodon via @[email protected]
Emma Turner FCCT @Emma_Turner75
25K Followers 14K Following SIP, CPD & Author by day. Chaos Coordinator of 3 chn by night. Curriculum, CogSci,Maths, Leadership, Flexible Working .26 yrs primary,20 yrs SLT, HT & SIP. 🇪🇪
amgra8e @amgra8e
45 Followers 235 Following Trying to find my way through a life I'm just surviving & not living. Covid has taken it all from those who still have to shield!
A. Roberts 📸 @hippylovephotos
280 Followers 454 Following 'Cuse🍊✖️est.2013 ✖️Published Photographer 📚 ✖️CF🫁
Gareth D Morewood @gdmorewood
26K Followers 29K Following Educational Advisor @StudioIII | SENCology (https://t.co/mc237kPgc7) | Director LASER (https://t.co/090LlqwtHy) | Prev 25 yrs in schools - 17 yrs as Secondary SENCo
Birmingham Childrens .. @BWCCFTeam
568 Followers 727 Following We are Ambitious, Brave & Compassionate in providing care for our paediatric Cystic Fibrosis population in the West Midlands.
Olivia #FBPE @oliviakarenn1
5K Followers 5K Following Mid-30s plant collector Gin sipper phD working in medical Education #FBPE
Cate Davies 😻 Edu,.. @Missymusician81
14K Followers 15K Following Youth MH, teacher, nature lover, gardening, gin, cats, #kindness advocate. https://t.co/zIPEv81zYf, https://t.co/VuVVP7rCpI
The Bonnell Foundatio.. @RoadmapToCF
844 Followers 1K Following The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls
Salt In My Soul @SaltInMySoulDoc
366 Followers 411 Following Documentary based on the best-selling memoir by Mallory Smith, who lived life to the fullest while battling #CysticFibrosis. Directed by Will Battersby.
Scott Levine @Charles00805844
528 Followers 4K Following I am man of high principles,though I laugh a lot and make others laugh too.
Stupid Purchases 🎁 @wasteofmoney0
139 Followers 2K Following Find novelty and funny gifts perfect for you, friends or colleagues!
Lisa (she/her) 🏳�.. @Sandyboots2020
46K Followers 24K Following Covid is Airborne, Clean Air for All, #DavosSafe, Dyslexic, Refugees Welcome, Feminist, Socialist, #CeaseFireNow No DMS -it’s Twitter not Tinder
Strawfie Challenge @strawfie
3K Followers 5K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Chris Riches @ChrisMRiches
1K Followers 792 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2020 Society of Editors 🏆& 2020 Press Gazette Campaign Journalist of the Year 🏆. ❤️Spurs. Opinions own.
Vertex Save Us @VertexSaveUs
849 Followers 698 Following Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
Cystic Fibrosis Trust @cftrust
28K Followers 5K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Ben Oxlade @BenOxlade1
21K Followers 5K Following Husband, Father to a #CFWarrior and a manic toddler! Contract & Quality Manager - EHAP (Adults), views expressed are my own. #TeamBradford #SWFC
MARK HUGHES STANDING .. @UnsungheroMark
27K Followers 7K Following I have terminal bone cancer sir Ranulph Fiennes climbed a mountain in my honour for my charity work with Marie Curie. Trying to do my bit to help the terminal💙
Nicola Johnson @JohnsonMNicola
968 Followers 1K Following Director of People & Culture in a Multi-Academy Trust. School Governor. Mum, Step-mum, and raising awareness of Cystic Fibrosis when possible. #NoOneLeftBehind
Jess Meredith🐾 @jessicameredi16
3K Followers 4K Following Organ Donation | Sister of a liver transplant recipient | We won the campaign for CF meds! | Save our NHS | Animal rights | Adopt don't shop | Civil Engineer
Andrew @Andyassert
645 Followers 195 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
Normal Life @NormalLife7
2K Followers 300 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Catherine Meredith @873Meredith
2K Followers 5K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Vertex Pharmaceutical.. @VertexPharma
72K Followers 89 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0r0B
Josh Llewellyn-Jones .. @JoshLJ24
4K Followers 794 Following Endurance Athlete & WR Holder with Cystic Fibrosis 🚀 Performance Coach Enquiries- [email protected] [email protected]
Jo Davidson @CFcarer
2K Followers 2K Following Thinking of the thousands who are still waiting for #Kaftrio etc...#NoOneLeftBehind. Tweet abt CF, Strictly & general stuff. Unison✊
Shane Howard Magill @TransManKnits
301 Followers 486 Following If it wasn't for my C.F. team I wouldn't be half the man I am today. I can't thank them enough for all their recent support.
