ImagingNMD @ImagingNMD
We are dedicated to advancing research for Becker muscular dystrophy (BMD) and Duchenne muscular dystrophy (DMD). linktr.ee/imagingnmd Gainesville, Florida Joined September 2023-
Tweets88
-
Followers49
-
Following83
-
Likes863
Special thanks to Jake and Sheryl Marrazzo for sharing their journey and invaluable insights on transitioning to adulthood with #duchenne. Your story lights the way for many families navigating similar paths. @mdnewstoday_ #adultswithdisabilities musculardystrophynews.com/transitioning-…
It's World Immunization Week. For people with muscular dystrophies, having up-to-date immunizations is important to avoid illnesses, especially those that can lead to respiratory problems.
Today is National Exercise Day! Today, we're celebrating the privilege it is to exercise and drawing awareness to the fact that many people in the MD community are included in those who can benefit from the mental and physical benefits of exercise.
We are proud to be part of this milestone. #duchennemusculardystrophy
We are proud to be part of this milestone. #duchennemusculardystrophy
Still contributing to science,12 years, in the Imaging #DMD MRI study @UF .The PhD researcher is amazed at his continued strength at 23 yrs old! 💪🏼👊🏼🙌🏼 #eteplirsen #pioneer #trailblazer
2024 @ParentProjectMD Duchenne Healthcare Professionals Summit brought together healthcare providers, researchers, industry experts, and legislators for important discussions toward the future of care for muscular dystrophy.
"Very important if we can eliminate intrusive biopsies as a necessary requirement for clinical trial evaluation. MRIs are a much preferred 'gold standard.' " - KT
Read more about our groundbreaking research in this article: UF Team Plays Major Role in Success of Newly Approved Duchenne Muscular Dystrophy Drug bit.ly/4cHQM58.
It's important to remember that the heart is a muscle too. For this reason, a MD diagnosis requires a close look at your heart. Here are some preventative best practices to help take care of your whole body.
The ImagingNMD Team presented research at the @MDAorg's Clinical & Scientific Conference in Orlando, FL. Dr. Barnard shared findings on: “Muscle and Tendon Contributions to Loss of Ankle Range of Motion in Duchenne Muscular Dystrophy."
In December 2023, we had the opportunity to be one of four sites in the United States at Becker Education and Engagement Day (BEED). Get key takeaways from our team's presentations. imagingnmd.pulse.ly/b7vf2hgqwa
Our participants are our most valuable team members. Learn more about the Magnetic Resonance Imaging and Biomarkers for Muscular Dystrophy study—specific to Becker MD—and if it may be a good fit for you by reading over our Becker page: imagingnmd.pulse.ly/cl4wd6g19q
Check out these scholarships, aimed at those with Duchenne and/or disabilities! cureduchenne.org/general/these-…
Great new for #duchennemusculardystrophy community.
Great new for #duchennemusculardystrophy community.
From cardiac care to exercise programs, Donovan Lott, PT, PhD, CSCS and Claudia Senesac, PT, PhD, PCS from the ImagingNMD team answer some commonly asked questions on a range of topics surrounding Becker Care Considerations in this recent video: youtube.com/watch?v=a7sRXa…
Dr. Senesac had the opportunity to travel to Spain to hear from other BMD experts through the TREAT-NMD Expert Becker Muscular Dystrophy Masterclass. Learn more about our experience during this conference: imagingnmd.org/imagingnmd-att…
GRAND CANYON, a pivotal clinical study to evaluate an investigational drug in individuals living with #Becker #musculardystrophy is ongoing. Visit the study website to learn more. beckergcstudy.com
Kasi Opyd @ka_kasi
75 Followers 5K Following
Sigrid @takaderata99422
14 Followers 245 Following
Melinda @hagen99melinda
168 Followers 3K Following
Julie @JanGarcia516653
4 Followers 1K Following
The OG (not v) in the.. @El_Dingo
280 Followers 2K Following Opinions are my own. Gender is a Halloween costume, Tupac was a homosexual and Magic Johnson never had HIV/AIDS
Lisa 💙 @Conners99
132 Followers 349 Following Hurtling through life at warp speed with a fine bottle of vino tinto.
Jon @JonU235
972 Followers 2K Following $SRPT #Duchenne #RareDisease Understanding the #Elevidys #GeneTherapy EMBARK study results: https://t.co/iAPXb7asDB
Davoud @davoudD10
7 Followers 11 Following Interested in forex, MQL, poetry and music, film and screenwriting, civil engineering and architecture, physics and space, research.
