One Spoon @OneSpoonProject
Art and actions to make invisible illnesses visible. E.g., building giant spoon sculptures out of spoons. First...š¬š§ Then... š #ExhaustionRebellion onespoonproject.org United Kingdom Joined May 2023-
Tweets55
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Followers86
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Following105
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Likes48
One Spoon retweeted
New clinical trial: Study of vagus nerve stimulation for people w #LongCovid.Ā Remote participation, from yr home. See and share attached flyer for info. Research team led by Ben Natelson, MD, Icahn School of Medicine at Mount Sinai, New York, a long-time #MEcfs doctor.
One Spoon retweeted
This 15-minute powerful documentary captures the impact of #LongCovid on one family - the incredibly brave Rosie who has had Long Covid for 3 years and her father @baldypidge. Thanks @GrantWakefield4 for your work on this. Rosie's art is superb!š Link: vimeo.com/1017483971
This 15-minute powerful documentary captures the impact of #LongCovid on one family - the incredibly brave Rosie who has had Long Covid for 3 years and her father @baldypidge. Thanks @GrantWakefield4 for your work on this. Rosie's art is superb!š Link: vimeo.com/1017483971 https://t.co/gmJ5twyjJm
One Spoon retweeted
REGISTRATION NOW OPEN. Can I get some retweets for the upcoming 2-day #longcovid webinar? 5-6 July. Scan QR code below or go to: nihr.doclift.com/auth/register
One Spoon retweeted
Can I get some retweets? #longcovid Chronic pain in long covid study... (but anyone experiencing Long Covid WITH OR WITHOUT pain symptoms can participate. See poster/link below for eligibility/involvement leeds.onlinesurveys.ac.uk/chronic-pain-iā¦ā¦ (Psst., you can get a gift voucher)
One Spoon retweeted
Can I get some retweets for the upcoming 2-day #longcovid webinar? 5-6 July. Organised by: @long_covid in partnership with @NIHRCRN_nthames and @LongCovidScot Webinar link/agenda to follow.
One Spoon retweeted
Itās out! Itās ready! Itās awesome! Add your results, all of āem, ānormalā or elevated, it all matters! With much thanks to #TheAcidTest team and @sunsopeningband for leading the way! š Making science happen (Yes Iām a wee bit excited) Please retweet š
Itās out! Itās ready! Itās awesome! Add your results, all of āem, ānormalā or elevated, it all matters! With much thanks to #TheAcidTest team and @sunsopeningband for leading the way! š Making science happen (Yes Iām a wee bit excited) Please retweet š
One Spoon retweeted
Idea - #Theheattest (peripheral heat imbalances) in ME/LC See recent LC paper - mdpi.com/2079-7737/12/5ā¦ Method uses infrared smartphone plug-in - flir.co.uk/products/flir-ā¦ @chydorina @tessfalor @remissionbiome @RenegadeRes @CiaraGlenville @Naomi_D_Harvey @angryhacademic
One Spoon retweeted
'People with disabilities use art to ask for representation' 'Dohertyās work centers on people who have been pushed further to societyās periphery by removing the protection of indoor masking..Doherty was diagnosed with myalgic encephalomyelitis in 2015' chicagotribune.com/news/ct-megan-ā¦
Collecting ideas. The spoon monster at Sheffield Millennium Gallery. mercure.accor.com/local-stories/ā¦ #onespoonproject
Heart breaking and awesome project by @LongCovidKids and Uni of Middlesex mdx.ac.uk/news/2023/04/lā¦ Virtual gallery - @kunstmatrix artspaces.kunstmatrix.com/en/exhibition/ā¦ #LongCovid
ME/LC in art... we'd love to see what people have done,
ME/LC in art... we'd love to see what people have done,
Ideas... Ideas... yadvashem.org/articles/generā¦
Ideas... Ideas... theguardian.com/cities/2019/feā¦
Sarah Weston RD pwLC/... @SarahWestonRD
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Flor š„ @lugaresxcomunes
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Renegade Research @RenegadeRes
3K Followers 3K Following Patient led nonprofit 501c3 on #MECFS & #LongCovid ā¢ https://t.co/Tv4Sb4yLzd š Runs project @remissionbiome ā¢ Donate ā¶ļø https://t.co/Qovzyu0mqp
Henry Ward @HenryAWard
24 Followers 1K Following MSc Artificial Intelligence @UniKent 2023 Also cares about going to Mars, šsaving the planet š and dropping the bass. šø
rachel's account for ... @autonomicrachel
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312 Followers 902 Following You need to look after the ones that treat you like you want to be treated, they're the good ones š
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Long Covid Advocacy ļæ½... @LongCovidAdvoc
14K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. šš Home to the #pedanticzebra book club. šļø https://t.co/8JlRWqxASF
Ciara Breen @kirrabrean
2K Followers 4K Following HSCP Lead with HSE Stroke Programme. OT passionate about improving services esp. Stroke & Long Covid. Occupational Therapy Owner @thebriclinic. Views my own
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772 Followers 1K Following Fellow @ICAEW and @OnPurposeUK | COO @TheFinanceLab | LC 04/22 | Views own | She/her | š±
Jo D š·š @JoD66
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Vaccine Injury Warrio... @VacInjWarrior
147 Followers 112 Following 27, UK. Brain fog and memory problems are ruining my life. We will get through this. I'll report my own personal findings. #VaccineInjured #LongVax
Margaret O'Hara @Know_HG
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Lucy Bailey @LucyBaileyUK
2K Followers 1K Following Long Covid 2020-2023 (seemingly recovered nowš¤š») Charity sector worker. Disability & mental health advocate. Yorkshire Woman of Achievement once upon a time
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1K Followers 781 Following #MECFS for almost a decade now. Hoping to connect with others & find a way out.