BBC Shows and Tours @bbcshowstours
30K Followers 3K Following Join us at a studio show or on a tour at a BBC Building near you! Check our FAQ https://t.co/lgJB92j6Wd…. We don't monitor this account 24/7.
Kerry Bell @KerryBell5
136 Followers 245 Following Environmental Health Officer 🦠 Mummy to two girls 👭 and two boys 🐶🐶
The Kabs Family @FamilyKabs
121K Followers 38 Following We are a family of 5 that loves to create entertaining content 😁‼️ SUBSCRIBE to our YouTube channel and join the family| [email protected]
Alex Stobbs @AlexStobbs
2K Followers 1K Following Pianist, Composer | Teacher @OasisSouthBank @TeachFirst | ex-@Kings_College @RCMLondon @choirofkingscam | Chairman @FaireIsTheXI | Cystic Fibrosis
Ruth Cahill - Duck Bl.. @DuckBlue1
328 Followers 380 Following Duck Blue is a Greeting Card Company based in Maynooth, Co. Kildare that creates cards, prints & illustrations for all occasions.
GDteamspencerandterry @GDteamspencer
184 Followers 374 Following Blind Hiy, living his best life with Guide Dog Spencer by his side
Tim Wotton @timwotton
880 Followers 1K Following Husband to Katie & father to Felix, comms manager in London, sport lover with CF - author, podcaster & speaker about my survival experiences to help others
CF Vests 4 Life @cfvests4life
299 Followers 2K Following We are a Nonprofit Organization that provides CF equipment to add more mornings to the lives of CF Warriors the world over which was established June 2020.
Action Fraud @actionfrauduk
72K Followers 1K Following We are the UK's national fraud & cyber reporting centre where you can report, get advice and information. Our advisors reply Mon-Fri 9-6pm with their initials
BetaLit @annetteferracel
187 Followers 302 Following Book lover ❤ beta reader ♥️ reviewer ❤ Providing honest reviews and feedback to help authors and readers connect. 📚✍️ #BookReviews #BetaReader
Sunday Brunch @SundayBrunchC4
383K Followers 4K Following On TV sets every Sunday at 9.30am - 12.30pm @Channel4 📺 #SundayBrunch Tweets to us may be used on the show. Full T&Cs at https://t.co/7JrZq7LTM8
Hannah O’Hara @hannclark30
499 Followers 1K Following 30. Liverpool. Assistant Headteacher, Y6. SENDCo. Mental Health and PSHCE LEAD. TA Line Manager. Pupil Premium Lead. DSL. All views are my own.
Mark Evans @19markevans63
2K Followers 4K Following heart transplant recipient Oct 15 2011. life is precious enjoy every day, treat everyone equally in life, Miami Dolphins fan since 1984
Happy Valley @happyvalleybbc
33K Followers 37 Following Home to all things #HappyValley on BBC One starring Sarah Lancashire, James Norton & Siobhan Finneran. NOT affiliated to BBC/Lookout Point.
Craig Deeley 🇪🇺.. @craiguito
21K Followers 7K Following I do stand-up and tweet silly things. My podcast Trish of the Day out now, link below.
Jamie Stephenson 🦜.. @ssnjimb
2K Followers 5K Following I'm Jamie I suffer from #Cysticfibrosis I'm #openlyautistic They/Them 🌈 love Music/vintage computers, #CureCF #Supportthestrikes. Only Follows Back Real PPL
3DadsWalking @3dadswalking
16K Followers 1K Following 3 Dads Walking in memory of their daughters, Emily, Beth & Sophie We're encouraging the UK governments to add suicide awareness to the school curriculum
Anna Lapwood @annalapwood
59K Followers 5K Following ⫸ Organist / Conductor / Broadcaster ⫸ Director of Music at Pembroke College, Cambridge ⫸ #PlayLikeAGirl ⫸
Staffordshire Fire an.. @StaffsFire
33K Followers 402 Following Making Staffordshire the safest place to be. Our Twitter account is not monitored 24/7. In an emergency, please call 999.