Enza Leone @leone_enza
224 Followers 564 Following PhD student in Physiotherapy at @KeeleUniversity and Research Officer at @StaffsUni | Neurophysiotherapy MSc at @ucl
Yen Bialas @YeBiala
44 Followers 5K Following
م..عبدالكري�.. @ENGALALKAMI1985
13 Followers 147 Following
Edgewise Therapeutics @EdgewiseTx
376 Followers 43 Following On a mission to improve the lives of people facing serious muscle disease.
Amina Hilbun @am_hilbun
27 Followers 5K Following
SA @SamA_3210
20 Followers 30 Following
Sudeshna A. Chatterje.. @SAChatterjee1
388 Followers 555 Following Physical Therapist | @UF PhD in Rehabilitation Science | Assistant Professor @DrexelUniv #Aging🧠 #Gait #NewPI Opinions are my own.
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Sam Michael B. Peders.. @sam_mbp_
102 Followers 286 Following Research Coordinator @UF_CAMcenter // Interested in decision making, computational neuropsychiatry, suicidality // Probably somewhere way down yonder
Oneema Kamal @Oneema_K
29 Followers 75 Following Research assistant @ImagingNMD | UF alum 🐊 | Houseplant enthusiast 🌱 |
Sean Forbes @scforbes3
13 Followers 33 Following Associate Professor, University of Florida. Research interests include MRI/MRS, muscular dystrophies, muscle physiology, exercise physiology
Dyne Therapeutics @Dyne_tx
1K Followers 323 Following Advancing life-transforming therapies for serious muscle diseases. Community guidelines: https://t.co/0XslT2HWqg
Joann @joann_hutchinso
155 Followers 3K Following
Amy Carter @AmyCarter565361
91 Followers 3K Following
Mary @hayes_mary97
119 Followers 3K Following
Abilities Expo @AbilitiesExpo
17K Followers 6K Following #AbilitiesExpo is the leading event offering life-enriching products, services, education & fun to the community of people with disabilities nationwide.
Keith Robson @teesyouthworker
357 Followers 1K Following YP Lead in a North East drug/alcohol service #harmreduction #carrynaloxone | Hartlepool Utd 💙⚽️ | Muscular Dystrophy Advocate 🧡💪|
Layla Pittman @pittman38815
96 Followers 3K Following
Tiffany Taylor @TiffanyTay7431
79 Followers 3K Following
Lucy @Lucy25939512105
103 Followers 3K Following
Tara Jones @TaraJones318427
127 Followers 3K Following
Amanda Jenkins @amanda_jen50283
145 Followers 3K Following
Belinda Buck @buck_belin82155
105 Followers 3K Following
Laura McLinn @LauraMclinn
901 Followers 2K Following Founding President, Best Day Ever Foundation. Passion for helping patients access treatments. Duchenne mama bear.
bharathmdfoundation @bharathmdfound1
263 Followers 1K Following A Parent Advocacy Organisation of Muscular Dystrophy. NGO under Sec 8 of MCA 2013. Awareness, Approach , Assistance,Prevention, Management and Cure.
Team Joseph @TeamJosephInfo
603 Followers 498 Following Our mission is to fund research to find a cure for Duchenne muscular dystrophy and support families with immediate needs to help care for a child with Duchenne.
Defeat Duchenne Canad.. @defeatduchenne
1K Followers 795 Following Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy.
Terri Ellsworth @TerriEllsworth
2K Followers 2K Following Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
World Duchenne Organi.. @worldduchenne
3K Followers 1K Following Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
Little Hercules Fdn @LHF_EndDuchenne
740 Followers 1K Following We serve the rare disease community through access advocacy and good policy. Patients and families first.
Amine Darzé @amine_darze
1 Followers 61 Following
Fernanda Wüthrich, P.. @fcdswuethrich
64 Followers 211 Following Communication Science #crisismanagement #diversity #inclusion #mediation #author #mediapedagogy #pr #interculturalcommunication
Neuromuscular Disease.. @NMD4Canada
1K Followers 504 Following Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
WCJB TV20 News @WCJB20
17K Followers 148 Following Your Local Source in North Central Florida | Got a story idea? Email [email protected]
REGENXBIO @REGENXBIO
2K Followers 176 Following REGENXBIO is dedicated to transforming the lives of people suffering from severe diseases with significant unmet medical need through our NAV® gene therapy.