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171 Followers 426 Following Physical Therapist, disability advocate, cat mom, life has been f-ing ruined by long covid, dysautonomia and ME/CFS
š“ó §ó ¢ó ·ó ¬ļæ½... @MaryGR65
2K Followers 1K Following Covid then Long Covid from 3/2020 Retired Nov 21 #NotRecovered Mom to 1 son Supergran to 3 beautiful grandkids Owned by 4cats https://t.co/629EaAGDRA
zebra turtle @chronicmelonic
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496 Followers 3K Following Dre en psychologie organisationnelle. #EDSh #POTS #ME/CFS # MCAS, The pandemic is not over #CleanAir #MaskUp #StandWithUkraine #StopGenocideInGaza
Biff and Finn- Proud ... @BiffAndFinn
2K Followers 3K Following Adorable terrier! Learnt English & typing so I could tweet. BiffAndFinn on BlueSky. Proud Paddystinian šµšøš³ļøāā§ļø
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411 Followers 1K Following Navigating a post-Covid #MECFS relapse and watching sportsball
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SinƩad @spoonless_me
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Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
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74 Followers 67 Following Not a single event can awaken within us a stranger totally unknown to us. To live is to be slowly born.
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39 Followers 149 Following We are a volunteer driven #TechForGood org to help researchers & individuals decode invisible and functional illnesses. #LongCovid #MECFS
sunnyaunt @sunnyaunt
225 Followers 693 Following Remember that children, marriages, and flower gardens reflect the kind of care they get. H. Jackson Brown, Jr. Aka @yardfairy
Long Covid SOS @longc... @LongCovidSOS
27K Followers 1K Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation https://t.co/C4SrS4K6SW https://t.co/v7y3yvrEpf
Sarah Barley-McMullen... @SarahBarleyMc
3K Followers 3K Following Living my best life with bastard Long Covid! Team member @LCSOS Find me šš¼šš½@Sarahbarleymc.bsky.social
Ondine Sherwood š @selkieO
1K Followers 832 Following IT professional. Recent graduate @UCLSELCS MA PPE of Health. @HRA_latest REC member. Campaigning for rights of those with #LongCovid @LongCovidSOS
paddy monahan @paddy_monahan
241 Followers 124 Following Long COVID Patient | Founder @Circular_HQ ā Tools for navigating complex illnesses
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Colin Pidgeon SAME HA... @baldypidge
2K Followers 2K Following Above ground. Mostly upright. Ireland Cricket fan. Poet. Painter. #LongCovidAdvocate Professional member of the #NerdCircle. Views not those of my employer.
Oonagh Cousins @oonagh_cousins
3K Followers 967 Following Communications and Policy @visible_health | @long_covid | @ThereForME_UK Anti-Recovery Activist š
ASPH R&D @ASPH_RD
289 Followers 282 Following Research & Development Department for Ashford & St Peter's Hospitals NHS Foundation Trust šš
Caroline Lucas @CarolineLucas
591K Followers 7K Following MP for Brighton Pavilion 2010-2024; former leader & co-leader @TheGreenParty. Co-President of European Movement. Author, Another England. Mum of Theo & Isaac
Ciara Wright PhD, Pos... @CiaraGlenville
3K Followers 902 Following Nutritionist+Scientist - Positive Nutrition Clinics. Long Covid 2022 Remission/ Recovering with Enoxaparin & Lyme treatment 2025 š¤
Binita Kane @BinitaKane
30K Followers 4K Following #LongCovid interested Lung Doctor |[email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Dr Rae Duncan @Sunny_Rae1
13K Followers 2K Following Dr Rae Duncan MBChB,BSc(HONS), MSc,MD,FRCP, SCMR3,BSE TTE/TOE Accr. Consultant Cardiologist & Long Covid Researcher. #TeamClots #LongCovidKids #WHN.Views my own
Philippa_Perry @Philippa_Perry
119K Followers 2K Following Psychotherapist, writer, broadcaster, find me on substack. email: [email protected]
Prof Doug Kell CBE #F... @dbkell
14K Followers 10K Following I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice
WE&ME Foundation @weandmecfs
3K Followers 52 Following WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
Christoph Strƶck @cstroeckw
8K Followers 611 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed šš¼
M A Osborne @maosbot
30K Followers 1K Following I'm not here, I'm on bsky. Parent, spouse, Professor of Machine Learning @UniofOxford, Co-Founder Mind Foundry, Director @aims_oxford.