Gayle Pledger @gayle_pledger
530 Followers 597 Following CF mum fighting for all our CF warriors b/c lifesaving drugs should never cost lives. Founder @VertexSaveUs, ‘Right to Breathe’ campaign, working @JustTreatment
ClaireW #no1leftbehin.. @claireywilzz
390 Followers 410 Following Cornish maid. Cystic Fibrosis Mummy. Raising awareness of CF & hanging on for a cure. Mum of 3. Endometriosis explains it all. Anything but the Tories. 🇪🇺
Sally Smith @choccymad
1K Followers 3K Following Love chocolate, lattes and raising awareness of cystic fibrosis
SaltyNotes @saporedisale14
856 Followers 925 Following 📚🎗️ Bookworm & Cystic Fibrosis Mom 📚 Beta Reader & Reviewer 📚self-improvement, spirituality, and mind-bending science 🌌 book lover ❤
Marshall Mathers @Eminem
22.1M Followers 0 Following
☕️ @nicolaanneh
248 Followers 297 Following
CF STORM @cfstormstudy
245 Followers 67 Following Working with the CF community to find out if we can reduce long term nebulised treatments once people with cystic fibrosis are established on triple therapy.
Urban Forest Studio @NicolaPepeART
985 Followers 710 Following 🐾FORTITUDE🐾 it’s a dog thing! https://t.co/ixYH0oOeU3
Staffordshire Police @StaffsPolice
141K Followers 317 Following In an emergency always call 999. Please do not use our DMs to report crime. To report crime, visit our website ⬇️ Comments are not monitored 24/7.
my CF Hero 💙 @myCFHero
1K Followers 2K Following Mother to a 9 year old girl, with the life limiting condition #CysticFibrosis. Fighting for access to medicines #Orkambi #Kaftrio (#Trikafta) #DoTheRightThing
Liam Mc Hugh @liammchugh1961
1K Followers 2K Following CYSTIC FIBROSIS TRUST AMBASSADOR, BEM 2015, PRIDE OF BRITAIN FINALIST 2016, ULSTER HERALD SPORTS PERSONALITY 2017. PRIDE OF BRITAIN WINNER 2020.
Nicole Kohr @cystic4real
2K Followers 2K Following new lungs, who dis ♻️🫁 6/14/19 • creator of @fallriskmusical and @coliecreations 🎭📚 • award-winning writer and advocate 🏆
Gemma M @MattisonGemma
206 Followers 231 Following mom of 4 & chocolate lover trying to ensure cystic fibrosis patients get fair treatment such as free prescriptions in the UK 🇬🇧
Blessed William Howar.. @bwhStaffs
253 Followers 79 Following Blessed William Howard Catholic High School. Birmingham Archdiocese. Love of God, Love of People, Love of Learning, Love of Life
Lorna Allen @alloonsl
834 Followers 1K Following CF Parent raising awareness of the ongoing critical and immediate need for research to improve the lives of those living with the condition
Dean Puckering @MrDeanP
1K Followers 1K Following Husband & Father / Cystic Fibrosis / Wigan Athletic Fan / Audio & Video Engineer / Retro Gamer / 90s Music Expert
Emma Turner FCCT @Emma_Turner75
25K Followers 14K Following SIP, CPD & Author by day. Chaos Coordinator of 3 chn by night. Curriculum, CogSci,Maths, Leadership, Flexible Working .26 yrs primary,20 yrs SLT, HT & SIP. 🇪🇪
John Schroeder @cffschroeder
2K Followers 2K Following Advocating for CF tomorrows! All tweets are mine. Einstein: Only two things are infinite, the universe and human stupidity, and I'm not sure about the former.
Alex's CF Army @AlexsCFArmy
845 Followers 793 Following Our aim is to raise awareness about CF as well as fundraising for CF related charities. Page is run by Alex’s mum @emsgems7 #AlexsCFArmy 💛💚#cysticfibrosis
Lesley Porter @Porter4Lesley
205 Followers 849 Following Mum to CF warrior Frankie and ADHD Warrior Toni #Kaftrioforall
Kit Yates @Kit_Yates_Maths
68K Followers 1K Following Math Biologist. Author. Books - "Math(s) of Life and Death" Order "How to Expect the Unexpected" now - https://t.co/weTwI4ypM0
Dr Amit Patel @BlindDad_Uk
28K Followers 2K Following Author | DEI Consultant | Speaker | Disability Activist | Trustee | #DogSquad | Book: @LaurieEmTweets #KikaAndMe | Media Enq: [email protected]
Michael Rosen 💙�.. @MichaelRosenYes
319K Followers 6K Following You can order a copy of the paperback of 'Getting Better' here: https://t.co/GZPAwh66Qy
Happy birthday to this little lot, who are two today! 🎂🥳🎉 #PippasPupsToo
18 year old qualified level 3 Early Years Educator being paid £8.50 per hour at a Nursery. Her friend who is 17 has no qualifications and is being paid £11 an hour at a supermarket. Let that sink in. This is the issue for Recruitment and Retention crisis in the EYs.