AnnemiekeAartsma-Rus @oligogirl
3K Followers 486 Following Translating science from bench to bedside and from jargon to lay language
MuscularDystrophyIRE @MDI_Ireland
2K Followers 925 Following Providing support services to people with neuromuscular conditions and their families and supports quality research. Text MDI to 50300 to donate €2
TRiNDS @trinds_nmd
601 Followers 135 Following Therapeutic Research in Neuromuscular Disorders Solutions: a specialized neuromuscular CRO
Pathfinders Neuromusc.. @PathfindersNMA
2K Followers 436 Following User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info
NeurologyLive® @neurology_live
9K Followers 675 Following Delivering healthcare professionals treating neurological diseases quality and relevant information to help achieve the best patient care possible. #MindMoments
Muscle Help Foundatio.. @musclewarrior
3K Followers 4K Following Small impact-led charity aiming to fulfil 657 life-changing Muscle Dream interventions for children & young people (8-28yrs) with muscular dystrophy #powerof657
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
UF Medicine @UFMedicine
8K Followers 1K Following The University of Florida College of Medicine in Gainesville is committed to excellence in medical education, research and patient care. #UFmedicine
LGMD Awareness Founda.. @LgmdAwareness
1K Followers 1K Following A 501(c)(3) advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb-girdle muscular dystrophy (LGMD).
Vision-DMD Project @Vision_DMD
515 Followers 151 Following Project aiming to advance clinical development of orphan drug Vamorolone for treatment of DMD.
Jarod Wong @drjarodwong
796 Followers 625 Following Clinical academic @UofGlasgow.Muscle-bone-growth in health/disease, rare conditions, pt engagement & improving communication. Views my own.
Joining Jack @alljoinjack
63K Followers 2K Following We are joining Jack in the fight to find a cure for duchenne muscular dystrophy. Will you?
Satellos Bioscience @SatellosBio
571 Followers 111 Following Regenerative medicine company developing novel therapeutics that aim to change the way we treat degenerative muscle diseases. TSXV: $MSCL #Duchenne
@MyBeckersStory 🇨�.. @MyBeckersStory
2K Followers 2K Following ♿️ My life with Becker Muscular Dystrophy 📚 Author of Fighting Towards Victory available at https://t.co/PVQUtlC8ns Get your copy today!
Duchenne Centre NL @duchennecentrum
293 Followers 161 Following Centre of expertise considering care, treatment and research for #Duchenne and #Becker muscular dystrophy.
BINDproject @EU_BIND
241 Followers 365 Following EU funded project to assess and address learning and behavioural challenges in Duchenne and Becker muscular dystrophy
Capricor Therapeutics @Capricor
2K Followers 249 Following Capricor (NASDAQ: $CAPR) is a biotech company focused on the development of cell & exosome-based therapeutics for treatment and prevention of serious diseases.
Catalyst @CatalystForRare
863 Followers 264 Following A commercial-stage biopharmaceutical company focused on in-licensing, developing, and commercializing novel medicines for patients living with rare diseases.
Percheron Therapeutic.. @PercheronTxL
207 Followers 60 Following Biotechnology company developing and commercializing antisense pharmaceuticals for large unmet markets in rare disease, specifically Duchenne muscular dystrophy
FibroGen @FibroGenInc
1K Followers 2 Following Pursuing groundbreaking science to create new standards of patient care in anemia and an array of serious fibrotic conditions.
Avidity Biosciences, .. @aviditybio
541 Followers 78 Following Avidity Biosciences is pioneering a new class of oligonucleotide-based therapies to address the unmet needs of the rare disease community.
Wave Life Sciences @WaveLifeSci
2K Followers 387 Following We are a biotechnology company focused on unlocking the broad potential of RNA medicines to transform human health
Dyne Therapeutics @Dyne_tx
1K Followers 323 Following Advancing life-transforming therapies for serious muscle diseases. Community guidelines: https://t.co/0XslT2HWqg
Pfizer Inc. @pfizer
490K Followers 2K Following Breakthroughs that change patients' lives. Visit https://t.co/zipcKiG1jD to learn more. https://t.co/FPP9fmzZh6
PepGen @PepGenTx
363 Followers 93 Following Better Technology. Better Delivery. Developing a new generation of disease-modifying therapies.
PTC Therapeutics @PTCBio
2K Followers 311 Following PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for patients with rare disease
Sarepta Therapeutics @Sarepta
5K Followers 62 Following Commercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. https://t.co/HFP4txOCxe
NS Pharma @NSPharmaInc
267 Followers 41 Following Dedicated to improving patient outcomes in #Duchenne muscular dystrophy, eosinophilic granulomatosis with polyangiitis (#EGPA) and other #rarediseases.