Dr David Berger BSc M... @YouAreLobbyLud
57K Followers 4K Following Activist doctor Emergency and rural generalist doctor š¦šŗ š¬š§ š©šŖ Scourge of the #BeKind lanyard classes. https://t.co/vQ6MWpPIhl for conflict of interest.
Simon Williams @drsimonwilliams
3K Followers 1K Following Behavioural scientist & public health researcher @swanseauniversity. Health writer, media commentator.
NHS Million @NHSMillion
752K Followers 13K Following Creating a team of a million people who are willing to fight for the NHS and its staff at this challenging time. Here to highlight key issues and boost morale.
Carole Bruce @CaroleBruce17
7K Followers 5K Following šArt, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Dr Claire Taylor @drclairetaylor
65K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientistš§ Long Covid kids champion|long Covid clinicš“ó §ó ¢ó ³ó £ó “ó æViews my own
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Prof Sheena Cruicksha... @sheencr
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Dr Ali G (š¦ @drali... @AlisonGeorge10
12K Followers 8K Following NHS Dr & DAUK GP Committee member #SaveGaza ššš #COVIDIsAirborne #StandWithUkraine #StopArmingIsrael #EuropeanAlways #Humanity
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415K Followers 3K Following Prof of Public Engagement in Science, Uni of Birmingham; anatomist, author, broadcaster; vice President of Humanists UK. All views my own.
Team Halo @projecthalo
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Stephen Griffin @SGriffin_Lab
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1K Followers 1K Following Associate Professor of Neuroscience and Genetics @BMRC_News Theme Lead for Living Well with Chronic Disease @SHU_AWRC
Resia Pretorius @resiapretorius
28K Followers 259 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Dr Asad Khan FRCP FRA... @doctorasadkhan
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Gez Medinger @gezmedinger
19K Followers 701 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Alice Ella @alice_ella_
2K Followers 659 Following #Singer #Songwriter #spoonie āØ https://t.co/cIkAi3qjCi āØ Instagram: https://t.co/JK09n6cdAZ āØ YouTube: https://t.co/NjLGmK0zpJ āØ
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105 Followers 92 Following Theoretical Physics/Mech. Eng/Software Engineer #LongCovid #DeSci
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) āæļø https://t.co/YeMrEWwEg5
Christine Goldschmidt @artandsoles_co
1K Followers 929 Following š©š»āšØš¦Artist and Illustrator. #LongCovid survivor; Hyperbaric Oxygen and pacing helped. šmy Etsy shop for maps about #LongCovid. šā¬ļø
Isabel Burnett | Rene... @IsabelRamirezRD
4K Followers 2K Following CEO & founding member Renegade Research, Co-founder Renegade Medical Coaching, Director Remissionbiome Decentralized, human-centered research. #MECFS #longcovid
Jennifer Breaš¦ @jenbrea
37K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
COVID-19 Longhauler A... @C19LH_Advocacy
9K Followers 8K Following C19LAP is a patient-led, volunteer C3 organization serving the #LongCOVID community through education, resource development, cross-sector collaboration, & more.
Nadia Whittome MP @NadiaWhittomeMP
120K Followers 2K Following Labour MP for Nottingham East ā¢ Nottingham born and bred ā¢ she/her š¹š¹š³ļøāš
Emma, thechronicsurvi... @chronicsurv1vor
56K Followers 43K Following Aspiring Author āš¼š |Singer/Actress, Trainee Therapist on hold due to #MECFS āæļø for 6 years | #POTS / #ISTāØSpiritual Awakening. Lessons from the void. š
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
šøļøDr.T, PhD @chydorina
16K Followers 5K Following PhD in Biology (not an MD). Cognitive health and chronic disease recovery.Trends for United States
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