Kings Guard broke character for a moment so a blind woman could touch his horse, so much respect for him
Traditional annual selfie with a balloon to mark how many years post transplant I am 💕
Of course #Pippa would not be so foolish as to throw herself into a river in spate. Three times. Of course not #Labradors
Exciting stuff: once daily new @VertexPharma CFTR triple therapy shown to be equivalent to kaftrio (which has twice daily dosing) with improved sweat chloride. Great to have taken part in this @ManchesterCRF @Manchester_cf
We are pleased to announce positive Phase 3 results from our investigational triple combination therapy for the treatment of certain mutations of cystic fibrosis. Learn more: news.vrtx.com/news-releases/…
We put the Christmas tree up Laura. It wasn’t the same without your perfectionism or Elf on the TV but we did our best, I hope you approve. If we could freeze all the tears we’ve cried they’d cover the tree like sparkly garlands 🎄
On Friday 24th November at 5:37am we welcomed our beautiful daughter into this World. Emilia Rose, you have completed our family. Forever grateful to IVF for making all our dreams come true, and to my wonderful wife for giving me our son and daughter 💫
Just had parents evening. Apart from being shy in class Imy smashing it out of the park. Asked abt her moving down to set 2 in maths as she thinks she's "dumb at maths". teacher said "no way he'd sanction that with how bright she is". #thisgirlcan. Up yours #CysticFibrosis
Now we just need @NICEComms to announce next month their approval of @VertexPharma range of #cysticfibrosis drugs for all future patients - so we won't end up with two-tier health system of current patients on life-saving drugs but newborns facing growing up without them.
📢 We've extended the licences for Kaftrio (ivacaftor, tezacaftor and elexacaftor) with Kalydeco (ivacaftor) to children aged 2 to 5 with cystic fibrosis. Find out more 👉 bit.ly/3QwOLhS
It’s like we’re in a time warp. Media outlets everywhere talking about #cysticfibrosis generics & it’s like we don’t even have drugs like #kaftrio now But we do, don’t we🤷♀️ @cftrust @DavidRamCFT or is there something to see here 👀 @ChrisMRiches Should we be worried @M44GYG
We’ve been told not to worry about @NICEComms @NHSuk latest statements on #kaftrio @VertexPharma review, but @cftrust, why are there so many slightly inaccurate articles radio interviews tv segments, all using a story to scare us We were told this was just a process @cftrust🤷♀️
Iv been quiet about Cystic Fibrosis for a while as I didn't want people to get bored of me constantly going on about it. Tho to see that there is a high possibility that Kaftrio the wonder drug may be stopped for future kids because of a price tag is horrible and it scares me!
Well done PD Albert and handler John. PD Albert is the only Giant Schnauzer General purpose Police dog in the U.K. making him a very special boy.
💥 PD Albert has been a busy boy over the past few months dealing with a variety of incidents in Plymouth, including locating the offenders clothing from a knife point robbery, locating missing people and violent offenders who didn’t fancy their chances when challenged by him! 💥
"We're taking a lot of calls right now, and the wait is much longer than usual, pls stay on the call right now..." BALDERDASH, BALONEY and other B words. I just (again) got this when calling a bank. It's not 'longer than usual', it is USUAL. Either hire more call operatives,…
I cannot believe we are back here!!! Absolutely heart breaking 💔 #cysticfibrosis Kaftrio has been life changing for my son!! @KarlTurnerMP
Plymouth mum fears daughter, 4, will die young if funding cut for life-saving drug Kaftrio plymouthherald.co.uk/news/plymouth-… plymouthherald.co.uk/news/plymouth-…
@richardm56 what are your thoughts on this? These drugs are life changing, life extending and therefore life saving. Will you be covering this on @GMB. The life line is being taken away from most of the UK CF community #Kaftrio #cysticfibrosis #fightingforalifeunlimited
My daughter's life was saved by a #liver #transplant 6 wks ago, but my joy is tempered as my brother did not get one, & tonight lies dying in a hospice. #UK needs #SpanishSystem of #OrganDonation which has 2.5 X as many donors, & saves a fortune #RareDisease @NHSBT @SteveBarclay
@cftrust @vertex @NICEComms @NHSEngland this is a typical cocktail of IV antibiotics my son takes. These are taken three times a day, one of them takes 3hrs to go through, that’s 9hrs a day just for one medication…
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