UF Clinical and Trans.. @UFCTSI
535 Followers 431 Following Est. 2008. Supported by @NIH, @NCATS_NIH_gov & @UF, in collab with @FloridaState. The UF-FSU CTSA Hub speeds research discoveries toward improved health in FL.
Santhera @Santhera
791 Followers 233 Following #Santhera is passionate about improving the lives of patients suffering from a rare disease. #Duchenne #DMD #neuromuscular #theirfutureourfocus #raredisease
Duchenne Data Foundat.. @DuchenneDF
715 Followers 452 Following Bringing data to life to improve the world of dystrophinopathies
Solid Biosciences @Solid_Bio
1K Followers 210 Following Solid’s mandate is to improve the lives of patients living with devastating neuromuscular and cardiac diseases. #TogetherWeAreSolid
Laura McLinn @LauraMclinn
901 Followers 2K Following Founding President, Best Day Ever Foundation. Passion for helping patients access treatments. Duchenne mama bear.
UF One Health Center @OneHealthUF
2K Followers 657 Following Interdisciplinary research hub focused on co-advancing the health of people, animals, and ecosystems// #MakingScienceFun //
DFSG @DuchenneFSG
1K Followers 114 Following The Duchenne Family Support Group supports UK families affected by DMD. We bring people together for mutual support, social activities and information sharing.
DMD Türkiye @DMDTurkiye
3K Followers 408 Following Duchenne Kas Hastalığı ile Mücadele Derneği #DuchenneninDostuOl
DMD Aileleri Derneği @Dmd_aileleri
3K Followers 48 Following Nadir hastalıklar arasında yer alan Duchenne Musküler Distrofisi (DMD), çocukluktan itibaren belirti veren ilerleyici bir kas erimesi hastalığıdır.
Stichting Duchenne @duchennepp
1K Followers 952 Following Duchenne Parent Project vecht voor genezing of behandeling van spierziekte Duchenne, betere zorg&hulpmiddelen! Doe mee via https://t.co/rFyUxquTaC NL15INGB0000818818
Duchenne Parent Proje.. @DPPSpain
2K Followers 1K Following Favorecer, dinamizar, promover e informar sobre investigaciones científicas y médicas que permitan curar las distrofias musculares de Duchenne y Becker.
StopDuchenne Poland @stopduchenne
4 Followers 18 Following
ADMO A.C. @ADMOAC
86 Followers 118 Following Asociación de Distrofia Muscular de Occidente A.C. somos una institución comunitaria en pro de las personas que viven con esta y otras discapacidades.
Parent Project aps @Parent_Project
1K Followers 439 Following Associazione italiana di pazienti e di genitori con figli affetti da distrofia muscolare di Duchenne e Becker.
bharathmdfoundation @bharathmdfound1
263 Followers 1K Following A Parent Advocacy Organisation of Muscular Dystrophy. NGO under Sec 8 of MCA 2013. Awareness, Approach , Assistance,Prevention, Management and Cure.
mdahellas @mdahellas
134 Followers 64 Following MDA Hellas was established in January 2000, as a non-profit association in order to improve the quality of life of people with neuromuscular diseases in Greece.
AFM-Téléthon @Telethon_France
138K Followers 4K Following Compte officiel. L'AFM-Téléthon est une association de malades et parents de malades.
Defeat Duchenne Canad.. @defeatduchenne
1K Followers 795 Following Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy.
Aliança Distrofia Br.. @adistrofiabras1
151 Followers 166 Following Aliança Distrofia Brasil é uma associação de pais e pacientes que busca esclarecer a comunidade sobre a convivência com as distrofias musculares.
🎉¡Akari viaja por USA 2024! 📢En The Akari Foundation estamos felices por anunciar e invitarlos a nuestro taller presencial en DENTON, TEXAS que se llevará a cabo el próximo SÁBADO 18 DE MAYO, de 10:00 am a 4:00 pm. 🔗Regístrate en el siguiente link: theakarifoundation.org/akariviajausa2…
Columnist Robin Stemple looks at the pros and cons of occupational therapy to determine whether potential benefits are worth the pain. buff.ly/3JAcGK4
The first #WalkRollMDC event is on MAY 11 and we are looking for some amazing volunteers to help with photography, registration, route direction, games and refreshments. For more information on the roles and responsibilities, and to sign up, visit bit.ly/42oKDGf
Nelson and team reveal in @ScienceMagazine how bacteriophages can influence the severity of cholera, a waterborne disease causing 21,000 to 143,000 deaths annually. This research has vital implications for regions lacking clean water and sanitation.
“What we’ve discovered will be a pathway to new diagnostics, a pathway to better think about antibiotic resistance mitigation,” said EPI member & @UFPHHP @UFMedicine faculty Dr. Eric Nelson. @UFHealth covers his recent study published in @ScienceMagazine. bit.ly/3UdP9Ur
¡En la Fundación Akari estamos muy emocionados por nuestro taller presencial en Ponce, Puerto Rico este 27 de Abril de 10:00am a 4:00pm!🎉 Aquí les compartimos los datos de la tercera conferencia. Regístrate en el siguiente link: theakarifoundation.org/akariviajausa2… #AkariViajaPorUSA2024
Today we thank our amazing support team at Avidity who truly keep our operations seamless & running smoothly. Your dedication ensures that we can continue to pursue our goal of bringing much-needed therapies to people living with rare diseases. #AdministrativeProfessionalsDay
Special thanks to Jake and Sheryl Marrazzo for sharing their journey and invaluable insights on transitioning to adulthood with #duchenne. Your story lights the way for many families navigating similar paths. @mdnewstoday_ #adultswithdisabilities musculardystrophynews.com/transitioning-…
Looking ahead to the future, we are filled with hope and determination as we embarking on a bold mission over the next five years: To create a world where every child has access to life-changing treatments. Defeat #Duchenne #musculardystrophy: bit.ly/3xc7ERh
Happy birthday to our president, @GabbyLogan! 🥳 Thank you for all your hard work in changing the future of muscle wasting conditions.
Tomorrow’s Camp Promise event will be a TON of fun that you don’t want to miss! 🐘 Free registration to join the virtual visit can be found at jettfoundation.org/event/camp-pro….
All the info you need for managing life with DMD is at your fingertips, with our complete caregiver’s guide: buff.ly/450Z4k0 #MuscularDystrophy #MDCommunity #LivingWithMD
@Wingsoverwallst The event, hosted by @ABC7NY anchor @Billritter_, honors ALS advocates Fern Cohen & @limpbroozkit, Joann Wright in memory of her husband Victor Wright, Toby Ferguson, MD, PhD, and Stephanie Fradette, PharmaD. Donate here: one.bidpal.net/wows24/browse/…
👇 This educational video sheds light on the challenges people living with Duchenne and Becker MD may face and the importance of understanding brain comorbidities. Watch the video by @worldduchenne here: youtu.be/yuB_87NoxGU
#ICYMI: Our latest #MindMoments podcast ep features a conversation w/ @LEAD_Coalition, who discussed several Alzheimer-related topics, including the discontinuation of aducanumab and the promising therapies in development. Listen here: neurologylive.com/view/episode-1…
It’s finally here! We are thrilled to attending the @OrphanConf 2024 this week in Boston! Our CEO David Allison will be taking the stage on Day 2 at 15:55 pm to discuss "Collaboration: the TREAT-NMD model bringing therapies to patients with a rare disease." Hope to see you there!
Breaking:@UF Health introduces Lecanemab, a new drug therapy that could slow Alzheimer’s disease! Discover how this innovative treatment works. #AlzheimersAwareness #UFHealth ufhealth.org/news/2024/uf-h…
We’re in the final stretch of the @shortyawards & #MDA’s #AccessibleAirTravel campaign is a strong contender in the 'Call to Action' category. Just one week left to vote for us to receive the audience honor! Cast your vote here: shortyw.in/4aB6RYM @MDA_Advocacy @MindyHSpeaks
MDA's 24th annual @Wingsoverwallst Gala to raise funds for #ALS research is on June 6 in #NYC! Learn more: mda.org/press-releases…
¡En la Fundación Akari estamos muy emocionados por nuestro taller presencial en Ponce, Puerto Rico el próximo 27 de Abril de 10:00am a 4:00pm!🎉 Aquí les compartimos los datos de la 2da conferencia. Regístrate en el siguiente link: theakarifoundation.org/akariviajausa2… #AkariViajaPorUSA2024
Our CEO Catherine Woodhead is leaving the charity this year. Under her leadership, we've made huge strides in research, treatments & support. Recruitment for our new CEO will begin shortly. Read more: tinyurl.com/4zwvpknb
Trends for United States
You might like
